USC Acoustic Neuroma Center: Patient

Education and Wellness Program

March 19th, 2016

Program Description:

The USC Acoustic Neuroma Center is a multi-disciplinary program committed to providing compassionate and comprehensive care. As a leader in acoustic neuroma treatment, we give high priority to helping patients understand their condition and the management options available to each on an individual basis. This one-day interactive symposium will focus on education, symptom management, physical and mental wellness and also provide an opportunity for networking between patients and acoustic neuroma experts.

Target Audience:

This course is intended for all acoustic neuroma patients in any stage of treatment to include pre-treatment, post-surgery, post radiation and those in ‘watch and wait’. All caregivers and loved ones are welcome to attend, learn and share with us!

Goals and Objectives:

• Provide education on the most up to date treatment options for those diagnosed with Acoustic Neuroma

• Create an open dialogue of support and information sharing among patients and medical community

• Explore ways to promote emotional and physical well-being at any treatment stage

General Information

Location: The Huntington Library, Art Collections, and Botanical Gardens

1151 Oxford Rd, San Marino, CA 91108

Date: Saturday, March 19th 2016

Fee: Attendee: $50.00 each (includes lunch, coffee break and tour)

About the Location: The Huntington is a collections-based educational and research institution located in Los Angeles County

at San Marino, California. The institution houses an extensive art collection with a focus in 18th and 19th-

century European art and 17th to mid-20th-century American art. The property also includes approximately

120 acres of specialized botanical landscaped gardens, most notably the “Chinese Garden".

Hotel Accommodation: Westin Pasadena

191 W. Robles Ave

Pasadena, CA 91101

(626)792-2727

Limited room block – Please book early

Shuttle service to the Huntington from the hotel will be provided.

Enrollment: Please enroll online or by fax at (323)-442-5790. To register visit www.usc.edu/esvp and enter the code

“ent2016”. You may use your American Express, Discover, MasterCard and Visa. Checks are not accepted.

Refunds: You may request a refund 72 hours prior to the event. All other refunds requests will not be processed.

USC Acoustic Neuroma Center: Patient Education Program AGENDA

March 19th, 2016 8:00 a.m. Registration and Check-In

9:00 a.m. Welcome Address Rick A. Friedman, MD, PhD

9:30 a.m. Research Initiatives- Laurel Fisher, PhD The USC Acoustic Neuroma Center is a leading provider of care for Acoustic Neuroma patients. During this session, we will discuss both existing information and research into vestibular schwannomas and also share our exciting future research initiatives.

10:00 a.m. Coping and Caregiving- Kris Siwek and Dawn Fishback, PA-C, BA The diagnosis of an Acoustic Neuroma can seem both isolating and overwhelming for both patient and their caregivers. During this session, we will discuss strategies for positively dealing with the physical and emotional stress of the treatment journey.

10:30 a.m. Coffee Break [15 min]

10:45 a.m. Hearing Preservation and Restoration-Rick Friedman MD, PhD and Elina Kari, MD Acoustic Neuroma tumors frequently affect a patient’s hearing: often it is the symptom that leads to diagnosis. However, in many cases and now with earlier detection, prolonged hearing preservation is a priority and an attainable goal of treatment. We will discuss factors that are considered when deciding treatment approach and success rates. We will also review existing hearing aid options that are available to patients with profound or complete hearing loss in their affected ear (Single-Sided Deafness) and how these devices work to improve quality of life.

11:15 a.m. Balance- Robbin Howard, PT, DPT, NCS Vestibular rehabilitation is a critical component to the well-being of every AN patient regardless of stage of treatment. This session is designed to help you better understand the complexities of the intricate balance system and how it is impacted by this tumor. We will also review exercises that can be done at home and ways to incorporate them into your everyday life!

11:45 a.m. Radiation - Nicholas Trakul, MD Radiation is a frequently used therapy for the management of an acoustic neuroma. We will review the difference in available technologies, treatment candidacy, research and success rates, and what to expect during and post radiation treatment. Laurie Eisenberg, PhD

12:15 p.m. Nutrition- Jaynita Patel Registered Dietitian A healthy diet during the recovery from a craniotomy and also in the management of symptoms of an acoustic neuroma is highly beneficial. Find out how you can incorporate a diet that can optimize your brain efficiency, improve stamina and promote recovery!

12:40 p.m. Lunch [80 mins] – Review of Rare Artifacts: The Evolution of Otolaryngological Care Over the Centuries

2:00 p.m. Acupuncture - Ouyoung, Lai Acupuncture is an ancient practice in Chinese medicine used to relieve pain and treat certain health conditions. We will review how this complementary therapy may be beneficial in treating the unique needs of individuals diagnosed with an AN.

2:30 p.m. Meditation- Jason Gorenstein

Preparing for and recovering from surgery can be a very stressful time for a variety of reasons. Meditation has been shown to play an important role in strengthening the body’s immune system and regulating moods. In this session, we will explore the ways incorporating meditation into daily life can promote relaxation and feelings of well-being.

3:00 p.m. Fitness for Life - Paula Liddiard and Steve Kwait Dizziness and unsteadiness are common side effects of AN. For some, it can make the idea of engaging in various types of exercise seem out of reach or overwhelming to overcome. Listen in as our recent patients and fitness guru’s share how they returned back to their active lifestyles, their suggestions for types of exercise and their tips for modification to ensure safety and enjoyment of your favorite activities!

3:30 Breakouts

Hearing Device Demonstration Have you been wondering what hearing aid options may be available to you and how they work? We will have leading manufacturers on hand to answer questions and provide demonstrations!

Record Review with Rick A. Friedman, MD, PhD If you are newly diagnosed with an acoustic neuroma or seeking additional treatment opinions, we will be offering a one on one complimentary review of your records with Dr. Friedman. These individual slots will be filled on a first come, first served basis. You will need to bring copies of your MRI or CT scans and audiogram.

New Normal Roundtable discussion – Kris Siwek and Dawn Fishback This patient led panel will feature patients at different stages of recovery discussing life after acoustic neuroma and will allow for open discussion and sharing amongst the group.

*Agenda subject to change

Registration Fee: • Attendee:

$50.00 per person

Application for Enrollment (Please Print)

REGISTRANT INFORMATION

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Deadline to register is March 1, 2016. Online: www.usc.edu/esvp - enter code “ent2016” – Updates available at www.keck.usc.edu/otolaryngology Fax: (323) 442 7438 – Please note that credit card information and signature must be included Call: (323) 442 7417 – Attention Florence Ner