Sara Sirmans "A Caregivers Journey" (1)

67
Aunt Sara LIVING IN THE MOMENT Memories of the Past Gifts of the Present By Sara Fattori

description

PLEASE SHARE! A journey of an Aunt with Alzheimer's disease, family dynamics, legal, financial, emotional and care giving challenges. A legal guardianship was required because the family could not agree on the care of my Aunt and the management of her finances.

Transcript of Sara Sirmans "A Caregivers Journey" (1)

Page 1: Sara Sirmans "A Caregivers Journey" (1)

Aunt Sara���LIVING IN THE MOMENT���

Memories of the Past ���Gifts of the Present���

By���Sara Fattori���

Page 2: Sara Sirmans "A Caregivers Journey" (1)

I hope my story will prevent others from ���experiencing ���

heart breaking family conflict.���  

In case of memory loss,��� who would you like to be IN CHARGE��� of YOUR LIFE?���������

���

Page 3: Sara Sirmans "A Caregivers Journey" (1)

In 2002, thirty two percent ���of persons with ���

moderate or severe ���MEMORY LOSS were age 85

or older.���

Page 4: Sara Sirmans "A Caregivers Journey" (1)

Individuals 85 years and older, are

one of the fastest growing segments of our population.���

Page 5: Sara Sirmans "A Caregivers Journey" (1)

In 2002, $103 Billion ���was spent on ���Nursing Home Care.���

Page 6: Sara Sirmans "A Caregivers Journey" (1)

MAKE A PLAN ���

Page 7: Sara Sirmans "A Caregivers Journey" (1)

Unless, preparations and planning are

made in ADVANCE with the guidance

from a …���

§  Trust Attorney���

§  Geriatric Care Manager���

§  Long Term Care Insurance Provider���

AND a Financial Institution. . . .  

����

Page 8: Sara Sirmans "A Caregivers Journey" (1)

MEMORY LOSS��������

BROKEN �FAMILY SYSTEM  

and a  

Page 9: Sara Sirmans "A Caregivers Journey" (1)

Can lead to …  

CONFLICT  

TRAGEDY  

and  

����

Page 10: Sara Sirmans "A Caregivers Journey" (1)

The Story of…………

Page 11: Sara Sirmans "A Caregivers Journey" (1)

Sara Blitch Sirmans Born November 29, 1915���

Page 12: Sara Sirmans "A Caregivers Journey" (1)

Charles Blitch (my Dad)���

Bedford Blitch���

Sara Blitch���

Raised by a single mother, Tallulah Everett Blitch���

(my Grandmother)���Sara has two brothers-���

Page 13: Sara Sirmans "A Caregivers Journey" (1)

Sara with her brother and sister-in-law���

Page 14: Sara Sirmans "A Caregivers Journey" (1)

Sara loves the beach!���

Page 15: Sara Sirmans "A Caregivers Journey" (1)

dating���Sara ...���NOT  SURE  

Page 16: Sara Sirmans "A Caregivers Journey" (1)

Sara meets Hagan���Sara ���Everett Blitch���

Virginia���Everett Blitch���

Page 17: Sara Sirmans "A Caregivers Journey" (1)

Sara and Hagan enjoy over 50 years of marriage in ���Albany, Georgia���

   

MY SISTER AND I TAKE THE TRAIN FROM��� SAVANNAH TO ALBANY EVERY SUMMER ���

DURING THE ���1960’S���

Page 18: Sara Sirmans "A Caregivers Journey" (1)

… My new husband joins me���

to check on Aunt Sara and���

Uncle Hagan���

in Albany, Georgia  

1993���

Page 19: Sara Sirmans "A Caregivers Journey" (1)

Our friendly visit���

becomes a CRISIS����

Page 20: Sara Sirmans "A Caregivers Journey" (1)

Uncle Hagan is in a COMA  

Page 21: Sara Sirmans "A Caregivers Journey" (1)

���

���

My Dad arrives ��� to be with his sister ��� during her time of need ���

���

I return home to Palm Beach����

Page 22: Sara Sirmans "A Caregivers Journey" (1)

Within a day of ��� arriving back home … ��� my Dad calls to tell me ��� he must return home ����

IMMEDIATELY,��

Page 23: Sara Sirmans "A Caregivers Journey" (1)

as my mother is NOT� answering the phone������

(She struggles with anxiety & depression) ��� ���

Page 24: Sara Sirmans "A Caregivers Journey" (1)

