Washington State Team May, 2015 Ed Holen, DDC Shannon Manion, DDA Debbie Roberts, DDA Community of...

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Transcript of Washington State Team May, 2015 Ed Holen, DDC Shannon Manion, DDA Debbie Roberts, DDA Community of...

What is the community of practice

Washington State TeamMay, 2015Ed Holen, DDCShannon Manion, DDADebbie Roberts, DDA

Community of Practice: Supporting Individuals with Intellectual/Developmental Disabilities and Families over the Life Course1

Vision for PeopleaLife2The presence of a disability does not diminish a persons rights nor opportunity to participate in life.Disability is a Natural Part of Human Life3Trajectory toward life

aLIFEEducationjobrelationshipsHOMEfriendsHealththingshobbiestransportationchoiceThings to dosavings

BirthSchoolAdulthood4

a LifeBirthSchoolSSITrajectory toward life

Disability pathLABELEDWORLD

Human Service PathAdulthoodGuardianshipMedical spend down5

LabeledWorld

Poverty Special programs (living, jobs, education, recreationDepend upon public funding (bye, bye, choice)Isolation even segregation Needs (what you dont have)6

A LifeBirthSchool

Disability pathLABELEDWORLD

Human Service PathAdulthood7PersonFamily / Significant PersonsCommunitySupports a person might obtainServices for a person8Family / Significant PeopleCommunityServices meet needs

Often wall the person off

Often isolated from communityServicesPerson9State Baseline: Demographics1011121314We gathered cross section of the DD movement to discuss what do we need to do better to Support Families. Nov 5, 2013 kick-off meeting held.Four Areas of Focus emerged from the discussion:

Aging Care Givers Supporting Family MembersSiblings Assuming Care Giving and Support RolesParents with developmental disabilities supporting childrenAdults with developmental disabilities supported in self-determination, decision making, autonomy while still living in their family home

15Fifth was later added as discussion have evolved

Improving the DDA front door experience16But First:Services/Support for No Paid Services (NPS) Caseload namely:

14,000 clients eligible but receive no DD paid services2014 Legislative session passed two bills:HB 2746SB 6387

Serves 5,000 people from NPS Caseload. Funding remained in 2015 legislative budget (so far).

17How?Change state funded IFS to a waiver (Medicaid Match)

Creates a Community First Choice option

Reinvests the new CFC revenue (in part) to serve 5,000

Tried to embed flexibility into these programs18Community of Practice:Supporting Individuals/Families over the Life Course

Baseline Themes19Aging Caregivers supporting adults living in family home

Surveyed 1,300 clients 40 and older living at home with parents/family

381 responses to survey

20Survey Highlights93% of respondents are the primary caregiver, 92% of these family caregivers are over age 60;

Respondents report that their priorities are for their family member: to have support to live at home (70%), be safe and healthy (51%), and have a social life (51%).

Although 70% of respondents receive services from DDA, 58% report that they are still in need of supports;

2170% have plans in place for their family members support when they are no longer able to do so, 63% would like additional help planning for the future.

67% would like to learn more about technology and how

Priorities are for family member to have support to live at home (70%), be safe and healthy (51%), and have a social life (51%).

22Siblings Assuming Support/Caregiving RolesTwo focus group conversations (East/West)

Major Themes:

Need for information & PlanningBetter understand role and responsibilityMore opportunities to network and share with each other23Parents with DD who are ParentsConversation on April 29th

Supported parenting services IFS Waiver24Improving the DDA front door experiencePartnering locally to change the experience individuals and families have as they enter into the formal service delivery system

Helping individuals and families begin to plan for the future

Working with two Washington Counties to pilot approaches

25Next step is to answer the question: So what do we do?

To address these themes on a system wide basis

In ways that are is sustainable

26Information makes a difference27

Informing Families ProjectOutputs:

14,000 quarterly new letters developed and mailed to those on the No Paid Services Case Load

Contracted with 4 local IFBT Coordinators (currently 3) to take information to local events/gatherings

Maintained and used IFBT Website28We published at least one informational bulletin a month (two if there is a mental health edition) [Four in a month was the max].

