SUMMER 2015 A SEASON OF HOPE

Issue 6

INSIDE:Hal’s Toast to Hope 08 / Laying a Foundation 10 / Evening of Hope 20 / Portrait of a Victorious Spirit 33 / Stickin’ It To ALS 40

Being A FatherRYAN MCGEARY’S STORYPAGE 24

It’s TimeWe Stop Calling It Lou Gehrig’s Disease.

IT’S TOO LIMITING. IT’S TOO OUTDATED. AND IT’S TOO POSITIVE.

The thing is, ALS is particularly cruel. It shuts down most every part of the body—

except the brain, which remains unscathed to ponder how such a brutal disease

can continue to be largely ignored and underfunded.

But this publication isn’t about that. As the name implies, it’s about hope.

Hope that anyone afflicted with ALS can find some peace and perspective

in the stories of others facing the same struggles.

Hope that family members can also take some comfort, knowing they’re not

the only ones dealing with the frustrations of the disease.

Hope that our donors and sponsors can see that their generous efforts

are not in vain.

Hope that those who are unfamiliar with ALS remain untouched,

but not uninformed.

And hope that one day, through research, we’ll turn the tables on ALS

so that no one will ever again have to endure its ravages.

Until then, we offer this HopeLine of support.

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ALS — An Overview, It’s Time 02

Table Of Contents 03

Board Of Directors/Staff Listing 04

Letter From Director 05

Upcoming Events 06

Research Updates 10

Care Services Update 16

Support Groups & Meetings 17

Cover Story 24

In Our Community 36

Contributions & Memorials 44

In Memoriams 46

WHERE TO FIND US:

alsawi.org

vsals.org

Facebook.com/ALSAWisconsin

Twitter.com/ALSAWisconsin

YouTube.com/User/ALSAWisconsin

Evening of HopePAGE 20

Stickin’ It To ALSPAGE 40

FEATURES

Table Of CONTENTS

HopeLine is published quarterly by The ALS Association Wisconsin Chapter 3333 N Mayfair Road, Suite 213 Wauwatosa, WI 53222P: 262.784.5257

Hal’s Toast to HopePAGE 08

BOARD/STAFF

Without the tireless efforts of those

listed here, there would be no HopeLine.

No ALS fundraising events. And no

unified effort to spread ALS awareness

throughout Wisconsin. We are immensely

thankful for the time, talents and passion

each selflessly puts toward the cause.

BOARD OF DIRECTORSThomas KettlerKathryn A. KeppelJoanne BlaesingJohn SchleicherBenjamin BeckerHolly BlakeMary Brennan DrumlLaura HinrichsenJan KaufmanMary Beth Schlecht

STAFFExecutive Director: Melanie Roach-BekosSpecial Events Manager: Susie ReedMarketing Coordinator: Natalie Jansky Director of Care Services: Lori Banker-HornerCare Services Coordinator: Robin StanczykCare Services Assistant: Janet GaugerCare Services Coordinator: Mary DeFrain-JonesCare Services Coordinator: Carolynne YounkCare Services Coordinator: Diane Fergot

LEADERSHIP TEAMLeslie BarbiScott BucherColleen DoughertyCurt DownesMary DrumlShannon EganJim EutizziDave HannekenBrad HicksRachel KoebelCandace LesakJoe LewisMeg McKenzie PalenAlison MurphyDan O’DonnellJim PalmerSigne RednerTim WendlerTeddi Zeman

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Executive Director: Melanie Roach-Bekos

Dear Friends, Thank you to all the attendees, sponsors and volunteers who helped make the 2015

Evening of Hope a record-breaking event, raising more than $380,000 for ALS research. It is your ongoing support that allows us to hope for aggressive treatment and an eventual cure for ALS. Twenty-two years of unwavering commitment to this event has raised awareness and, more importantly, much needed research dollars. Congratulations to Jan Kaufman, who received the Rebecca Bell-Barbi award for her endless devotion in fighting for a cure. I would also like to thank ALS National President Barb Newhouse for attending. Her leadership and vision have been instrumental in moving ALS to the forefront of the national health agenda.

On a more local note, I would like to acknowledge Green Bay Packers special safeties coach Darren Perry and safety Morgan Burnett not only for their appearances at the Evening of Hope (Morgan via Skype), but for their commitment to stand side-by-side with us in the fight against ALS. Darren’s sharing of his personal connection to ALS reminded us that we stand together in our support for loved ones combating this disease.

Again, a heartfelt thank you to the ever-growing community of ALS supporters who were involved with the Evening of Hope. This event serves to honor the courage and spirit of all those who have succumbed and those who continue to battle.

We are proud to share that we had our first ALS event with the Milwaukee Admirals, entitled Stickin’ It to ALS. We would like to

thank Jon Greenberg at the Admirals for his support and Scott Bucher and Traction Factory for keeping our message front and center leading up to and during the event. Traction Factory has worked tirelessly to make sure our ALS message is being heard throughout Wisconsin, and on a national level as well. Shout outs also to our partners Chasin’ Mason, MillerCoors, Levy Restaurants, Lamar Outdoor Advertising, FM 106.1, Sobelman’s, Pepsi and BMO Harris Bradley Center for helping bring Stickin’ It to ALS to life.

Thank you Kirk Topel and Carrie Schmidt from Hal’s Harley-Davidson, who worked so hard on hosting the April 18th Toast for Hope. The western theme was a huge hit, and all proceeds raised will certainly make a difference in the lives of patients and families affected by ALS.

Please note that May is ALS Awareness Month in Wisconsin. In addition, our Advocacy Chairs will be traveling to Washington, D.C. with delegates representing the Wisconsin Chapter, to assure that our voices continue to be heard. Our 2015 Walk season also kicks off in May, with the Janesville Walk to Defeat ALS on May 9th. Please begin talking to family, friends and neighbors about the upcoming Walk to Defeat ALS in your area. These events offer our best outreach opportunity to promote awareness and raise funds. Registration for all Wisconsin Walks is now open, and we encourage you to put together a team and register at: walktodefeatals.org

July 17th marks our 4th annual Chasin’ A Cure tailgate party. This private event will once again feature the edgy country music of Chasin’ Mason, a Sobelman’s burger, beer from MillerCoors, Jimmy Luv’s Bloody Marys, soda and a special event t-shirt. Plus a loge-level seat to the game. Tickets are now available at: alsawi.org. We hope you can join us.

