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PowerPoint Presentation*
Directors Road show 2012
Building for our future
We have launched our new brand
We are celebrating 20 years of making a difference
And we are half way through our 2010-2015 strategy
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What this talk covers
Contracted services update
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2010 to 2015
Trustees and Directors met in September to review progress
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Background
Our charity – the Stroke Association - is not about just “surviving” year to year
Stroke is a big cause and a big responsibility
Our aim is nothing less than making a fundamental contribution to lessening human misery
*
The story so far…
The truth was we weren’t of sufficient weight
We needed to grow, to increase our capability
Stroke Helpline 0303 3033 100 stroke.org.uk
Establishing stroke as a major health concern and developing our infrastructure
First phase
Established stroke as a major health priority
Established fundraising growth: better infrastructure, a major donor team, donor cultivation, legacy marketing, charity of the year capability, better data about our doors and potential donors.
Established ourselves as UK wide
Established greater public awareness of stroke
Established more service contracts
Established better relationships with stakeholders
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Establishing the Stroke Association as a major charity player
Second phase
2015 onwards
Second Phase
Established the Stroke Association as a ”major” charity player: with increased influence, a solid constituency of stakeholders, quality assurance and a stable financial basis
Continued to push growth in fundraising and improved our infrastructure
Built on public awareness of stroke to make sure people understood stroke and the necessity of more and better services and treatments
*
Consolidation and growth
2015 onwards
Third Phase
We need to consolidate the Stroke Association as a ”major” charity player and brand
We need to bring in enough income to meet all of our infrastructure expectations, and want to create substantial surpluses for research and enhanced services. (£50m mark?
We want to engage with the public to demonstrate success in research, service improvement and treatments and to accelerate giving as a result
*
Our current strategy
Written before change in Government, and dramatic changes in Health, Welfare Benefits, and Social Care policies and structures
Written with assumptions on donor behaviours following previous trends
Did not factor in the impact of our new brand
Agreed more prioritisation to prevention work
Key driver to continue growth and improvement curve
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What has been achieved…
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Prevention
Know Your Blood Pressure reaches 30,000 people a year
We refer over 4,000 people a year for follow up with their GP
50% of people know that high blood pressure is the biggest risk factor for stroke, and awareness of high blood pressure far outweighs other risk factors
Partnerships with Rotary, St Andrew’s First Aid, Ambulance trusts, Change4life
Events organised by staff and through our partnerships (with Rotary, St Andrew’s First Aid and the Ambulance Trust) enable us to reach a wide audience with the message of high blood pressure and stroke.
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Research
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Research
UK Stroke Forum going strong with 1382 Delegates at the 6th Conference in 2011
Expanded UK Stroke Forum activities to include an annual Northern Ireland conference in collaboration with ACPIN
Performing the role of hosting the endorsement programme for the Stroke Specific Educational Framework from Department of Health
Secured funding from Skills for Care to become an accredited provider of QCF training in Stroke Awareness.
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Services
£12.3m Contract income from Health and Social Care
586 staff of whom 211 full time and the majority are professionally qualified in health or social care
2,791 volunteers of whom 13% are stroke survivors
25% clients of working age and 7% BME
340 Commissioned Services – up from 300 in 2010
289 contracts – up from 250 in 2010
£12.3m (£11m) Contract income from Health and Social Care – up from £11m in 2010
586 staff of whom 211 full time and the majority are professionally qualified in health or social care – up from 500 in 2010
2,791 volunteers of whom 13% are stroke survivors – up from 2530
25% clients of working age and 7% BME
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Services
Moved helpline team from London to Bromsgrove
Formed Children’s Committee, and secured funding for pilot children and stroke service development in London
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Infrastructure
Increased accommodation away from London with Bromsgrove and Cardiff
Integration of datasets across organisation nearly complete, providing platform for marketing analytics
First Capital Appeal success: the Life After Stroke Centre fundraising appeal exceeded target by 11%
We now have more than 2000 legacy pledgers
Quality goals being achieved
But also…
A hugely successful Action on Stroke Month (thanks to you for your participation)
Our new brand, website, intranet, and ever increasing social media activity
Doubling of the number of campaign supporters in the last year alone
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What has changed…
Financial changes
UK-wide cuts in health and social care funding
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Political changes
Increased nationalism in devolved nations
