National Ataxia

Foundation’s

Neurologist Resource List

United States Includes Neurologists and Ataxia Clinics

Disclaimer:

This is a resource list of neurologists who have expressed an interest in seeing patients with Ataxia. It is offered as a service to the ataxia community by the National Ataxia Foundation (NAF). However, NAF does not verify the medical qualifications, practice capabilities or licenses of these neurologists and NAF is not liable for any

diagnosis or medical treatments given by the medical professionals contained on this resource list. If you have questions or concerns, please contact the National

Ataxia Foundation at 763-553-0020 or naf@ataxia.org. 08/31/2021

United States

Neurologist Resource List

ALABAMA The University of Alabama at Birmingham Division of Movement Disorders Department of Neurology The Kirklin Clinic of UAB Hospital Neurology Clinic in Neurosciences Marissa Dean, MD David G. Standaert, MD, PhD Talene Yacoubian, MD, PhD 2000 6th Avenue S Birmingham, AL 35233 Phone: (205) 801-8986

Fax: (205) 996-4039 General Info about the ataxia clinic: (205) 934-0683, Opt 4 Ataxia Clinic – 4th Friday of each month

Children’s Hospital – Pediatric Neurology

Leon Dure, MD Amitha Ananth, MD, Assistant Professor 1600 7th Ave. So. – CHB314 Birmingham, AL 35233 Phone: (205) 996-7850 Fax: (205) 996-7867 By referral only (Sees children)

Shelby Baptist Medical Center Nasrollah Eslami, MD 1004 1st St. No Suite #330 Alabaster, AL 35007

Phone: (205) 664-2967 Fax: (205) 664-9689 Sees ages 12 through adult

Clinic for Neurology Scott Hitchcock, MD David Greer, MD 185 Chateau Dr. SW, Ste 301 Huntsville, AL 35801 Phone: (256) 533-4402 Fax: (256) 551-1902

By referral only Alabama Clinic Farouk Y. Khan, MD 2812 Hartford Hwy Dothan, AL 36305 Phone: (334) 712-1170 Fax: (334) 460-8391

ARIZONA

Banner University Medical Center 2800 E. Ajo Way Tucson, AZ 85713-6204 Phone: (520) 694-8888 Fax: (520) 874-2701

Barrow Neurological Institute at Phoenix Children’s Hospital Pediatric Movement Disorders Center Michael Kruer, MD 1919 E. Thomas Rd Phoenix, AZ 85016 Phone: (602) 933-0970 Fax: (602) 933-4253

Barrow Neurological Institute Department of Neurology Terry Fife, MD Kamala Saha, MD 240 W Thomas Rd #301 Phoenix, AZ 85013 Phone: (602) 406-6262 Fax: (602) 406-6261 (for new patient referrals)

ARKANSAS Arkansas Children’s Hospital Neurology Section 1 Children’s Way, Slot 512-15 Little Rock, AR 72202 Phone: (501) 364-4000 Fax: (501) 364-6077 (Sees children)

Arkansas Children’s Northwest Pediatric Neurology Tonya Balmakund, MD Stephen Jones, MD 2601 Gene George Blvd Springdale, AR 72762 Phone (479) 725-6880 Fax (479) 725-6582

CALIFORNIA UCLA Ataxia Center Neurological Services Susan Perlman, MD Brent Fogel, MD, PhD 300 UCLA Medical Plaza, Ste. B200 Los Angeles, CA 90095 Phone: (310) 794-1195 Fax: (310) 794-7491

UCLA School of Medicine West LA VA Health Care Center 11301 Wilshire Blvd Los Angeles, CA 90073 Phone: (310) 268-3595 UC Davis Medical Center Department of Neurology 3160 Folsom Blvd, Ste 2100 Sacramento, CA 95816 Phone: (916) 734-3588 Phone: (800) 482-3284 (referrals)

Stanford Healthcare Neurosciences Hokuto Morita, MD Veronica Santini, MD Sharon J. Sha, MD Laurice Yang, MD 213 Quarry Road, 3rd Fl Palo Alto, CA 94304 Phone: (650) 723-6469 Fax: (650) 735-0390 Rancho Los Amigos National Rehabilitation Center 7601 E. Imperial Hwy Downey, CA 90242 Phone: (562) 385-7115 Keck Medicine of USC Department of Neurology 1520 Pablo St, Ste 3000 Los Angeles, CA 90033 Phone: (323) 442-5710 University of California, Irvine Alejandra Garland-Becerra, MD David Swope, MD Nicolas Phielipp, MD Anna Morenkova, MD 1 Medical Plaza Dr. Irvine, CA 92697 Phone: (714) 456-7220 Also locations in Orange & Tustin, CA Appointments can be made at (714) 456-7220

UCSF Movement Disorder and Neuromodulation Center 1635 Divisadero St., Suite 520 San Francisco, CA 94115 Neurology: (415) 353-2311 Fax: (415) 353-9060

UCSF Memory and Aging Center Michael Geschwind, MD, PhD

Clinic address: 1500 Owens St., Ste 320 San Francisco, CA 94158 Phone: (415) 353-2057 Fax: (415) 353-8292 Forbes Norris MDA/ALS Center Robert G. Miller, MD, Director Jonathan Katz, MD Liberty Jenkins, MD 1100 Van Ness Ave. Floor 6 San Francisco, CA 94109 Phone: (415) 923-3604 Fax: (415) 375-4827

Senta Clinic Ian Purcell, MD, PhD Monali Patel, MD 7625 Mesa College Dr, Ste 305A San Diego, CA 92111 Phone: (858) 223-2173 (Dr. Patel) Fax: (760) 607-3210 (Dr. Patel) Phone: (858) 223-2172 (Dr. Purcell) Fax: (858) 682-2205 (Dr. Purcell) Vandever Medical Offices Kaiser Permanente 4405 Vandever Ave San Diego, CA 92120 Phone: (619) 528-5000 Phone: (877) 236-0333 Fax: (619) 516-6598 By referral only University of California, San Diego Movement Disorder Program (See adults only) Irene Litvan, MD Brenton Wright, MD

