http://web73.enux.dk/index.php?id=248

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I have NO actual or potential conflict of interest in relation .

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to this program or presentation.

Husam is a 6 year old lovely beautiful boy.Diagnosed with Pre T ALL.Received first chemotherapy treatment. Relapsed.Received another chemotherapy treatment. Relapsed.His leukemia became resistant to chemotherapy.Admitted to KAUH for palliation.I was seeing him daily to manage his symptoms.One day I went into his room and heard him asking his mother

to read for him “Mama read for me” I gave his mother a regular children story book but he said “Mama read for me the Quran”

Husam died the next day.

When my child was diagnosed with cancer I wept into tears.

Not because I am objecting what Allah Has Decided for me, Not at all.

But I needed lots of help and support and I was afraid that I will not be able to get all the needed demands.

My tears were calling for help, so can you help me? Who will protect my rights?

My Journey with Patients with Cancer Advocacy

Patients with Cancer & Not Cancer Patients (This is stigmatization that is not acceptable, because these patients do not own this disease)

My trip to China in 2010, Representing Saudi Cancer Society of Saudi Arabia where I presented the seven rights of patients with cancer

There Is Nothing More We Can Do !

"When you treat a disease, you may lose or win, but when you treat with dignity a human body with a disease you always win, no matter what was the outcome of the disease".

Adopted form literature by Dr. Bassim Al Beirouti with modification 2010

Cure with Dignity & Death with Dignity NOT Cure with Humiliation Or Death with

Humiliation

Patients with Cancer are People of Strong Faith & Belief in Allah

Through Them I Get The Reminder To Renew My Faith & Belief in Allah

I Always Listen to Their Advises: Life is not Worth Fighting for it Get Ready To Meet Your GOD Your Good Deeds are the Ones That You will Take with

you Whatever Comes From Allah is Really Welcomed &

Should Be Accepted Many of Patients with Cancer Died after Saying

Al Shahadatine; a Death that I Wish to die Like

I Do not want to see them anymore They are not my priority anymore They took their chance and failed

treatment Let me utilize my time to the best and try

to cure new patients with higher chance of cure

Oh, these patients are depressing Oh, they are really a pain in the neck Let us get rid of them, sister get me the

DNR form

Detach & Depart Listen to me & Take care of me “Do no Harm” including psychological

ones Learn How to Break Bad News Do not tell me that you are busy with

another patient, I am also a patient If you are not ready to take care of me,

I do not want to see you anymore

As parents, the first step toward cancer cure is to know your child bills of 7 rights and your duties and responsibilities.

1. Your child has the right to be treated 2. & you as parents have the right to discuss the

treatments options and get a second opinion. 3. For Adolescents and young adults discuss

your child’s right to preserve the fertility. 4. Because passive smoking has been proven to

be a causative agent of cancer, smoking in public areas should be prohibited.

5. Some patients with cancer their life depends on blood donors, so blood donation should be encouraged by the public. Donation of blood for these patients will give a new life for them.

6. When you are diagnosed with cancer your treatment should meet the national (if any) or international standards, that is what is meant by Globalization of cancer care across the country and across the world.

7. The patients with cancer need psycho-social support, spiritual support, & holistic palliative and hospice care.

That’s why public awareness days have been established to help patients with cancer to know their 7 rights.

The Right to know about the disease The Right to be Treated The Right to Consent for the Treatment The Right to disclose or hide

information about the disease from all other family members or friends

The Right that your case is being discussed in a multidisciplinary meeting called a “Tumor Board”

The Right to have a Second Opinion

The Right of Fertility Preservation for Adolescents & Young Adults.

Fertility Preservation is the standard of care, are we there?

The Right of having Anti-smoking campaigns.

The Right of Smoking Cessation re-enforced in public areas, closed areas, malls, & restaurants.

Save the life of a patient with cancer; donate blood.

The problem of directed donations or referred donations rather than Volunteer Donations

Globalization of cancer care at national and international levels.

Globalization at all levels not only treatment guidelines

Globalization in Cancer Prevention and Early Detection

It should include free access of patients with caner to any country where they can get their treatment available OR their treatment will be brought to them

Holistic Care for Patients with Cancer:› Pain, Mal-Nutrition, & Depression are very

common among patients with Cancer Psychological Support Social Support Spiritual Support Nutritional Support Palliative Care Hospice Care

Important messages for patients with cancer: 1- Cancer is a curable disease nowadays. 2- Patients with cancer bills of 7 rights. So get your

rights right. 3- Fertility Preservation is the standard of care, are

we there? 4- Anti-smoking campaign. Smoking Cessation re-

enforced in public areas & restaurants. 5- Save the life of a patient with cancer; donate

blood. 6- Globalization of cancer care at national and

international levels. 7- Psycho-social support, Spiritual Support &

Palliative and Hospice Holistic Care for patients with cancer.