Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past...

11
Winter 2014 – Issue 20 Follow us on: sebastiansactiontrust @SebsActionTrust sebastiansactiontrust.org Here for families of seriously-ill children. Always. News I n t h i s i s s u e . . . P r o u d r e c i p i e n t s o f t h e Q u e e n s A w a r d p a g e s 1 2 - 1 3 1 0 w a y s y o u c a n g e t i n v o l v e d p a g e 1 5 F a m i l y s t o r y p a g e s 4 - 5 1

Transcript of Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past...

Page 1: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

Win

ter 2

014

– Is

sue

20

Follow us on: sebastiansactiontrust @SebsActionTrust

seb

ast

ian

sac

tiont

rust

.orgHere for families of seriously-ill children. Always.

Ne

ws

In th

is issue...

Pro

ud

re

cip

ie

nts of the Queen’s A

wa

rd – p

ag

es 12-13

10

wa

ys y

ou can get involved

– pa

ge 15

Family story – page

s 4-5

1

Page 2: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

This is such a poignant time for everyone associated with Sebastian’s Action Trust as we celebrate our first decade of walking alongside families of seriously-ill children from diagnosis, through treatment and beyond. We are thri l led to be recipients of The Queen’s Award for Voluntary Service, known as the charity MBE, which recognises at the highest level the efforts of all who have tirelessly supported the Trust over the last ten years.

Those families who live with the loss of a child are always in our thoughts; in this newsletter we highlight some of the ways in which we remain alongside through the darkest and most difficult of times. Families tell us that our support as a constant can be comforting in such devastating circumstances, as they adjust to a “new normal” that was never sought or planned.

From reading the reflections of so many families, supporters, volunteers and team members who have contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read, meticulously produced by our own Sarah Clark, and will be on sale in October after its launch at No 10 Downing Street, in time for Christmas shopping!

Being at the forefront of a continually evolving service to address unmet needs is both a privilege and a responsibility in terms of delivery and sustainability. We have progressed so far from our earliest days of practical support and with the opening of our first Outreach Hub in Slough, Berkshire to complement our unique facility, The Bluebells, we continue to set the bar high to become even more accessible to families coping with extraordinary challenges on a daily basis.

We simply couldn’t achieve what we do without the continued support of all who give in so many ways to our charity. We truly value your devotion and hope that you consider yourself as part of our ever growing “Family of Families”. Here’s to the next decade of Sebastian’s Action Trust; with your support we are ready for the challenge!

Jane Gates, CEO, Sebastian’s Action Trust

Welcome

Family: 4-7Future: 8-11Royal recognition from the Queen: 12-13Fundraising: pages 14-20

Our Year PledgeExtend the provision of The Bluebells by building a two-storey counselling and therapies suite, advice and guidance library and garden room.

Provide a space for families to reflect and remember by completing the Garden of Reflection and Remembrance in the grounds of The Bluebells.

Champion the views of families by continuing to work with parliamentarians, health care professionals and providers to highlight the needs of families of seriously-ill and life-limited children at the highest level. Work with health care providers

to improve the experience of families of seriously-ill and life-limited children at local and national level and to educate health care providers about their needs.

Work with grant funders to identify and develop applications for funding so that families can access the specialist emotional, psycho-social and practical support that they need.

Develop more ‘outreach hub’ provision so that families can ‘drop-in’ for information, advice and support when needed.

Share our learning with other charities that are keen to follow the model of The Bluebells so that similar models can be replicated across the UK, and if funds are available replicate The Bluebells in another county.

Spearhead the ‘family respite holiday movement’, recognising that what we provide is unique and needs its own place within an integrated package of support for families of life-limited or seriously-ill children.

Provide integrated play by designing and building a fully accessible woodland play area and trim trail in the grounds of The Bluebells, so that disabled children and their families can enjoy safe but challenging activities.

Extend the provision of bereavement support and care by seeking to fund, develop and formalise a bereavement support service, recognising that our families tell us they want continuity of care from those they have known throughout their child’s journey.

32

Page 3: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

Being at close hand with families throughout the journey of their child’s illness is always a privilege; here we look at our relationship with the family of Hollie Oxenham.