E newsletter distributed to 1,600 organizations or individuals to pass on to stakeholders

We developed and published 6 bulletins and one video on mental/behavioral health issues

During 2014 we began to more aggressively using Facebook

29Receives Information About Available Services and SupportsNational Core IndicatorsChild/Family Survey30Do you receive information about the services and supports that help you plan?National Core Indicators: Adult Family Survey31Person-Centered Planning Tool Onlinewww.mylifeplan.guide

Can use different settings

Can use it at your own pace

Individual/Family own it

Increase the pool of individuals skilled in Person Centered Planning

Provide a planning tool (such as my life tools) to individuals in advance of their Person Centered Services Planning meeting

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38Overview of Core Team/State Team Community of Practice Activities:Our four member core team from DDA and DDC generally meet monthly for planning activities and preparing the agenda for the statewide planning teamOur 15 member statewide planning team meets quarterly to plan and review activities currently in process.The planning team includes:Self AdvocatesParentsAdvocacy groupsCountiesAging and Long Term Care representativesState representativesUCEDD representative

39Explain the structure, membership and activities different types of groups that meet specifically related to your CoP team. For example, how often do you meet, who and how many people attend, how do you structure the agenda). Help the audience understand the infrastructure that is leading the supporting families activities.

39Next Steps:July State Team develop strategies and identify partnerships

Some strategies include:

Smart Living Demo Project using technology?

Information will be shared with more families in a systemic way.

The planning tool that has been developed will be used widely and integrated well with the state person centered service planning process.

40If you were a brand new state starting off in this CoP, what do you wish you would have known at the beginning that you know now? Discuss the lessons you have learned, What factors were enabling, or presented challenges or barriers? What would you do differently or have you changed to meet the challenge?

40A siblings network will be established.

A plan will be developed to better support senior families.

We will have identified a plan to better support parents with I/DD.

A mid-grant statewide meeting to share what we have learned and implemented.

41Please share what you hope the CoP is going to concretely achieve one year from now.41Route to Success: Supporting Families over the Life Course

Create knowledge base What we know?Select social strategies -What will work?Createstakeholder will-Who cares?Support Policy Entrepreneurs -Who will lead?Use unexpectedevents

Overall or area specificWhat are problems, trends, unmet needs?Are there clear goals and methods for achieving them? What are constraints? What are specific strategies?Who cares about the problem? Is there an existing constituency & political will?Are there leaders to champion sustainable policy change?Takes advantage of unpredictable or unexpected events?

Goal ASenior FamiliesSurveys sent to 1,300 families with sons and daughters 40 and older living at home with parents

381 responses

Data collectedIncreasing information about resources in partnership with IFBT

Obtain funding for Smart Living Demonstration Project which will use technology to increase independence and rely less on human care giving

Use the person centered planning tool at www.mylifeplan,guide

Possible legislation to add DDA clients turning 40 living with parents/family to the state Case Load Forecasting Council

Create knowledge base What we know?Select social strategies -What will work?Createstakeholder will-Who cares?Support Policy Entrepreneurs-Who will lead?Use unexpectedevents

Goal ASenior FamiliesUse the person centered planning tool at www.mylifeplan,guide

Possible legislation to add DDA clients turning 40 living with parents/family to the state Case Load Forecasting Council

Create knowledge base What we know?Select social strategies -What will work?Createstakeholder will-Who cares?Support Policy Entrepreneurs-Who will lead?Use unexpectedevents

Goal BSiblings in Support RolesInfo gathered from two engagement sessionsIncrease information about resources and support roles

Create a statewide sibling network

Use person centered planning tool at www.mylifeplan.guide

Create a fundamental of sibling caregiving support tool kit

Create knowledge base What we know?Select social strategies -What will work?Createstakeholder will-Who cares?Support Policy Entrepreneurs-Who will lead?Use unexpectedevents

Goal CParent with I/DDOne engagement session held on April 29, 2015

Information being compiled