4510 Executive Dr, Ste 3256 San Diego, CA 92121 Phone: (858) 657-8540 Fax: (858) 657-8549

Rady Children's Hospital Movement Disorders Clinic Jennifer Friedman, MD 3020 Children's Way San Diego, CA 92123 Phone: (858) 966-5819 Fax: (858) 966-4930

COLORADO

University of Colorado Hospital Jessica Barr, PA-C Trevor Hawkins, MD Drew Kern, MD Lauren Seeberger, MD Anschutz Outpatient Pavilion 1635 Aurora Ct., Suite 4500 Aurora, CO 80045 Phone: (720) 848-2080 Fax: (720) 848-2106 Ataxia Clinics 1st & 3rd Monday afternoons (Sees adults only) For more info call Alan Hall (720) 848-8761 Intake and Access Coordinator Kaiser Permanente Physical Medicine Christine Munson, MD 2045 Franklin St Denver, CO 80205

Phone: (303) 861-3303 Referral only Kaiser Permanente Neurology Department Eryn Lonnquist, MD Chief Neurologist Skyline Bldg. 3rd floor 1375 E. 20th Denver, CO 80205 Phone: (303) 861-3380

The Children’s Hospital Nicole Tartaglia, MD

13123 E. 16th Ave., B140 Aurora, CO 80045 Phone: (720) 777-6630 Fax: (720) 777-7311 (Sees children with Fragile X)

Colorado Institute for Neuromuscular and Neurological Disorders Pierre Pavot, DO 600 S. Airport Rd. Building B, Suite E Longmont, CO 80501 Phone: (720) 491-3322 Fax: (720) 684-6715

Rocky Mountain Movement Disorders Center Rajeev Kumar, MD, FRCPC Vicki Segro, Nurse Practitioner 701 East Hampden Ave., Suite 510 Englewood, CO 80113 Phone: (303) 357-5455 Fax: (303) 357-5459

CONNECTICUT

Connecticut Children's Medical Center Gyula Acsadi, MD, PhD Pediatric Neurologist 505 Farmington Ave Farmington, CT 06032 Phone: (860) 837-7500

Fax: (860) 837-7550

Hartford HealthCare Chase Family Movement Disorders Center https://hartfordhealthcare.org/services/movement-

disorders-center

https://espanol.hartfordhealthcare.org/nuestros-

servicios/trastorno-movimiento

Bridgeport Office Cheshire Office 2660 Main Street 280 South Main Street Ste 219 Ste 102 Bridgeport, CT 06606 Cheshire, CT 06410 Phone (860) 870-6385 Phone: (860) 870-6385 Fax (860) 870-0625 Fax: (203) 250-0191 Leon Meytin, MD Michelle Dagostine, MD Duarte Machado, MD

Mystic Office Stamford Office 100 Perkins Farm Dr, Ste 102 623 Newfield Avenue

Mystic, CT 06355 Stamford, CT 06095 Phone: (860) 870-6385 Phone: (860) 870-6385 Fax: (860} 245-0000 Fax: (860) 245-0000 Elena Bortan, MD Leon Meytin, MD Maria L Moro-de-Casillas, MD Nikita Urval, MD

Torrington Office Vernon Office 780 Litchfield St 35 Talcottville Road, Suite 3 Suite 6 Torrington CT 06790 Vernon, CT 06066 Phone: (860) 870-6385 Phone: (860) 870-6385 Fax (860) 870-0625 Fax: 860/870-0625 Benjamin Dorfman, MD Joy Antonelle deMarcaida,MD

Sulada Kanchana, MD, PhD

Jeffrey Lahrmann, MD

Winsted Office Wilton Office 80 South Main St 60 Danbury Rd Suite 202 Suite 101 Winsted CT 06098 Wilton CT 06897 Phone: (860) 870-6385 Phone: (860) 870-6385 Fax: (860) 870-0625 Fax: (860) 870-0625 Benjamin Dorfman, MD Nikita Urval, MD Jeffrey Lahrmann, MD

Hartford Office – Spanish Clinic 79 Retreat Ave, 2nd Floor Hartford, CT 06102 Phone: (860) 870-6385 Maria Moro-de Casillas, MD

DELAWARE Center for Neurology & MRI Robert Varipapa, MD (Sees adults) Dover Office Milford Office 1074 South State St 111 Neurology Way Dover, DE 19901 Milford, DE 19963 Phone: (302) 678-8100 (both locations)

FLORIDA The Center for Parkinson’s Disease and Movement Disorders University of Miami, Florida

Carlos Singer, MD 1150 NW 14th St, Ste 609 Miami, FL 33136

Phone: (305) 243-3100 Fax (305) 243-4713

(Sees adults) Joe DiMaggio Children’s Hospital Div. of Pediatric Neurology Tatyana Dubrovsky, MD 1150 N. 35th Ave, Ste 520 Hollywood, FL 33020 Phone: (954) 265-2423

Fax: (954) 961-4860 (Sees children only) Parkinson’s Disease and Movement Disorders Center of Boca Raton 951 NW 13th Street, Bldg. 5-E Boca Raton, FL 33486 Phone: (561) 392-1818 Orlando Health Arnold Palmer Hospital Carl R. Barr, DO 6150 Metro West Blvd, Ste 105 Orlando, FL 32835 Phone: (321) 842-6671 Fax: (321) 843-6447

(Sees children) Nicklaus Children’s Dan Marino Center Roberto Tuchman, MD Carlos Gadia, MD 2900 South Commerce Pkwy Weston, FL 33331 Phone: (954) 385-6276 Fax: (954) 385-6201

University of Florida Department of Neurology S.H. Subramony, MD (both locations) U of FL Health Medical Plaza 2000 SW Archer Rd (3rd Fl) Gainesville, FL 32607 (352) 265-5550 AND Center for Movement Disorders & Neuro Restoration 3450 Hull Road (4th Fl) Gainesville, FL 32608 Phone: (352) 294-5000 Fax: (352) 627-4175 USF Ataxia Research Center University of South Florida Theresa A. Zesiewicz, MD, FAAN 13330 USF Laurel Dr Tampa, FL 33612 Phone: (813) 974-5909 Fax: (813) 974-8032

Nicklaus Children's Hospital Movement Disorders Program Migvis Monduy, MD, Pediatric Neurologist 3200 SW 60 Court, Suite 302 Miami, FL 33155 Phone: (305) 662-8330 Fax: (305) 663-2813

