Using Patient Stories within the 1000 Lives Campaign in Wales Patient Stories – Anna Tee.
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Using Patient Stories within the 1000 Lives Campaign in Wales Patient Stories – Anna Tee
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Patient Stories “If we want to know how a person feels, we must begin by acknowledging the fact that there is one and only one observer stationed at the critical point of view... [she] is the only person who has even the slightest chance of describing ‘the view from in here’, which is why [her] claims serve as the gold standard against which all other measures are measured.” (Gilbert 2006)
Transcript of Using Patient Stories within the 1000 Lives Campaign in Wales Patient Stories – Anna Tee.
Using Patient Stories within the 1000 Lives Campaign in Wales
Patient Stories – Anna Tee
Patient Stories
What are we trying to accomplish?
Patient Stories
“If we want to know how a person feels, we must begin by acknowledging the fact that there is one and only one observer stationed at the critical point of view ... [she] is the only person who has even the slightest chance of describing ‘the view from in here’, which is why [her] claims serve as the gold standard against which all other measures are measured.” (Gilbert 2006)
Patient Stories
The story is not the outcome – it is what you do with what you hear that is of the utmost importance
Patient Stories
How will we know that a change is an improvement?
What changes can we make that will result in an improvement?
Patient Stories
MediaPurpose: To validate the Campaign;
Change a public mindset;Endorse good work and draw
attentionto flaws in the system
How: Features in press/tv/webCampaign: Press Releases, Case
Studies, Feature articles
Patient narrativeMaybe captured as a written
account, or recorded interviews. Best to consider all
potential uses and prepare accordingly
LearningPurpose: To improve care
How: Generating dialogue within teams; identifying needs; creating
improvements, feedback outcomes (from Discovery)
Campaign: Learning Sessions, How to Guides, Intranet dialogue.
1 Story - 4 ApplicationsCollecting stories for the 1000 Lives Campaign
EducationPurpose: To see the patient as
equal to the treatment; enabling a focus on the patient and not just
the outcomes.How: course syllabus, lectures, etc
Campaign: Learning Session, How to Guides, Intranet dialogue
InspirePurpose: To provide motivational
reminders to frontline staff of‘Why they do, what they do’
How: Distribute for use on Trust intranets, newsletters and in
team meetings and conferencesCampaign: Newsletters, E-bulletins, intranet/websites.
Planning the Interviews
Finding the storiesFraming the questionsHolding the interviewStorage and retrieval
Campaign ConnectorsContent areas
Hearts and mindsHealthcare improvement
Local feedback
TechnicalitiesWritten, audio, video
EditingPhotography
Determining Uses
ResearchStories used as part of
research projects should be based in perception and
adherence to the truth of the participants experience. The
Campaign work does not focus on this use.
Patient Stories
Patient Stories
Preparation is the key
Patient Stories
Do something with the information afterwards
Patient Stories
Remember - the story is not the outcome – it is what you do with what you hear that is of the utmost importance
Contact details for further information
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