Lastly, I would like to personally thank my colleague and friend Brad Hicks for sharing his eloquent words about fellow ALS Leadership team member, Trickett Wendler. His words convey the beauty and friendship we were lucky enough to have shared with Trickett.

Spring and summer herald new hope. Thank you for your continued dedication and wholehearted support.

Sincerely,

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2015 ALSA-WI EVENTS

ALS Care & Research SymposiumMay 2, 2015Sheraton Milwaukee Brookfield HotelJanet Gauger: janet@alsawi.org / 414.831.3984

Janesville Walk to Defeat ALSMay 9, 2015Lion’s Beach ParkNatalie Jansky: natalie@alsawi.org / 414.831.3993

A Celebration of Life Memorial ServiceJune 4, 2015 Cross of Life Lutheran Church20700 W. North Ave.Brookfield, WIJanet Gauger: janet@alsawi.org / 414.831.3984

Chasin’ A Cure TailgateJuly 17, 2015 Milwaukee Brewers, Miller Park Natalie Jansky: natalie@alsawi.org / 414.831.3993

Appleton Walk to Defeat ALSSeptember 19, 2015Appleton Memorial ParkNatalie Jansky: natalie@alsawi.org / 414.831.3993

Platteville Walk to Defeat ALSSeptember 26, 2015Mound View ParkNatalie Jansky: natalie@alsawi.org / 414.831.3993

Milwaukee Walk/Run to Defeat ALSOctober 11, 2015Greenfield ParkNatalie Jansky: natalie@alsawi.org / 414.831.3993

2015 COMMUNITY EVENTS

Koebel Open // May 30, 2015Meadowbrook Country ClubRachel Torgerson: rachelt00@yahoo.com / 414.688.5338

Waupaca ALS Ride // June 6Ted Mitchell / waupacaALSRide@gmail.com

Swan City Car Show // June 21, 2015Beaver DamAll make/model Car, Truck, and Motorcycle ShowAaron Guell: cheesewheelinc@gmail.com / 920.539.0767

ALS Motorcycle Run (UPS) // June 28Paul Woehrer / pwoehrer@ups.com

Day Fore Hope, Riverside Golf Course // July 18Jeremy DeLong / jeremydelong1@gmail.com

ALS Poker Run // August 15, 2015Straight 8 BarSandy Osterloh: sandyosterloh@yahoo.com

WAC Chips In // August 21, 2015Ironwood Golf CourseRandy Foss: rfoss@thewac.com / 414.427.6500

Ice Cream Ride for ALS // August 23, 2015BurlingtonDeb Heinzelmann: debheinzel3@gmail.com / 262.210.2568

Team Bernette Manitowoc Walk // August 29, 2015Manitowoc tinakocourek@gmail.com / 920.242.7298

Upcoming EVENTS

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HAL’S Toast to HOPEThe 13th Annual Toast to Hope was a wild time and a great success, thanks to Kirk, Carrie and the Hal’s Harley-Davidson staff. As well as all the generous volunteers, vendors and attendees. Thanks for dusting off those cowboy boots and throwing on some plaid.

The event raised funds to benefit ALS research and patients throughout the state. The Wisconsin Chapter and the families it serves are so grateful for Hal’s continued support. We can’t wait to Toast to Hope again next year.

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Date: February 2, 2015

Source: University of Wisconsin-Madison

Summary: A unique model for learning more about the role of human astrocytes has been published by researchers. The findings may lay a foundation for the treatment of a number of neurodegenerative diseases, including ALS (amyotrophic lateral sclerosis) and

debilitating spinal cord injuries.

This story starts in 1955, upon the death of Albert Einstein, when the pathologist charged with performing the famous scientist’s autopsy stole his brain.

Fast forward to the 1980s when a University of California, Berkeley scientist was studying parts of the stolen goods involved in complex thinking and discovered that the father of relativity had more of certain types of cells, called astrocytes, than other human brains studied.

Laying A Foundation For Treating ALS, Spinal Cord Injury(Reprinted from Science Daily)

Today, another 30 years later, scientists still don’t have a solid grasp on everything these cells do in the human nervous system, largely because they’re difficult to study. But Su-Chun Zhang, a professor of neuroscience and neurology at the University of Wisconsin-Madison Waisman Center, and his research team have published a unique model for learning more about the role of human astrocytes in the Journal of Clinical Investigation today.

The findings may lay a foundation for the treatment of a number of neurodegenerative diseases, including ALS (amyotrophic lateral sclerosis) and debilitating spinal cord injuries.

“We expect astrocytes may help neuronal survival and improve disease conditions in ALS and spinal cord injury,” says Zhang. “Both studies are now ongoing because of these findings.”

Astrocytes—so named because of their star shape—are thought to perform a number of important roles in the human brain and spinal cord, and in human health and disease. Animal studies show they are necessary for the development and maintenance of healthy neurons, proper nervous system signaling, and in the formation and maintenance of the crucial blood-brain barrier.

Defects in astrocyte function are associated with ALS and diseases like Rett syndrome, Alexander disease and Huntington’s disease.

“We know very little about human astrocytes, yet people think they are crucial in human health and disease,” says Zhang, also in the Departments of Neuroscience and Neurology at UW-Madison. “But studying astrocytes is very difficult.”

Research UPDATES

Su-Chun Zhang (center), a UW professor of neuroscience, talks

with staff in his lab as they prepare stem cell cultures in March

2013. Zhang’s new research may lay the foundation for treating

neurodegenerative diseases like ALS.

Credit: Jeff Miller

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This is especially true of studying human astrocytes in adults. Previous studies have used newborn mice, which provide a different biological environment for astrocytes, yet at least some of these neurodegenerative diseases, and many spinal cord injuries, occur in human adults.

Lead study author Hong Chen, a physician and scientist, transplanted immature human nervous system cells —generated from adult stem cells—into the spinal cords of mice. These cells matured into astrocytes.

The researchers checked in from time to time, and within nine months, found the astrocytes had traveled long distances along the mouse spinal cord, hugging the mouse neurons, connecting to blood vessels and joining with one another, just as mouse astrocytes do. They replaced the mouse astrocytes in the process, but did not affect the ability of the mice to function normally.

“It was shocking because how could that happen?” Zhang says. “Even I could not explain it. I joked that the human astrocytes are smarter.”

Zhang suspects what may actually be happening is the human astrocytes are out-dividing their smaller, mouse counterparts, developing in larger numbers and essentially “bullying” the mouse cells out.

The researchers repeated the experiments with astrocytes matured from human patients with ALS. The astrocytes replaced the mouse astrocytes, behaving just like those from non-ALS individuals, except they disrupted motor function in the mice, just like in ALS.

