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Researching Schools
READING DISABILITIES
( Communications by Design: 3/1/11)
____________
Schooling Research
Community-Based
Participatory ResearchBuilding a Dyslexia Genotyping-Phenotyping
Databank to Prevent Reading Disabilities
OUR STORY
____________
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WHATWHAT were attempting (& have achieved),WHYWHY its important,WHOWHO we are,WHEREWHERE
we are going . . .
Our Story:
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Researching Schools
CHAPTER 1:
CBPR
Schooling ResearchSchooling Research
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CommunityCommunity--BasedBased
Participatory Research?Participatory Research?(CBPR)(CBPR)
What isWhat is
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CBPR encouragesCBPR encouragesTranslational ResearchTranslational Research
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TranslationalTranslational
Research?Research?
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Whats that?Whats that?
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PracticePractice--BasedBasedResearchResearch44
EvidenceEvidence--Based PracticeBased Practice
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Say what?Say what?
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PracticePracticeResearchResearchBetter BetterBetter Better
DynamicDynamic &&SynergisticSynergistic
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BetterBetterteaching practices =teaching practices =
Better learning !Better learning !
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Better learning !Better learning !
BetterBetterteaching practices =teaching practices =
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Better learning !Better learning !
BetterBetterteaching practices =teaching practices =
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Better learningBetter learning!!
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_____
RECA
P:CBPR DEFINITION
CBPR TranslationalResearch
Better research=Better
practice
Practice-based
research evidence-based
practice
Equalpartnershipbetween traditionallytrained experts and
members of a
community.
Community-BasedParticipatory Research:
Improves learning!
________
_____
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_____
RECA
P:CBPR DEFINITION
CBPR TranslationalResearch
Practice-based
research evidence-based
practice
Equalpartnershipbetween traditionallytrained experts and
members of a
community.
Community-BasedParticipatory Research:
Improves learning!
________
_____Better research=Better
practice
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Researching Schools
CHAPTER 2:
Our Aims
Schooling ResearchSchooling Research
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Dyslexia
Databank
OBJE
CTIVE
TEST DATADNADATASaliva Behavioral
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OBJECTIVE:Build Dyslexia Databank___________INVESTIGATE:Whether dyslexiasphenotypic profiles
link to genotypicsubtypes . . . phenotypic
profiles
genotypicsubtypes
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Scientists, educators, families differentiateinstruction cradle to classroom for
children predisposed for dyslexia
DyslexiaDatabank
Cradle to classroom
OUTCOME?
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Data is ingood hands________
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Identificationis protected
& secure
Data is ingood hands________
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Researching Schools______________Schooling ResearchSchooling Research
Our goal?Our goal?
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Researching Schools
READINGREADINGDISABILITIES!!!!DISABILITIES!!!!
___________Schooling ResearchSchooling Research
STOP
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Researching Schools
CHAPTER 3:
Reading & Dyslexia
Schooling ResearchSchooling Research
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Researching Schools
CHAPTER 3:
Reading & Dyslexia
Schooling ResearchSchooling Research
Background forunderstanding our project
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Due to a complexinterplay
Reading isexperiencedependent_______Children arewired for sound,but print is anoptional accessorythat must bepainstakinglybolted on.
~ Steven Pinker
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Due to a complexinterplay
It took ourspecies 2,000 yearsto make the cognitivebreakthroughs
necessary to learn to
read with an alphabet;today our childrenhave to reach thosesame insights about
print in roughly2,000 days. ~ MaryanneWolf
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Due to a complexinterplay 2,000years in
2,000days?
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Due to a complexinterplayof genetic and environmental factors,
not all children accomplish this monumentaltask at the same time or with
the same degree of proficiency
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Due to a complexinterplay
Cerebrodiversity
of genetic and environmental factors,
not all children accomplish this monumentaltask at the same time or with
the same degree of proficiency
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Cerebrodiversity:ShermanSmall neural differencesleading to cognitive strengths &
weakness that differ from personto person. Adaptive advantagefor our species.Humanityscollective neural heterogeneity.
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Due to a complex interplay
of genetic and environmental factors, not allchildren are ready to start this monumentaltask or will achieve it at the same time .
Due to a complexinterplay
Learning toreadlike Red Sox baseball,like Red Sox baseball,
is a wonderful thing thatcan go wrong for anynumber of reasons.
~ MaryanneWolf
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Due to a complex interplay
of genetic and environmental factors, not allchildren are ready to start this monumentaltask or will achieve it at the same time .
Due to a complexinterplay
To be clear:Learning to read ishard for most children
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Due to a complex interplay
of genetic and environmental factors, not allchildren are ready to start this monumentaltask or will achieve it at the same time .
Due to a complexinterplay
Some
childrenfind it especially hard Dyslexia runsin my family!
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DAUNTING
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3 million children climb on3 million children climb ona school bus for thea school bus for the FIRSTFIRST timetime
At the end of eachAt the end of each
summer . . .summer . . .
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How many childrenwill struggle to learn toread
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Due to a complexinterplay
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5-20%
SOMEwill haveDYSLEXIA
________
E
stimates range:
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Im ready to read!
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STOP
Me, too, but I needa sound approach
I
m readyto read!
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