EHDI CDA Pilot Project
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John Eichwald, Team Lead Early Hearing Detection and Intervention (EHDI) National Center on Birth Defects and Developmental Disabilities Centers for Disease Control and Prevention (CDC) Public Health Data Standards Consortium 2012 Annual Business Meeting November 9, 2012 Hyattsville MD EHDI CDA Pilot Project
description
EHDI CDA Pilot Project. John Eichwald, Team Lead Early Hearing Detection and Intervention (EHDI) National Center on Birth Defects and Developmental Disabilities Centers for Disease Control and Prevention (CDC). Public Health Data Standards Consortium 2012 Annual Business Meeting - PowerPoint PPT Presentation
Transcript of EHDI CDA Pilot Project
John Eichwald, Team LeadEarly Hearing Detection and Intervention (EHDI)
National Center on Birth Defects and Developmental DisabilitiesCenters for Disease Control and Prevention (CDC)
Public Health Data Standards Consortium2012 Annual Business Meeting
November 9, 2012Hyattsville MD
EHDI CDA Pilot Project
Newborn Hearing Screening
• U.S. Preventive Services Task Force (USPSTF) recommends screening for hearing loss in all newborn infants (Grade B - July 2008)
• Hearing loss is one of the core newborn conditions on the Recommended Uniform Screening Panel (RUSP) of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC)
Conditions Screened in the Newborn
About 12,500 infants are diagnosed with the core conditions each year with the current RUSP• Estimated annual numbers (the most common)
– Hearing Loss: 5,064– Primary Congenital Hypothyroidism: 2,156– Sickle Cell Disease: 1,775– Cystic Fibrosis: 1,248– MCADD : 239
CDC Grand Rounds - Newborn Screening and Improved OutcomesMorbidity and Mortality Weekly Report (MMWR) June 1, 2012
“1 – 3 – 6” EHDI Foundation
Healthy People 2020Hearing and Other Sensory or Communication Disorders
1
Screen no later than 1 month
3
Diagnose no later than 3 months
6
Intervene no later than 6 months
Two types of screening technologies• Otoacoustic Emissions (OAE)• Auditory Brainstem Response (ABR)
Screening
Photographs courtesy of the National Center for Hearing Assessment and Management (NCHAM)
EHDI Clinical Quality MeasureCMS Electronic Health Record (EHR) Incentive Program: Stage 2Final Rule published August 23, 2012
HL7 Messaging Screening Results OBR|17|128993^ST ELSEWHERE HOSPITAL^9999999999^NPI|999555^TNSPHLAB^77D7777777^CLIA |54111-0 ^Newborn hearing loss panel^LN|||201010141853|||^VH||||201010151121||1111111111^Smiles^Minnie^^^Dr^^^NPI&2.16.840.1.113883.4.6&ISO^L^^^NPI^^^^^^^^MD||||||201010160918|||FOBX|1|TX|57700-7^Hearing loss newborn screening comment/discussion^LN||Any baby with clinical features suggestive of hearing loss requires clinical and diagnostic follow-up regardless of whether the NMS result is normal or abnormal.|||N|||FOBX|2|CE|54109-4^Newborn hearing screen – right ^LN||LA103921^Pass^LN|||N|||FOBX|3|CE|54108-6^Newborn hearing screen – left ^LN||LA103921^Pass^LN|||N|||FOBX|4|CE|54106-0^Newborn hearing screen method^LN||LA10388-9^Auditory brain stem response^LN|||N|||F
Implementation Guide for Laboratory Results, U.S. Realm, HL7 Version 2.5.1
EHDI CDA Pilot Project
EHDI CDA Pilot Project
• The HIT Standards Federal Advisory Committee has recommended the use of the HL7 CDA standard as a future direction for electronic data exchanges between clinical and public health information systems for public health reporting
• The Public Health Data Standards Consortium (PHDSC) is demonstrating electronic data exchange between clinical EHR Systems and public health EHDI using the HL7 Clinical Document Architecture (CDA) standard
EHDI CDA Pilot ProjectGoal: demonstrate the ability to receive a CDA-based EHDI Report by a Public Health Information System in two jurisdictionswill focus on reporting of:
• Newborn hearing screening results and basic patient demographics from the birthing facility’s EHR to the State EHDI Program
or• Early Hearing Care Plan (EHCP) - based on
jurisdictional plans
Health Information Exchange
(HIE)
Or
Public Health
Gateway
Birthing Facility
EHR
Screening Results
Document State EHDIInformation
System
CDA-based Actor Diagram
CDA EHDI Pilot Project DesignProposed Public Health Reporting Schema: Screening Report
Screening Results
Document
Health Information Exchange
(HIE)
Or
Public Health
Gateway
State EHDIInformation
System
Early Hearing
CarePlan Primary Care
Provider EHR
CDA-based Actor Diagram
CDA EHDI Pilot Project DesignProposed Public Health Reporting Schema: Care Plan
Early Hearing
Care Plan
TEAM2 States Participants: (to be determined)• Maryland, Massachusetts, Michigan, North
Dakota, Oregon, Rhode IslandStates Observers• Florida, Missouri, Ohio, Pennsylvania, South
Carolina, Texas, WashingtonPHDSC Team:• Alla Fridman, Anna Orlova, Lisa Nelson, Lori
Fourquet, Maiko Minami, Sarah Quaynor
CDA EHDI Pilot Project: Team
• Aug - Sept– Recruitment• 2 State participants (To be determined)• X State observers
• November 2012 – Pilot Design• December 2012 – Implementation• January 10, 2012 – Testing• February, 2013 – Draft Project Report• May 2013 – Final Project Report
CDA EHDI Pilot Project: Timeframe
CDA EHDI Pilot Project informationPHDSC Project Wiki pages at:
https://wiki.phdsc.org/index.php/EHDI
The findings and conclusions in this presentation are those of the author and do not necessarily represent the official position or policy of the Centers for Disease Control and Prevention.