When in February 2013 Hollie, a previously healthy, active four year old, began to complain of headaches and appeared unsteady on her feet she was initially treated for a virus. Six subsequent hospital visits took place before Hollie was eventually diagnosed on the 1st May with an inoperable brain tumour, known as a Bilateral Thalamic Glioma. Although indications from the outset were extremely poor Hollie’s parents, John and Louise, never asked for a time prognosis as they always wanted to live with the hope of a cure. The following

weeks, then months resulted in a “new normal” revolving around hospital life in London; miles away from the family home in the Berkshire town of Bracknell, initially for a biopsy, then for attempts to drain fluid from the brain before a shunt was fitted. Infection of the wound site complicated matters further, which meant another delay to the planned months of radiotherapy and chemotherapy.

“At this point our world had been turned upside down, but we had to cope for Hollie’s sake” explains Louise. Trying to retain a sense of normality was important for Hollie but also for her baby sister Emily and big brother Lewis. “We tried to do as much as we could whenever Hollie was well” continued Louise “we crammed in as much as possible to create precious memories”.

In spite of the devastating diagnosis and rapid deterioration Hollie continued to bring sunshine, smiles and much merriment until she drew her very last breath. Time spent with Hollie always involved laughter, giggling and lots of affection- she was an articulate, confident little girl who enjoyed ballet lessons, trips to Legoland, having her nails painted, lunch at McDonalds and storytelling at the library with her grandparents.

Helping families to build memories is something the

FamilyProfileFAMILIES

Hollie – forever five

Happier times, in The Bluebells garden

Princesses for the day, Hollie and Emily sit proudly with their parents on their wedding day

Trust sees as a priority. Hollie and her family became known to Sebastian’s Action Trust early on in her treatment; they first enjoyed time at The Bluebells in August 2013 as an extended family with Nanny Carol and Grandad John, as well as attending events like our Christmas party and Easter Egg Hunt. Wellbeing therapy came to Louise as well as Hollie and sister Emily, allowing a relationship to develop that made us privy to the Oxenham family during their most difficult days. When it became apparent that Hollie really wanted to be a bridesmaid for her mummy and daddy the Trust was able to help with the hastily organised Oxenham family wedding-such a happy occasion in spite of the worries

of Hollie’s rapidly deteriorating condition. No-one present on that glorious March day will ever forget the beautiful sight of Louise, Emily and Hollie arriving to meet John- the beaming smile on Hollie’s face as she scattered petals as she entered the ceremony, or the poignant picture of her cuddled up with her daddy throughout much of the wedding breakfast.

A week before her death the Trust’s nomination saw Hollie crowned Bracknell’s Child of Courage-a small way in which recognition could be paid to her incredible bravery, resilience and grace in fighting an impossible battle.

Tragically, Hollie died on the 29th April 2014- at home, peacefully, in the arms of her parents. Just one year separated a life full of promise, hopes and dreams and the worst fear of every parent.

Being asked to write and deliver the eulogy at Hollie’s funeral was both an honour and a responsibility that was not undertaken lightly.

Support for the Oxenham family continues for immediate and even extended family

members. We recognise that learning to live with loss and a lifetime of missing is highly individual, so our efforts are never prescriptive but tailored to the needs and wishes of each particular family.

“The Trust has been, and continues to be, incredibly supportive. They have helped us create memories that we never would have imagined. Always with a smile and shoulder to cry on, they have gone above and beyond anything we thought possible” -Louise

“The Trust has been, and continues to be, incredibly supportive. They have helped us create memories that we never would have imagined. Always with a smile and shoulder to cry on, they have gone above and beyond anything we thought possible”

“At this point our world had been turned upside down, but we had to cope for Hollie’s sake”

Hollie enjoying arts and crafts at The Bluebells

Hollie with her favourite companion Naughty Mr Ted and Unicorn, whilst dressed as Rapunzel

Nanny Carol, Grandad John, sister Emily and Hollie enjoying their stay at The Bluebells

54

Page 4: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

7

We have created an even bigger programme of planned events, activities and services for 2014-15. We pride ourselves on being family-led; we listen to our families and actively encourage them to help us mould the services we provide to what they will find helpful. Here is a flavour of what we have already planned.

