Parent Perspectives on EHDI and Communication Choices Katherine Baldwin 2nd Annual National EHDI...
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Transcript of Parent Perspectives on EHDI and Communication Choices Katherine Baldwin 2nd Annual National EHDI...
Parent Perspectives on EHDI and Communication Choices
Katherine Baldwin
2nd Annual National
EHDI Conference
February 26, 2003
Henry’s Newborn Hearing Screening
Born December 1997 in Baltimore
Dad has hearing loss, but no other family history
Referred to audiology and otolaryngology
What was missing?Professional attention and information.
Audiological Assessment and Hearing Aid Fitting
Fitted with bilateral hearing aids by 3 months of age.
Financial assistance really helped.
Keeping them in his ears – quite a challenge!
Missing referral to Part C!
Who dropped the ball?
Audiologist?
Pediatrician?
Otolaryngologist?
Yours truly?
Early Hearing Detection and Intervention
Shouldn’t we all be working as a team?
Early Intervention Adventures
What happened? Contacted the EI agency
at 6 months. Enrolled in services at 9
months. General special ed. class
was offered. Lesson learned:
families can seek other options!
So how did it turn out?
Home-based services Speech Therapist (weekly). MD School for the Deaf
(weekly).
What was missing?Connecting with other families!
Making progress…
slow, but steady!
Part B: Special Education
Age 3: Self-contained classroom for children with language delay. (Baltimore)
Age 4: Integrated preschool classroom and a 1:1 teacher of the Deaf -- Discovered the FM system (Rochester).
Age 5: Self-contained classroom for Deaf and HoH preschoolers (Denver).
Family-centered early intervention
Colorado Home Intervention Program (CHIP) School for the Deaf and the Blind.
Department of Education.
Integrated with the Colorado EHDI Program.
The family works with a facilitator to design an individualized program that fits both the family’s needs and the child’s learning style.
CHIP Model: Key Characteristics
Provides family-centered services. Encourages and supports family choice in
communication methods. Offers opportunities for families to connect
with other families and Deaf and Hard-of-Hearing adults.
Advances early childhood development research within the Deaf and Hard-of-Hearing population.
CHIP Model: Key Components
Family-centered programming
Home speech/language/listening program
Home hearing aid program
Deaf/HoH Connections
FAMILY Assessment
So, what is the take-home message?
1. EHDI programs may not be perfect, but they are great!
2. Linkage between screening, assessment and intervention should be as seamless as possible.
3. Offering families timely, appropriate, and comprehensive information and support at each stage of EHDI is the key to success!
And the future looks bright!And the future looks bright!
For Additional Information
Colorado Home Intervention Program Arlene Stredler-Brown, Director www.csdb.org/outreach/ch_main.html
Research Christine Yoshinaga-Itano, Ph.D, Professor, University of
Colorado, Boulder www.colorado.edu/slhs/slhs/faculty/yoshinaga-itano.html