Sara Sirmans "A Caregivers Journey" (1)
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Transcript of Sara Sirmans "A Caregivers Journey" (1)
Aunt Sara���LIVING IN THE MOMENT���
Memories of the Past ���Gifts of the Present���
By���Sara Fattori���
I hope my story will prevent others from ���experiencing ���
heart breaking family conflict.���
In case of memory loss,��� who would you like to be IN CHARGE��� of YOUR LIFE?���������
���
In 2002, thirty two percent ���of persons with ���
moderate or severe ���MEMORY LOSS were age 85
or older.���
Individuals 85 years and older, are
one of the fastest growing segments of our population.���
In 2002, $103 Billion ���was spent on ���Nursing Home Care.���
MAKE A PLAN ���
Unless, preparations and planning are
made in ADVANCE with the guidance
from a …���
§ Trust Attorney���
§ Geriatric Care Manager���
§ Long Term Care Insurance Provider���
AND a Financial Institution. . . .
����
MEMORY LOSS��������
BROKEN �FAMILY SYSTEM
and a
Can lead to …
CONFLICT
TRAGEDY
and
����
The Story of…………
Sara Blitch Sirmans Born November 29, 1915���
Charles Blitch (my Dad)���
Bedford Blitch���
Sara Blitch���
Raised by a single mother, Tallulah Everett Blitch���
(my Grandmother)���Sara has two brothers-���
Sara with her brother and sister-in-law���
Sara loves the beach!���
dating���Sara ...���NOT SURE
Sara meets Hagan���Sara ���Everett Blitch���
Virginia���Everett Blitch���
Sara and Hagan enjoy over 50 years of marriage in ���Albany, Georgia���
MY SISTER AND I TAKE THE TRAIN FROM��� SAVANNAH TO ALBANY EVERY SUMMER ���
DURING THE ���1960’S���
… My new husband joins me���
to check on Aunt Sara and���
Uncle Hagan���
in Albany, Georgia
1993���
Our friendly visit���
becomes a CRISIS����
Uncle Hagan is in a COMA
���
���
My Dad arrives ��� to be with his sister ��� during her time of need ���
���
I return home to Palm Beach����
Within a day of ��� arriving back home … ��� my Dad calls to tell me ��� he must return home ����
IMMEDIATELY,��
as my mother is NOT� answering the phone������
(She struggles with anxiety & depression) ��� ���
������ I must RETURN to Albany, as����
"Hagan is still in a coma and ...���
… Decisions MUST be made��
���
My Aunt is clearly in a state of
CONFUSION or the early stages of ALZHEIMER’S���
���
No other family members are available to help���
������
I’m not …���
" " " "PREPARED ��� … for this responsibility!���
��� ���
However, I had to be the one��� to make the decision to have the ventilator removed from
Uncle Hagan.
As���
Uncle Hagan���Passes,���
I Assure Him, I’ll Do My Best�To Care For Sara �
Until She Joins Him.�
In the midst of chaos, take time for peace.���
��������� ���
Funeral plans begin and ���my Aunt says to the funeral
director, “she’s a decorator”, and has me select the casket.