Services Calendar

MAY

1st

Coffee morning at The Bluebells10:30am – 12:30pm

All welcome

1st

Berkshire Chill & Chat at The Hub7:30 – 10:00pm

10th

Dads’ Go-karting and Bowling Challenge12:00 – 6:00pm

Limited to 16 places.

15th

Hampshire Chill & Chat at The Bluebells7:30 – 10:00pm

17th

Grandparents’ Day at The Bluebells2:00 – 5:00pm

MAY JUNE

18th

Bluebells’ afternoon for bereaved parents2:00 – 5:00pm

29th

Coffee morning at The Bluebells10:30am – 12:30pm

All welcome

5th

Berkshire Chill & Chat at the Hub, Slough7:30 – 10:00pm

19th

Hampshire Chill & Chat at The Bluebells7:30 – 10:00pm

26th

Coffee morning at The Bluebells10:30am – 12:30pm

All welcome

JULY AUGUST

5th

Art and Music workshop at The Bluebells.10:00am – 4:30pmFor 7-14 year olds Limited to 20 places

6th

Bluebells Remembrance & Thanksgiving Day2:30 – 5:00pm

All welcome

10th

Chill & Chat Parents’ BBQ at The Bluebells7:00pm onwards.

All parents welcome

26th

Christmas in July family party at The Bluebells1:00 – 4:00pm.

For families, all welcome

1st

Coffee morning at The Bluebells10:30am – 12:30pm

All welcome

AUGUST

7th

Berkshire Chill & Chat at The Hub, Slough7:30 – 10:00pm

9th

Drama workshop at The BluebellsMidday – 6:00pm. For 6-12-year-olds Limited to 18 places

10th

Carers’ Afternoon at The Bluebells2:00 – 4:30 pm

13th

Adolescents’ Day Out 10:00am – 6:00pm.

For 12-18-year-olds

21st

Hampshire Chill & Chat at The Bluebells7:30 – 10:00pm

AUGUST SEPTEMBER

28th

Coffee morning at The Bluebells10:30am – 12:30pm

All welcome

4th

Berkshire Chill & Chat at The Hub, Slough7:30 – 10:00pm

18th

Hampshire Chill & Chat at The Bluebells7:30 – 10:00pm

25th

Coffee morning at The Bluebells10:30am – 12:30pm

All welcome

27/28th

Mums’ Sleepover at The Bluebells

Limited to 16 places

OCTOBER

2nd

Berkshire Chill & Chat at The Hub, Slough7:30 – 10:00pm

11/12th

Dads’ Sleepover at The Bluebells

Limited to 16 places

16th

Hampshire Chill & Chat at The Bluebells7:30 – 10:00pm

30th

Coffee morning at The Bluebells10:30am – 12:30pm

All welcome

For more information about attending any of the events please contact Lauren or Emma from The Bluebells’ team on 01256 391854 or [email protected]

Parents Mums Dads Children Whole family Bereaved parents/families Other

Family

Mums’ Sleepover

2013

Christmas Party 2013

Dads’ Day 2014

Bereavement support has always been an open ended service discreetly offered to families known to the Trust. Our aim as a charity is to walk alongside families of seriously-ill children from diagnosis, throughout treatment and beyond. Sadly, in some cases where all curative options have been exhausted our role focuses on continuity of support through the difficult end of life stage and the dark days that follow.

Support can come in many different forms, from regular visits, access to professional counselling services, a

lending library of grief and bereavement themed resources, access to music therapy as a form of expression for siblings, opportunities to meet other parents who have experienced similar situations and an annual Remembrance Day at the Trust’s Garden of Reflection. This year’s ceremony included a selection of poems, readings and songs chosen by bereaved family members and a release of live butterflies- a poignant link to those we call our “Butterfly Children”, who will always be remembered by the Trust.

In the past ten years the Trust has supported more than xx families following the death of a child. Since the opening of The Bluebells, xx children known to the Trust have died. Every child is acknowledged visually as a butterfly at The Bluebells and at our Bagshot office, as well as at our annual Remembrance Day. Bereavement support is available to our families on an open ended basis, to all family members.

