Snapshot introduction to our chapter 2011
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Transcript of Snapshot introduction to our chapter 2011
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An Introduction
To Our Chapter
Presentation
• Our Vision, Mission & Goals• About Us
• Programs/Community Awareness• Fund Development
• Volunteer Engagement
Our Vision
Our Mission
Organizational Goals:
• Fund and promote research into kidney disease
• Implement services to support individuals living with kidney disease to high quality health care.
• Advocate for the right of people with kidney disease to high quality health care
• Promote public awareness and commitment to organ donation
• Ensure on-going public support for the work of The Kidney Foundation.
About Us…...
In the 1960s, people with kidney failure had little hope of survival. Dialysis was considered an extraordinary treatment and restricted to very few. Transplantation was still experimental.
It was during this time that a young Montreal architect, Morty Tarder, died from kidney disease. Confronted with their son’s death, the Tarder family vowed to start an organization that would raise money for research into this poorly understood disease. In 1964, The Kidney Disease Foundation of Canada, as it was known then, was created in Montreal.
Today, the Kidney Foundation of Canada is the national health charity committed to kidney health and to improved lives for all people living with kidney disease. Our vision for the future is an enduring legacy of those dedicated volunteers who, 40 years ago, started out with a compelling cause and the resolve to make a difference.
About Us…...
The 60s
Only a handful of hospitals provide hemodialysis, treatments are strictly rationed and selection committees determine who will receive this life-saving therapy. The Foundation begins to advocate for greater awareness of kidney disease, more treatment centres and research into kidney transplantation.
About Us…...
The 70’s
The Foundation becomes a vibrant, national health charity expanding to include Branches and Chapters across Canada. Money raised by the Foundation is used to provide seed funding for the establishment of organ retrieval systems and to support kidney-related research.
About Us…...
The 1980s
Many more kidney patients have access to treatment through the success of an alternative form of dialysis called peritoneal dialysis. The use of the anti-rejection drug cyclosporin leads to vast improvements in transplant success. The Foundation presses for more federal government involvement in promoting organ donation and the development of national standards for patient care.
About Us…...
The 1990s
The number of people receiving treatment for end-stage renal disease is growing as the population ages. Transplantation success, ironically, is creating longer waiting lists. The Foundation increases it efforts to ensure the best possible future for people living with kidney disease, through the delivery of its broad range of programs and various collaborative initiatives.
About Us…...
The Last Decade 2000 - 2010
As growing evidence points to the preventable nature of kidney disease among certain high-risk groups, the Foundation begins to explore
an expanded role in early detection.
ProgramsCommunity Awareness
For more information on programs visit www.kidney.on.ca
For more information on programs visit www.kidney.on.ca
Research
Research has led to the development and perfection of dialysis treatment. It has made transplantation the
treatment of choice for an increasing number of patients, and has led to the development of the anti-rejection
drugs that have made kidney transplants so successful. All of these advances as well as countless others would
never have been made were it not for thousands of hours and millions of dollars first being spent on basic and clinical medical research. Researchers are working
towards improved means of managing kidney disease, and, ultimately, reducing the impact it has on Canadians.
For more information on programs visit www.kidney.on.ca
Educational Material
Living with Kidney Disease Manual - comprehensive information on treatment options, diet, exercise and lifestyle
specifically developed for people with kidney failure - available in English, French, Chinese, Italian, Portuguese and
Punjabi.
The Kidney Foundation of Canada is committed to providing education about kidneys and kidney disease. Through
information pamphlets, fact sheets and brochures on specific aspects of living with kidney disease.
For more information on programs visit www.kidney.on.ca
Financial Assistance
• Short Term Financial Assistance
• Travel Loan Program
For more information on programs visit www.kidney.on.ca
Information & Referral
Referrals to appropriate community agencies and resources. Information and referral services are
intended to guide patients through the sometimes confusing and stressful process of adjusting to
living with kidney disease.
For more information on programs visit www.kidney.on.ca
The Peer Support Program
Volunteers are renal patients or family members themselves who have adjusted to living with kidney disease, have
participated in training programs, and have the desire to help others by sharing their experiences.
Available in e-Format for more information visit ww.kidney.on.ca
News Publications & Information
Kidney Living Publication of the Ontario Branch
• Community Updates
• Annual Reports
• Website www.kidney.on.ca
For more information on programs visit www.kidney.on.ca
Summer Camp Programs
• Lion’s Camp Dorset
•Children’s Camp Subsidy Program
For more information on programs visit www.kidney.on.ca
Other Resources
- Patient & Family Symposium- Renal Cookbooks - Resource Libraries
- Kidney Care- Chinese Renal Association (CRA)
- Speakers' Bureau - Health Fairs
-Tax Information Sessions-The Ambassador Program
For more information on programs visit www.kidney.on.ca
Living with Kidney DiseasePatient & Family Symposium
The “Living with Kidney Disease” Patient and Family Symposium provided opportunities to learn from, interact with, and ask questions of renal professionals and service providers,
and to find out about other people’s experiences with renal disease.
Whether they had been personally affected by kidney disease, or have someone they care about who is affected by kidney disease, we provided a casual, comfortable and friendly
environment to explore a variety of different workshops and information sessions all related to living with kidney disease.
Organ Donation Awareness
The Kidney Foundation of Canada actively promotes awareness of and commitment to organ donation awareness campaigns and advocacy efforts to encourage all Canadians to make positive choice about organ donation. Did you know………
over 30,000 people in Canada require life-sustaining treatments such as dialysis or a kidney transplant to replace the function of kidneys that have failed?
that the number of Canadians on renal replacement therapy will double in the next 10 years?
12 people in Canada learn their kidneys have failed every day; up from 8 just three years ago?
over 75% of people on Ontario's organ and tissue donor list are waiting for a kidney transplant?
Canada has one of the lowest organ donation rates in the developed world.
The success rate of living donor transplantations is now over 90 per cent, thanks to transplant research discoveries.
For more information on awareness visit www.kidney.on.ca
Living Green RibbonA flagship event in Ontario during National Organ and Tissue Donor Awareness Week, the Living Green Ribbon is an annual photo shoot where people become part of a living tableau – a giant green ribbon - the internationally recognized symbol of organ and tissue donation. Photos from previous events have been used in posters, public service announcements and notecards. Organized in schools and public venues, the Living Green Ribbon brings together students, local dignitaries and community members to show their support for organ and tissue donation
Transplant Recipients are wearing white. Volunteers from The Kidney Foundation,
Hotel Dieu Grace Medical Staff, Other Organ Donation Awareness volunteers wear the signature green ponchos and hold signs
indicating their consent. Firefighters and the Chief of Police outline the ribbon.
For more information on awareness visit www.kidney.on.ca
Advocacy
The advocacy goals of the Foundation are:
• to inform and educate the public, government, politicians and other organizations about the needs of people living with kidney disease.
to influence public policy to ensure that the needs are being met.
For more information on advocacy visit www.kidney.on.ca
Patient & Family Social Activities
Patient & Family Christmas Party November
Patient & Family Barbeque - JulySubject to interest
For Volunteer Opportunities contact our office.
Volunteer Engagement Volunteer Fairs & Materials
Campaign Recruitment Event Recruitment
Community AwarenessVolunteer Recognition/Chapter Committee
Office/Clerical