1994���
Sara and my ���grandmother ���loved gardening. They both grew���Heritage Roses.���������Gardening is a beneficial activity during the early stages dementia.���
Weekly calls and���yearly visits, begin ���between Sara and I……. ���
UNTIL 1997 WHEN…..���
AW
AR
EN
ES
S ���
AN
XIE
TY
������
• During my visits the memory loss begins to reveal itself���
���
• I have a new baby������
• Phone calls from Albany becoming more frequent���
���
• Discussions with friends, church, lawyer, adult protection services and local police���
Being with nature becomes critical when you are living in a assisted or skilled nursing facility!���
More and more phone calls ... ��� “Sara needs your help!”�
���
I continue to try and enlist my family for an INTERVENTION�
���
The timing NEVER seems to be right for them.���
1998���
DE
NIA
L
• I begin family conversations, questions and the push for a plan���
���• Denial and the recurring request to
“Wait … Sara is OK for now”������• It is inevitable, that I will have to move
her out of her beloved home.���
1999���
������
The Final Phone Call for
Help
���
A member of Sara’s church ���called and said ���
with a FIRM voice … ������
���
2000���
��� “You do not know me, however, your aunt has become dependent on me.������ I would advise that you enlist the help of a sibling and bring her near your family.”������
The Final Decision���
• A neighbor calls frantically to say that men have been entering her house daily.���
• The bank calls to let me know Sara withdraws large sums of cash daily.���
2001���
Breath Pray Breath�In January, ���
I move Aunt Sara from Albany, Georgia���to an assisted living facility ���
in my home town of ���Jupiter, Florida���
Aunt Sara with Frances (my daughter)���The first Assisted Living Facility: ���
Courtyard Gardens Jupiter, Florida���2001
Days Turn To Weeks And ���The Years Run Together���
��� ���
PSYCHIATRIST
POLICE���
NEUROLOGIST
LAWYERs
VIOLENT BEHAVIOR EMERGENCY ROOMS
BAKER ACTED
LAW SUITES PSYCHIATRIC HOSPITAL
COURT ROOMS JUDGES���
LOCKED UNIT
GUARDIANSHIP
SOCIAL WORKER
YOU MUST FIND PLACES OF ORDER ���AND TRANQUILITY …Thank you Mr. Morikami���
And There Is ���Something Called���
���
CAREGIVERS DEMENTIA���
IT A 36 HOUR DAY���
The "bible” for families caring for people with Alzheimer disease, offering comfort and support to millions worldwide.
Really Is�
THE BOOK recommended by the woman (96years old) that Aunt Sara was depending on.
���the whole family was hit by a train.���
���
Going through a dark tunnel of despair and anguish. I was told to bring Sara home and that my actions were “cruel”. ���(They just did not understand.)
The grief I felt, because of the acLons by my siblings & parents, was as though ….
COLOR MAKES YOU HAPPY AT ALL AGES.���Bright colors are especially important for the
elderly with dementia.���
A SARA AND SARA SELFIE���
Sara enjoyed music and entertaining.���Sara still enjoys music.���
���
��� T
YB
EE
BE
AC
H���
Sara enjoying the beach.���
Sara is still enjoying the ocean!���
Sara is still enjoying correspondence.���Letters and cards kept in her pink pocket-book. ���
Sara spends time daily reading her ���Georgia State College Year Books.���
GETTING OUT OF THE “INSTITUTION” AND INTO NATURE IS MANDATORY!���
Morikami Gardens is wonderful place to take a loved one…���”on wheels” young or old.���
THERE IS ALWAYS HOPE, LIGHT AND BEAUTY.���
The support system during ���the past 14 years!���
���ST MARK’S EPISCOPAL CHURCH & SCHOOL ���
���
Jane Antill ���NORTHERN TRUST���
���
Rebecca Doane ��� DOANE & DOANE, P.A.���
Gwynne Du Bose’���DU BOSE CARE MANAGEMENT���
���
LOURDES MC KEEN SKILLED CARE������
���
���
HIRING A PROFESSIONAL GERIATRIC CARE MANAGER CAN GREATLY��� REDUCE STRESS, SAVE TIME, AND OFFER KNOWLEDGABLE ���
ADVICE IN ADVANCE AND DURING THE CARE.���
Attorneys at Law���North palm Beach, Florida���
������
www.doaneanddoane.com���
Northern Trust Bank���NORTH PALM BEACH, FL 33408���
www.northerntrust.com���
ST Mark’s Episcopal Church & School���Palm Beach Gardens, Florida���
www.stmarkspbg.com���
DU BOSE CARE MANAGEMENT������
www.dubosecares.com���
Lourdes Noreen McKeen West Palm Beach, Florida
www.lourdesmckeen.org