OurBereavement Services

“A butterfly lights beside us like a sunbeam

And for a brief moment its glory and beauty belong to our world

But then it flies again and though we wish it could have stayed...

We feel lucky to have seen it...”

Unknown

Bluebells’ family Tony, Gemma, Noah and Freddie Hart have supported the Trust for several years through the fundraising efforts of their charity, Sporting Footprints. The money donated from their latest challenge, has been used to buy a large quantity of resources for bereaved parents and siblings, in addition to funding counselling services for individual and family groups requiring specialist input.

Girls’ Sleepover

2014 Easter Egg Hunt 2014

FAMILIES

76

Page 5: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

FutureFUTURE

As our reach and reputation grows, we find that we are increasingly asked to comment on the health of the Voluntary Sector and its impact on society.

Our primary responsibility will always be to the families of the life-limited and seriously-ill children we support. However, we do recognise that without alliances with partners in the Voluntary Sector our ability to deliver our service, especially our growing outreach service, diminishes and so it is important to us that we engage with others in our field.

With this in mind we have decided to publish our Manifesto, which outlines our commitment to the Voluntary Sector.

The Manifesto’s key principles include:

• Co-operation – we will work with others to highlight issues which affect the families we support, understanding that our voice is stronger with others rather than alone.

• Collaboration – we will actively seek to deliver joint services with professionals who can help enhance our provision.

• Consideration – we will never undertake new work without researching existing provision and where appropriate we will seek to enhance rather than replicate.

It is with this in mind that we supported Small Charity Week in June. Pauline Broomhead, CEO for Foundation for Social Improvement said, “Small Charity Week 2014 was a huge success, each year more and more charities take part, raise funds, increase awareness of their cause or meet with influencers who can support the mission of their charities. Small Charities are the glue that hold our society together, each day they educate, preserve the planet, give a voice to those who cannot speak out themselves, solve the issues facing those who are most disadvantaged in our society and save lives – without small charities our world would be smaller and less hopeful of a better future for all.

The Children and Families Act 2014 passed into law this spring. This new Act reforms the health, education and care systems for children and young people, up to the age of 25, with special educational needs and disabilities. Key reforms have been made to the way in which the system assesses and supports those with additional needs, including those with life-threatening and life-limiting conditions.

Significantly for our work, local offers will also set out the services available in local areas and these will be developed in partnership with children, families and the Voluntary Sector. This represents an exciting opportunity to ensure that the reforms work for those children with the most complex needs. For many of our families, time is short and they cannot afford to waste it negotiating an unresponsive and poorly coordinated system. This Act represents a really important opportunity to get things right and ensure that appropriate services are available when needed most.

Headline changes include:

• A single assessment process for children with Special Educational Needs (SEN), with Educational, Health and Care (EHC) Plans replacing statements of SEN.

• A right to a personal budget for all children with an EHC Plan.

• Duties are imposed on the NHS and local authorities to jointly commission services for children with Special Educational Needs and Disabilities.

SMALL CHARITY WEEK

The Children and Families Act 2014

98

Page 6: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

FUTURE

There was a tremendous cheer from the offices in Bagshot when Comic Relief called to let us know that our grant for a much needed Financial Support Worker had been approved.

The exciting new post, which is funded for three years by Comic Relief will aim to support families who find their income affected by their child’s diagnosis. The worker, who will be based at our new Hub, will provide free one-to-one and group support to families who might need help to manage their finances, help to secure grants for much needed equipment or advice about welfare benefit entitlement.

Philip Davis from Comic Relief said “Sebastian’s Action Trust’s bid to us fitted really well with our Healthier Finances funding programme, particularly the focus on helping people in severe financial hardship increase and maximise their income. We take all applications through a rigorous assessment process to ensure that there is a compelling need for a proposed project, and that the planned activities to address that need are the most effective. Sebastian’s Action Trust’s bid has been well thought out and illustrated vividly how families are not only devastated by the illness of a child, but that they can be plunged into deep financial hardship that impacts the wellbeing of parents and siblings. Comic Relief views learning as an important feature of its grant making. To help us understand how well funded projects are running, all grant recipients send us annual monitoring report forms. We hope Sebastian’s Action Trust’s financial support model achieves its aims and outcomes and becomes a model of good practice which similar services could replicate”.

