Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management...

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Patient involvement the good , the bad and the ugly Sara Riggare, MSc, PhD candidate , Karolinska Institutet Chief Patient Officer, Nerve

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25 June 2014: EHMA (European Health Management Association) Annual Conference in Birmingham, UK: "Leadership in Healthcare: from bedside to board". I spoke in a plenary session titled "Patient Involvement, the Good, the Bad and the Ugly", chaired by Prof. Naomi Chambers, Professor of Healthcare Management, Manchester Business School, UK.

Transcript of Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management...

Page 1: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Patient involvement

– the good, the bad and the ugly

Sara Riggare, MSc,

PhD candidate, Karolinska Institutet

Chief Patient Officer, Nerve

Page 2: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Patient involvement

– the good, the bad and the ugly

Sara Riggare, MSc,

PhD candidate, Karolinska Institutet

Chief Patient Officer, Nerve

Page 3: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Patient involvement

– the good, the bad and the ugly

Sara Riggare, MSc,

PhD candidate, Karolinska Institutet

Chief Patient Officer, Nerve

Page 4: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Sara Riggare

Page 5: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Sara Riggare

Page 6: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

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Page 7: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Time with neurologist

Sara Riggare

Time with neurologist 2012, n=135

0 mins/year

5-60 mins/year

61-120 mins/year

121-180 mins/year

>181 mins/year

Time with neurologist

Sufficient

Insufficient

(Riggare, 2014, unpublished)

Page 8: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Sara Riggare

Page 9: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

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Page 10: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

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Page 11: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

44% of the population has one or more chronic

conditions

25% have 2 or more chronic conditions

80% of total healthcare costs

Sara Riggare

Chronic disease in Sweden

Ref: Vårdanalys, 2014. ”VIP i vården? – Om utmaningar i vården av

personer med kronisk sjukdom” (in Swedish)

Page 12: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

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Page 13: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

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Page 14: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

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Increasing cost?

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Page 17: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Knowledge

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Self-reported knowledge

Insufficientn=52

Sufficientn=79

(Riggare, 2014, unpublished)

Page 18: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Knowledge

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Insufficient knowledgen=52

Expecting informationfrom healthcare

Expecting to acquireknowledge oneself

Sufficient knowledgen=79

Knowledge acquired viahealthcare

Self-acquiredknowledge

(Riggare, 2014, unpublished)

Page 19: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

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P=0.963 (Mann-Whitney U) P<0.05 (Mann-Whitney U)

0

5

10

15

20

<1 year 1-3 years 4-6 years 7-10 years >10 years

Time since diagnosis

Insufficient knowledgeExpecting to acquireknowledge oneself, n=5

Expecting information fromhealthcare, n=47

0

5

10

15

20

25

<1 year 1-3 years 4-6 years 7-10 years >10 years

Time since diagnosis

Sufficent knowledgeSelf-acquiredknowledge, n=59

Knowledge acquired viahealthcare, n=20

(Riggare, 2014, unpublished)

Page 20: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

”The holy grail of medicine”?

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Page 21: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Take home message

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Page 22: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Sara Riggare

Page 23: Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Thank you for listening!

[email protected]

www.riggare.se

Sara Riggare