“They have problems with movement in their legs and were just beginning to show signs of neuron degeneration,” says Zhang. “It shows it’s not just a physical replacement, it’s really a functional integration with consequence.”

This is important to Zhang, who holds a medical degree and is driven to take the successes in the lab to human patients in the clinic.

“Because of my medicine background, I think about how stem cells can be utilized for medical purposes,” he says. “I really want to push hard to potentially treat spinal cord injury, and especially ALS. It’s so devastating, and after so long, there is still no treatment.”

EDITOR’S NOTE: The ALS Association – Wisconsin Chapter regularly funds ALS research projects at the Waisman Center, including earlier studies involving astrocytes conducted by Su-Chen Zhang. The study published in the Journal of Clinical Investigation may be found at: http://www.jci.org/articles/view/69097

Laying A Foundation For Treating ALS, Spinal Cord Injury

Continued

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Hello.It’s hard to believe that by the time you receive this issue we will be looking to the next half of 2015! There’s been so much to focus on in the world of ALS that time simply flies. When this happens, I believe we’re in jeopardy of concentrating on the next step, the next event or the next whatever—instead of focusing on the here and now or reflecting on what or who you’ve just experienced. It’s so easy to get caught up in that tornado of time and lose what’s important.

While I’m writing this column, I am about a week away from my 18th anniversary with The ALS Association Wisconsin Chapter. It’s amazing to me that 18 years have passed. My daughter was six months old when I started with the Chapter, and now she’s in college. My youngest son wasn’t even a sparkle in my eye.

I joined the Chapter in a part-time, 20 hour/week role with an Office Manager who also worked 20 hours/week. We constituted the Southeast Wisconsin Chapter and had approximately 75 active patients. I worked out of my home with just a PC and the old AOL “dial up” web connection. And definitely no cell phone, just a land line. Our Equipment Loan “program” was housed in a single car garage-sized rental space that overflowed to my garage. I was the pickup and delivery

person, along with one of our Board members. Our augmentative communication program included some very large, heavy monitors and towers (with software and wires coming from every which way), simple black and white keyboards with no scanning capability, and word boards. Rilutek/Riluzole had recently been approved. There were no ALS Association Certified Center Programs; however, there were some wonderful neurologists dedicated to ALS, as well as wonderful volunteers and Board members committed to the growth and service of the Chapter. Primarily, there were those living with ALS and their families.

I was given the opportunity to be with so many special individuals and families during this challenging time in their lives. You don’t have to push me very hard to start sharing my many wonderful memories of those people whom I remember so vividly.

Some of you reading this column right now know who you are or know of whom I am speaking. For instance, the husband with ALS who was extremely worried about his wife and wanted her to have her own support network. In 2005, he told me, “Lori, we need to do something, let’s get a caregiver group started.” And we did, the very next month.

Or the single, “tough on the outside” motorcycle rider, (who himself had ALS and was my right hand man in equipment loans), daring to tell the husband of a woman with bulbar ALS, “Sir, I wasn’t talking to you” after the husband attempted to speak for his wife. (Yet, that husband still acknowledges the incident with respect.)

The wonderful older woman who served as the primary caregiver during her adult son’s 14-year battle with ALS; a woman who was brutally honest in her sharing, making us laugh and cry at the support groups and reminding us how necessary it is to be candid about dealing with ALS.

There’s also the very special woman whose husband passed from ALS shortly after her family connected with the Chapter. And though that was several years ago, she still goes out of her way each and every month to bring special gift baskets for the caregiver group, because she simply wants to “give back.” I hope she knows how much that means.

Director of Care Services:Lori Banker-Horner & Team

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My point in sharing all of these examples is to recognize the many special individuals who have been and are part of this Chapter. Every single person has added to the strength and growth of this Chapter, be it in a small or large way. As they say, it takes a village… and our village continues to consist of:

» Our committed staff » Volunteer Board members » Clinic teams and specialists » Business partners who provide support for events and programs » The many volunteers who have helped through the years and continue to help in so many different ways (some of which have become staff members themselves, including Executive Director Melanie Roach-Bekos, Care Services Coordinators Robin Stanczyk and Diane Fergot, and Care Services Assistant Janet Gauger) » And, most importantly, all of our Chapter members and families.

The ALS Association Wisconsin Chapter is made up of passionate, caring, tenacious individuals who I know won’t give up until there is a treatment and a cure for ALS.

In the meantime, I thank you and look forward to continuing to learn from and walk with each and every one of you as we move closer to that goal.

Lori

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Agency for Toxic Substances and Disease RegistryDivision of Health Studies

Lou Gehrig TM licensed by the Rip Van Winkle Foundation:

www.LouGehrig.com

Facts about ALSMany people know ALS as Lou Gehrig’s disease, named after the famous baseball player who had to retire in 1939 because of it. ALS is a disease that causes nerve cells to stop working and die. This leads to muscle weakness, paralysis, and eventually death.

No one knows what causes most cases of ALS. Scientists may find that many factors together cause it.

What is the National ALS Registry?The National ALS Registry is a program to collect, manage, and analyze data about people with ALS. It is important to include as many people with the disease as possible to get the most accurate information.

Because learning more about ALS is an important step in the battle to defeat it, the Agency for Toxic Substances and Disease Registry (ATSDR) has developed this registry to gather information from people who are living with ALS. This information can help doctors and scientists learn more as they work toward a cure.

The goal of the registry is to gather information that can be used to

• estimatethenumberofnewcasesofALSeachyear,

• estimatethenumberofpeoplewhohaveALSata specificpointintime,

• betterunderstandwhogetsALSandwhatfactorsaffect thedisease,

• examinetheconnectionbetweenALSandothermotor neurondisordersthatcanbeconfusedwithALS, misdiagnosedasALS,andinsomecasesprogressto ALS,and

• improvecareforpeoplewithALS.

The National Amyotrophic Lateral Sclerosis (ALS) Registry

ToLearnMore,ortoRegister,Visit

www.cdc.gov/als

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Formoreinformation,pleasecontact:ATSDR

4770 Buford Hwy NE Atlanta, GA 30341Phone: (800) 232-4636

TTY: (888) 232-634824 Hours/Every Day

Email: cdcinfo@cdc.govwww.atsdr.cdc.gov

How does the National ALS Registry work?Information in the National Registry comes from two main sources: people living with ALS and existing national databases.

People living with ALS can visit www.cdc.gov/als to participate in the registry. They will be asked questions about things like their health, job, and family histories.