Do something funny for money – gets serious We were delighted when Caroline took a call

from the Henry Smith Charity which told us that our bid for a Youth Support Worker had been successful. This post which will run for three years, has been made possible by funding from Cares4Kids who gave £10,000 and Henry Smith who match- funded the balance.

The post has been taken by our newest recruit; Katie Siviter who joined the team in August. Katie will aim to work with children and their siblings affected by a serious or life-limiting illness. The worker will provide one-to-one support and group support and will aim to help improve the child’s mental health and wellbeing by helping to reduce isolation, anxiety and fear.

The worker will be based in our Family Services Hub in Slough but will also conduct work from The Bluebells, at the child’s hospital bedside and in homes across Berkshire, Surrey and Hampshire.

Katie said “This position is completely new to the charity, but one which has been needed for a while. My number one aim will be to provide our families with any support they need to ease a tough time, helping to give stability and hopefully smiles.

Youth Support Worker SPOTLIGHT ON

Future

In my role, I will be reaching out to families and finding out what support they need and want most. I will also be speaking with the team and seeing what support they feel I could be offering. The great thing about this role is that it is shaped fully by the needs of the families. If I haven’t met you already, I look forward to meeting you in the very near future”.

1110

Page 7: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

On 2 June, we were truly honoured to be recognised by Royal Appointment with the Queen’s Award for Voluntary Service. The award was presented by The Queen’s representative, Dame Sarah Goad, the Lord Lieutenant of Surrey at a reception at Hall Grove School in Bagshot, where our founder Sebastian was a pupil. This prestigious award is a true testament to the hard work, commitment, passion and energy given by our dedicated volunteers and staff. Not only is the accolade regarded by the Third Sector as an MBE for volunteers, it is a wonderful endorsement of our cause and the people who make our charity such a unique organisation.

It was an enormous privilege to receive the award at a place that holds long-lasting memories for the Trust team, volunteers and supporters. Our volunteers come from all walks of life and span more than eight decades; they give their time and services in many different ways and are very much the life blood of our charity. Not only do they provide essential transport to and from hospitals, they offer befriending support, assist with activity days and provide child play and therapy. We know that our volunteers are proud to be a part of the ‘Family of Families’ that Sebastian’s Action Trust has become and that each and every one of them gives so much in order to sustain our mission to walk alongside families of seriously-ill children from diagnosis, through treatment and beyond. We are delighted to see their achievements acknowledged at the highest level and feel enormously proud to that such an honour has been bestowed on the Trust in its tenth year.

Recognition fromthe highest level – HM The Queen

Dame Sarah Goad greets supporters

Jane Gates and Alastair Graham

Jasmine Pillion

Lauren Harris raising a glass with Dave and Lynn Dutson

Raising a toast

Dame Sarah Goad and the charity’s patrons

Volunteers group together at the ceremony

Holding the banner with pride, the Trust team

The family services team enjoying the sun with friends

Candida Hazard, Philip and Joanna Chin with Catriona and Alastair GrahamMayor of S

urrey Heath,

Cllr Bob Paton chats w

ith

Headmaster Alastair Graham

Setting the scene

Loyal volunteers Dawn and Diana present Jane with a cake

in celebration

Staff members from Langland

Chairman of Trustees Peter Boon,

CEO Jane Gates and

Mayor of

Surrey Heath Cllr Bob Paton

Dedicated volunteer Duncan Rayner and Lesley Macdonald

Group of supporters celebrate in the sunshine

Patrons, Philip and Joanna Chin with Peter Edwards

Jim Fyfe and Duncan Rayner

Proud grandparents,

Pam

and Vic Walters

1312

Page 8: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

you can get involved our future 10 ways Funding

12

Sunninghill Street Fayre – 16th November 2014 Why not volunteer for us?

Easy Fundraising Did you know you can shop online, raising funds for us at no extra cost to yourself?

Santa Fun Run – 30th November 2014 Get your Santa outfits at the ready!

Take one of our Christmas hampers Can you take one of our hampers to raffle amongst your friends or work colleagues?

