Overcoming Legal Challenges to eHealth Clinical Data Access Confronting the Swedish Data Protection...
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Overcoming Legal Challenges to eHealth Clinical Data Access Confronting the Swedish Data Protection Board and the road to new national legislation B e n n y . E k l u n d @ l u l . s e
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Transcript of Overcoming Legal Challenges to eHealth Clinical Data Access Confronting the Swedish Data Protection...
Overcoming Legal Challenges to eHealthClinical Data Access
Confronting the Swedish Data Protection Board and the road
to new national legislation
Benny.E
Internet banking and Health Internet banking and Health Care in the same wayCare in the same way
Benny.E
A system that can be considered as analogous to
Internet banking, but for health care
Why haven’t such services been rolled out in large scale in the
health care?
1. The average age of patients are significant higher for patients compared with the most active bank customers.
2. Information about a bank customer’s bank account is much more structured compared to a medical record.
3. It has not earlier been available secure and cost effective solutions.
4. Banks are in a better position to charge their customers for those services
Med. Record, Hosp
Medical Record, GP
Drugs
Fees
Future Visits
Safe “e-mail” to GP
Change of GP
Transportation
Booking transp.
Encyclopedia, Drugs
Encyclopedia, Med.
Patients requests of future functions
Trying to answer questions like
• Which groups of patients benefits most?
• Which kind of services has the strongest demand?
• What kind of technical solutions are most suitable?
• What is the best layout and logic is best for the user?
Patient view on Health Care?
The medical professional must be a partner instead of someone who make all the decisions
Can patients understand?
Elderly can’t use Internet
Distribution of Age 0
.01
.02
.03
Den
sity
0 20 40 60 80 100Ålder
Histogram över användare av hälso- och sjukvårdskonto juli 2003
0.0
05.0
1.0
15.0
2D
ensi
ty
0 20 40 60 80 100Ålder
Histogram över listade personer oktober 2002
New legislation in Sweden 1:st July 2008
• Possible to interconnect different EHR:s
• Patients has the right to refuse
• Patients may block certain parts of the EHR
• Patient may directly access EHS via Internet
How many doctors can access your Medical Record?
1999: 2-4 Doctors
How many doctors can access your Medical Record?
2006:
1000 Doctors
How many doctors can access your Medical Record?
2011:
30.000 Doctors
Patient controlled access
A coming future!
Four possible statements:
Most possible access!
Keep it as it is!
I’m opening at the GP:s surgery!
I open up myself from home!
Why those efforts?
• Sooner or later there will be a demand
“People often overestimate what will happen in the next two years
and underestimate what will happen in ten.” Bill Gates
Balance
Medical Safety
vs
Privacy
Possible set of services:
• Book or rebook a visit• Pay a visiting fee• Examine the medical record• Put a question to their GP• Fill out a Health Declaration Form• Print out drug and lab list before an travel abroad• Change GP (when moving or similar)• Update phone number and name of close relative• Mask or block sensitive data• Track the referral
