ONVERGETELIJKUNFORGETTABLEMuseum tours for people with dementia & their caretakers

CONTENT

• Introduction• Presentation• Brainstorm• Conclusion

INTRODUCTION

INTRODUCTION

Expected growth in the number of people with dementia:*

NUMBERS

2014 2050

WORLDWIDE 44 million 135 million

EUROPE 11 million 20,7 million

DEMENTIA

*World Alzheimer Report, 2014

• grocery shopping• managing money• using the public transport• cooking• social contacts• orientation• communication• housekeeping activities• self-care• …

DEMENTIA

CONSEQUENCES DAILY LIFEPeople with dementia have problems with:

Disruptions in psychological functioning and behaviour.

• depression• anxiety• aggressive behaviour• rebellious behaviour• agitation• wandering• suspicion• delusions• hallucinations

biological,

psychological,

social factors

stress

CONSEQUENCES DEMENTIA

DEMENTIA

DEALING WITH

DEMENTIA

DEMENTIA

• Feel comfortable

• Enjoy self

• Enjoy environment

• Develop and maintain social contacts

• Feel at home and attached to the environment

• Receive adequate treatment and care in case of illness

• Feel accepted and integrated into society

• Feel safe while maintaining sufficient privacy

• Keep health in good condition

• Give personal meaning to spirituality

• Experience freedom and self-determination

• Feel useful

• Get around financially *Dröes et al., 2006

QUALITY OF LIFE

DEMENTIA

• Movement Positive effect on condition, cognition, mood, social functioning

• Cognitive stimulation therapyPositive effect on cognition and quality of life

WHAT CAN YOU DO?

DEMENTIA

• Art Positive effect on mood, self confidence, communication, social functioning

WHAT CAN YOU DO?

DEMENTIA

*(Marr, 1995; Kahn-Denis, 1997; Johnson & Sullivan-Marx, 2006; Hanneman, 2006

Moody & Phinney, 2012; Arts 4 Dementia, 2013; Phinney et al, 2014)

UNFORGETTABLE

PROGRAM

• Interactive museum tours & workshops for individuals with dementia and their caregivers

• Based on the Meet Me at MoMA- program developed by the Museum of Modern Art (MoMA), New York

MEET ME AT MOMA

PROGRAM

Since 2006 Meet Me at MoMA, a monthly program for individuals with dementia and their caregivers.

• Activity for both the individual with dementia and their caregiver• Look beyond the disease; focus on what people are still capable of• Emphasis on having fun• Social aspect; friendships arise

PROGRAM

WHAT APPEALED TO US?

TRAINING STEDELIJK AND VAN ABBE

• Every month; set time and day• 1,5 hours• 4 à 5 artworks per tour• Theme• Tourguide and volunteer• Nametags• Stools to sit on• Take-home card with artwork from the tour

TOUR

What kind of woman is this? (without telling who it is yet)

Which words would you use to describe this person?

What do the colors tell us?

What is the person on the picture thinking of?

What does she express with her hands?

Would you want to be her?

What would your portret look like?

Observe

Describe

Interpret

Connect

Summarize

ARTIST WORKSHOPS

"The Unforgettable program is something we always look forward to and both really enjoy. We come almost every month! The guides and volunteers at the museum treat the people with dementia with great respect and simultaneously involve the caregivers in the tour.”

Frans en Lies de Vos

REACTIONS

REACTIONS

"Last week we participated in the Unforgettable program with a group of our residents and their caregivers. I received such enthusiastic reactions from all the people who participated. Family members were very impressed with the responsiveness of their loved ones and it was indeed very nice to see what a beautiful conversations arose. "Ellen van Breemen Teammanager Zorg, Klaasje Zevenster, Brentano, Amstelveen

REACTIONS

EXPANSION

• 3 years, 10 museums• National coverage• 2/3 months employee for training and

implementation of the program• Publication and website• Research

EXPANSION

RESEARCH VU MEDICAL CENTREDEPARTMENT OF PSYCHIATRY

RESEARCH

• Iris Hendriks, LL.M• Prof. dr. Rose-Marie

Dröes• Dr. Franka Meiland

Both• More cheerful mood• Increased social support• Increased confidence

Caregiver• Less emotional problems

By visiting a museum, people get inspired to do other activities together.

(37 people with dementia en 37 carers)

EFFECT RESEARCH MoMA

RESEARCH

Research questions

National Implementation of the Alzheimer program in Dutch museums

RESEARCH PROJECT UNFORGETTABLE

RESEARCH

1. What is the impact of the Alzheimer program on the participants, stakeholders, the museum as organization and the society?

How do the participants value and experience and the guided tours?

– Does it matter which art is exhibited?

– What impact does the program have on the museum employees?

– Does the program lead to other initiatives for other groups of people?

Research questions

National Implementation of the Alzheimer program in Dutch museums

RESEARCH PROJECT UNFORGETTABLE

RESEARCH

2. How can we implement the program successfully in (other) museums?

- Facilitating and impeding factors of implementation, with regard to:

a) the execution of the guided tours (micro-level)

b) the museum as organisation and cooperation with other organisations (meso-level)c) laws and regulations (macro-level)

- What could be effective solutions for impeding factors?

EXPECTED OUTCOMES

• Expected outcomes:

– Insight in the experience, impact and implementation of the Unforgettable program

– Practical guide for setting up the Unforgettable program in other museums in The Netherlands

– Scientific-, professional and public publications

RESEARCH

• Duration research: February 2014- February 2017

BRAINSTORM

BRAINSTORM

BRAINSTORM1. Write down the factors that obstruct and promote the implementation of the art and elderly projects you are involved with.

obstruct promote

BRAINSTORM

BRAINSTORM2. Write down possible solutions for the obstructing factors.

solutions

BRAINSTORM

CONCLUSION

CONCLUSION

The main funder of the implementation project and the research is the Gieskes Strijbis Fund.

The implementation of the Alzheimer program in the Stedelijk Museum and in the Van Abbemuseum is financially supported by the RCOAK Foundation and the Sluyterman van Loo Fund.

SHARING = CARING!