Regular Giving A regular donation to the Trust can be as little as a £1 per month- every penny and pound is truly appreciated.

Christmas Carol Night – 4th December 2014 Join us for our festive event at The Guildhall with a choir performance at St George’s Chapel, Windsor.

Take on a challenge If jumping out of a plane or cycling in the Ride 100 takes your fancy, see the back cover for more details of just some of the ways in which you can participate.

Bake It With Love – February 2015 Hold your own cake sale in support of the Trust

Merchandise Stuck for present ideas? Buy a mug, tea towel, our amazing book or Bluebell Bear.

Hold your own fundraising event A quiz night, dinner party or even a ladies lunch- whatever you choose to organise, our team is on hand to offer support.Bluebell Bear.

34

5

678

910

As I am writing this, our Family Services Hub in Slough is just about to open, which will provide a wonderful space for families to visit and access information and support which can help them. In addition and thanks to funding from Grants we have been able to recruit a number of new staff to fill vital roles within our Family Services Team. Further to this we are also fundraising to build a much needed extension to the Bluebells so that families can ‘drop-in’ for

day visits and for information, advice and support without compromising the privacy of families using the facility for a special break. Finally we are developing the outside space within the Bluebells to incorporate a woodland trail and garden of reflection and remembrance. This means that we need to raise in excess of £850,000 this year- to complete the projects and fund our work for which there is tremendous need.

As the Chief Development Officer my role here at the Trust is to help support my

team to generate income to keep our work alive whilst also working with Jane and the other members of the management team to look at sustainability.

To safely manage the Trust’s work and ensure viability my team will work to secure funding through an investment in community based fundraising, legacy fundraising and regular giving. I will also personally focus on securing funding from local councils and unitary authority grant making trusts to ensure that aspects of the service which we deliver can be ‘packaged’ to funders which helps to safeguard the services into the future.

A note from Caroline As our tenth year draws to a close, we are proud to reflect on how far the Trust has come from its inception in 2004. We continue to support a growing number of families, which inevitably results in pressure to find more resources to sustain and expand service provision.

We simply cannot achieve this alone and that is why we are calling upon you to help. Without continued supporter commitment we cannot provide a highly-skilled outreach team, organise family activity days or meet the day-to-day running costs of The Bluebells. Here are ten easy ways you in which you, your family or colleagues can get involved:

1514

Page 9: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

SpotlightWe are fortunate to have support from both national and international companies, whose incredible generosity makes a vital difference to our charity year on year. All of our corporate partners go that extra mile and are extremely passionate, dedicated and committed, not only in raising vital awareness of our brand but also much needed funds.

Here are some of the ways our corporate partners have helped us over the past few months:

AAThe 800 + employees at the AA in Basingstoke have already raised £6,000 since we became their charity of the year in April. Staff have held 13 different fundraising challenges, including a BBQ, a tea party, a skydive challenge and a netball team competition.

Airinmar We have twice been the chosen charity of Airinmar, which has raised over £5,000 for the Trust to date. Notably a team of employees took part in a 27-mile sponsored walk, named TrekFest, which involved climbing the highest peaks of the Brecon Beacons within 12 hours.

BJP BJP were announced as finalists at the 2014 Institute of Fundraising National Awards for the ‘Best Business-Charity Partnership’. They were recognised for their ‘working with our community campaign’, which saw BJP employees give over 1,000 volunteering hours. The campaign was a huge success with a total of £5224 raised, more than double the projected income. This also resulted in more than 5% of employees becoming regular givers, with a further 35% continuing to show support through events.

Unum Unum held a very successful charity comedy roadshow, which they hope to repeat in the near future. Unum employees have also held different fundraising activities round the office, and are joint sponsors with Knight Frank for our Swinley Forest Run this year.

LEGO We are proud to be LEGO’s chosen charity and are delighted to see the many ways in which our partnership is growing.

Duncan Titmarsh, one of only 13 LEGO certified professionals in the world, joined us at our Bluebells’ Fete to help children and parents create a LEGO mosaic of The Bluebells, which was by far the most popular activity at our fete! LEGO have also donated toys for raffle prizes and our Christmas In July party, as well as becoming actively involved with designing a play facility at our outreach hub.

