Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the...

16
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central E Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY Péter Hegyi on behalf of the Hungarian Pancreatic Study Group Chair of HPSG SZEGED, HUNGARY INTRODUCTION

Transcript of Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the...

Page 1: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Péter Hegyi

on behalf ofthe Hungarian Pancreatic Study Group

Chair of HPSGSZEGED, HUNGARY

INTRODUCTION

Page 2: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

INTRODUCTION OF GENERAL REGISTRY

Péter Hegyi

on behalf ofthe Hungarian Pancreatic Study Group

Chair of HPSGSZEGED, HUNGARY

Page 3: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

GENERAL REGISTRY

ACUTE PANCREATITIS

CHRONIC PANCREATITIS

PANCREATIC CANCER

AUTOIMMUNE PANCRETITIS

CLINICAL DATA + BLOOD FOR GENETIC TESTING

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Page 4: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Single centre, small number of patients, retrospective and

insufficient data analyses

Page 5: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Single centre, small number of patients, retrospective and

insufficient data analyses

Page 6: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Single centre, small number of patients, retrospective and

insufficient data analyses

Page 7: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Single centre, small number of patients, retrospective and

insufficient data analyses

Page 8: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Single centre, small number of patients, retrospective and

insufficient data analyses

Page 9: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

What do we offer?

Page 10: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

The data belong to those who uploaded.

Investigators can seeonly there own data.

Nobody can see yourdata.

However, if you have an idea you write a page

summary and will circulateamong us.

Page 11: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

The data belong to those who uploaded.

Investigators can seeonly there own data.

Nobody can see yourdata.

However, if you have an idea you write a page

summary and will circulateamong us.

Prospectively collected data, multicentre collection,

high numbers

Page 12: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Prospectively collected data, multicentre collection,

high numbers

Single centre, small number of patients, retrospective and

insufficient data analyses

SAME AMOUNT OF

WORK

Page 13: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

GENETIC STUDIES

3 other studies are running…..

Page 14: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

GENERAL REGISTRY

LONGITUDINAL STUDIES

2015

2020

AP

AP

CP

CP-AP

CP-AP

PC

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

Page 15: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY

UNIFORM DATA COLLECTION IS

CRUCIAL!

Page 16: Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

Thank you for your attention!

THE HUNGARIAN PANCREATIC STUDY GROUPIS COMMITTED TO IMPROVING

THE LIVES OF PATIENTS SUFFERING FROM PANCREATIC DISEASES!

www.pancreas.huHungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport

4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups

INTRODUCTION OF GENERAL REGISTRY