Leaving a Nursing Heart Print in Neurosurgical Patients and Families ·  · 2018-02-02Leaving a...

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2/22/2017 1 Leaving a Nursing Heart Print in Neurosurgical Patients and Families AHS-NNI Neuroscience Forum 2017 18 February 2017 Aisyah Nasir Senior Staff Nurse Khoo Teck Puat Hospital o To illustrate how to develop relationships between nurses and family members of neurosurgical patients o To analyze the factors relating to caregivers burdens when caring for patients with neurosurgical conditions o To design a process that nurses could use to build caregivers resilience when caring for these patients Objectives

Transcript of Leaving a Nursing Heart Print in Neurosurgical Patients and Families ·  · 2018-02-02Leaving a...

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Leaving a Nursing Heart Print in Neurosurgical Patients and Families

AHS-NNI Neuroscience Forum 2017

18 February 2017

Aisyah NasirSenior Staff Nurse

Khoo Teck Puat Hospital

o To illustrate how to develop relationships between nurses and

family members of neurosurgical patients

o To analyze the factors relating to caregiver’s burdens when

caring for patients with neurosurgical conditions

o To design a process that nurses could use to build

caregiver’s resilience when caring for these patients

Objectives

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0

5

10

15

20

25

3029.7

19.416.7

6.8

% of Total Deaths

75%

25%

Stroke

Ischemic Hemorrhagic

Statistics

(Ministry of Health, 2015)

o Largest cause of long-term physical disability in Singapore

and with a rapidly ageing population, the burden of stroke is

expected to increase, posing challenges to the healthcare

system and society

o Brain injury, due to its uncertainty of recovery, presents

dramatic life altering changes to most families

Stroke

(MOH, 2015)

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o The families play certain role

in the rehabilitation of their

loved ones

o This process begins in acute

care

o Meeting the emotional and informational needs of families is

essential to helping them adapt in the aftermath of brain

injury

Caregiver Stress in Stroke

Survivors

(Camak, 2015)

Research on Caregiver Burden

on Stroke Patients

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Research on Caregiver Burden

on Stroke Patients

Research on Caregiver Burden

on Stroke Patients

(Kumar et. al., 2015)

(Costa et. Al., 2015)

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Factors affecting families

coping with pressure

Chaotic work environment

Fragmented delivery system

Patient acuity limited nurses’

abilities to care for families

(Yetman, 2008)

o Mr. ABC, 53 years old Malay man

o Found unresponsive by wife and

diagnosed with massive intracerebral

haemorrhage

o Underwent EVD insertion and

decompressive craniectomy

o Bed-bound, on NGT feeding and with

a tracheostomy

o Signed “Do Not Resuscitate” (DNR) from SICU

o Stepped down to general ward

o Attempted to wean off tracheostomy once but failed

o Wife unable to cope with patient on tracheostomy

o Wife refused to take patient home

Case Study

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Nurse

oEager to assist

patient to recover

oHeavy work load

due to frequent

monitoring and

nursing care

oFaced with

family’s emotional

baggage

Patient

o Communication

problems

o Expressive

aphasia

o Memory Loss

o One-sided

Neglect

o Confuse

o Dependent

Family

o Stress

o Unable to cope

with stroke

o Denial

o Guilt

o Suffering

o Financial

Problems

What we face when

encountered such cases

Actual eventPerceived event

Fire on the Stove

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• The ability to adapt to adverse conditions while maintaining a

sense of purpose, balance, and positive mental and physical

wellbeing

• The power to cope with adversity and adapt to challenges or

change

Resilience

(Limardi, Stievano, Rocco, Vellone, & Alvaro, 2016)

Building Caregiver Resilience

Utilizing

the

nursing

process

(Marriner & Tellez, 1983)

Assessment

Diagnosis

PlanningImplementation

Evaluation

Nursing

Heart

Print

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Identify the stressor:

oView families as “one more patient”

oHow involved is the family in caring for the patient

oWhat aspects of care are particularly challenging

oHow does this admission affect their daily lives:

Time travel to the hospital

Time lost from work

Less time with other

children

Expenses

Building Caregiver Resilience:

Assessment

Building Caregiver Resilience:

Assessment

Our case study:

o Anxious

Fear of the unknown

o Sole bread winner of the family

o Have to juggle between patient care

and work

o Not confident in bringing patient home

who has a tracheostomy

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Building Caregiver Resilience:

Diagnosis

Utilize the assessment data gathered and interpret the

findings

Diagnosis of family response to patient's

condition

“unable to cope” with the

situation

Building Caregiver Resilience:

Diagnosis

Our case study:

o Ineffective coping related to newly

diagnosed illness

o Patient is unable to wean off

tracheostomy as he has excessive

sputum

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Building Caregiver Resilience:

Planning

Create an action plan:

o Set realistic goals

o Educate family on all of the equipment being used on the

patient

o Provide social support in the form of support groups,

counselors

o Refer to the rehabilitation team to assess rehab potential

Building Caregiver Resilience:

Planning

Our case study:

o Engage wife early in the care activities

o Aim to reduce frequency of suctioning

by managing the secretion

o Plan to wean off tracheostomy once

secretion decreases

o Initiate caregiver training to wife while

awaiting for arrival of maid

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Follow through the care plan that was developed:

oReached out proactively to families

oOccupy family with care activities

oUse social “chitchat” to get to know the family

oInclude family in the

patient’s care

oUpdate family actively

on relevant information

oEngage family in their

emotional needs

Building Caregiver Resilience:

Implementation

Building Caregiver Resilience:

Implementation (cont.)

