Living Well With and Beyond Cancer Conference

Service Design and Delivery to Improve Outcomes

Tuesday 12th November 2013

Welcome and Introduction

Michael Connors Acting Chief Executive

Penny Brohn Cancer Care

Dedicated in Memory of the life of Patricia Ann Pilkington, MBE, Founder PBCC

03.11.1928 – 19.08.2013

Past Conferences

Tuesday 12th November 2013 - Living Well With and Beyond Cancer Conference - Service Design and Delivery to Improve Outcomes

Tuesday 20th November 2012 - Living Well with the Impact of Cancer Conference - Supported Self Management: The Future of Cancer Services

Thursday 10th November 2011 - Living Well: With the Impact of Cancer Conference- A Model for Expansion

Thursday 11th November 2010 – Living Well: With and Beyond Cancer Conference –Helping the Whole Person

2 million living with and beyond cancer0.5 million living with serious longer term consequences.

Cancer affects us all

Cancer impacts the whole person

Psychological

Spiritualpurposemeaning

Financial welfare

Relationships

Consequences of Treatment

Physical

Impact on Whole person

Strategic Vision and the National Cancer

Survivorship Initiative

Michael ConnorsActing Chief Executive

Penny Brohn Cancer Care

NCSI Vision Document

“...current follow-up arrangements do not address the full range of physical, psychological, social, spiritual, financial and information needs that cancer survivors may have following their treatment.”

The National Cancer Survivorship Initiative

Strategic Development of Living Well Programme

Phase 1 2009-2010 Design and test a programme of outreach that begins to meet the vision of NCSI

Phase 2 2010-2011 prototype and deliver this programme as outreach in various locations across the country.

Phase 3 2011-2013 set up living well services nationally in England and to Test and evaluate any ongoing impact on Health and Well being

Phase 4 2013-16 further extend the delivery of courses across country in partnership with other providers. Achieve commissioning. Further in depth research carried out.

Living Well Evaluation

The Living Well course has a clinically significant, positive impact on many peoples health and well being over a one year period.

We need a pathway of care

PBCC pathway of care

Treatment Treatment ends

Living well Treatment support clinic

complementary and support services

End of treatmentLiving Well Clinic(Health and Well

Being Clinic)

Living Well Course

**Living Well Follow up services

On line, telephone and Living Well follow up events

Living Well Follow on servicesThe Approach

The Retreat programmelifestyle and support services

**Preparation for treatment

clinic

Living beyond cancer

Living with cancer

Diagnosis

Where next

Continue to develop our service delivery across the UK

Carry out further research on our approach and in the gaps in knowledge

Bring more training and education functions back

Influence and enable the development of cancer services to incorporate a whole person approach into service design.