National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle...
-
Upload
wendy-knoles -
Category
Documents
-
view
219 -
download
2
Transcript of National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle...
![Page 1: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/1.jpg)
National Cancer Survivorship Initiative
Macmillan Health and Wellbeing Clinics
Stephen HindleMacmillan Survivorship Programme Lead
![Page 2: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/2.jpg)
National Cancer Survivorship Initiative
What are Macmillan H&WB Clinics?
• ‘One-stop-shops’ providing information and support to help patients and carers to prepare for the transition after treatment
• Aims to increase health and well being through support with: lifestyle management, managing your cancer, potential signs and symptoms, and how to get help
• Volunteers play key roles in supporting clinics
![Page 3: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/3.jpg)
National Cancer Survivorship Initiative
Key findings of 15 pilots 2010/11• Increased patient knowledge and confidence
• reported reduced anxiety and greater empowerment• more appropriate use of services• earlier intervention – may link to improved outcomes
• ‘One-stop shop’ enabled access to services• reassurance of knowing support there in case of future need
• Patients valued volunteers• Created relaxed atmosphere - put patients at ease• Providing information and signposting, explaining in simple
terms, offering empathy & understanding • Volunteers’ personal experience of cancer gave encouragement
to patients about their future
![Page 4: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/4.jpg)
National Cancer Survivorship Initiative
Success Factors
• Tailored approach to target audience for recruitment, delivery and environment
• Information about HWB and what services patients can access• Successful processes for recruitment / attendance inc.
• Event integrated in pathway (93% invited to Barts clinic attended )• Booking systems which require patients to book appointment• Consultant referral;• Confirmation letters/phone calls
• Volunteer Support & Role• Targeting BME groups in partnership with community organisations
![Page 5: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/5.jpg)
National Cancer Survivorship Initiative
How to set up a Macmillan Health and Well Being Clinic
• Review evaluation material• Engage MDT and Medical lead• Agree survivorship pathway• Agree case of need• Agree operational policy (include awareness
raising/marketing)• Decide content• Set up steering group to monitor project
• Lots of help on LearnZone!
![Page 6: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/6.jpg)
National Cancer Survivorship Initiative
Health and wellbeing clinic component options
Awareness & EngagementCommunity & patient / Third sector MDT via attendance at NSSGs / Primary care /
HWB Integrated in cancer care pathways
Training packages for Staff /Volunteers
Pre HWB AssessmentHNA undertakenPre HWB questionnaire from patients/carers to shape event Referral Mechanisms, inc. self referral, booking, confirmation
Administrative Support (paid/voluntary)
Pre HWB
Inputs
![Page 7: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/7.jpg)
National Cancer Survivorship Initiative
Health and wellbeing clinic component optionsProcesses– Tracker system
Intervention– HNA and care plan (supported by volunteer) –Self management tool and techniques, folder & action plan– Exercises eg Relaxation techniques
Communication Models– Presentations / CDs/ video/ photo loops– Market stalls– One to one support / Group work/open discussions– Music/song/dance/drama
Information Giving– Health and wellbeing messages and services to access– Information leaflets– Volunteer navigated support and signposting
HWB Clinic Event
![Page 8: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/8.jpg)
National Cancer Survivorship Initiative
Health and wellbeing clinic component options
DocumentationLetter to GP, copy to patient and action in notesFollow up card with contacts, signs/symptoms of recurrenceAction plan revisited at agreed timePost clinic evaluation and targeted support eg Belfast/Leeds model
Buddy Support ProgrammePatient referred to peer support programme where exist
Timely Referral & Access to Other ServicesThird sector eg Sister to Sister group LeedsDedicated programmes eg fatigue management
Information Information pack/health and wellbeing booklets/rehab folder
HWB
Outputs
![Page 9: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/9.jpg)
National Cancer Survivorship Initiative
Why do Health and Wellbeing Clinics work?
Health and Wellbeing Clinics help people to take control by:• Focusing on an individual’s role in maximising their own quality of life • Enabling attendees to find out more about what matters to them• Supporting an holistic approach by involving a wide range of support
services• Acting as a springboard for continuing activity
Aiming to increase self-efficacy
![Page 10: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/10.jpg)
National Cancer Survivorship Initiative
What is self-efficacy?• ‘Confidence in the power to ‘master’ the environment influences active
participation in health enhancing behaviours’ (Lev, 1992)• Your belief in your ability to make a difference to your life
Four methods used for enhancing self efficacy:• ‘Mastery’ experiences – actual skills performance• ‘Vicarious’ experience – seeing others succeed• Verbal /social persuasion – positive feedback; suggestion; self
instructed performance• Physiological feedback – emotional arousal
![Page 11: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/11.jpg)
National Cancer Survivorship Initiative
How can Macmillan help you? – Getting Back in the Driving Seat/Taking Charge resource
• Providing focus for person to think about what matters to them• Gives physical space where important issues can be recorded & reflected upon
![Page 12: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/12.jpg)
National Cancer Survivorship Initiative
Contents of Taking Charge• Introduction about self management• Tips to support self management • Useful information• Prompts for consideration of issues affecting health & wellbeing• Plan for action to help move forward - focus on:
• motivation for change• action to be taken• desired result• plan for setbacks• reward for achievement• utilising available support
![Page 13: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/13.jpg)
National Cancer Survivorship Initiative
Taking Charge – supporting people to self manage
![Page 14: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/14.jpg)
National Cancer Survivorship Initiative
How can Macmillan help you? – Getting the Right Messages Across presentation• Underpins aim of Health and Wellbeing Clinics to enable attendees to manage day-
to-day issues as independently as possible. • Customise with local information and images & order different silhouettes at
be.macmillan.org.uk• Additional information for presenters in notes• Can be used as training resource as well as in clinics
Addresses issues of: Vocational Rehabilitation/Work support
Cancer-Related Fatigue
Diet Emotional Issues Financial Issues
Sexual Issues Physical ability Practical support
![Page 15: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/15.jpg)
National Cancer Survivorship Initiative
How can Macmillan help you? – Learn Zone
• learnzone.macmillan.org.uk
Contains all information about Macmillan’s face-to-face L&D and e-learning offer for PABC, volunteers, health and social care professionals and Macmillan staff (need to register)
• Health and Wellbeing Clinics section:– Click on ‘Special Interest Groups’ on top left side of home page– Select ‘Health and Wellbeing Clinic’ from list of groups
• Presentations and Resources section – Setting Up A Clinic
![Page 16: National Cancer Survivorship Initiative Macmillan Health and Wellbeing Clinics Stephen Hindle Macmillan Survivorship Programme Lead.](https://reader035.fdocuments.net/reader035/viewer/2022062620/551a07e95503462e378b4b6e/html5/thumbnails/16.jpg)
National Cancer Survivorship Initiative
Contact us at Macmillan• setting up a Health and Wellbeing Clinic:
– Fay Scullion 07834 192222 [email protected] – Jane Rudge 07834 191245 [email protected]
• self management support training for volunteers and resources– Suma Surendranath 020 7840 4982
• Stephen Hindle 020 7091 2045 [email protected]