In the past 4 months, how many TIMES were you hospitalized for one night or longer?
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M ethods M ethods Four Four - - page questionnaire page questionnaire • • item s previously validated by K ate item s previously validated by K ate Lorig Lorig (referto R eferences) (referto R eferences) • • otheritem s ofinterestto A PEP otheritem s ofinterestto A PEP • • pilot pilot - - tested w ith elderly com munity tested w ith elderly com munity volunteers volunteers • • A SH C participants com pleted questionnaire A SH C participants com pleted questionnaire atbeginning and end ofcourse,and six atbeginning and end ofcourse,and six m onths aftercourse. m onths aftercourse. C ustom A C C ESS database C ustom A C C ESS database Facilitated Facilitated • • data entry data entry • • tracking and m ailing offollow tracking and m ailing offollow - - up up • • data exportto S A S forsum m ary and data exportto S A S forsum m ary and statisticalanalysis. statisticalanalysis. • • Q uality assurance m easures builtinto Q uality assurance m easures builtinto the queries,form s,and tables the queries,form s,and tables • • M anageable utilization forallpersons M anageable utilization forallpersons A C C ESS D atabase A C C ESS D atabase • • Separate form s forboth dem ographic inform ation and Separate form s forboth dem ographic inform ation and function/health,w ith num eric identifiers connected by function/health,w ith num eric identifiers connected by relationships joining the inform ation from the tw o form s relationships joining the inform ation from the tw o form s • • D ata entry controls w ere established,including D ata entry controls w ere established,including “ lim itto list lim itto list” features,w hich allow s entry for only pre features,w hich allow s entry for only pre- established form established form answ ers answ ers • • Severalother quality assurance m easures w ere builtinto the Severalother quality assurance m easures w ere builtinto the databases to help m anage hum an error databases to help m anage hum an error ACCESS “Sw itchboard” ACCESS “Sw itchboard” • • Sw itchboard created w ith user Sw itchboard created w ith user- friendly friendly “ buttons buttons” • • B ackground queries in place for 6 B ackground queries in place for 6- month month follow up follow up • • Security m easures in place for preventing Security m easures in place for preventing “ accidental accidental” changes to the background database changes to the background database In the past 4 months, how many TIMES were you hospitalized for one night or longer? __________ TIMES In the past 4 months, except for visits to the hospital, how many TIMES did you visit a doctor? __________ TIMES • • Severity ofsym ptom s:10 Severity ofsym ptom s:10 - - pointvisual pointvisual scales scales • • ability to perform daily activities ability to perform daily activities Please circle the number below thatdescribes how tired you’ve been on the average during the past2 w eeks. _________________________________________________________________________ 0 1 2 3 4 5 6 7 8 9 10 N ottired atall Extrem ely tired O ver the past2 w eeks, could you . . . With no difficulty at all With some difficulty With much difficulty C ould not do at all open a jarthatsom eone hasalready opened? 0 1 2 3 do household choreslike vacuum ing, yard w ork, orlaundry? 0 1 2 3 carry a bag ofgroceriesacrossa room ? 0 1 2 3 attend a com m unity orfam ily event, including church, outside yourhom e at leastonce a w eek? 0 1 2 3 do som ekind ofphysicalactivity (w alking forexercise, gardening, calisthenics, golf)atleasttwice aw eek foratleastfifteen m inutes? 0 1 2 3 Examples of Examples of items items Evaluation of Arthritis Self-Help Courses in Oklahoma Evaluation of Arthritis Self-Help Courses in Oklahoma D. Thompson, R. Everitte, D. Istook, M. New* D. Thompson, R. Everitte, D. Istook, M. New* SEPRT - Department of Biostatistics and Epidemiology SEPRT - Department of Biostatistics and Epidemiology , College of Public Health, , College of Public Health, *Arthritis Prevention and Educational Program, Oklahoma State Department of Health *Arthritis Prevention and Educational Program, Oklahoma State Department of Health University of Oklahoma Health Sciences Center, Oklahoma City, OK University of Oklahoma Health Sciences Center, Oklahoma City, OK Examples of Examples of Unanticipated Unanticipated Response Problems Response Problems • Multiple answers where Multiple answers where respondents felt a “range” was respondents felt a “range” was more appropriate or complete more appropriate or complete – Visual scales for pain Visual scales for pain (0-10), tiredness (0-10), and (0-10), tiredness (0-10), and difficulty with activities (0- difficulty with activities (0- 3) 3) – Fill-in-the-blank Fill-in-the-blank responses to questions about responses to questions about use of health care services use of health care services – Checkboxes for general Checkboxes for general health, medical conditions, health, medical conditions, employment employment – Years of education