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Organisation changes
Where are we now…
Opportunities
New brand is proving its potential to attract more people and companies to us
Recession has, at least, had positive impact on ease of quality recruitment
New services developments: Stroke Companion; 6 month,12 month reviews
Recession creating more partnership opportunities
Getting closer to large Charity of the Year win
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Threats and Weaknesses
Some small scale competition for contracts
“Tesco-isation” of voluntary sector continues, making it harder to get profile
Concerns about de-prioritisation of stroke due to knowledge deficit in new structures and closure of stroke networks
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Stroke Helpline 0303 3033 100 stroke.org.uk
The cuts of £1.8 million last year have tested and restricted our abilities as an organisation
The volunteer support infrastructure we want and need is not in place
Staff training budget very restrained, despite new demands as we gain new services
Threats and Weaknesses
Stroke Helpline 0303 3033 100 stroke.org.uk
No cost of living or increment pay rises for two years; threat of losing good staff increasing
Graduate recruitment programme closed down
Business development possibilities suspended
Threats and Weaknesses
Shared understandings
Next few years about sustainability and consolidation, meeting need for £1million extra net per annum
Need to become more market able, capable of effectively reaching and relating to key audiences/customers, and conversion to supporters
Beyond incremental growth is needed in fundraising, this will need support from communications to happen
This review is about building on and adjusting in the light of circumstances the 2010 to 2015 strategy document, not a complete rewrite
Next few years about sustainability and consolidation, meeting need for £1million extra net per annum just to stand still
Need to become more market able, capable of effectively reaching and relating to key audiences/customers, and conversion to supporters
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Our structures
We need to look at our structures to make sure we can overcome threats and weaknesses…
We need to better understand and meet the needs of our audiences…
…So we will be redirecting resources and investing in better data analysis and audience insight and in our marketing
We need to look at our structures to make sure we can overcome threats and weaknesses
We need to better understand and meet the needs of our audiences – our beneficiaries, our volunteers, our campaign supporters, our donors and, crucially, our potential donors
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Our structures
We will move our Business Support team to be part of the CEO’s office
Our Partnerships team will move into Communications
We are shifting the emphasis of our Regional Fundraising team by making all of our events activity come under one team and by promoting much more community fundraising
We will move our business support team to be part of the CEO’s office
- This will help us to drive improvements across the Stroke Association and to improve our planning
Our Partnerships team will move into Communications
`– so we can really develop our work with stroke survivors, stroke clubs and other partners and so that work can improve our external communications
And we want to shift the emphasis of our regional fundraising
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Our 20 year impact on stroke research
But let’s move away from strategy to look at the impact we have had with our research over the last twenty years…
20 Years of Stroke Association Research Funding
Between 1991 and 2011, the Stroke Association awarded more than £40million to support vital stroke research.
This research has had a big impact on our understanding of stroke, on the way stroke is treated in the UK, and ultimately on the lives of stroke survivors and their families.
Our funding has provided a lifeline for stroke researchers and clinicians at a time when funding for stroke research was notoriously low.
Our priority has been to fund clinical research that makes the maximum possible difference to the lives of people affected by stroke.
Stroke Helpline 0303 3033 100 stroke.org.uk
Between 1991 and 2011, the Stroke Association awarded more than £28 million as project and project grants addressing issues all along the care pathway for stroke.
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Our prevention research
one in ten people who experience a TIA will go on to have a major stroke within a week
treating TIA patients in an emergency TIA clinic can prevent 80% of them going on to have a major stroke
the ABCD score to help doctors predict who is most at risk of a major stroke after a TIA
improved the quality of carotid artery surgery to prevent more strokes
shown that one in ten people who experience a ‘transient ischaemic attack (TIA)’ will go on to have a major stroke within a week
shown that treating TIA patients in an emergency TIA clinic can prevent 80% of them going on to have a major stroke within 3 months
developed the ABCD score to help doctors predict who is most at risk of a major stroke after experiencing a TIA
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Our research has saved lives
paramedics can use the FAST test to accurately identify stroke patients
evidence shows that stroke units save lives
more widespread use of thrombolytic drugs to dissolve blood clots
giving aspirin immediately after stroke can prevent a second stroke
We’ve shown that paramedics can use the FAST test to accurately identify stroke patients. This research formed the basis of the FAST stroke recognition campaign.
