THE POSITIVE SIDE OF SOCIAL MEDIATHE POSITIVE SIDE OF SOCIAL MEDIA DISCLOSURES • I hold stock in...

5/22/2019

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Jerad M. Gardner, MDChair, ASDP Social Media Subcommittee

Associate Professor of Pathology and Dermatology Dermatopathology, Bone & Soft Tissue Pathology

University of Arkansas for Medical SciencesLittle Rock, Arkansas, USA

THE POSITIVE SIDE OF

SOCIAL MEDIA

DISCLOSURES

• I hold stock in Google & Apple in retirement account

• No other relevant financial relationships to disclose

• I do NOT own stock in Facebook, Twitter, or any other social media company

[email protected] Social Media 101: www.bit.ly/1Aaxuiz

@JMGardnerMD

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HOW I USE SOCIAL MEDIA

• Teaching & Learning

• Networking

• Patient Advocacy

• Research

• Communication


@JMGardnerMD

HUGE career benefits!

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LET ME SAVE YOU SOME TIME

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HOW I USE SOCIAL MEDIA

• Teaching & Learning

• Networking

• Patient Advocacy

• Research

• Communication


@JMGardnerMD

SECRETS TO A HAPPY CAREER

• Meaning & value in my work

• Strong relationships

• family, friends, colleagues

• Thankfulness


@JMGardnerMD

Social Media enhances all of these for me

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Metastatic lung cancer (small cell carcinoma) in skin

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Nerve sheath myxoma

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FACEBOOK DISCUSSION GROUPS

I created both groups in 2013

Now: 28,000+ & 18,000+ members

500-800 teaching cases discussed in each group

(as of 2015)


@JMGardnerMD

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United States Saudi Arabia Tunisia Brazil India


@JMGardnerMD

#MOTTIRL(MET ON TWITTER THEN IN REAL LIFE)

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#MOTTIRL(MET ON TWITTER THEN IN REAL LIFE)

Tweet up at USCAP 18

Tweet up at USCAP 19

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My pathology videos have been watched 450,000 times =3.5 MILLION minutes!

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My pathology videos are viewed 24/7/365I’m teaching constantly, even when I’m sleeping!

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PIP


@JMGardnerMD

Desmoid Tumor 1,427 members

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MY ROLE IN THE GROUPS

Educate patients. Explain their disease.

Explain medical terminology & what pathologists do

Help them navigate the cancer care system


@JMGardnerMD

THIS IS HOW I VOLUNTEER

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THE TEACHER BECOMES THE STUDENT

Savvy patients – THEY teach ME

View whole spectrum of a disease

Different approaches to clinical management

Strengths & weaknesses of status quo in medicine

- What we do well, what we could do better


@JMGardnerMD

CHEERLEADER NOT TREATING PHYSICIAN

No doctor patient relationship

Real friendships have developed

I was interested in disease…now I am INVESTED


@JMGardnerMD

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RESEARCH

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DFSP PARTNERSHIP

Videoconference meetings with DFSP patient partners, UAMS researchers and a representative from Sarcoma Foundation of America

PATIENTS helped design & conduct survey… about their own disease.

They are co-authors on study with us!


@JMGardnerMD

DFSP PARTNERSHIP

213 DFSP patients from Facebook took the survey

in ONLY THREE WEEKS

The idea for the study came from a patient!


@JMGardnerMD

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CROWDSOURCING

Large group of rare disease patients can be incredibly useful

In 2015, I started providing url links to Facebook patient support groups in my official pathology reports for certain diseases including DFSP, desmoid fibromatosis, and angiosarcoma.


@JMGardnerMD

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PATIENTS HAVE PICTURES OF THEIR TUMOR

CINDY

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DO PATIENTS REALLY WANT DOCTORS TO BE INVOLVED IN THEIR GROUPS?

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THE PATHOLOGIST’S POSTS HELPED ME UNDERSTAND MY DISEASE.

90%

10%

0%0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Agree Neutral Disagree

Perc

ent o

f Res

pons

es

Pathologist involved

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THE PATHOLOGIST ON THE FACEBOOK SUPPORT GROUP HELPED RELIEVE SOME OF MY DISEASE-RELATED ANXIETY.

77%

22%

1%0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

Agree Neutral Disagree

Perc

ent o

f Res

pons

es

Pathologist Involved

Do you want other doctors involved in the Facebook support group?

69%

5%

26%

63%

6%

31%

0%

10%

20%

30%

40%

50%

60%

70%

80%

yes no unsure

Percent of Responses

Pathologist involved

No pathologist involved

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Top Requested Specialties

Patient

Research

Holistic Medicine

Pain

Management

Psychiatry

Internal MedicineEndocrine

Oncology

Surgery

Radiology

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@JMGardnerMD

SURVEY (2016)


• Surveyed my followers for feedback re: my social media teaching

• (I actually included results in my application packet for promotion to Associate Professor with tenure)

@JMGardnerMD

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@JMGardnerMD

1110 responses from 85 countries in 4.5 days

@JMGardnerMD

99%

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Impact is more important than metrics

@JMGardnerMD

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89% of doctors agreed that my social media posts helped them care for REAL LIFE patients (n=681/762)

Whatever we are trying to accomplish in our medical careers…

Social media can help us do it bigger, better, faster.

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Social media has helped me…

…find more meaning and value in my work

…be more thankful for all that I have

…build relationships with people from around the world who have enriched my life and made me a better person

Most of us already use social media

HOW we use it is up to us

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SUMMARY

• It is legally and ethically OK to share deidentified gross or microscopic pathology pics

• No legal action taken against anyone for sharing deidentified medical pics for educational purposes to our knowledge

• But you do need to know and respect your employer’s rules


@JMGardnerMD

THE POSITIVE SIDE OF SOCIAL MEDIATHE POSITIVE SIDE OF SOCIAL MEDIA DISCLOSURES • I hold stock in...

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