Years of education • Visual scales – Some Visual scales – Some respondents circled the verbal respondents circled the verbal descriptions under the scale, not descriptions under the scale, not the number on the scale the number on the scale • County of residence – Some County of residence – Some filled in the space provided with filled in the space provided with ‘yes’ or ‘no’ ‘yes’ or ‘no’ • Some interpreted blanks in Some interpreted blanks in ‘checkbox’ questions as blanks by ‘checkbox’ questions as blanks by responding ‘yes’ or ‘no,’ rather responding ‘yes’ or ‘no,’ rather than choosing response than choosing response Is your annual household income from all sources _____? Is your annual household income from all sources _____? less than $10,000 less than $10,000 $10,000 - $30,000 $10,000 - $30,000 $31,000 - $50,000 $31,000 - $50,000 $51,000 - $70,000 $51,000 - $70,000 • Medical condition Medical condition checkboxes were not sufficient checkboxes were not sufficient References References Lorig, K.R., Mazonson, P., & Holman, H. Lorig, K.R., Mazonson, P., & Holman, H. (1993). (1993). Evidence suggesting that Evidence suggesting that health education for health education for self-management self-management in patients with chronic in patients with chronic arthritis has arthritis has sustained health benefits while sustained health benefits while reducing health care costs. reducing health care costs. Arthritis and Arthritis and Rheumatism, 36, Rheumatism, 36, 439-446. 439-446. Lorig, K.R., Sobel, D.S., Ritter, P.L., Lorig, K.R., Sobel, D.S., Ritter, P.L., Laurent, D., & Laurent, D., & Hobbs, M. (2001). Hobbs, M. (2001). Effect of a self-management Effect of a self-management program program on patients with chronic disease. on patients with chronic disease. Effective Clinical Practice Effective Clinical Practice , Nov./Dec. 2001. , Nov./Dec. 2001. available online: available online: http://www.acponline.org/journals/ecp/n http://www.acponline.org/journals/ecp/n ovdec0/lorig.htm ovdec0/lorig.htm For more information on the project or APEP For more information on the project or APEP : : Marisa New: Marisa New: [email protected] [email protected] Dave Thompson: Dave Thompson: [email protected] [email protected] Rosina Everitte: Rosina Everitte: rosina- rosina- [email protected] [email protected]
description
References. Evaluation of Arthritis Self-Help Courses in Oklahoma D. Thompson, R. Everitte, D. Istook, M. New* SEPRT - Department of Biostatistics and Epidemiology , College of Public Health, *Arthritis Prevention and Educational Program, Oklahoma State Department of Health - PowerPoint PPT Presentation
Transcript of In the past 4 months, how many TIMES were you hospitalized for one night or longer?
MethodsMethods
FourFour--page questionnaire page questionnaire •• items previously validated by Kate items previously validated by Kate
LorigLorig (refer to References)(refer to References)•• other items of interest to APEPother items of interest to APEP•• pilotpilot--tested with elderly community tested with elderly community
volunteers volunteers •• ASHC participants completed questionnaire ASHC participants completed questionnaire
at beginning and end of course, and six at beginning and end of course, and six months after course. months after course.
Custom ACCESS databaseCustom ACCESS database
FacilitatedFacilitated•• data entry data entry
•• tracking and mailing of followtracking and mailing of follow--up up
•• data export to SAS for summary and data export to SAS for summary and statistical analysis.statistical analysis.
••Quality assurance measures built into Quality assurance measures built into the queries, forms, and tablesthe queries, forms, and tables
••Manageable utilization for all personsManageable utilization for all persons
ACCESS DatabaseACCESS Database
•• Separate forms for both demographic information and Separate forms for both demographic information and function/health, with numeric identifiers connected by function/health, with numeric identifiers connected by relationships joining the information from the two forms relationships joining the information from the two forms
•• Data entry controls were established, including Data entry controls were established, including ““limit to listlimit to list””features, which allows entry for only prefeatures, which allows entry for only pre--established form established form answersanswers
•• Several other quality assurance measures were built into the Several other quality assurance measures were built into the databases to help manage human errordatabases to help manage human error
ACCESS “Switchboard”ACCESS “Switchboard”
•• Switchboard created with userSwitchboard created with user--friendly friendly ““buttonsbuttons””
•• Background queries in place for 6Background queries in place for 6--month month followupfollowup
•• Security measures in place for preventing Security measures in place for preventing ““accidentalaccidental””
changes to the background databasechanges to the background database
In the past 4 months, how many TIMES were you hospitalized for one night or longer?