ATSDR is coordinating with the Centers for Medicare and Medicaid Services and the U.S. Department of Veterans Af-fairs to gather information from their databases.

Selected states and cities will also gather data about the number of people in their areas diagnosed with ALS. Data from these smaller scale projects will be used to evaluate the completeness and accuracy of the data in the National ALS Registry.

Whataboutprivacy?Registry information will be stored on a secure web portal. That means only certain ATSDR researchers will have access to the data as they are collected.

Doctors and scientists requesting registry data will not have access to information that would identify individual patients. Any information that is published about people in the registry will only be group information and will not identify you.

Whatcantheregistrydoforme?The main purpose of the registry is to gather information that can be used in the fight to defeat ALS. Even so, you can find important information at the registry website. Resources available through the registry include

•clinicaltrialsinformation,

•ALSclinicinformation,

•factsheets,

•reportsandjournalarticles,and

•continuingeducationcreditsforhealthprofessionals.

CS209157-A

Visit the Registry Website

www.cdc.gov/als

Care Services UPDATE

Date: Thursday, June 4, 2015Time: 7 – 9 pmLocation: Cross of Life Lutheran Church20700 West North Avenue Brookfield, Wisconsin 53045(between Springdale Road and Barker Road)

Doors will open at 6:30 pm. The service will begin at 7 pm with light refreshments to follow.

This is a special, non-denominational service to celebrate and honor the lives of those we have lost to ALS and recognize their family and friends.

We are honoring these special people in a slide show that will be played before and after the service. We would love to include a picture of your loved one. Please email pictures by May 25, 2015 to janet@alsawi.org or mail them to:

The ALS Association Wisconsin ChapterAttention: Janet Gauger3333 North Mayfair Road, Suite #213Wauwatosa, WI 53222 Please RSVP with the number attending to Janet Gauger at 414.831.3984 or janet@alsawi.org by May 25, 2015.

The ALS Association Wisconsin Chapter invites you to

“A CELEBRATION OF LIFE”TO HONOR THE MEMORY OF YOUR LOVED ONES.

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HERE’S THE LIST FOR OUR ALS CAREGIVER DINNER OUTINGS THROUGHOUT THE SUMMER. The group meets the fourth Thursday of each month at 7 pm. This is a special group for all individuals who currently are or have been in a caregiving role for a loved one, family member or friend with ALS. It is a chance to share with others, give and receive support, and obtain good information and tips in a very relaxed environment.

Please contact Robin Stanczyk at 262.402.8148 or robin@alsawi.org to RSVP for the dinner outing or for more information. We are looking forward to seeing you!

Thursday, May 28, 2015Quaker Steak & Lube4900 South Moorland Road, New Berlin, Wisconsin 53151262.754.9090

Thursday, June 25, 2015BRAVO! Cucina Italiana Brookfield Square95 North Moorland Road, Brookfield, Wisconsin 53005262.785.0858

Thursday, July 23, 2015La Fuente 9155 West Bluemound Road, Milwaukee, Wisconsin 53226414.771.9900

Thursday, August 27, 2015Saz’s State House Restaurant5539 West State Street, Milwaukee, Wisconsin 53208414.453.2410

ALS Caregiver DinnerGROUP MEETING LOCATIONS

Support Groups & MEETINGS

Support Groups & MEETINGS

*WISCONSIN ALSA CHAPTER SPONSOREDProvides support for people with ALS, their families, friends and caregivers.

*Milwaukee ALS Support GroupDate: Second Saturday of each monthTime: 11:00 am to 1:00 pmPlace: Froedtert Memorial HospitalConference Room NT 2209Address: 9200 West Wisconsin AvenueMilwaukee, WisconsinUse lot on the right of the main entrance off 92nd street. Handicapped parking lot is located on the South side of the hospital.Contact: Mary DeFrain-Jones at 414.831.3990 or email her at mary@alsawi.org

*Milwaukee ALS Caregivers Support GroupDate: Fourth Thursday of each monthTime: 7:00 pmPlace: Locations vary—locations are available on the alsawi.orgThis group meets monthly at area restaurants for support and to discuss issues related to caring for people with ALS.Contact: Robin Stanczyk at 414.831.3989 or email her at robin@alsawi.org

*Fox Valley ALS Support GroupDate: Third Tuesday of each monthTime: 6:30 pm to 8:00 pmPlace: All Saints Lutheran ChurchAddress: 1072 Honey Creek RoadOshkosh, WisconsinOne mile West of Highway 41Contact: Diane Fergot at 920.279.4449 or email her at diane@alsawi.org

*Central Wisconsin ALS Support GroupDate: Second Monday of each monthTime: 6:00 pm to 7:30 pmPlace: St. Luke’s ChurchAddress: 2011 10th Street SouthWisconsin Rapids, WisconsinContact: Deb Roberts at 715.886.5860 or email her at vegtales@wctc.net

*La Crosse Area ALS Support GroupDate: Second Saturday of each monthTime: 10:30 am to 12:30 pmPlace: Gundersen Lutheran HospitalPatient Education Room—1st Floor Main Clinic BuildingAddress: 1900 South AvenueLa Crosse, WisconsinContact: Connie Troyanek at 608.788.0670 or email her at cltroyanek@gmail.com

*Northeast Wisconsin ALS Support GroupDate: Second Wednesday of each monthTime: 6:00 pm to 8:00 pmPlace: Options for Independent LivingAddress: 555 Country Club RoadGreen Bay, WisconsinContact: Carolynne Younk at 920.288.7095 or email her at cyounk@alsawi.org

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ADDITIONAL SUPPORT GROUPS AND MEETINGS

Northwestern WI (Chippewa Falls) ALS Support GroupDate: Second Thursday of each monthTime: 1:00 pm to 3:00 pmPlace: Chippewa Valley Bible ChurchAddress: 531 E. South AvenueChippewa Falls, WisconsinProviding support for people with neurological diseases, families, friends and caregivers.Contact: Julie Chamberlain, LPN, at 715.271.7257 or email her at alsnwwi@gmail.com

Rockford Area ALS Support GroupDate: Fourth Saturday of each monthTime: 12:00 pm to 2:30 pmPlace: OSF St. Anthony Medical CenterAddress: 5666 E. State StreetRockford, IllinoisContact: Tony Cook at 312.257.5434