������ I must RETURN to Albany, as����

"Hagan is still in a coma and ...���  

Page 25: Sara Sirmans "A Caregivers Journey" (1)

… Decisions MUST be made��

Page 26: Sara Sirmans "A Caregivers Journey" (1)

���

My Aunt is clearly in a state of

CONFUSION or the early stages of ALZHEIMER’S���

���

No other family members are available to help���

Page 27: Sara Sirmans "A Caregivers Journey" (1)

������

I’m not …���

" " " "PREPARED ��� … for this responsibility!���

Page 28: Sara Sirmans "A Caregivers Journey" (1)

��� ���

However, I had to be the one��� to make the decision to have the ventilator removed from

Uncle Hagan.  

Page 29: Sara Sirmans "A Caregivers Journey" (1)

As���

Uncle Hagan���Passes,���

I Assure Him, I’ll Do My Best�To Care For Sara �

Until She Joins Him.�

Page 30: Sara Sirmans "A Caregivers Journey" (1)

In the midst of chaos, take time for peace.���

Page 31: Sara Sirmans "A Caregivers Journey" (1)

��������� ���

Funeral plans begin and ���my Aunt says to the funeral

director, “she’s a decorator”, and has me select the casket.  

Page 32: Sara Sirmans "A Caregivers Journey" (1)

1994���

Sara and my ���grandmother ���loved gardening. They both grew���Heritage Roses.���������Gardening is a beneficial activity during the early stages dementia.���

Weekly calls and���yearly visits, begin ���between Sara and I……. ���  

Page 33: Sara Sirmans "A Caregivers Journey" (1)

UNTIL 1997 WHEN…..���

Page 34: Sara Sirmans "A Caregivers Journey" (1)

AW

AR

EN

ES

S ���

AN

XIE

TY

������

•  During my visits the memory loss begins to reveal itself���

���

•  I have a new baby������

•  Phone calls from Albany becoming more frequent���

���

•  Discussions with friends, church, lawyer, adult protection services and local police���

Page 35: Sara Sirmans "A Caregivers Journey" (1)

Being with nature becomes critical when you are living in a assisted or skilled nursing facility!���

Page 36: Sara Sirmans "A Caregivers Journey" (1)

More and more phone calls ... ��� “Sara needs your help!”�

���

I continue to try and enlist my family for an INTERVENTION�

���

The timing NEVER seems to be right for them.���

1998���

Page 37: Sara Sirmans "A Caregivers Journey" (1)

DE

NIA

L  

•  I begin family conversations, questions and the push for a plan���

���•  Denial and the recurring request to

“Wait … Sara is OK for now”������•  It is inevitable, that I will have to move

her out of her beloved home.���

1999���

Page 38: Sara Sirmans "A Caregivers Journey" (1)

������

The Final Phone Call for

Help  

Page 39: Sara Sirmans "A Caregivers Journey" (1)

���

A member of Sara’s church ���called and said ���

with a FIRM voice … ������

���

2000���

Page 40: Sara Sirmans "A Caregivers Journey" (1)

��� “You do not know me, however, your aunt has become dependent on me.������ I would advise that you enlist the help of a sibling and bring her near your family.”������

Page 41: Sara Sirmans "A Caregivers Journey" (1)

The Final Decision���

• A neighbor calls frantically to say that men have been entering her house daily.���

• The bank calls to let me know Sara withdraws large sums of cash daily.���

Page 42: Sara Sirmans "A Caregivers Journey" (1)

2001���

Breath Pray Breath�In January, ���

I move Aunt Sara from Albany, Georgia���to an assisted living facility ���

in my home town of ���Jupiter, Florida���

Page 43: Sara Sirmans "A Caregivers Journey" (1)

Aunt Sara with Frances (my daughter)���The first Assisted Living Facility: ���

Courtyard Gardens Jupiter, Florida���2001  

Page 44: Sara Sirmans "A Caregivers Journey" (1)

Days Turn To Weeks And ���The Years Run Together���

��� ���

PSYCHIATRIST  

POLICE���

NEUROLOGIST  

LAWYERs  

VIOLENT BEHAVIOR  EMERGENCY ROOMS  

BAKER ACTED  

LAW SUITES  PSYCHIATRIC HOSPITAL  

COURT ROOMS  JUDGES���

LOCKED UNIT  

GUARDIANSHIP  

SOCIAL WORKER  

Page 45: Sara Sirmans "A Caregivers Journey" (1)

YOU MUST FIND PLACES OF ORDER ���AND TRANQUILITY …Thank you Mr. Morikami���

Page 46: Sara Sirmans "A Caregivers Journey" (1)

And There Is ���Something Called���

���

CAREGIVERS DEMENTIA���

Page 47: Sara Sirmans "A Caregivers Journey" (1)

IT A 36 HOUR DAY���

The  "bible”  for  families  caring  for  people  with  Alzheimer  disease,    offering  comfort  and  support  to  millions  worldwide.  