We’ve contributed to the evidence to show that stroke units save lives (Nottingham Stroke Unit study).
We’ve promoted the more widespread use of thrombolytic drugs to dissolve blood clots during an ischaemic stroke (International Stroke Trial-3 feasibility study).
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‘early supported discharge’ so survivors can leave hospital earlier
increase in occupational therapy available to stroke survivors
Functional Electrical Stimulation (FES) to improve hand and arm function in stroke survivors with arm paralysis
developed a programme of ‘early supported discharge’ so that stroke survivors can leave hospital earlier after their stroke
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improved our understanding and consideration of communication difficulties
led to new speech and language therapies
Our rehabilitation research has improved lives
web-based tool to improve reading for those with loss of vision in one eye (Read-Right)
screening tool to better identify stroke survivors with psychological problems (BCoS screen)
Our rehabilitation research has:
improved our understanding and consideration of communication difficulties after stroke
led to new speech and language therapies for patients with communication difficulties
developed a web-based tool to improve reading in stroke survivors with loss of vision in one eye (Read-Right)
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Research Capacity Building
3 Clinical Research Fellowships:

Between 1991 and 2011, we awarded more than £12million to build stroke research capacity
Awarded 30 Clinical Fellowships to talented doctors to become stroke specialists, many of whom are now leading stroke units and services
around the country or are actively involved in clinical stroke research.
Awarded 46 Junior Research Fellowships/Bursaries to allied health professionals to study for a PhD and embark on a career in stroke research.
Awarded 5 Senior Research Fellowships to allied health professional to built up their own stroke research group.
Awarded 3 Clinical Research Fellowships in collaboration with the Medical Research Council to allow doctors to pursue a career in stroke research and develop a research group.
New for 2012: Princess Margaret Research Development Fellowships
Flexible award for supervisors to build research capacity.
“When I started, in 1992, stroke was an area of research that the Medical Research Council would barely entertain. In the early 1990s only three people [in the UK] were interested in stroke; about seven years later nearly 100 people were training to be stroke physicians and now 20 years later we have the NIHR Stroke Research Network and all the major research funders investing in stroke.”
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Contracted Services Update
Plans to rapidly grow services by 2015 have had to be re-thought
No growth next year, then gradual return to growth the year after and continuing slowly
Unless a new service type were to “take off” again
Stroke Helpline 0303 3033 100 stroke.org.uk
Context
NHS in England to save £20bn
Cuts to LA funding of 28%
So far, we have suffered the loss of some services, and valued colleagues, and had some with reduced funding…
…But we have made gains too
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Looking forward
Recent count, 5 out of every 6 services have contracts with end dates of next March or earlier…
…But we expect the vast majority to be renewed
Immediate future
Recent count, 5 out of every 6 services have contracts with end dates of next March or earlier
But we expect the vast majority to be renewed
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Commissioners as customers
Social Services (1/3 of our contracts) no change, we continue to argue our case – and it’s a good case
NHS Commissioning Managers, those who manage our contracts remain unchanged
GPs will be making many decisions, working in Clinical Commissioning Groups (CCGs)
Social Services (1/3 of our contracts) no change, we continue to argue our case – and it’s a good case
NHS Commissioning Managers, those who manage our contracts remain unchanged
GPs will be making many decisions, working in Clinical Commissioning Groups (CCGs)
Many influencers too!
CCGs: what do we know?
Like many, we know relatively little
We have interviewed just under 1 in 10 across the summer
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We have a strong case…
We meet mainstream policy e.g. 6/12 reviews, supporting self management, control through information
In every service we can demonstrate outstanding outcomes
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And we have a lot of work to do…
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And we continue to develop new services.
Piloting services that help “transfer of care” (discharge) and prevent readmission
Self-management support, including new technology
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*
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Pay attention!
Stroke Helpline 0303 3033 100 stroke.org.uk
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Stroke Helpline 0303 3033 100 stroke.org.uk
“Please indicate which types of charities you have given money to in the last 3 months, and which you have volunteered for.” Prompted
Base: 1,000 adults 16+, Britain.
