Living well through data

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living well through data @wilbanks http://del-fi.org

description

Slides on privacy given at "Living Well Through Data" - Mt Sinai Medical Center, NYC, 10/2/2012

Transcript of Living well through data

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living well through data@wilbanks

http://del-fi.org

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1. doppler shifts.

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“sound is higher in pitch when it is approaching than when it is receding”

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incremental advances will not suffice

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“sound is higher in pitch when it is approaching than when it is receding”

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“sound is higher in pitch when it is approaching than when it is receding”...is the sound of the medical

system screaming.

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2. health is not like other data.

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?:>,mnbjm;./’“}p[;loikl;’]

\]=0-98ertdfl,;’

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using this level of consent, we can...

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“savvy single”

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“we can do this for health!”

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“quantified self”

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“can i have my data?”

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“can i have my data?”

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if you don’t fix this, someone will.

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noted for accurate representations of technology in law!

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the privacy community is watching you.

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3. what you need to do.

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a. honesty

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b. participants get a usable copy.

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rdf:about=WhoWhatWhenWhereWhy

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c. informed consent

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10 minute investment.

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if you scale...

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honesty, reusability, portability, and consent will change a clinical

outcome.

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whether it’s for the better or the worse is

up to you.

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thank you