MS  Pa&ent  Summit  -­‐  Rome    

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Antonella  More+  CEO,  AISM  

AISM Onlus Italian Ms Society

AISM is the only Italian organization dedicated to PwMS with a 360° approach:

•  Research •  Services and support •  Information •  Advocacy

AISM Onlus

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AISM together with its research foundation is the largest private funding body of MS research together with MS Societies in the USA, Canada and UK. Other priority areas include: 1.  Local and national services and support to meet the needs of people with MS

and their families;

2.  A continuing education program for health professionals (i.e. CME)

3.  A comprehensive information program that ensures up-to date, unbiased and accessible information to people of MS and their families across channels.

4.  Fundraising to support activities of the MS Society, through national fundraising events, legacies, direct marketing, corporate fundraising.

5.  Advocacy on all levels

6.  Public awareness: to raise awareness of issues related to MS and to AISM.

AISM Onlus

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AISM – The International Network IOMSN - International Organization of MS Nurses

EMSP - European Multiple Sclerosis Platform

MSIF - Multiple Sclerosis International Federation

RIMS – Rehabilitation in MS

AISM and FISM collaborate

across borders

90  delegates  from  24  countries!  

Albania  Austria  Canada  Czech  Rep  Egypt  Finland  France  Germany  Greece  Hungary  Ireland  Israel  

Italy  Latvia  Lebanon  Montenegro  Morocco  Norway  Poland  Portugal  Slovenia  Spain  Switzerland  UK  

MS  Pa&ent  Summit  -­‐  Rome    

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Anna  Chiara  Rossi  Novar8s  Italy  

 

The Novartis Patient Declaration

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MS  Pa&ent  Summit  -­‐  Rome    

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Friday, May 22nd, 2015 Summit Moderator: Kaz Aston (UK)  08:30  

 

08:40  

09:20  

10:00  

10.40  

Welcome & Introduction - Antonella Moretti (AISM, It) & Anna Chiara Rossi (Novartis, It)  

Plenary session  

•  Patient rights in research and treatment - Dr Vittorio Martinelli (It), Aliki Vrienniou (Gr)  

•  Influencing the direction of healthcare decision-making - Mary Baker (UK)  

•  The ‘Expert’ Patient - Jean Hardiman-Smith (UK)  

Panel discussion  

11.15   Break  11.30   Breakout sessions  

•  Patient rights in research and treatment (co-facilitator - Michele Messmer (It))  

•  Influencing the direction of healthcare decision-making (co-facilitator - Silvia Traversa (It))  

•  The ‘Expert’ Patient (co-facilitator - Federica Balzani (It))  

12.30   MS World Café  

Best Practice Sharing Fair for Patient Advocates  

13.00   Buffet Lunch  14:00   Breakout sessions (continued)  15:00   Breakout group feedback to plenary  

15:55   Closing Remarks – Antonella Moretti (AISM, It) & Anna Chiara Rossi (Novartis, It)  16.00   Meeting Close  

Raising  standards;    The  voice  of  people  with  MS