Living well through data

Post on 17-May-2015

949 views 1 download

Tags:

description

Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012

Transcript of Living well through data

living well through data@wilbanks

http://del-fi.org

1. doppler shifts.

“sound is higher in pitch when it is approaching than when it is receding”

incremental advances will not suffice

“sound is higher in pitch when it is approaching than when it is receding”

“sound is higher in pitch when it is approaching than when it is receding”...is the sound of the medical

system screaming.

2. health is not like other data.

?:>,mnbjm;./’“}p[;loikl;’]

\]=0-98ertdfl,;’

using this level of consent, we can...

“savvy single”

“we can do this for health!”

“quantified self”

“can i have my data?”

“can i have my data?”

if you don’t fix this, someone will.

noted for accurate representations of technology in law!

the privacy community is watching you.

3. what you need to do.

a. honesty

b. participants get a usable copy.

rdf:about=WhoWhatWhenWhereWhy

c. informed consent

10 minute investment.

if you scale...

honesty, reusability, portability, and consent will change a clinical

outcome.

whether it’s for the better or the worse is

up to you.

thank you