Milwaukee Ventilator Users Support GroupDate: First Tuesday of each monthTime: 6:30 pm to 8:00 pmPlace: St. Mary Hill Hospital, Long Term Respiratory UnitAddress: 2323 North Lake DriveMilwaukee, WisconsinProvides support for people on ventilators, their families, friends and caregivers in the Milwaukee area.Contact: 414.352.2185 or 414.963.9686

Milwaukee MDA Support GroupDate: Third Monday of each monthTime: 7:00 pm to 9:00 pmPlace: Froedtert Memorial Hospital Conference Rooms A and BAddress: 9200 West Wisconsin AvenueMilwaukee, WisconsinProvides support for people with neurological diseases, their families, friends and caregivers in Southeastern Wisconsin.Contact: 414.453.7600

Madison MDA/ALS Support GroupDate: Second Tuesday of each month Time: 12:30 pm to 2:00 pmPlace: Dean ClinicAddress: 700 S. Park StreetMadison, WisconsinGroup meets in Deli Room 1, next to Fit N Fresh, on the Lower LevelContact: Mary at 608.222.3269

Duluth-Superior Area ALS Support GroupDate: Fourth Tuesday of each monthTime: 1:00 pm to 2:30 pmPlace: First Street Clinic (Aurora Room)Address: 420 East First StreetDuluth, MinnesotaThird floor parking ramp on First Street, West side of building; Skyway to building on second level.This group breaks into two groups (PALS and families/friends/caregivers) on a quarterly basis or as requested. Refreshments are served. Contact: For questions or to RSVP call 218.786.5399

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2015Evening of HOPEThe Evening of Hope is a beautiful reason to get together to celebrate what we’ve achieved, and acknowledge what’s left to be done.

Thanks to everyone’s incredible generosity at the 2015 Evening of Hope, we raised $384,000 toward finding a cure for ALS. That brings the total dollars raised for the event to nearly $4 million.

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PLATINUM SPONSORSJohnson ControlsBacardi U.S.A., Inc.

DIAMOND SPONSORSBoesch Family & FriendsNicholas Family Foundation

GOLD SPONSORSThe Fox CompanyGimbel, Reilly, Guerin & Brown LLPHal’s Harley-Davidson

SILVER SPONSORSTerrence & Elizabeth CanningFroedtert & The Medical College Of WisconsinThe Gelatt Wannamaker FamilyNorthwestern Mutual FoundationPaul Davis Restoration & RemodelingDennis & Patty Terry

BRONZE SPONSORSAnthem Blue Cross Blue ShieldCentene Charitable Foundation Gene & Ruth Poser Foundation Time Warner Cable

FRIENDS SPONSORSBaker Tilly Virchow KrauseHolly BlakeJoan Brennan Cabaniss LawClinicareDomnick/Cerul FamiliesFiservMichael FitzgeraldDerek Goodman/The Law Offices of Jonathan GoodmanTed & Jaci Haakonson Habush, Habush & Rottier Merrill Lynch Wealth Management Frank & Anne Gimbel Stephen Hansen & Whitney Nichols, In loving memory of Stuart Nichols Pamela Isenberger Thomas KettlerJenifer & Judy Melton David MesickDaniel Minkel & Sonia Dumet-MinkelDale Rauwerdink David & Leslie Severance Team Powdered Sugar

THANK YOU SPONSORS

More sponsors?

The ALS Association Wisconsin Chapter’s 11th Annual ALS Care and Research Symposium was held on May 2, 2015. The Chapter welcomed Dr. Clive Svendsen of Cedars Sinai in Los Angeles, formerly of the Waisman Center at the University of Wisconsin at Madison, as the keynote speaker.

The Symposium is a truly informative educational event for our Chapter members. Due to press deadlines, a full recap of this wonderful day will be presented in the September issue of the HopeLine.

11TH ANNUAL ALS CARE AND RESEARCH SYMPOSIUM

Care Services UPDATE

Jake and his First Place award

Jake’sSchool ProjectSince her ALS diagnosis, Bernette Seiler has shown her family how to overcome adversity and make the best of any situation. She is her grandson’s biggest inspiration. Jake wanted to spread ALS awareness in his school, so he did his science fair project on ALS. He won first place, making his family incredibly proud. Thank you, Jake.

Bernette’s family is in the midst of planning their 2nd Annual Team Bernette Walk in Manitowoc on August 29. For more information, email Tina at tinakocourek@gmail.com.

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Ryan McGeary’s Story

Photos by Mark Brautigam | markbrautigam.net

By: Natalie Jansky

FatherBeing a

Holidays and special occasions remind us of what’s important. They shed light on things we want to say, should say or need

to say to those that we love – while we still can. One special day in particular celebrates one of the most important roles a man will ever assume, and that’s being a father. Once a person has children, new meanings of the words love, patience, sacrifice and perspective eclipse earlier understandings. And then becoming a parent living with ALS alters those understandings even more.

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Ryan McGeary, a 35-year-old father of three, is about to celebrate his second Father’s Day while living with ALS. He was diagnosed on June 10, 2014, but his symptoms started two years earlier when his left leg started limping.

“I would notice it when walking up or down stairs and tried not to think much of it,” said Ryan. “But it got to the point where I knew something had to be wrong.”

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The doctor told Ryan the limping was caused by cartilage, and prescribed medication he thought would help. And to a certain extent, Ryan thought it had. But when his leg gave out on him a few months later, causing him to fall face first to the ground, he scheduled another doctor’s appointment. The doctors he saw following his first visit were hopeful it wasn’t ALS.

But when Ryan started to fall more often, especially on the job at Yuhas Graphics, he decided to see a neurologist. After more doctors’ visits and tests, Ryan was officially diagnosed with ALS and forced to retire from the position he held at Yuhas for the previous 13 years.

“I had never even heard of ALS,” said his wife of six years, Trisha. But something she was familiar with was filling the role of a caregiver. Her sister has Cerebral Palsy, a congenital disorder of movement, muscle tone and posture. Trisha, along with her mother, Natalie, have been caring for her for more than 20 years.

“My sister can’t walk, talk or eat on her own,” said Trisha. “Wheelchairs, feeding tubes, orthotic devices and medication are things I’m extremely familiar with and not necessarily afraid of—nor are my kids.”

Though neither Trisha nor Natalie are nurses, they often feel like they are, and Ryan is grateful for how at ease they make him feel. “I fell into the right situation with this family,” Ryan said. What Trisha learned at 12 years old is what she hopes they can instill in 9-year-old Abram, 4-year-old Emma and 2-year-old Danny.