GEORGIA Emory Clinic at Executive Park Emory Movement Disorders Center George “Chip” Wilmot, MD, PhD

12 Executive Park Dr. NE, 5th Floor Atlanta, GA 30329 Phone: (404) 778-3444

Fax: (404) 712-6992

Augusta University Medical Center Movement Disorders Clinic Department of Neurology Julie Kurek, MD John Morgan, MD 1447 Harper St, Ste 4328 Augusta, GA 30912 Phone: (706) 721-4581 Fax: (706) 721-1459 (referrals) Fax (706) 721-1115 (doctor correspondence)

HAWAII Pacific Health Research & Education Institute VA Pacific Islands Healthcare System Web Ross, MD 459 Patterson Rd Honolulu, HI 96819 Phone: (808) 433-0600 (Sees veterans only)

Kapiolani Medical Center for Women & Children Keith K. Abe, MD 1401 S. Beretania St, Suite 950 Honolulu, HI 96814 Phone: (808) 983-6676 Fax: (808) 373-7577 (Sees children)

ILLINOIS University of Chicago Medical Center Dept of Neurology - Ataxia Center Christopher Gomez, MD, PhD 5841 S. Maryland Ave (Mail Code 2030) Chicago, IL 60637 Phone: (773) 795-4311, ext. 4

Fax: (773) 702-9060

Rush University Medical Center The Movement Disorders Center Deborah Hall, MD PhD Natalie Witek, MD MS 1725 W. Harrison St., #755 Chicago, IL 60612 Phone: (312) 563-2900

Fax: (312) 563-2024

Neurology of Southern Illinois Lori M. Guyton, MD, MHS Logan Professional Park 3301 Logan Dr. Herrin, IL 62948 Phone: (618) 993-0444

Fax: (618) 998-9302

Northwestern Parkinson's Disease and Movement Disorders Center Puneet Opal, MD, PhD Patients are seen at: Lavin Pavilion #1900 259 E. Erie Chicago, IL 60611 Phone: (312) 695-7950 Fax: (312) 695-5747

Southern Illinois University School of Medicine Department of Neurology Ahmad Elkouzi, MD 751 N. Rutledge St, Ste 3100 Springfield, IL 62794 Phone: (217) 545-8000 Fax: (217) 545-8115 (Sees adults only)

Mailing address: P.O. Box 19643 Springfield, IL 62794- 9643

INDIANA

IU Health Physicians Christopher William James, MD Joanne Wojcieszek, MD Sarah Zauber, MD 355 W. 16th St., Suite 3200 Indianapolis, IN 46202 Phone: (317) 948-5450 Fax: (317) 968-1256

IOWA University of Iowa Hospitals and Clinics (physician referral recommended) Hereditary Ataxia Clinic- for individuals with positive genetic testing First Friday morning of the month https://uihc.org/hereditary-ataxia-clinic Neurogenetics Clinic-for individuals suspected to have ataxia or has ataxia and no genetic diagnosis Every Wednesday https://uihc.org/neurogenetics-clinic Location University of Iowa Hospitals and Clinics Department of Neurology 200 Hawkins Dr, 2007 Roy Carver Pavilion Iowa City, IA 52242 Located on the 2nd floor near elevator E Parking ramp 2

Contact Information Phone: (319) 384-6362 Fax: (319) 356-7009 Care Team John Kamholz, MD, PhD https://uihc.org/john-kamholz Peggy Nopoulos, MD, Neuropsychiatrist https://medicine.uiowa.edu/neurology/profile/peggy-nopoulos Tiffany Grider, MS, Certified Genetic Counselor https://uihc.org/tiffany-grider

KANSAS

KU Medical Center Richard Dubinsky, MD Professor of Neurology Dept of Neurology Mail Stop 2012 3901 Rainbow Blvd Kansas City, KS 66160 Phone: (913) 588-0670 Fax: (913) 588-0673

Department of Neurology 10777 Nall Ave, Ste 140 Leawood, KS 66211 Phone: (913) 945-8700

University of Kansas Hospital Comprehensive Spine Clinic James Southwell, DO Exam Ste G250, Mailstop 1067 4000 Cambridge St./ Kansas City, KS 66160 Phone: (913) 588-2806 Fax: (913) 588-9920 Johnson County Neurology David Clark, MD John Michael Seeley, MD Stacy Younger, MD 12140 Nall Ave Ste 230 Overland Park, KS 66209 Phone: (913) 661-9448

KENTUCKY Kentucky Neurosciences Institute John Slevin, MD 740 S. Limestone St Lexington, KY 40536-0284 Phone: (859) 323-5661

Fax: (859) 323-6411

LOUISIANA LSU Healthcare Network Brian Copeland, MD 3700 St. Charles Avenue, 4th Floor New Orleans, LA 70115 Phone: (504) 412-1517 Fax: (504) 412-1518

Ochsner Medical Center Michael Wilensky, MD 2005 Veterans Memorial Blvd Metairie, LA 70002 Phone: (504) 842-3980 (Sees children 13 & older)

MARYLAND Kennedy Krieger Institute Johns Hopkins School of Medicine Amy J Bastian* PhD, PT 707 N. Broadway Baltimore, MD 21205 Phone: (443) 923-2717 Fax: (443) 923-2715

*Dr. Bastian has a PhD in movement studies and is also a Physical Therapist. She sees patients for movement studies, not for diagnosis. Kennedy Krieger Institute Kristin Baranano, MD, PhD Shannon Dean, MD, PhD 801 N. Broadway Baltimore, MD 21205 Appointments for pediatric ataxia clinic: Phone (443) 923-9400 https://www.kennedykrieger.org/patient-care/centers-and-programs/ataxia-and-cerebellar-disorders-clinic (Fact sheet link is on the website)

Johns Hopkins University Ataxia Center Liana Rosenthal, MD, Director Clinic: 601 N. Caroline St Baltimore, MD 21287 Phone: (410) 502-0133 Fax: (410) 630-7900 Mailing: 10751 Falls Road, Suite 250 Lutherville, MD 21093 Fax: (410) 616-2810 Jana Arreola, Ataxia Clinic Coordinator Jarreol1@jhmi.edu (410) 616-2816, Option 2 Privia Medical Group Shawn F. Smyth, MD Movement Disorders & Behavioral Neurology 2411 W. Belvedere Avenue, Ste 202 (in the Mower Professional Building at Sinai Hospital) Baltimore, MD 21215 Phone: (410) 367-7600 Fax: (410) 367-7666