British Gas The team from British Gas Staines have devoted time, energy and materials to The Bluebells’ garden by transforming land behind the acoustic fence. Employees worked tirelessly in the heat and torrential rain to help provide integrated play in a fully accessible woodland play area and trim trail in the grounds of The Bluebells, so that disabled children and their families can enjoy safe but challenging activities.

on some of our corporate supporters

1716

Page 10: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

18 19

Spotlighton Supporters

Donna Mannion and Mandy Coker held their first fashion show for the Trust, which brought in over £3,000. Following their success the ladies are planning another event for 2015

Oakley Football Club raised £600 through donations at their annual 6-a-side tournament, with an additional £57.80 from collection buckets on the day.

A big thank you to all of our Bluebells Sponsors whose generous donations pay towards families staying at our holiday home.

The Basingstoke Bullets Roller Derby raised over £4,500 from climbing Mount Snowdon and participating in a 26.4mile skating marathon

Sporting Footprints took on the challenging 170 mile Coast to Coast cycle ride, stretching from Morecambe in Lancashire to Bridlington in Yorkshire, raising £1,565. “Being on the receiving end, as frequent visitors to The Bluebells, we have been humbled by what the Trust does and the ongoing support they provide so taking part in fundraising challenges is the least we can do”.

Tom Goddard, Rory Cosgrave, Tony Hart and Matt Hart

18 brave supporters took to the skies, jumping 10,000 ft for the Trust in our sky dive challenge. In total the group raised a staggering amount, in excess of £10,000.

The staff members at the Waldorf Hilton Hotel generously donated £1,755.

St Michael and Mary Magdalene Church and St Michael’s Church of England Primary school held their annual Purple and Gold Fete, which raised £500 for the Trust.

Thank you to Bearwood Lakes Golf Club who generously donated £1,061.

A big thank you to Colnbrook Church of England Primary School who raised over £700 this year by holding mufti days and a school fete.

Friends Lucy Luff and Davina Wilson took part in this year’s Nightrider challenge, raising in excess of £800.

A massive thank you!

facebook.com/sebastiansactiontrust twitter.com/SebsActionTrust

Talk to us on

1918

Page 11: Our Year Pledge · contributed to our much anticipated book it is clear that our work over the past decade is much appreciated. It is a warm, anecdotal and thought provoking read,

Contact us:Sebastian’s Action Trust, Unit 8 Tanners Yard, London Road, Bagshot, GU19 5HDT: 01344 622500 E: [email protected] www.sebastiansactiontrust.org

Sebastian’s Action Trust is a registered charity and a company limited by guarantee: Registered Charity No: 1151146 Registered Company Number: 8339436

Calendarof events

Follow us on: sebastiansactiontrust @SebsActionTrust

Here is just a taste of what we have planned for the remaining months of 2014 and start of 2015. For full up-to-date events listings, visit our website or contact the fundraising team on 01344 622500.

October

7

Coworth Park Ladies Luncheon Coworth Park, Ascot Guest Speaker Katie Caldesi. £45 per person.

October

17We are 10 party Northcote House, Sunningdale. Sparkling reception, 3 course dinner & entertainment. £60 per person.

November

16Sunninghill Street Fayre High Street, Sunninghill. Entry by donation.

November

19Mogul Night London Road, Bagshot, GU19 5HJ. 3 course dinner. £25 per person.

November

27Nails and a Christmas Chatter Bagshot. £5 per person.

November

30Santa Fun Run Virginia Water Adults £20 Children £10 Under 5’s free

December

5Christmas Carol Night The Guildhall & St George’s Chapel, Windsor.

Dinner and choir performance at Windsor Castle. £55 per head.

January

31

Coworth Park Ladies Luncheon Brownlow Hall, Warfield £15 per person includes fish and chip supper.

February

2015Bake it with Love Fundraising events throughout the month of February

May

2015Skydive After popular demand, we are holding another skydive day. Please contact the fundraising team if you are eager to take part.

August

2015Ride 100 18 places available for 2015 £50 deposit, £350 pledge

Sign up to receive our e-News bulletin twice a year by emailing us: [email protected]