“I hope my disease teaches my kids how to be patient and understanding, and to put other peoples’ needs ahead of their own,” said Ryan. He also hopes that, as they get older, they don’t sweat the small stuff like he used to, and that they don’t take simple, day-to-day pleasures for granted.

“ALS has made me appreciate things that, at one point, I never thought twice about,” said Ryan. “When my kids tell me stories, I listen more intently than I used to. Even if it’s Danny telling me that the monsters under his bed stole his sippy cup.”

While Trisha and Ryan work to make things as normal as possible, they also strive to make every moment with their children special. They place extra importance in making the kids feel unconditionally loved—whether it’s simply making arts and crafts at the table, sitting in the backyard on a warm day, or making a point to say “I love you.”

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“The kids go with the flow,” said Ryan. Which is not surprising, since it’s a mindset that Ryan and Trisha are embracing more strongly than ever.

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“Ryan has always been a hands-on dad,” said Trisha. “He’s always there when they need him. Despite our situation, and the challenges we face, we still make the kids our priority and find ways to give them what they need.”

“The kids go with the flow,” said Ryan. Which is not surprising, since it’s a mindset that Ryan and Trisha are embracing more strongly than ever.

“We can no longer make plans far in advance or stay out as long as we used to,” says Trisha, “but that’s okay.” They do, however, plan to uphold a family tradition they started a few years ago—a summer camping trip.

Trisha will prepare burgers and shish kabobs, like she does every camping trip. The kids will swim in the water and try to catch a few fish. And Ryan will sit under the sun and let these moments soak in a little bit more profoundly than he used to.

And this year, on Father’s Day, his three kids will still see him as they always have—a go-with-the-flow guy who loves them unconditionally.

“I hope my disease teaches my kids how to be patient and understanding, and to put other peoples’ needs ahead of their own.”

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EVERY MOVEMENT HAS TO START SOMEWHERE.

OURS STARTS HERE.

VSALS.ORG

Beating a foe as imposing as ALS requires much more than an individual or local effort. It’s going to take all of us, working together, to continue raising funds and statewide awareness of ALS. So remember to share your relevant updates and photos with the #VSALS hashtag, check VSALS.org often, and encourage friends and family all across Wisconsin and beyond to do the same. Because the best chance to stop a disease that limits movement is to start a movement of our own.

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Dedicated to Stevie Wolter, who is blessed with the example of how to live above life’s challenges and disappointments.

My first impression of Barb Wolter was a picture of serene contentment gazing at me through big, soft green eyes, radiating a smile that lit up her small face. “Isn’t this a beautiful day? Did you see the turkeys come from across the street? I could watch them for hours sitting in the trees or flying for short distances,” Barb says before her friend, Carol Reiter, introduces us.

Her kind, soft spirit is a special blessing, but even more of a wonder is her helpful, appreciative attitude living in a body with the insidious killer — ALS. How remarkable the positive attitude that sees beauty everywhere as she lives with this monster that is taking her body but will never rob her of her amazing mind or spirit.

ALS is just the latest of many challenges Beth has faced in her life, beginning with a sexually abused childhood and troubled years growing up in a dysfunctional home. Suffering from anorexia nervosa, she went

blind in her left eye. While giving birth, she hemorrhaged and had what she describes as an out-of-body experience from so much blood loss. She also had to struggle through a disruptive marriage while raising her son, Steve. Later, when he was diagnosed with cancer, she feared she’d never be a grandmother. (Although she now has two granddaughters, Cassie, 6, and Kayla, 1.)

Despite being diagnosed with dyslexia, Barb was determined to become a nurse, and attended West Moraine Park Technical Institute to pursue a degree as a Registered Nurse. However, when it became too difficult to pursue due to her dyslexia, she had to settle for a Licensed Practical Nurse degree. No matter. She still became an outstanding caregiver, which her own personal doctor acknowledges. As does her friend Carol.

“She saved my life,” says Carol, “by persuading me to quit taking a prescription that could have proven fatal. And she’s always more concerned about other people than her own helpless condition. As they say, once a nurse, always a nurse.”

To further illustrate Barb’s special brand of caring, she’s made lasting friendships everywhere she’s worked in her 20 years as an LPN. She also moved to New Mexico during one stage of her career to care for her sister, who was dying of cancer. Upon returning to Wisconsin, she looked after her mother, who was afflicted with heart problems.

Barb herself was misdiagnosed with lung cancer four years ago, and had another death scare when doctors operated on a growth that proved to be non-cancerous. But it was the symptom of numb hands that signaled Barb’s current condition. Thinking it was pinched nerves, her doctors didn’t diagnose her ALS until an EMG test revealed it. Understandably angry about

PortraitBy Carol Reiter & Ellen S. Weber

Victorious Spirit

of a

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the diagnosis, Barb’s resentment soon turned to a feeling of calmness. This sense of peace actually materialized after her condition caused her to have an in-home accident that nearly killed her.

“While I was lying on the floor, I had a sudden feeling that God was with me, as he’s been through all the difficulties in my life,” says Barb. “It brought me into a place of peace. I only wish others could come to the same realization.” In fact, Barb remembers a traumatic time in her childhood when she talked to God, and the hope and comfort she received remains with her still.

“It’s hard for people with ALS to keep a positive attitude, but it’s so important to avoid complaining and try to see the good things,” advises Barb. Though she can no longer tackle home remodeling projects, plant trees and bushes, can bushels of fruit, or care for her cats, German Shepherd and skink lizard (yes, she’s also an animal lover) like she used to, she still exudes a positive attitude and an unshakable faith.

Carol and Barb’s most recent conversation was cut short when Barb was experiencing sciatic nerve pain from a nursing-related injury, which Carol describes as a “war wound from nursing.”

“It’s such a privilege knowing Barb and having the gift of her friendship,” Carol concludes. “It was my great fortune to have met this ‘war wounded’ ALS heroine with the victorious spirit, and I continue to pray that they find a cure for this insidious disease.”

“She saved my life,’... she’s always more concerned about other people than her own helpless condition. As they say, once a nurse, always a nurse.”

Continued

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In Our COMMUNITY

RIDE OVER

ALS

My name is Dave Sowden. I’m an Englishman living in Brookfield, WI. Seven years ago, my cousin Bobby was diagnosed with ALS. Over that time, I have watched the deterioration and damaging effects the disease has had not only on Bobby, but also on his wife and children. There is no worse feeling than standing on the sidelines, not knowing what to do! If I could cure ALS, then I would! But I’m not that smart.