Kennedy Krieger Institute Phelps Center for Cerebral Palsy & Neurodevelopmental Medicine Alexander H. Hoon, Jr., MD 707 N. Broadway Baltimore, MD 21205 To request an initial evaluation, contact our Care Management Office: Toll-Free Referral: (888) 554-2080 Local Referral: (443) 923-9400 NIH/NINDS Mark Hallett, MD, DM (hon) Chief, Human Motor Control Section, NINDS NIH, Building 10, Room 7D37 10 Center Dr MSC 1428 Bethesda, MD 20892-1428 Phone: (301) 496-9526 Fax: (301) 480-2286 Only sees patients who meet protocol requirements for his research clinical trials.

The Ataxia-Telangiectasia Clinical Center Johns Hopkins Hospital Jenny Wright, RN Sr. Research Nurse/Clinic Coordinator 600 N Wolfe St. CMSC 1102 Baltimore, Maryland 21287-3923 Phone: 410-614-1922 Toll Free: 800-610-5691 jwrigh58@jhmi.edu For appointments: (410) 614-1922 Fax: (410) 955-0229

Johns Hopkins Ataxia Center Movement Disorder Specialists Kristin Baranano, MD, PhD Ankur Butala, MD Thomas Crawford, MD - Dr. Crawford sees primarily children with Friedreich’s Ataxia. (See his address in next section) Amir Kheradmand, MD Arita McCoy, CRNP Kelly Alexander Mills, MD Emile Sami Moukheiber, MD Ricardo Roda, MD Liana Rosenthal, MD, Director Clinic Address; Mailing Address: 601 N Caroline St 10751 Falls Rd Baltimore, MD 21087 Falls Concourse,Ste 250 Phone: (410) 616-2816 Lutherville, MD 21093 Option 2 New patient records – Attention: Ataxia Center Fax 443-287-3329

Johns Hopkins Friedreich’s Ataxia Movement Disorder Specialists Thomas Crawford, MD Pediatric Neurology, Friedreich’s Ataxia 200 N. Wolfe Street Rubenstein Child Health Bldg., Ste 2158 Baltimore, MD 21287 Phone: (410) 955-4259 Fax: (410) 614-2297

University of Maryland Neurology Care Center Joseph Savitt, MD Lisa Shullman, MD 16 S Utah St – 3rd floor Baltimore, MD 21201 Phone: (410) 328-4323 Fax: (410) 328-1149 University of Maryland School of Medicine The Frederick Henry Prince Distinguished Professor in Neurology Department of Neurology Stephen G. Reich, MD 110 S. Paca St, 3rd Floor Baltimore, MD 21201 Phone: (410) 328-7809 Fax: (410) 328-0167

MASSACHUSETTS

Massachusetts General Hospital Department of Neurology Ataxia Unit Anoopum Gupta, MD, PhD Jeremy Schmahmann, MD Christopher Stephen, MBBS Kathie Swoboda, MD (Sees children) Wang Ambulatory Care Center 55 Fruit St Boston, MA 02114 Phone: (617) 726- 3216 Fax: (617) 724-7836

Beth Israel Deaconess Medical Center Department of Neurology Patricia (Penny) Greenstein, MD Laurie M. Gordon, MD 330 Brookline Ave., TCC8 Boston, MA 02215 Phone: (617) 667-3176 (option 2) * Fax: (617) 667-8747 * Ask for Debra Clark and tell them you were referred by NAF

Boston Medical Center Alcy R. Torres, MD, FAAP 725 Albany Street Boston, MA 02118 Phone: (617) 414-4841 Fax: (617) 414-0468 (Sees children) Boston Children's Hospital Department of Neurology Basil T. Darras, MD Claudio Melo de Gusmao, MD Jennifer A. Markowitz, MD Fegan 11 300 Longwood Ave Boston, MA 02115 Phone: (617) 355-8235 Fax: (617) 730-0279 (Sees children)

Brigham & Women’s Hospital Claudio Melo de Gusmao, MD Vikram Khurana, MD, PhD Department of Neurology, 1st Floor 60 Fenwood Road Boston, MA 02115 Phone: (617) 667-3176 Fax: (617) 525-9302

MICHIGAN University of Michigan Neurology Movement Disorders Clinic East Ann Arbor Health and Geriatrics Center Henry Paulson, MD, PhD Peter Todd, MD, PhD 4260 Plymouth Road Ann Arbor, MI 48109 Phone: (734) 764-6831 Fax: (734) 647-8535 Detroit Medical Center Harper Neurology Clinic Dept of Neurology, 8A UHC Edwin George, MD, PhD 4201 Saint Antoine St Detroit, MI 48201-2153 Phone: (800) 966-9644 Fax: (313) 7454-4468 Mercy Health Hauenstein Neurosciences Jessica Hedeman, DO Leslie Neuman, MD Cornelius Robens, MD 220 Cherry Street SE Grand Rapids, MI 49503 Phone: (616) 685-5050 Fax: (616) 685-8962 AND Cornelius Robens, MD 3865 W. Front Street, Suite 4 Traverse City, MI 49684 Phone: (231) 642-5701 Fax: (231) 642-5706

Michigan Neurology Institute Paul Cullis, MD Boris J. Leheta, MD 25100 Kelly Rd Roseville, MI 48066 Phone: (586) 771-7440 Fax: (586) 771-9966 University of Michigan C.S. Mott Children’s Hospital Pediatric Neurology Steven Mark Leber, MD, PhD (sees children) 1540 E. Hospital Dr., Rm 12-733 Ann Arbor, MI 48109-4279 Phone: (734) 936-4179

Fax: (734) 763-7551 West MI Neurological Assoc PLC Gary Gurden, MD 957 Brookhaven Ct, Bldg F Muskegon, MI 49442-3890 Phone: (231) 903-0903 Fax: (231) 903-4284 Helen Davos Children’s Hospital Pediatric Neurology Clinic Steve DeRoos, MD Spectrum Health 35 Michigan NE, Suite 3003 Grand Rapids, MI 49503 Phone: (616) 267-2500 Fax: (616) 267-2501

