NATIONAL MS SOCIETY...2015 FOCUSED STRATEGIES Expand the Impact of the MS Movement by Fully Engaging...
Transcript of NATIONAL MS SOCIETY...2015 FOCUSED STRATEGIES Expand the Impact of the MS Movement by Fully Engaging...
NATIONAL MS SOCIETYKENTUCKY-SOUTHEAST INDIANA CHAPTER
2015 ANNUAL REPORTMOVING TOWARD A WORLD FREE OF MS
2015 FOCUSED STRATEGIES
Expand the Impact of the MS Movement by Fully Engaging Volunteers:
Sherry Anderson once said “Volunteers don’t get paid, not because they’re worthless, but because
they’re priceless.” Success is only possible because of our amazing volunteers.
Here at the National MS Society, Kentucky-Southeast Indiana Chapter, we are expanding the idea of
Skilled-Based Volunteering. Using personal talents or professional competences is a way for volun-
teers to give back to the community while developing new talents or leadership skills. It’s a strategic
type of volunteerism that exponentially expands our impact by incorporating a wide range of skills
that strengthen us internally.
The strategic goal of “expanding the MS movement by fully engaging volunteers” is implemented by
connecting the volunteer with the right skills to the right project at the right time. It means inceasing
our volunteer interest with ongoing and potential projects.
Tina Mclellan Greg Fischer (Mayor of Louisville), and Lexi Mclellan
Walter Smith, Joanna Smith, Mary Carabella, and Dawne Gee.
2 | JOIN THE MOVEMENT: nationalMSsociety.org/kyw
2015 FOCUSED STRATEGIES
2015 FOCUSED STRATEGIES
Building Powerful Lifetime Relationships With Constituents by Knowing, Learning, and Predicting the Very Best Ways to Fully Engage Each Person in the MS Movement:
Ramsey Carpenter, Nicole Everman MD, Stacy FunkDiana Quesada, and Nancy Heckler.
Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, inter-
rupts the flow of information within the brain, and between the brain and body. MS affects more
than 2.3 million people worldwide.
The Society mobilizes people and resources to drive research for a cure and to address the chal-
lenges of everyone affected by MS. Since its inception, the Society has invested $870 million in
MS research and has recruited more than 800 new researchers to the field. Each year, through its
comprehensive nationwide network of programs and services, the Society also helps more than one
million people affected by MS connect to the people, information and resources needed to move
their lives forward.
Jennifer and Dan Digmann (authors of Despite MS, to Spite MS).
KENTUCKY-SOUTHEAST INDIANA CHAPTER | 3
2015 FOCUSED STRATEGIES
FINANCIAL ASSISTANCE
In many cases we can provide financial support for those with MS. We assist with such items and services as home and car modifications, mobility equipment, transportation, and more. In Fiscal
Year 2015, we were able to assist 89 clients with over $30,438 in Financial Assistance, leveraged
over $7,000 to provide three college scholarships.
We encourage our clients to take advantage of our Wellness Incentive Program, with benefits
of exercise and recreation as a vital part of controlling their health. This program benefited
15 clients totaling $3,320.WE SUPPORT THE MS NAVIGATOR PROGRAMMS Navigators have the resources to provide you with the latest information about MS including:• Newly diagnosed information• Treatment and symptom management
strategies• Accessing optimal health care• Meeting workplace challenges
• Financial challenges and planning for the future
• Facing caregiver challenges• Finding help in the home• Managing life changes
We are here to help you navigate the challenges of MS with a personalized response to your unique needs. Call 1-800-344-4867 for personalized service, up-to-date information, and practical resources and referrals.
Did You Know?A blood based MS diagnostic test is in development by researchers funded through Fast Forward, the Society’s commercial research mechanism. Test results showed an 84% accuracy rate in identifying people who had, or would develop, relapsing-remitting MS.
Did You Know? A new study on smoking provides evidence that MS progresses faster in those who continue to smoke, compared with those who quit after diagnosis. Past studies supported by the Society found that smoking is related to disease progression, and MS disability progresses more quickly in smokers.
Big Shot Cyclist Dean Brooks and Chapter President Stacy Funk.
Greg Foresman, Dianne and Bob Montgomery and Aaron Montgomery at Jam For A Cure 2015.
Lead Global Collaborative MS Research:
Connect People Affected by MS to Information, Resources, and Others to Ensure They Have What They Need to Live Their Best Lives:
2015 FOCUSED STRATEGIES CONTINUED
4 | JOIN THE MOVEMENT: nationalMSsociety.org/kyw
Bob Montgomery, 2015 Sylvie Award WinnerBob joined the Board of Trustees in 2010 after becoming acquainted with the Society through his son’s fundraiser, “Jam for a Cure”. Beginning in 2013, Bob began serving as Treasurer for the Board of Trustees, as he is a CPA with Dean Dorton Allen Ford, it was a natural progression. Bob has been married for 49 years to his wife, Dianne, whom he met on a blind date when he was 15 years old. They have two sons, Chris (Angela and son Luke) and Aaron (Brandy).
