The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking
-
Upload
pew-research-centers-internet-american-life-project -
Category
Technology
-
view
9.550 -
download
5
description
Transcript of The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking
![Page 1: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/1.jpg)
PewInternet.org
The Rise of the e-PatientUnderstanding Social Networks and Online Health
Information Seeking
Lee Rainie, Director, Pew Internet Project5.5.11Institute for Healthcare AdvancementEmail: [email protected]: @Lrainie
![Page 2: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/2.jpg)
The story of e-patients (and netweavers) Trudy and Peter Johnson-Lenz
![Page 3: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/3.jpg)
![Page 4: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/4.jpg)
New social operating system (1):Networked Individualism
• Social networks are more influential• Social networks are differently
composed• Social networks perform different
functions• Social networks are more vivid and
tied to creation of information/media
![Page 5: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/5.jpg)
New social operating system (2):New kinds of patient communities
• Condition/illness centered• Patient centered• Disease posses• Just-in-time, just-like-me peer-to-peer
support groups• Fifth Estate of content contributors
![Page 6: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/6.jpg)
6
Revolution #1 Internet and Broadband
![Page 7: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/7.jpg)
![Page 8: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/8.jpg)
70% 66%
![Page 9: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/9.jpg)
Consequences for info ecosystem
Volume Velocity
Vibrance Valence /Relevance
![Page 10: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/10.jpg)
Consequences for info ecosystem
Explosion of creators and niches
![Page 11: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/11.jpg)
Networked creators among internet users• 62% are social networking site users• 55% share photos• 33% create content tags • 32% contribute rankings and ratings• 30% share personal creations • 26% post comments on sites and blogs• 15% have personal website• 15% are content remixers • 14% are bloggers• 12% use Twitter• 4%-17%??? use location-sharing services
![Page 12: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/12.jpg)
• Empowered and engaged – 61% of all adults get health info online (80% of internet users)
• Participatory e-patients – 60% consume social media; 29% have contributed content
• Crowd-sourced via e-patients: 19% consult rankings/reviews of providers (5% post them); 18% consult reviews of hospitals (4% post them)
• On alert: 14% signed up for alerts
Each of the revolutions has changed health care searches and interactions
(1)
![Page 13: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/13.jpg)
13
Revolution #2 Wireless
Connectivity
![Page 14: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/14.jpg)
Cell phone owners – 85% adults
96% 90% 85%
58%
Urban-84% Suburban-86% Rural-77%
![Page 15: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/15.jpg)
2/22/2011 15
![Page 16: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/16.jpg)
Mobile internet connectors – 57% adults
62% 59% 55%
Urban-60% Suburban-60% Rural-43%
![Page 17: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/17.jpg)
Cell phones as social tools
2/22/2011 17
% of cell owners
• 54% send photo or video • 23% access a social networking
site• 20% watch a video • 15% post a photo/video online • 11% have purchased a product• 11% charitable donation by text • 10% status update service such
as Twitter
![Page 18: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/18.jpg)
85% use cell phones
35% have apps
24% use apps
All adults
May 2010 and Nov 2010 surveys
1 in 4 adults use apps
![Page 19: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/19.jpg)
55% of adults own laptops – up from 30% in 2006
45% of adults own MP3 players – up from 11% in 2005
50% of adults own DVRs – up from 3% in 2002
42% of adults own game consoles
7% of adults own e-book readers - Kindle
7% of adults own tablet computer – iPaddoubled in 6 months
![Page 20: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/20.jpg)
Consequences for info ecosystem
Anywhere Any device
PresencePlace
Any time
Alone together
![Page 21: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/21.jpg)
Mobile reaches a different audience
4 in 10 U.S. adults have used their cell phones to access the internet:
48% of African Americans40% of Latinos31% of whites
1 in 4 U.S. adults used their cell phones for political activities during the 2010 election:
36% of African Americans25% of Latinos and whites
November 2010 survey
![Page 22: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/22.jpg)
• Real-time – 17% use mobile phone for health info; 7% have health apps on handhelds
• Over-represented among young, minorities, urban residents, upper SES
• NO FEMALE/MALE DIFFERENCES
Each of the revolutions has changed health care searches and interactions
(2)
![Page 23: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/23.jpg)
23
Revolution #3Social
Networking
![Page 24: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/24.jpg)
The social networking pop. is diverse
2/22/2011 24
5x
5x
7x5x
![Page 25: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/25.jpg)
Online video
2/22/2011 25
What You Need to Know:• 69% of internet users (half of all US
adults) watch videos online – and not just funny cat videos
• 14% of internet users have uploaded their own video content (up from 8% in 2007); sharing as likely to occur on social networking sites as specialized video sites
![Page 26: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/26.jpg)
• “Last search”: 48% for others; 36% for self; 11% for both
• Read others’ commentaries: 34%• Find others who have same condition: 18%• Get info from social networking site: 11% of SNS
users• Get info from Twitter: 8% of Twitter users
Each of the revolutions has changed health care searches and interactions
(3)
![Page 27: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/27.jpg)
How online searches affect decisions (1)
• 60% of e-patients say the information found online affected a decision about how to treat an illness or condition.
• 56% say it changed their overall approach to maintaining their health or the health of someone they help take care of.
• 53% say it lead them to ask a doctor new questions, or to get a second opinion from another doctor.
![Page 28: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/28.jpg)
• 49% say it changed the way they think about diet, exercise, or stress management.
• 38% say it affected a decision about whether to see a doctor.
• 38% say it changed the way they cope with a chronic condition or manage pain.
How online searches affect decisions (2)
![Page 29: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/29.jpg)
June 25, 2010 29
What technology has done to social networks and the role providers can play in them
• Made it possible for experts to become “nodes” in people’s networks that can help them solve problems, make decisions
• Allowed for immediate, spontaneous creation of networks that can include professionals
• Given people a sense that there are more “friends” their networks like professionals whom they can access when they have needs
![Page 30: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/30.jpg)
Where providers are best – 1Accurate diagnosis
![Page 31: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/31.jpg)
Where providers are best – 2Info about prescription drugs
![Page 32: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/32.jpg)
Where providers are best – 3Info about alternative treatments
![Page 33: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/33.jpg)
Where providers are best – 4Recommendations about specialist
![Page 34: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/34.jpg)
Where providers are best – 5Recommendations about a medical facility
![Page 35: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/35.jpg)
Where personal conn. are best – 1Emotional support for dealing with illness
![Page 36: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/36.jpg)
Where personal conn. are best – 2Quick remedy for everyday health issues
![Page 37: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/37.jpg)
Where personal conn. are OK – 3Quick remedy for everyday health issues
![Page 38: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/38.jpg)
What social networks do for patients: Why experts can be “nodes”
• Attention – act as sentries– alerts, social media interventions, pathways through
new influencers• Assessment – act as trusted, smarter companion
– help assess the accuracy of info, timeliness of info, transparency and rigor of info
• Action – act as helpful producers/enablers– help give people outlets for expression, interpretation
of their creations
![Page 39: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/39.jpg)
Good news about new info ecologyHave you or has anyone you know been HELPED by following medical advice or health information found on the internet?
• Major help – 10%• Moderate help – 20% • Minor help – 11%• No help – 50%• Don’t know – 4%
Have you or has anyone you know been HARMED by following medical advice or health information found on the internet?
• Major harm – 1%• Moderate harm – 1%• Minor harm – 1%• No harm – 94%• Don’t know – 3%
41% 3%
![Page 40: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking](https://reader034.fdocuments.net/reader034/viewer/2022052218/53f8735b8d7f72b82e8b4623/html5/thumbnails/40.jpg)
Be not afraid