Metro Health Neurology Jordon Taylor, DO Paul Wasielewski, MD 2122 Health Dr SW, Ste 160 Wyoming, MI 49519 Phone: (616) 252-5790 Fax: (616) 252-5793

MINNESOTA University of Minnesota Ataxia Center CSC, Dept of Neurology Khalaf Bushara, MD (Director) Lawrence Schut, MD MMC CJ 2121 909 Fulton St SE Minneapolis, MN 55455 Appointments: Phone: (612) 626-6688 Ask for Char Martins, RN Works Tuesday/Friday, Clinic Friday Fax: (612) 676-5058 Struthers Parkinson's Center Martha A. Nance, MD 6701 Country Club Dr Golden Valley, MN 55427 Phone: (952) 993-5495 Fax: (952) 993-2250 Noran Neurological Clinic Erica Youn, MD 2828 Chicago Ave S #200 Minneapolis, MN 55407 Phone: (612) 879-1000 Fax: 612 879-0722 (Sees children)

Mayo Clinic / Ataxia Clinic Anhar Hassan, MD Movement Disorders Department of Neurology 200 First St SW Rochester, MN 55905 Phone: (507) 538-3270 Fax: (507) 284-2203 Referral & medical records needed Mayo Clinic / Friedreich’s Ataxia Clinic Ralitza Gavrilova, MD Department of Neurology & Clinical Genomics 200 First St SW Rochester, MN 55905 Phone: (507) 284-8198 Referral needed (800) 533-1564

MISSOURI The Physicians of Saint Louis University Cardinal Glennon Children’s Hospital Sean Gooretzke, MD 1465 South Grand Ave St. Louis, MO 63104 Phone: (314) 577-5338 Fax: (314) 268-6411

(Sees children) Washington University School of Medicine Movement Disorders Clinic Joel Perlmutter, MD (Sees patients with non-genetic ataxia, MSA, tremor issues.) 517 So. Euclid Ave, Lower Level St. Louis, MO 63110 Phone: (314) 362-6908 Fax: (314) 747-3258 AND Neuroscience Center

Center for Advanced Medicine 4921 Parkview Place, C, 6 St. Louis, MO 63110 Phone: (314) 362-6908 Fax: (314) 747-3258

Jefferson City Medical Group Sudhri Batchu, MD 1241 W Stadium Blvd Jefferson City, MO 65109 Phone: (573) 635-5264 Fax: (573) 761-4351 Washington University in St. Louis Neuromuscular Division Albert Davis, MD Baijayanta Maiti, MD Pietro Massoni, MD Mwiza Ushe, MD

660 South Euclid Ave Box 8111-Neurology St. Louis, MO 63110 Phone: (314) 362-6981 Fax: (314) 362-3752 Washington University Toni Pearson, MD Associate Professor, Neurology Sees patients at: St. Louis Children’s Hospital 1 Children’s Place St. Louis, MO 63110 Phone: (314) 454-6120 Fax (314) 454-4225

MISSISSIPPI Hattiesburg Clinic Neurological Research Center Ronald L. Schwartz, MD 415 South 28th Ave Hattiesburg, MS 39401 Phone: (601) 268-5620 Fax: (601) 268-5851

MONTANA Billings Clinic Steven Arbogast, MD Scott Riggins, MD John Herndon, MD – Movement Disorder Specialist 801 N. 29th Street Billings, MT 59101 Phone: (406) 435-2410 Fax: (406) 435-2805

NEBRASKA

University of Nebraska Medical Center Department of Neurological Sciences Movement Disorders Program Sarah Doss, MD Diego Torres-Russotto, MD Amy Hellman, MD John Bertoni, MD, PhD Danish Bhatti, MD 4242 Farnam St., Suite 650 Omaha, NE 68131

Phone: (402) 559-8600 Fax: (402) 559-9886 Creighton University School of Medicine Immanuel Neurological Institute Melinda Burnett, MD Assistant Professor of Neurology 6901 North 72nd St., Suite 2400 Omaha, NE 68122 Phone: (402) 717-0070 Fax: (402)717-0073

University of Nebraska Medical Center Department of Neurological Sciences Multidisciplinary Ataxia Clinic Sarah Doss, MD Clarkson Doctor’s Building South, 1st Floor 4239 Farnam St., Suite 105 Omaha, NE 68131 Phone: 402-559-8600 Fax: 402-559-5010 Nebraska Methodist Hospital John Goldman, MD Joel Cotton, MD Robert Sundell, MD David Franco, MD 8901 W. Dodge Rd, Suite 210 Omaha, NE 68114 Phone: (402) 354-2000

Fax: (402) 354-8645

NEVADA

University of Nevada School of Medicine 1707 W. Charleston Blvd. #220 Las Vegas, NV 89102 Phone: (702) 671-5070 Fax: (702) 671-5072 Roseman Medical Group Eric S. Farbman, MD 5380 S. Raindow Blvd – Ste 120 Las Vegas, NV 89118 Phone: (702) 463-4040 Fax: (702) 968-5681

Cleveland Clinic Lou Ruvo Center for Brain Health Zoltan Mari, MD Director, Parkinson & Movement Disorder Program Odinachi Oguh, MD 888 West Bonneville Ave Las Vegas, NV 89106 Phone: (702) 483-6000 Fax: (702) 483- 6007

NEW HAMPSHIRE Dartmouth-Hitchcock Medical Center Movement Disorders Program Stephen L. Lee, MD, PhD Rebecca Thompson, MD One Medical Center Dr Lebanon, NH 03756 Phone: (603) 650-5104

Fax: (603) 653-1273

Elliot Neurology Associates 185 Queen City Ave Manchester, NH 03101 Phone: (603) 663-4800 Fax: (603) 663-4805

NEW JERSEY Rutgers Robert Wood Johnson Medical School Department of Neurology Division of Movement Disorders Jennifer Chen, MD Yeva Fernandez, MD Gian Pal, MD 125 Paterson St, Ste 6100 New Brunswick, NJ 08901 Phone: (732) 235-7733 Fax: (732) 235-7041