Brad Kruer, 2015 Junior Sylvie Award Winner Brad has volunteered with the Society since he was a child. He’s been involved behind the scenes for many years and held several leadership positions including Walk MS Louisville Chair and most recently was key-note speaker at the Crystal Boots & Silver Spurs event. Brad is also an avid cyclist and has ridden in Bike MS for 13 years. Brad is a graduate of Our Lady of Providence High School in Southern Indiana and the University of Evansville. He’s been married to his wife Kim for 16 years and together they have three boys, Landon, Lincoln and Luke.
MARTHA MONTGOMERY AWARD WINNERS:
•Bowling Green: Lilly Wheet •Middlesboro: Blake Bowling •Paducah: Alicia Ray •Somerset: Bettie Woolridge •Columbia: Lynda McKinley •Lexington: Karen Hastings •Louisville: Tammy Bishop•Southern Indiana: Beth Badger
•Michael Griffin •Melissa Wilson•Kenny White •Robin Todd•Pamela Raglin •Joanna Smith•Josh LaRoche •Alesia LaRoche•LYPA •Anita Miller•Dana Lykins
OUTSTANDING VOLUNTEER AWARDS:
2015 AWARD WINNERS
KENTUCKY-SOUTHEAST INDIANA CHAPTER | 5
LEXINGTONGoing the Extra ‘Myelin’
AIN NeuroBlockersHoops for Hope
The B TeamKory’s Team
LOUISVILLECathie's Crue
MAC CONSTRUCTIONThe Trailblazers
Roo’s Crewwalkn4acure
PADUCAHShake It Off
Belinda’s BunchShake Your DUF6
MS Pit CrewKim’s Kapables
BOWLING GREENLandshark Shredding
Walking for HopeTeam Amanda Defevers
The Three MS-Keteers & FriendsTeam Nellie Shobe
CENTRAL KENTUCKYHunting for a Cure
Fort Knox FCU#Michelle’s Support
Walking for BevFord’s Fighters
WALK MSCONGRATULATIONS TO THE TOP WALK MS
TEAMS OF 2015!
COLUMBIAMS Dreamwalkers
Walk WrightGrann’s FansMS Warriors
The Cure Crew
PULASKI COUNTYTeam Monica Jones
Keep S’myelinKentucky Alpha Delta Kappa
Family FootprintsTeam John
BELL COUNTYMyelin Warriors
Team CourageousTeam Jamie
Wal-Mart #739
Walk MS Paducah 2015
Walk MS Lexington 2015
Walk MS Bowling Green 2015
HIGHLIGHTS FROM THE YEAR
6 | JOIN THE MOVEMENT: nationalMSsociety.org/kyw
Team DOT Louisville ($20,383.35) JudeMar Juggernaut ($19,490.00) YUM! Brands ($9,482.00) Slow and Steady ($9,288.00) Chino Hills ReCyclers ($8,706.00)
BIKE MS 2015: BLUGRASS, BIKES, BOURBON & BBQ
TOP FUNDRAISING TEAMS: BIG SHOTS:
Jeff Hamilton ($10,010.00)Phillip Patterson ($10,010.00)Dean Brooks ($7,762.00)Andrew Miller ($7,710.00)Byron Bell ($5,005.00)
At Bike MS: Bluegrass, Bikes, Bourbon & BBQ, cyclists wound through the rolling hills of Kentucky and Southern Indiana, experiencing historic landmarks, the banks of the Ohio River and the beauty of our Olmsted Park System. With our new staggered start this year, many cyclists finished around the same time- even if you did the Century or the 25 mile route, making Saturday evening a celebration everyone enjoyed.
Save the date for next year’s Bike MS event-Saturday and Sunday June 25 and 26, 2016 at the Louisville Water Tower Park. Registration is OPEN now! Go to www.bikemsky.org.
This event could not happen without the extraordinary vision and help from some of our very special friends. We want to say thank you to Dub Newell (Bike MS Chair), John McCafferty (Graphic Designer), Upper Crust Catering, SmokeHawgs BBQ, Clarksville Schwinn, Glenn Todd (SAG Support Lead), Drew Fos-ter (HAM Operator Lead), and the illustrious Andy Murphy with the Louisville Bicycle Club. These leaders made Bike MS safe, fun, and successful.
We want to extend a very big thank you to our Lead Volunteers who worked unbelievably long and hot hours all weekend; Andrew Bankston PhD, Clay Mathis, Josh and Alesia LaRoche, Michael Griffin and Eric Kemple. Also to all the volunteers who worked rest stops, drove SAG vehicles, ran errands, and so much more, we thank you.
THANK YOU!
Mary Anne and Richard Heckler
HIGHLIGHTS FROM THE YEAR
Paul Plevyak
Brad and Norman Kruer
KENTUCKY-SOUTHEAST INDIANA CHAPTER | 7
WOMEN ON THE MOVE LUNCHEON
Mayor Greg Fischer and WAVE 3 Anchor Dawn Gee.
Ramsey Carpenter, Miss Kentucky 2014 and NAWBO Executive Director Stephanie Gedde.
