Recruiting within AMSsRecruiting within AMSs

• AMSWS can recruit patients for studies like SCIPPS but note:• Must have ethics approval from Aboriginal

ethics committee – I.e. Aboriginal Health & Medical Research

Council Ethics Committee for NSW

• involve AMS early• needs to be approved by Board• partnership approach

Cultural issuesCultural issues• Just because its 200

years + since invasion don’t think we have lost our culture

• Modern urban Aboriginal culture is strong and alive

• Every community is different

Ownership of research by Ownership of research by Aboriginal peopleAboriginal people

• What is being collected?

• The right researcher

• Ownership of health information

• Writing it up and publishing– also need approval of research findings &

report by ethics committee and AMS before publication

guiding principles regarding the use of Aboriginal health information, including research data.

•Access through “research and ethics” at http://www.ahmrc.org.au

NSW Aboriginal Health Information Guidelines 1998

Other resourcesOther resources

Coalition for Research to Improve Aboriginal Health (CRIAH)

- a partnership between Aboriginal communities and researchers to encourage and facilitate research that will improve Aboriginal health

• “CRIAH Tools for Collaboration”,

also available at http://www.ahmrc.org.au

Research linked to actionResearch linked to action

“Don’t go into communities and promise things you can’t deliver”