Source: Charity Awareness Monitor, Nov 2011, nfpSynergy
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Stroke Helpline 0303 3033 100 stroke.org.uk
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Stroke Helpline 0303 3033 100 stroke.org.uk
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Stroke Helpline 0303 3033 100 stroke.org.uk
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Stroke Helpline 0303 3033 100 stroke.org.uk
“Please can you name the first charity, voluntary organisation or pressure group that comes to mind” / “And which other charities, voluntary organisations, pressure groups can you think of?”
1% of people name Stroke Association as a charity working in the health field ie c 500,000 people.
Base: 1,000 adults 16+, Britain
Source: Charity Awareness Monitor, May 12 (Online), nfpSynergy
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Stroke Helpline 0303 3033 100 stroke.org.uk
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Tastes, preferences and passions,
Personal and Professional backgrounds,
“Close to my heart”
CGAP report (2010) “How Donors choose Charities”
“Things that happen to appeal to me”
This is demonstrated by sector-wide evidence
Stroke Helpline 0303 3033 100 stroke.org.uk
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And by what we know about people who
do events for us
Stroke Helpline 0303 3033 100 stroke.org.uk
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Q= What is your link to stroke?**
**this was a survey monkey (online) survey, 3 quarters of respondents were over the age of 46
And by what people who donate to us tell us
Stroke Helpline 0303 3033 100 stroke.org.uk
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*
*
Stroke Helpline 0303 3033 100 stroke.org.uk
Therefore, targeting those with an affinity to the cause is not just important for us, it’s essential!!
Stroke Helpline 0303 3033 100 stroke.org.uk
So…
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Stroke Helpline 0303 3033 100 stroke.org.uk
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But what is the size of this market?
…I hear you ask

Well. Lets look at an example from another charity – Macmillan Cancer Support.
Long held up as a good example of a successfully function organisation, a successful brand and mature fundraising operation.
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…There was a network of 17 people that were ‘touched’ in some way by the cancer the Macmillan beneficiary was experiencing.
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Change of reporting from caseload to new referrals
Now…. Lets apply the same logic to the Stroke Association.
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Stroke Helpline 0303 3033 100 stroke.org.uk
I’m sure you’re all familiar with your 35,000 times table, so you can do the sum…
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Stroke Helpline 0303 3033 100 stroke.org.uk
And imagine what that is over the next ten year period?
The answer?
A lot!
In a nutshell, that’s a lot of people that should be warm to us….
Stroke Helpline 0303 3033 100 stroke.org.uk
A huge amount!
A huge amount of people that should have a reason to support us
Stroke Helpline 0303 3033 100 stroke.org.uk
A gigantecimal amount!
A gigantecimal amount of people who should be choosing us above any other cause
Stroke Helpline 0303 3033 100 stroke.org.uk
A whopping great big number of people…
A whopping great big number of people that represents the size of the opportunity facing us.
Our challenge is to work out how best to get our messages to them and through them to others
Stroke Helpline 0303 3033 100 stroke.org.uk
True or false?
Stroke Association helps many thousands of stroke survivors and their families each and every year…
Survivors and their families feel grateful for the help they receive, and are likely to feel empathy with the situation of other people who will have strokes in the future…
Many stroke survivors and their families will already be charity-minded and actively give to or support other causes they care about…
Currently the Stroke Association helps many thousands of stroke survivors and their families each and every year.
We’ve already seen that’s TRUE – it’s currently at least 35,000 each year and you can double that figure if you take into account calls to the hotline for example
Survivors and their families feel grateful for the help they receive, and are likely to feel empathy with the situation of other people who will have strokes in the future.
We know that’s TRUE because, our latest collated national impact survey results showed that 87% of respondents said that they would recommend the Stroke Association’s services and we’ve already demonstrated that personal experience is more likely to result in support
Furthermore, many of them will already be charity-minded and actively give to or support other causes they care about.
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But…
Although many stroke survivors will go on to support us through volunteering, currently very few of them or their friends and family, following their experience of benefiting from our services, become active donors or supporters
Although many stroke survivors will go on to support us through volunteering, currently very few of them or their friends and family, following their experience of benefiting from our services, become active donors or supporters of the charity.
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Therefore
Help fundraisers to build strong, mutually beneficial relationships with their colleagues from other departments
Support all staff to help their colleagues, at appropriate times and in an appropriate way
Increase understanding of what voluntary income provides for the association and how we wouldn’t exist without it
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Our fundraising challenge
We need to tap this great potential to grow the number of people who regularly give us a donation
That…