Follow through the care plan

that was developed:

oAssess and identify signs of

family’s inability to cope

oMake a collaborative decision

with medical team if patient is

at risk of not being cared for at

home

oContinue caregiver training

until family is competent

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Follow through the care plan that was developed:

o Document appropriately any sign of caregiver stress or any

unusual behavior elicited by family

o Encourage family to take breaks

o Provide family with contact number for clarification if they

have questions or want to check on the patient

Building Caregiver Resilience:

Implementation (cont.)

Our case study:

o Weaning of tracheostomy was

successful

o Wife was motivated to stay with patient

and participated in care

o Caregiver training was completed over 1

week

o Maid application was successful but can

only arrive in 2 weeks time

o Transitional care nurse was activated for

follow up care while waiting for maid

Building Caregiver Resilience:

Implementation

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Determine whether the goals set in the care plan have

been met:

oAssess family’s coping ability at home with follow up call

oFeedback to the transitional care nurses of any assistance

required by the family

Building Caregiver Resilience:

Evaluation

Building Caregiver Resilience:

Evaluation

Our case study:

o Wife claimed transitional care (TC) was

helpful

o 2 weeks later the maid arrived and

provided care

o TC stepped down

o Home nursing foundation was applied

for continuity of care and regular home

visits

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Why healthcare professionals

have to build caregiver

resilience

Better patient outcomes

Shorter length of stay

Prevent readmissions

Patient and family will be

more satisfied

Reduce cost for family and

hospital

(Limardi, et. al. , 2016)

Summary

AssessmentView family as “one more patient” and assess their coping ability

DiagnosisDiagnose family response to patient condition

PlanningSet realistic goals

ImplementationCarry out the action plan and include families in patient care

EvaluationAssess the coping ability and follow up with the family upon discharge

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o Being a caregiver is meaningful, but takes a toll

o Important role for professionals besides caring for the

patients, is to build resilience in caregivers

o With professional support, resilient caregiver will assist in

patient’s wellness and recovery, and prevent readmission

o Building resilience leaves a Nursing Heart Print in patients

and families

Take home messages

Ang, S., Tin, A., Pavitar, G., Ng, W., Lee, K., & Lim, L. et al. (2013). A Qualitative Study into Stroke Caregivers’ Educational Needs

-- Perspectives of Caregivers and Healthcare Professionals. Proceedings Of Singapore Healthcare, 22(3), 166-174.

http://dx.doi.org/10.1177/201010581302200303

Camak, D. J. (2015). Addressing the burden of stroke caregivers: a literature review. Journal Of Clinical Nursing, 24(17/18), 2376-

2382. doi:10.1111/jocn.12884

Costa, T., Costa, K., Martins, K., Fernandes, M., & Brito, S. (2015). Burden over family caregivers of elderly people with stroke.

Escola Anna Nery - Revista De Enfermagem, 19(2). http://dx.doi.org/10.5935/1414-8145.20150048

Kumar, R., Kaur, S., & K, R. (2015). Burden and Coping Strategies in Caregivers of Stroke Survivors. Journal Of Neurology And

Neuroscience, 06(s1). http://dx.doi.org/10.21767/2171-6625.s10005

Limardi, S., Stievano, A., Rocco, G., Vellone, E., & Alvaro, R. (2016). Caregiver resilience in palliative care: a research protocol.

Journal Of Advanced Nursing, 72(2), 421-433. doi:10.1111/jan.12829

Marriner, A., & Tellez, A. (1983). The nursing process: A scientific approach to nursing care. Mexico: El Manual Moderno.

Ministry of Health (2015). Principal Causes of Death. Ministry of Health. Retrieved 15 February 2017, from

https://www.moh.gov.sg/content/moh_web/home/statistics/Health_Facts_Singapore/Principal_Causes_of_Death.html

Yetman, L. (2008). Neuroscience nurses caring for family members of patients with acquired brain injury in acute ward settings:

nursing defensively in a double bind. Canadian Journal Of Neuroscience Nursing, 30(4), 26-33.

References

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o Adj. Asst. Prof Eugene Yang Wei Ren

o ADN Velusamy Poomkothammal

o Dr. Ronald Tan

o NM Guo Hui

o NM Cherie Koh

o ANC Sangeetha Sodimani

o Neurosurgery Specialist Nurse Chua Shu Ting

o Department of Neurosurgery

o Nursing Administration

o Colleagues of Ward B86

Acknowledgement

THANK YOU

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