PATIENT AND CITIZEN PATIENT AND CITIZEN RIGHTS:A STATEMENT OF RIGHTS:A STATEMENT OF

VALUESVALUES

E.U. OPEN FORUM

S.KYRIAKIDES

President EUROPA DONNA

THE REALITY FORTHE REALITY FOR

ELENI

PROMOTION OF BETTER PROMOTION OF BETTER QUALITY OF LIFEQUALITY OF LIFE

CHARTER OF FUNDAMENTAL RIGHTS

INTEGRATION

SUSTAINABILITY

CONCENTRATION ON KEY ASPECTS

EUROPA DONNA – The European Breast Cancer Coalition

EUROPA DONNA Ten GoalsEUROPA DONNA Ten Goals

To promote the dissemination and exchange of factual, up-to-date information on breast cancer throughout Europe

To promote breast awareness To emphasise the need for appropriate screening and early

detection To campaign for the provision of optimum treatment To ensure provision of quality supportive care throughout and

after treatment To advocate appropriate training for health professionals To acknowledge good practice and promote its development To demand regular quality assessment of medical equipment To ensure that all women understand fully any proposed

treatment options, including entry into clinical trials and their right to a second opinion

To promote the advancement of breast cancer research

THE RIGHT TOTHE RIGHT TO

TO SAFETYCOMPLAINCOMPENSATIONINNOVATIONAVOID UNECESSARY SUFFERING

AND PAIN

THE RIGHT TOTHE RIGHT TO

PREVENTIVE MEASURES TO ACCESS TO CONSENT TO FREE CHOICE TO PRIVACY/CONFIDENTIALITY TO OBSERVANCE OF QUALITY

STANDARDS INFORMATION

PATIENT ADVOCACYPATIENT ADVOCACY

THE PERSONAL IS POLITICAL

Lobbying Activities

InformationEducation

CITIZENS AND PATIENTS CITIZENS AND PATIENTS

DUTIES AND RESPONSIBILITIESDUTIES AND RESPONSIBILITIES

PARTNERS

WE ARE ALLWE ARE ALL

Advocacy TrainingAdvocacy Training

Lobbying ActivitiesLobbying Activities

National :All Party Parliamentary GroupsIndividual Country Initiatives

Lobbying ActivitiesLobbying Activities

European :European Health ForumEuropean Patients ForumEuropean Parliamentary Group on

Breast Cancer (EPGBC)Public Hearing on Breast Cancer

WE NEED TO ENSUREWE NEED TO ENSURE

TIMELY AND APPROPRIATE HEALTH CARE

CONFIDENTIALITY OF DATA

RESPECT OF HUMAN DIGNITY IN HEALTH RESERCH

SUFFICIENT INFORMATION TO ALLOW INFORMED CHOICE

AS ADVOCATES WE NEED AS ADVOCATES WE NEED TOTO

RAISE AWARENESS OF ALL EUROPEAN INITIATIVES

EMPOWER INDIVIDUALS TO TAKE CONTROL OF THEIR

FUTURE

BUILD A EUROPE WHERE BUILD A EUROPE WHERE QUALITY OF LIFE IS THE QUALITY OF LIFE IS THE

PRIORITYPRIORITY

Thank youThank you