So, instead, I’m going to tell Bobby’s story! I’m going to tell the stories of lots of people with ALS! In June, I will begin the “Ride Over ALS.” It’s a 1,400-mile, 15-day bicycle tour along the Mississippi River from New Orleans to Minneapolis, where Bobby and his family live. Along the way, I will be meeting people who have ALS and giving them the opportunity to tell their stories. Awareness is sometimes an overused word. But give ALS a face, a history and a story — and then suddenly awareness can be a powerful thing!

We are going to give them a voice and let them know they are not alone in this. As for me, I’m no one special. You won’t pick me out of a crowd, you won’t see me winning first place in anything. But I do have a friend with ALS and I’m tired of not knowing what to do! The tour begins on June 13th. You can follow the events and people involved on the Facebook page, Ride Over ALS, or contact me at rideoverals@yahoo.com.

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BANDINGTOGETHER

We offer a big thank you to the Dailey family and the entire Banding Together team, who raised awareness and funds in memory of Ken Dailey. He is missed dearly by everyone who knew him. Hundreds of rockers showed up to the Eclipse Center in Beloit to not only support the Daileys, but all families affected by the disease. Thank you for continuing to Band Together in Ken’s memory.

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OUR RACE TO A CURE NOW INCLUDES SOME OTHER NOTABLE RACES.Our Wisconsin Chapter is excited to announce our new 3-year partnership with the American Birkebeiner Ski Foundation. Located in Hayward, WI, it hosts some of the country’s premier skiing, running and bicycling races. (Including the largest cross country ski marathon in North America.) And as their exclusive non-profit sponsor, we’ll get exposure through their many popular events and communication vehicles. It’s an important part of the Chapter’s 2015–2016 Million Dollar Initiative to raise funds for Wisconsin ALS patients and to blaze new trails to a cure.

This poem was written by Brad Hicks in memory of Trickett Wendler. Trickett was a member of the ALS Leadership Team, represented the Wisconsin Chapter in Washington D.C. for National Advocacy, was selected by Team Gleason to take an adventurous trip with her family, participated in the Chapter’s fundraising events and spread as much ALS Awareness as she possibly could.

She was and will always be an inspiration to all.

TrickettTheWillow

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A big thank you to the Milwaukee Admirals, Chasin’ Mason, MillerCoors, Levy Restaurants, Pepsi, Lamar Outdoor Advertising, FM 106.1, Sobelman’s, Traction Factory, BMO Harris Bradley Center, and all the volunteers and attendees who made our inaugural Stickin’ It to ALS such a huge success. We look forward to a repeat sell-out at the 2nd Annual event next year.

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MEMORIALSMary BarbeeFrances AdamsAnne MyersNorrain PhelpsVictor BrownDavid FranstenSouthbrook Limited Liability PartnershipBonnie LitzCedarburg Basketball ClubWayne DrierSteve GoettelDonald HahnRite HiteSharon WarshRandall WilliamsRichard LodlLynn LodlRita MarnochaJeanne RotterJames MorazaCarol ManningKen OchallaKay CavanaughKathryn FlurkeyInternational Association Of Lions Club Omro ChapterJoy MastLaurence MinewRobert NugentMary Jo OchallaOmro Boy Scout Troop 623Larry ReeveDiane ReeveMark SchulerRene HordJola Ann SchwinnAndrea (Tisler) MuellerCarl MuellerClyde SundquistVolkswagen Group Of America Inc.Barbara TierneyJohann GrunerRichard WagnerRuth TislerAndrea (Tisler) MuellerCarl MuellerWilliam WeihmeirShirley BrownDonald SchankeHenry ZelinskiCarol Zelinski

THE BRIAN TRINASTIC GRANT PROGRAMDOUGLAS TURLEYFrances AdamsLaura Anders

Martha BagleySarah BobertMary CattleBeverly GillenDonald HaleSusan HeimarkPatricia JohnsonThomas KettlerLori KneerFrank KosAnn LangLori LarsonAnne MeyersVickie MillerTerri PelikanNorrain PhelpsPremier Legacy Wealth Mgmt, LLCProspect Management CompanyJay & Carole ScottNan StrandJudith ThieboldKimberly UngerElizabeth YaoMary Lou Zenoni

DONATIONSFrancisco AguilarSusan AlbertinAlliant Energy Foundation Inc.Shirley AllisonChris AllmannAmerican Defense Manufacturing, LLCRebecca AngleBarbara AntonopoulosKathleen ArenzAugust Winter & Sons, Inc.Stephanie BarhamJohn BarryEugene BassAndi BauerGreg BeaublenJoe BegganCliff & Kathy BellKatherine BellgrauBemis Company FoundationSiri and Lee BendtsenChristine BengtsonJerry BensonHeather BerkenConnie BetkerJessica BeyerGregory BirkettPaul BishopBlackRockGail BohacThe Boldt CompanyLisa BonsDeborah BowmanPatrick Brennan

Rebecca Bretza-KrumraiKris BrillDonna BrixiusDonald BroadstonElaine BrochtrupRebecca BrownBrenda BrueggemannKathy BuchmanAmy BudzynskiDominick BumbacoMichael BurleyRichard BurtonRobyn ButzlaffCaci, Inc.Marie CainCalifornia Pizza Kitchen, Inc.Patricia A. Callies-WarnerCalvary United Methodist ChurchAngela CanellosJames CarrollM. Helen CasperEd CatacutanJames CavanaughBenjamin ChecotaCheeseWheel, Inc.The City of Brookfield Public Employees Union-Local 20Maureen ClancyCNH IndustrialMark CohanRuth CopelandMichael CordesMike CordessAnne CrowleyCujak’s Wine Market, LLCCulver’s of NeenahKathleen CzachorDamascus Lodge No. 290 F. & A.M.Eva DavigTanya De VoreRobert DeckerDanielle DeGrootJudy DeimerMichael Del PontePatrick Del PonteLois DeweySandra DiPofiLynn DitterLisa DixonDonna DormanMarilyn DouglasCurt DownesMarian DoyleMarie DuaneBrian DuffyKathleen DutillyEarth Sense Energy Systems Inc.Betty EckartWilliam Edstrom TR