Asia Ford - Marathon Runner, Dub Newell - Board Member and Zoe Koplowitz - Keynote Speaker and
Marathon Runner.
The Woman of Courage Award is presented to one woman each year who demonstrates dignity, grace, strength, compassion and creativity. The 2015 Award was presented in March to WAVE 3 Anchor, Dawne Gee. Dawne donates her time and resources to the National MS Society because her sister Pam was diagnosed with MS in 1994. She also donates her time to many other charities and most recently wrote a cook book, “A Recipe to End Hunger.” Dawne works tirelessly for the National MS Society and the Louisville community at-large. She is A Woman of Courage.
HIGHLIGHTS FROM THE YEAR
8 | JOIN THE MOVEMENT: nationalMSsociety.org/kyw
The sixth annual Crystal Boots and Silver Spurs raised over $360,000, making
it our biggest year ever. The event was a great opportunity to mingle, enjoy
specialty cocktails, and food stations, all while supporting the National MS
Society. A heartfelt thank you to the Unruh family for another successful
event.
CRYSTAL BOOTS & SILVER SPURS
Standing: David and Joyce Hatfield and Janet and Jerry Solomon. Seated: Bill and Juanita Beach and Wilma and
David Evanczik.
Brad and Kim Kruer
Maria Unruh Wheatley and Jeannie Unruh.
Erin Haynes Reed, Angie Morrison and Denise and Kenny Jewell.
HIGHLIGHTS FROM THE YEAR
KENTUCKY-SOUTHEAST INDIANA CHAPTER | 9
10 | JOIN THE MOVEMENT: nationalMSsociety.org/kyw
MOVING MOUNTAINS FOR MS FAMILY WEEKEND RETREAT 2015
Over 160 people, including nearly 80 children, enjoyed a great weekend participating in educational workshops, team building programs, dinners and fellowship. The kids had a blast creating art projects, learning, per-forming music, and discovering how MS affects their family,
Thank you to Dr. Stephen Kirzinger, Family Retreat Committee Chair, and to ALL our incredible volunteers- Olga Johns, Mary Virginia Brooks, Elke Fisher, Darcy Targgert, Julie McDearman, Emma Jackson, Chandra Black, Michelle Lewis, Vicki Harris, Julie Naville, Becky Young, Jenifer Patterson, Dody Carlisle, Tami Combs, Kelsee Lee, Nancy Heckler, John Sheller, Deb-bie Nelson, and Dan and Jennifer Digmann.
Chapter president Stacy Funk Kentucky-Southeast Indiana Chapter
OffiCers Board Chairman, Diana Quesada Fifth Third Bank
Vice Chairman & Governance Chair John Scheller Stoll Keenon Ogden, PLLC
Treasurer, Bob Montgomery Dean Dorton Allen Ford PLLC
Secretary, Emily Witt Trilogy Health Services
Audit Chair, Keith Johnson Robbins Enterprise
Governance Chair, Pete Kalmey Kindred Healthcare
Regional Volunteer Leadership Council, Chair, Jeff Hamilton Redd Weitkamp Schell & Vice PLLC
MeMbers Michelle M. (Husted) Baugh USI
Ramsey Carpenter The Providence School, Jessamine County Brett Corbin Raymond James and Associates
Todd DeYoung Humana
Tami Hatfield-Kennedy Ford Motor Company
Kenny Jewell Heritage Electric
Stephen Kirzinger, M.D. Quintiles Clinical Research Organization
Karen Krinock Brown-Forman
Debbie Nelson Baptist Health Louisville
Walter “Dub” Newell FirstLight HomeCare
Nick Papachristou Hilliard Lyons
Dan Rattner Rattner Bloodstock
Sam Rock Rock Law Group PLC
Rick Sexton New Life Industries
Tracy Shelby Harper Industries Inc.
James W. Shircliff Raymond James & Associates
Dr. Cary Twyman KentuckyOne Health
Mary Van de Kamp Rehab Care/Kindred Healthcare
Jason Waters ARGI Financial Group
Julie Garrison Baptist Health Louisville
National MS Society Kentucky-Southeast Indiana
Chapter 1201 Story Avenue, Suite 200
Louisville, KY 40206
Telephone: 502-267-8487 Fax: 502-581-1010
CONTACT US CHAPTER STAFF
Stacy Funk Jinny Cornett Chapter President Programs & Services Manager
Shelby Jeff Maci Baurle Operations Manager Development Coordinator
Mary Carabella Cathy Kemple Director of Development Office Manager
2014-2015 BOARD OF TRUSTEES
KENTUCKY-SOUTHEAST INDIANA CHAPTER | 11
About Multiple Sclerosis Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and body. Every hour in the United States, someone is newly diagnosed with the disease. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 400,000 people in the U.S. and over 2.1 million worldwide.
About the National Multiple Sclerosis Society MS stops people from moving. The National MS Society exists to make sure it doesn’t. The Society addresses the challenges of each person affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, collaborating with MS organizations around the world, and providing programs and services designed to help people with MS and their families move forward with their lives.