NEW MEXICO

University of New Mexico (UNM) Hospital Clinical Neuroscience Center Amanda Deligtisch, MD Gerson Suarez-Cedeno, MD Melanie Stewart, Advanced NP Sarah Pirio-Richardson, MD 2211 Lomas Blvd NE Albuquerque, NM 87106 Phone: (505) 272-3160 Fax: (505) 272-9427

NEW YORK

University of Rochester Medical Center Department of Neurology Alex R. Paciorkowski, MD, FACMG 919 Westfall Rd Clinton Crossings Building C, Suite 220 Rochester, NY 14642 Phone: (585) 341-7500 Fax: (585) 756-5189 By referral only. Ask for Kelly Minks and mention you were referred by NAF. Weill Cornell Medicine / New York-Presbyterian

Division of Movement Disorders Claire Henchcliffe, MD, PhD Andrea Lee, MD 428 E 72nd St

Ste 400, Oxford Building New York, NY 10021 Phone: (212) 746-2584 Fax: (646) 962-0517

Albany Medical Center Parkinson's Disease and Movement Disorders Center Octavian Adam, MD Jennifer Durphy, MD Era Hanspal, MD Eric S. Molho, MD 47 New Scotland Ave Albany, NY 12208 Phone: (518) 262-6611 Fax: (518) 262-6612 (By referral only) Albany Medical Center - MC-70 Arnulf H. Koeppen, MD Matthew J. Murnane, MD (Sees adults) 47 New Scotland Ave Albany, NY 12208 Phone: (518) 262-5226 Fax: (518) 262-6261

University of Rochester Medical Center Neurology Patient Care Periodic Paralysis, Myotonia and Episodic Ataxia Clinic Strong Memorial Hospital Neurology Outpatient Clinic – 1st Fl 601 Elmwood Ave Rochester, NY 14642 Phone: (585) 275-2559

Fax: (585) 273-1255 WESTMED Medical Group Cordelia Schwarz, MD 210 Westchester Ave 73 Market St, Ste 217 White Plains, NY 10604 Younkers, NY 10710 Phone: (914) 682-0700 Phone: (914) 831-2970 Fax: (914) 681-5250 Fax: (914) 831-2971

No referral necessary Columbia University Medical Center The Center for Parkinson’s Disease and Other Movement Disorders Neurological Institute Sheng-Han Kuo, MD 710 West 168th St, 3rd Floor New York, NY 10032 Phone: (212) 305-0429 Fax: (212) 205-1145 Sees patients every Wed. afternoon Appointments: (646) 426-3876 NYU Langone Movement Disorders Fresco Institute for Parkinson & Movement Disorders Andrew S. Feigin, MD Steven J. Frucht, MD 222 East 41st Street New York, New York 10017 Phone: (212) 230-4838 Fax: (212) 230-4837 NYU Langone Health Neurogenetics Heather A. Lau, MD 222 East 41st Street New York, New York, 10017 Phone: (212) 263-7744 Fax: (212) 263-7721

Maimonides Medical Center Nuri Jacoby, MD 883 65th St (between 8th & 9th Ave) Brooklyn, NY 11220 Phone: (718) 283-7470 Fax: (718) 635-6082

Mount Sinai Beth Israel Susan Bressman, MD Naomi Lubarr, MD (sees birth to 44 yrs.) Vicki Shanker, MD Matthew Swan, MD 10 Union Square East

New York, NY 10003 Phone: (212) 844-8888 Mount Sinai Department of Neurology Siona Gupta, MD Paul Greene, MD Winona Tse, MD Miodrag Velickozic, MD 5 East 98th St. 1st Floor New York, NY 10029 Phone: (212) 241-7076 Fax: (212) 241-3656 Total Neurocare, PC Ranga C Krishna, MD 1513 Voorhies Ave Brooklyn, NY 11235 Phone: (718) 332-7878 Fax: (718) 332-8051

By referral only. (Sees children & adults) SUNY Downstate Medical Center Alexandra Reznikov, MD (Sees children) Geetha Chari, MD (Sees children) Yaacov Anziska, MD (Sees adults) Department of Neurology 450 Clarkson Ave MSC 1213 Brooklyn, NY 11203 Phone: (718) 270-2502 Fax (718) 270-1946 NYU Center for Neuromodulation Michael H. Pourfar, MD 530 1st Ave, Suite 8S New York, New York, 10016 Phone (212) 263-2607 Fax: (212) 263-4061

NORTH CAROLINA

University of North Carolina Hospitals Movement Disorder Center

Nina Browner, MD Daniel Roque, MD Miriam Sklerov, MD 194 Finley Golf Course Road, Ste 200 Chapel Hill, NC 27517 Phone: (984) 974-4401 Fax: (984) 974-2285

Duke University Movement Disorders Center Noreen Bukhari, MD, PhD Nicole Clakos, MD, PhD Jeffrey W. Cooney, MD Kyle Mitchell, MD Burton L. Scott, MD, PhD 932 Morreene Rd Durham, NC 27705-4410 Phone: (919) 668-7600 Fax: (919) 668-2855

NORTH DAKOTA

Sanford Brain & Spine Center Neurology Jau-Shin Lou, MD Tanya Harlow, MD Amber Stutz, MD 700 1

st Ave S Fargo, ND 58103 Phone: (701) 234-4036 Fax: (701) 234-4003

OHIO University Hospitals of Cleveland Neurological Institute 11100 Euclid Ave Cleveland, OH 44106 Phone: (216) 844-3192 Several neurologists at this location see patients with ataxia Cincinnati Children's Hospital Medical Center Movement Disorders Clinic-Neurology Donald Gilbert, MD Steve Wu, MD 3333 Burnet Ave, ML 2015 Cincinnati, OH 45230 Phone: (513) 636-4222 Fax: (513) 636-1888 (Sees adult patients in selected cases)

The Ohio State University Department of Neurology Division of Neurogenetics Yasushi Kisanuki, MD Clinic: 920 North Hamilton Road Gahanna, OH 43230 Phone: (614) 293-4969 University of Cincinnati Department of Neurology Head, Division of Movement Disorders 222 Piedmont Avenue, Suite 3200 Cincinnati, Ohio 45219 Phone: (513) 475-8730 Fax: (513) 475-8033