Susan EganJessica EhlersJoseph EichbergerWendy EilersNanette ElderElizabeth EllenbergerThomas EngelDave EricksonExelon FoundationExpera Specialty SolutionsEmma EykmansTeri FarinaThomas FasoloMarilyn FaustGena FelderRie FengCraig FergusJean FiedlerMichelle FigginsLowell FinkFirst Weber Group Foundation Inc.John FischerFiservSheila FishlowitzShawna FoersterJoy FossumDennis FreemanJeffrey FriebertK. FriederichsDavid FronekMary FruzenG. Jeffrey GallunPatricia GarritySara GauerkeSharon GoldbergerDavid GramlingLori GrauszGreen Bay PackersJennifer GreschnerDan GretzingerKrystle GriepentrogJason GrodskyTamara GrommesDanielle GrossmannRichard GryphanKim GugalaJohn GurholtJulie GutsmiedlEugene HaakonsonAnn HaglundRichard HallerDon HaltGretchen HansenDiana HansonLaura HarriganBrian HeckendorfNancy HeidtKristina HeinzenSr. Christian Helding

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Contributions & MEMORIALS

Danielle HelingPaul HellenbrandHellenbrand Water CenterKim HendricksLinda HenryKenneth HenselAnn HerzfeldGail HeyrmanJoan HigginsHillshire Brands FoundationLaura HinrichsenGustav HoltzCheryl HovdaGail HowardJ.J. Keller FoundationSheila JascemskasDanielle JastrowChristie JenkinsJewelers Mutual Insurance CompanyEdward JhuJoe’s Overhead DoorsJohn Deere FoundationColleen JohnsonBev JonesSherri JuntikkaBarbara KeehnJane KelleyKerry Ingredients & FlavorsKimberly-Clark FoundationTerry KivleyBernard KleinJessica KluewerKnitt’s HardwarePamela KnurrRachel KoebelWendy KoehlerLillian KozlowskiKraft Foods FoundationTheresa KrahnDavid KramerAdam KuczynskiRaymond KuzniarBrian LaBonteLadish Co. FoundationDon LambrechtBernie LaMereDebbie LanzaTracy LarsonRita LastJames LawlerLee’s Contracting/FabricatingLegend Promotions James LejcarMichelle LemmerSheri LevinDavid Lynch.Peggy MangiaforteJames MaritaRoss Marshall

Martin Construction of Burlington LLCAngela MattesJason McCannKathleen McElweeCary McGroartyLindsay McKinleyBen MenzelMargaret MenziaJennifer MenzynskiMerrill LynchRobert MetzingerKen MeurerKaren MichalskiDiane MillerMilwaukee Brewers Fantasy CampJulie MinikawskiMoldenhauer Landscape & Design, Inc.Patrick MooreMortgage Guaranty Insurance CorporationMotorola FoundationMPTC Students Team Building/ Problem SolvingCarl MuellerAudrey MurphyAndrew NarrBette NaudJohn NawrockiCecilia NehmRobyn NeilsenAnn NelsonRobert NeumanNeuroscience GroupNicholas Family FoundationKevin NoonanWilliam NordmarkMary OlejnikGary OlsonMaria OrlandoPatricia PaddonDonna PaltzerAdam PanoffNancy ParkerRafael PatinoSue PaulsonMary PayneBarbara PendowskiKimberly PendzichLori PentekJulie PersichChris PetersonRachel PetrachMarlene Pettit-BottMark PhillipsSally PieferScott PiemeislPitney BowesJohn Pitz

Charlotte PladiesSusan PolzinPrairie View Elementary SchoolPhillip ProcterPat PtasinskiSigne RednerSusie ReedKristin ReynoldsIan RichlinKaty RobidouxJill RoffersBrenda RossRosa Rueda-AguirrePatricia RuppelRobert RyersonWalker SandraDavid SappSattell Johnson AppelValerie SaxerJohn M. SchaeferMichael ScharffCheryl ScheuermanJarrod ScheunemannDave SchiniDarlene SchliesJackie SchmitterTrina SchonertKonya SchuhBrad SchultzThomas SchusterJoseph SerranoService League of OshkoshArlene ShepardSharon SiglKay SimpkinJennifer SimpsonPamela SinclairMary SinnenKelly SkaggsJoan SmithRobert SnyderJanet SorensonKrista SpindlerGlenn StadlerSarah StagePat SteffelRandall SteffenMcKenzie StenbergCarol StewartTracy StillmanTracy StockwellDan & LeAnn StrasserJennifer StullJeff and Ginger SummerlinLacey SundeenJudith SweetiShirley TenwinkelDeborah TeresinskiJenny TerryThe Hilltop Pub

Mary ThoennesLaura ThompsonThrivent Financial for LutheransKristin TimmerMary Ellen TraceyU.S. Venture/Schmidt Family Foundation, Inc.Matthew UdoniSarah UhlirUnited Church Of Muscoda PresbyterianUS BankKevin Van KampenHeidi Van RiteSusan VandenboomJulie VanderloopVapor Bus InternationalTheresa VendettiVerizon FoundationMonnie VickJean VossAnn WadeLauren WagnerRenee WangrowColleen WappelhorstLuAnn WarrenNancy WeilerJudith WeisChristine WeissDana WellsWest Bend High SchoolsBecky WienkeLinda WilliamsJane WilsonWilliam WitherspoonRalph WolffJulie WoodworthRobert YoderKenneth YoungLuisa ZabelTim ZellMarianne ZimmermannBeth Zydowicz

NOTE:These donations were recorded from February 1, 2015 thru April 15, 2015.

HIGHLIGHTED NAMES:These contributions have been made either in honor of current patients battling ALS or in memory of patients who have passed.

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Ruth Bartuska‘

Brenda Dahlke‘

Patricia Drewek‘

Dale Griffith‘

Bonnie Litz‘

David Maddix‘

James Michalski‘

Thomas Miller‘

Kip Neilsen‘

James Omitt‘

Herbert Popp Jr.‘

Eileen Schmitzer‘

Steve Spaanem‘

Jean Sromek‘

Linda Staub‘

Jeffrey Stewart‘

Laurel Streich‘

Barbara Tierney‘

Jerome Trinkl‘

Doug Turley‘

Faith Tylla‘

Trickett Wendler‘

Honoring the lives and legacies

of those who’ve made an indelible

impact on the ones they’ve left behind.

In MEMORIAMS

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NON-PROFIT ORGU. S. POSTAGE

PAIDMILWAUKEE, WI

PERMIT NO. 3815THE ALS ASSOCIATION Wisconsin Chapter3333 North Mayfair Rd Suite 213, Wauwatosa, WI 53222

CHANGE OF ADDRESS:If you’ve recently moved, give us a call or send us an email and let us know your new address. If you no longer would like to receive this newsletter or other Chapter mailings, please help us save on costs by calling 262.784.5257 or email us at info@alsawi.org and let us know. Thank you.