__________ TIMESIn the past 4 months, except for visits to the hospital, how many TIMES did you visit a doctor?
__________ TIMES
•• Severity of symptoms: 10Severity of symptoms: 10--point visual point visual scales scales
•• ability to perform daily activitiesability to perform daily activities
Please circle the number below that describes how tired you’ve been on the average during the past 2 weeks.
____________________________________________________________________________ 0 1 2 3 4 5 6 7 8 9 10
Not tired at all Extremely tired
Over the past 2 weeks, could you . . .
With no difficulty
at all
With some difficulty
With much difficulty
Could not do at all
open a jar that someone has already opened?
0 1 2 3
do household chores like vacuuming, yard work, or laundry?
0 1 2 3
carry a bag of groceries across a room? 0 1 2 3
attend a community or family event, including church, outside your home at least once a week?
0 1 2 3
do some kind of physical activity (walking for exercise, gardening, calisthenics, golf) at least twice a week for at least fifteen minutes?
0
1
2
3
Examples of itemsExamples of items
Evaluation of Arthritis Self-Help Courses in OklahomaEvaluation of Arthritis Self-Help Courses in Oklahoma D. Thompson, R. Everitte, D. Istook, M. New*D. Thompson, R. Everitte, D. Istook, M. New*
SEPRT - Department of Biostatistics and EpidemiologySEPRT - Department of Biostatistics and Epidemiology, College of Public Health,, College of Public Health,*Arthritis Prevention and Educational Program, Oklahoma State Department of Health*Arthritis Prevention and Educational Program, Oklahoma State Department of Health
University of Oklahoma Health Sciences Center, Oklahoma City, OKUniversity of Oklahoma Health Sciences Center, Oklahoma City, OK
Examples of Unanticipated Examples of Unanticipated Response ProblemsResponse Problems
• Multiple answers where respondents Multiple answers where respondents felt a “range” was more appropriate or felt a “range” was more appropriate or completecomplete
– Visual scales for pain (0-10), Visual scales for pain (0-10), tiredness (0-10), and difficulty with tiredness (0-10), and difficulty with activities (0-3)activities (0-3)– Fill-in-the-blank responses to Fill-in-the-blank responses to questions about use of health care questions about use of health care servicesservices– Checkboxes for general health, Checkboxes for general health, medical conditions, employmentmedical conditions, employment– Years of educationYears of education
• Visual scales – Some respondents Visual scales – Some respondents circled the verbal descriptions under the circled the verbal descriptions under the scale, not the number on the scalescale, not the number on the scale• County of residence – Some filled in County of residence – Some filled in
the space provided with ‘yes’ or ‘no’the space provided with ‘yes’ or ‘no’• Some interpreted blanks in Some interpreted blanks in
‘checkbox’ questions as blanks by ‘checkbox’ questions as blanks by responding ‘yes’ or ‘no,’ rather than responding ‘yes’ or ‘no,’ rather than choosing responsechoosing response
Is your annual household income from all sources Is your annual household income from all sources _____?_____? less than $10,000 less than $10,000
$10,000 - $30,000$10,000 - $30,000 $31,000 - $50,000$31,000 - $50,000 $51,000 - $70,000$51,000 - $70,000
• Medical condition checkboxes were Medical condition checkboxes were not sufficient for many respondents to not sufficient for many respondents to specify their medical conditionsspecify their medical conditions
ReferencesReferencesLorig, K.R., Mazonson, P., & Holman, H. (1993). Lorig, K.R., Mazonson, P., & Holman, H. (1993).
Evidence suggesting that health education for Evidence suggesting that health education for self-management in patients with chronic self-management in patients with chronic arthritis has sustained health benefits while arthritis has sustained health benefits while reducing health care costs. reducing health care costs. Arthritis and Arthritis and Rheumatism, 36,Rheumatism, 36, 439-446. 439-446.
Lorig, K.R., Sobel, D.S., Ritter, P.L., Laurent, D., & Lorig, K.R., Sobel, D.S., Ritter, P.L., Laurent, D., & Hobbs, M. (2001). Effect of a self-Hobbs, M. (2001). Effect of a self-
management management program on patients with chronic program on patients with chronic disease. disease. Effective Clinical PracticeEffective Clinical Practice, Nov./Dec. , Nov./Dec. 2001. 2001. available online: available online: http://www.acponline.org/journals/ecp/novdec0/lohttp://www.acponline.org/journals/ecp/novdec0/lorig.htmrig.htm
For more information on the project or APEPFor more information on the project or APEP::
Marisa New: Marisa New: [email protected]@Health.State.OK.USDave Thompson:Dave Thompson: [email protected]@ouhsc.eduRosina Everitte:Rosina Everitte: [email protected]@ouhsc.eduDiana Istook: Diana Istook: [email protected]@ouhsc.edu