OKLAHOMA Integris Southwest Medical Center Brent Beson, MD Joshua Kershen, MD 4221 South Western Ave., Suite 5000 Oklahoma City, OK 73109 Phone: (405) 644-5160 Fax: (405) 644-6112 (Dr. Beson) Fax (405) 644-5162 (Dr. Kerkshen) (By referral only)

Movement Disorder Clinic of Oklahoma Kevin J. Klos, MD 7134 S. Yale, Ste 205 Tulsa, OK 74136 Phone: (918) 392-4530 Fax: (918) 392-4535

Bartlesville Physical Rehabilitation (BPR) (No neurologists at this site, only rehab) 4100 S.E. Adams Rd., Suite A-100 Bartlesville, OK 74006 Phone: (918) 331-9922

OREGON Oregon Health Science University Department of Neurology OP-32 Matthew Brodsky, MD Amie Hiller, MD Jeff A. Kraakevik, MD 3181 SW Sam Jackson Park Rd. Portland, OR 97239 Phone: (503) 494-7772 Fax: (503) 346-6854

PENNSYLVANIA University of Pennsylvania Health System Parkinson’s Disease & Movement Disorders Center

Neurology, 3rd Floor 330 S. 9th St

Philadelphia, PA 19107 Phone: (215) 829-6500 Fax: (215) 829-6606

Children’s Hospital at Philadelphia Neurology (many neurologists see Ataxia patients) 3501 Civic Center Blvd Philadelphia, PA 19104 Phone: (215) 590-1719 Fax: (215) 590-1771 Parkinson’s Disease & Movement Disorder Center Pedro Gonzalez-Alegre, MD 330 S 9th St Philadelphia, PA 19107 Phone: (215) 829-7915 Fax: (215) 829-6606

The Friedreich’s Ataxia Center of Excellence Children’s Hospital at Philadelphia David Lynch, MD Additional neurologists see Ataxia patients 3501 Civic Center Blvd Philadelphia, PA 19104 Phone: (215) 590-1719

Fax: (215) 590-1771 Phone: (215) 662-6014 for genetic concerns Fax: (215) 662-6556

University of Pittsburgh Physicians Neurology Clinic Valerie Suski, DO Timothy Greenamyre, MD, PhD Houman Homayoun, MD Sarah B. Berman, MD, PhD Lana Chahine, MD Jessica Kappel, PA-C Clinic address: Kaufmann Medical Building, Suite 810 3471 Fifth Avenue Pittsburgh, PA 15213 Phone: (412) 692-4916 Fax: (412) 692-4601 UPMC Comprehensive Movement Disorders Clinic Edward A. Burton, MD, DPhil, FRCP Associate Professor of Neurology UPMC Endowed Chair in Movement Disorder 811 Kaufman Medical Building 3471 Fifth Ave Pittsburgh, PA 15213 Phone: 412 692 4670 (Chuck McCune) (Referrals only) University of Pennsylvania School of Medicine, Genetics Division 502 Clinical Research Bldg 415 Curie Blvd Philadelphia, PA 19104-6145 Phone: (215) 898-5172 Fax: (215) 573-2326 genebo@mail.med.upenn.edu

Penn State Hershey Medical Center Neuroscience Clinical Institute Thyagarajan Subramanian, MD Sol De Jesus, MD Movement Disorder Specialists 30 Hope Dr, Suite 1300 Hershey, PA 17033 Phone: (717) 531-3828 Fax: (717) 531-0298 By referral only

SOUTH CAROLINA

Neuroscience Associates

Fredy J. Revilla, MD

200 Patewood Dr, Ste B350

Greenville, SC 29615

Phone: (864) 454-4500

Fax: (864) 454-4505 Medical University of South Carolina Movement Disorders Program Adult Neurology Clinic Christine Cooper, MD Marian Dale, MD Vanessa Hinson, MD Lilia Lovera, MD Shabbir Merchant, MD Rutledge Tower, 2nd Floor 135 Rutledge Ave Charleston, SC 29425 Phone: (843) 792-3223

Fax: (843) 876-0319

The South Carolina Neurological Clinic 1333 Taylor St., Suite 1C Columbia, SC 29202 Phone: (803) 254-6391 Fax: (803) 799-0682

(By referral only)

SOUTH DAKOTA Sanford Brain & Spine Clinic Jerome Freeman, MD 1210 W. 18th St., Ste 100 Sioux Falls, SD 57104 Phone: (605) 312-8500 Fax: (605) 312-8501 Sees adults only & prefers referrals

Avera Medical Group – Milbank Nanci J. VanPeursem, MD 301 Flynn Drive Milbank, SD 57252 Phone: (605) 432-4587 Fax: (605) 432-4580

TENNESSEE Vanderbilt University Medical Center Department of Neurology John Fang, MD 1301 Medical Center Drive Nashville, TN 37232 Phone: (615) 936-0060 Fax: (615) 936-1229

University of Tennessee Medical Center Department of Neurology 855 Monroe Ave, Suite 415 Memphis, TN 38163-4901 Phone: (901) 866-8810 Fax: (901) 302-2435

Chattanooga Neurology Associates Sharon Farber, MD Tareck Kadrie, MD Phillip “Gabe” Tallent, MD Nathan Wyatt, MD 721 Glenwood Dr. Suite W467 Chattanooga, TN 37404 Phone: (423) 698-3423

Fax: (423) 698-1380

TEXAS Baylor College of Medicine McNair Campus Parkinson's Disease Center and Movement Disorders Clinic Joseph Jankovic, MD Chi-Ying (Roy) Lin, MD, MPH 7200 Cambridge, 9th Floor, BCM609 MS: BCM 609 Houston, TX 77030 Phone: (713) 798-2273 Fax: (713) 798-6808 Memorial Herman Neurology for Children Joshua S. Rotenberg, MD, MMS Memorial City Medical Plaza 1 902 Frostwood Dr., Suite 210 Houston, TX 77024 Phone: (713) 464-4107 Fax: (713) 465-4522 Houston Methodist Research Institute Movement Disorders Clinic Tetsuo Ashizawa, MD, FAAN Scurlock Tower 6560 Fannin St., Suite 1002 Houston, TX 77030 Clinic Phone: (713) 363-8184 Clinic Fax: (713) 790-7881 Research Phone: (346) 238-5021 University of Texas Health Science Center at Houston UTHealth Neurosciences-Neurology Mya Schiess, MD UTP Clinic 6410 Fannin, Suite 1010 Houston, Texas, 77030 Phone: (832) 325-7080 Fax: (713) 832-7263

