The Patient Experience Following Medical Harm

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The Patient Experience Following Medical Harm

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The Patient Experience Following Medical Harm. MITSS Survey. Anonymous – attached to MITSS website 293 started, and 219 completed survey Respondents from 40 states/7 countries Primarily female (94.5%) Age range from teens to 80’s – 64% in 40’s/50’s Most report being patients (64%). - PowerPoint PPT Presentation

Transcript of The Patient Experience Following Medical Harm

Page 1: The Patient Experience Following Medical Harm

The Patient Experience Following Medical Harm

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• Anonymous – attached to MITSS website• 293 started, and 219 completed survey• Respondents from 40 states/7 countries• Primarily female (94.5%) • Age range from teens to 80’s – 64% in 40’s/50’s• Most report being patients (64%)

MITSS Survey

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Top 6 Self-Reported Experiences Following Adverse Events

Frequent bouts of crying

Further medical follow-up needed as a result of the event

Difficulty trusting others

Depression

Moments of reliving the event

Anxiety

0 10 20 30 40 50 60 70 80 90Percentages

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Time elapsed since event:

• 1 year or less 31%• 2-5 years ago 37%• 6-10 years ago 16%• >10 years ago 15%

N=221

Long Term Effects

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• Only 40% reported fully understanding details of event.

• 78.4% reported NOT receiving an apology.• Of those who received an apology, 63% felt the

apology was NOT sincere.• 86% reported NO referral to support services.

Communication Following Event

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CARe: A Strategy for Addressing Adverse Events Compassionately

Mass Coalition 15th Anniversary – May 20, 2013

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CARe and MACRMI

Communication, Apology, and Resolution:an approach for healthcare systems and liability insurers to respond to adverse events and resolve cases of preventable harm.

Objectives: Improve communication and transparency Support patients and families Support clinicians Improve patient safety Provide an alternative to lawsuits

MACRMI: Massachusetts Alliance for Communication and Resolution following Medical Injury

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Challenge and Lessons Learned

Challenge: Educate clinicians and patients so that CARe can be activated when needed and result in effective resolution

Lessons Learned: Plan a thorough internal education strategy centering

on communication coaching resources Involve patients and gather feedback, particularly in

patient-facing CARe informational materials

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Internal Educational Strategy

Well-planned educational presentations 20+ different departmental groups

Central pager (3-HELP) Tangible Reference Materials Portal Improvements

Additional reporting links Story highlighting the process

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The Patient Perspective

Involve Patient and Family Advisors, as well as other patient advocates Patient Brochure/Website text

Patient Self-Reports of Concerns

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MITSS


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UDS & Patient Adherence: A Harm Reduction …njms.rutgers.edu/departments/psychiatry/documents/2020/lc...UDS & Patient Adherence: A Harm Reduction Approach Lewis S. Nelson, MD Rutgers

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Learning to Use Patient Stories - 1000 Lives Plus stories concerning patient harm. Learning to Use Patient Stories 6 There are now examples of the effective use of stories of harm

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