Mental Health workstreamMargaret

PetherbridgeDee

FraserAllie

Cherry

What SDS is (and what it isn’t)

1. Personalisation ≠ Self-directed support

2. Self- directed support ≠ Direct Payments

3. It is based on meaningful choice and control

4. It is a means to an end (in Scotland)5. It is effective (but it won’t save

money)6. It is not a revolution (don’t panic…)

The terrain: barriers for mental health

• Low awareness• Stigma and self- stigma• Professional nervousness (process and capability)

• Lack of mental health stories and role models

• Health route (not necessarily social work)• Small support packages and use of non- SDS services e.g. drop-in, crisis centres.

• Involuntary admission= disempowering• Experience of certain mental health problems- feels like control isn’t possible.

The map: what we did

1.Initial meeting

2. Really small survey (n=4)

3.Bring Your Own Evidence (BYOE) session

4.NHS Lothian literature review

Bring Your Own Evidence (BYOE)

•Something that convinces you about SDS

•Mosaic not hierarchy

•9 participants

Being convinced- “It’s not logic, captain…”

•Multiple influences on what we ‘count’ as evidence

What my boss wants…who I’m talking to…what I read last…the media…how I feel…what I know…my background…my experiences

The evidence we talked about

• Lived experience (service user and carer)

• Falkirk Mental Health Respite Vouchers Pilot

• NHS Lothian SDS Pilot• IBSEN study (mental health data only)• NHS Lothian Literature review• “Self- directed support A review of the barriers and facilitators” (2011)

• Scottish Government• Potential pieces of work (SRN, NHS Highland)

Method: Exploring the evidence

1.What stood out?2.What happened?3.Who was

involved?4.What made it

work/not work?5.What questions

did it not answer?

Method: thinking about quality

• Does it convince me?

• Based on the SCIE/Keele Protocol

• Evidence shopping• ‘Yes Minister’ syndrome

What we found…

• Create accessible information about mental health and SDS.

• Don’t make stigma based assumptions about people’s ability to cope and thrive with their own budget.

• Develop strong stories of mental health recovery and SDS.

What we found(2)• Need know more about what happens in the long term.

• Need to hear the individual’s whole story from start to finish.

• What worked and what didn’t.• Larger groups of people• stories from people who know’ • ‘stories that let us see SDS is possible’

What we would do differently

• Separate sessions 1.Raise awareness2.Collect experience

3.Analyse evidence• More time!• Clearer briefing for participants.

Expedition: Where to go nextPlanned

•Pilotlight •Mental Health Foundation researchPotential•SDS recovery stories•WRAP and recovery budgets•Using BYOE for project development

contact

Dee FraserDee.fraser@ccpscotland.orgwww.ccpscotland.org/providers_and_personalisation(0131) 475 2676 P&P is a four year policy and practice change programme seeking to increase the voluntary sector provider voice in SDS policy and support providers to share and develop best practice in SDS. P&P is fully funded by the Scottish Government and hosted by CCPS.