University of Texas SW Medical Center Neurology Clinic Richard Dewey, MD Padraig 0’Suilleabhain, MD Vikram Shakkottai, MD, PhD 5303 Harry Hines Blvd, 4th Floor Dallas, TX 75390 Phone: (214) 645-8300 Fax: (214) 645-9214

North Texas Movement Disorders Institute Madhavi Thomas, MD 2004 Bedford Rd Ste 100 Bedford, TX 76021 Phone: (214) 432-7549 Fax: (214) 432-6137 Neurology Solutions Movement Disorders Center Robert Izor, MD 12345 N. Lamar, Ste 260 Austin, Texas 78753 Phone: (512) 977-7000 x115 Fax: (512) 977-7001 Texas Movement Disorders Specialists Michael Soileau, MD Meredith Rollins, PA 1900 Scenic Drive 405 Londonderry Ste 2210 Ste 205 Georgetown, TX 78626 Waco, TX 76712 Phone: (512) 693-4041 (254) 572-8683 Fax: (512) 290-9226 (254) 290-9226

UTAH University of Utah Clinical Neuroscience Center Stefan M. Pulst, MD 175 N. Medical Dr

Salt Lake City, UT 84132 Phone: (801) 585-2886

VERMONT University of Vermont Movement Disorders Center University Health Care 1 South Prospect St Burlington, VT 05401 Phone: (802) 847-4589 Fax: (802) 847-2461

VIRGINIA Children’s Hospital of The King’s Daughters Thomas Enlow, MD Crystal Proud, MD 850 Southampton Ave Norfolk, VA 23510 Phone: (757) 668-9920 Fax: (757) 668-9930 University of Virginia Medical Center Neuroscience Services Movement Neuromuscular

Madaline Harrison, MD Ted Burns, MD Binit Shah, MD Alex Dalrymple, MD Bridget Moss, RN, ACNPC (nurse practitioner) 1221 Lee Street – 4th Fl Primary Care

Charlottesville, VA 22908 Phone: (434) 924-2706 Fax: (434)-982-0606 https://med.virginia.edu/neurology/subspecialty-divisions/general-neurology/497-2 https://med.virginia.edu/neurology/subspecialty-divisions/movement-disorders

Inova Medical Group Neurology of Fairfax John W. Cochran, MD Eric B. Sklar, MD 8081 Innovation Park Dr, Ste #900 Fairfax, VA 22031 Phone: (571) 472-4200 Fax: (571) 472-4201 VCU Parkinson’s and Movement Disorders Center Mark Baron, MD Matthew J. Barrett, MD, MSc Leslie Cloud, MD Jon Snider, MD Claudia Testa, MD 11958 West Broad Street Henrico, VA 23233 Clinic Office Number: (804) 828-9350 Clinic Fax: (804) 364-6521

WASHINGTON

University of Washington Medical Center Department of Neurology Ali Samii, MD (movement neurologist) 1959 NE Pacific – Box 356169 Seattle, WA 98195

Phone: (206) 598-7688 Fax: (206) 598-7698 Neurogenetics Clinic Dept of Medical Genetics Marie Davis, MD, PhD Suman Jayadev, MD 1959 NE Pacific St – Box 357920 Seattle, WA 98195-7920 Clinic Coordinator: Debra Olson Phone: (206) 598-4030 Fax: (206) 598-3269

VA Puget Sound Healthcare System Neurology Div., Movement Disorders Clinic Marie Davis, MD PhD 1660 S Columbian Way Seattle, WA 98108 Phone (206) 764-2021 Fax (206) 764-2802

Swedish Neuroscience Institute Movement Disorders Pravin Khemani, MD Jennifer Witt, MD 550 17th Ave, Suite 540 Seattle, WA 98122 Phone: (206) 320-5331 Fax: (206) 386-3882

Providence Sacred Heart Medical Center & Children's Hospital Wendy Eastman, MD (Sees children) Child Neurology 101 W 8th Ave., Suite 4200 Spokane, WA 99204 Phone: (509) 474-5440 Fax: (509) 474-6220 Kaiser Permanente Bellevue Medical Center Roxanne Felt, MD 11511 NE 10th St Bellevue, WA 98004 Phone: (425) 502-3650

WEST VIRGINIA WVU Medicine Department of Neurology David Libell, MD Jack Riggs, MD John Brick, MD Ann Murray, MD Mouhannad Azzouz, MD Eric Seachrist, MD

1 Medical Center Dr Morgantown, WV 26506 Phone: (304) 598-6127 Fax: (304) 304-598-6442

ARH Neurology Associates Georgianna Richards, MD 1256 N. Eisenhower Drive Beckley, WV 25801 Phone: (304)254-2400 Fax: (304)254-2458 Referral is needed. Sees adult patients only.

WISCONSIN Medical College of Wisconsin Froedtert Specialty Clinics/Hospital Neurosciences Clinic Karen Blindauer, MD Phone: (414) 955-6688 Ryan Brennan, DO Phone: (414) 805-3666 Shiela Eichenseer, MD Phone: (414) 805-8710 9200 W. Wisconsin Ave Milwaukee, WI 53226 Phone: (414) 805-5200 Fax: (414) 259-0469

University of Wisconsin – Madison Dept. of Neurology, Box 2425 Laura Buyan Dent, MD, PhD Director of Movement Disorders 600 Highland Ave Madison, WI 53792 Phone: (608) 263-5442 Fax: (608) 265-1753

Arshad Ahmed, MD 2424 S. 90th St West Allis, WI 53227 Phone: (414) 328-7489 Fax: (414) 328-7266

PUERTO RICO

Centro Internacional de Mercadeo Frances Velez-Lago, MD Torre I. Ste. 308 Guaynabo, PR 00968 Phone: (787) 781-8139 Fax: (787) 706-0450