Really Is�

THE  BOOK  recommended  by  the  woman  (96years  old)  that        Aunt  Sara  was  depending  on.    

Page 48: Sara Sirmans "A Caregivers Journey" (1)

���the whole family was hit by a train.���

���

Going through a dark tunnel of despair and anguish. I was told to bring Sara home and that my actions were “cruel”. ���(They just did not understand.)

The  grief  I  felt,  because  of  the  acLons  by  my  siblings  &  parents,  was  as  though  ….    

Page 49: Sara Sirmans "A Caregivers Journey" (1)

COLOR MAKES YOU HAPPY AT ALL AGES.���Bright colors are especially important for the

elderly with dementia.���

Page 50: Sara Sirmans "A Caregivers Journey" (1)

A SARA AND SARA SELFIE���

Page 51: Sara Sirmans "A Caregivers Journey" (1)

Sara enjoyed music and entertaining.���Sara still enjoys music.���

���

Page 52: Sara Sirmans "A Caregivers Journey" (1)

��� T

YB

EE

BE

AC

H���

Sara enjoying the beach.���

Page 53: Sara Sirmans "A Caregivers Journey" (1)

Sara is still enjoying the ocean!���

Page 54: Sara Sirmans "A Caregivers Journey" (1)
Page 55: Sara Sirmans "A Caregivers Journey" (1)

Sara is still enjoying correspondence.���Letters and cards kept in her pink pocket-book. ���

Page 56: Sara Sirmans "A Caregivers Journey" (1)

Sara spends time daily reading her ���Georgia State College Year Books.���

Page 57: Sara Sirmans "A Caregivers Journey" (1)

GETTING OUT OF THE “INSTITUTION” AND INTO NATURE IS MANDATORY!���

Morikami Gardens is wonderful place to take a loved one…���”on wheels” young or old.���

Page 58: Sara Sirmans "A Caregivers Journey" (1)
Page 59: Sara Sirmans "A Caregivers Journey" (1)
Page 60: Sara Sirmans "A Caregivers Journey" (1)

THERE IS ALWAYS HOPE, LIGHT AND BEAUTY.���  

Page 61: Sara Sirmans "A Caregivers Journey" (1)

The support system during ���the past 14 years!���

���ST MARK’S EPISCOPAL CHURCH & SCHOOL ���

���

Jane Antill ���NORTHERN TRUST���

���

Rebecca Doane ��� DOANE & DOANE, P.A.���

Gwynne Du Bose’���DU BOSE CARE MANAGEMENT���

���

LOURDES MC KEEN SKILLED CARE������

���

���

Page 62: Sara Sirmans "A Caregivers Journey" (1)

HIRING A PROFESSIONAL GERIATRIC CARE MANAGER CAN GREATLY��� REDUCE STRESS, SAVE TIME, AND OFFER KNOWLEDGABLE ���

ADVICE IN ADVANCE AND DURING THE CARE.���

Page 63: Sara Sirmans "A Caregivers Journey" (1)

Attorneys at Law���North palm Beach, Florida���

������

www.doaneanddoane.com���

       

Page 64: Sara Sirmans "A Caregivers Journey" (1)

Northern Trust Bank���NORTH PALM BEACH, FL 33408���

www.northerntrust.com���

Page 65: Sara Sirmans "A Caregivers Journey" (1)

ST Mark’s Episcopal Church & School���Palm Beach Gardens, Florida���

www.stmarkspbg.com���  

Page 66: Sara Sirmans "A Caregivers Journey" (1)

DU BOSE CARE MANAGEMENT������

www.dubosecares.com���

Page 67: Sara Sirmans "A Caregivers Journey" (1)

Lourdes  Noreen  McKeen  West  Palm  Beach,  Florida  

     

www.lourdesmckeen.org