Honoree Kit

SOC I E T YTHE PEACHTREE

METRO ATLANTA’S RISING LEADERS

CYSTIC FIBROSIS FOUNDATION

HONOREETOOLKIT

To read in an interactive book formatclick HERE.




TABLE OF CONTENTS

: Welcome

Page 3: Calendar of Events

Page 4: Cystic Fibrosis Fact Sheet

Page 5: The Cystic Fibrosis Foundation’s Unique and Successful Business Model

Page 6: Your Fundraising Efforts Make a Huge Impact

Page 7 - 8: What Kind of Fundraiser are You?

Page 9 - 10: Fundraising Revenue Generators

Page 11: Sample Letter to Business/Organization

Page 12: Sample Personal Letter

Page 13: Sample Follow-up and Thank You Letters

Page 14Class List

Page 15: CFF and Kalydeco in the News




Congratulations on your selection to The Peachtree Society’s: Metro Atlanta’s Rising Leaders! As a nextgeneration leader in our community, we thank you for showcasing your skills by joining the fight in finding a cure for cystic fibrosis (CF).

We are honored you have taken on this important community role that will allow you to network withother professionals, align yourself with the CF Foundation, and help make a difference in the lives of so many families. Your participation and proven leadership skills will ensure real hope for all those with CF. We look forward to honoring you and your achievements at our Next Generation Celebration event in September. We hope your experience throughout the next few months is fun, exciting, andexceptionally rewarding.

This guide is designed as a tool to help you learn more about CF, the CF Foundation and how to surpass your fundraising goal! Your personal online fundraising webpage will help track your emails anddonations and we am here to help should you have any questions. It is as simple as asking your network of family, friends and colleagues to help support you in this endeavor.

As you begin your journey, we hope that you realize the difference you are making in the lives of allof our local children and adults with CF. As you embark on your mission, remember that theCF Foundation continues ours - to find a cure and control for cystic fibrosis. We are closer than ever to making CF stand for Cure Found! With new drugs coming to market and others in clinical trials that have been shown to correct the basic defect of the faulty CF protein, we need your support more than ever. None of these successes would be possible without the commitment and dedication from people like you! Your leadership and fundraising commitment to the CF Foundation is critical to ensuring that the momentum in CF research continues.

Good Luck… and thank you for making a difference in the lives of those living with cystic fibrosis.

Your Fundraising Coaches,

Amy Alvarez Amanda Gilbert Sr. Development Director Development Manager




May 2 The Peachtree Society Class Kick Off 6pm-8pm Studiocom

May 16 Leadership Speaker Series– Situational Leadership6pm-8pm William O’Neal, Motivational Speaker & Trainer

June 26 Leadership Speaker Series11am - 2pm CF Care Center Tour Lunch & Learn

July 18 Networking Social– Leadership Speaker Series6pm-8pm August 15 Leadership Speaker Series– Executive Leadership Panel 6pm-8pm

September - TBD The Peachtree Society:NEXT Generation Celebration

October 17 Networking Social– Mission Moment6pm-8pm

** The CF Foundation Speaker Series is an added value to our class and areexclusive opportunities for career and personal development.

CALENDAR OF EVENTS




What is cystic fibrosis? Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 world-wide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

• clogsthelungsandleadstolife-threateninglunginfections• obstructsthepancreasandstopsnaturalenzymesfromhelping the body break down and absorb food

“Adding tomorrows every day” expresses the mission—and results—of the Cystic FibrosisFoundation’s steadfast efforts to extend the length and quality of life for people with cystic fibrosis. CF presents daily challenges for those with this disease. But life with CF is far different today than it was 50, 30, or even 10 years ago. More than 45 percent of the CF patient population is now age 18 or older and the median life expectancy is 38 years. Cystic fibrosis is no longer just a childhooddisease. Recently developed therapies and specialized care have enabled people with CF to gain greater control over their disease. So, children and adults are not only living longer, but alsoexperiencing a better quality of life.

Symptoms of cystic fibrosis People with CF can have a variety of symptoms, including:

• persistentcoughing• frequentlunginfections• wheezingorshortnessofbreath• poorgrowth/weightgaininspiteofagoodappetite• mal-absorption

Statistics

• About1,000newcasesofcysticfibrosisarediagnosedeachyear• Morethan70%ofpatientsarediagnosedbyagetwo• Morethan45%oftheCFpatientpopulationisage18orolder• ThepredictedmedianageofsurvivalforapersonwithCFis38years

CYSTIC FIBROSIS FACT SHEET




•LifeexpectancyforpeoplewithCFhasmorethandoubledinthepast25years;thepredictedmedianageofsurvival is now in the late-30’s. This progress is the result of dramatic advances in research and care, fueled by the Cystic Fibrosis Foundation.

•AcriticalcomponentofthissuccessistheCysticFibrosisFoundation’suniquebusinessmodel,whichappliesthe same results-driven approach of success as a “for-profit” company.

•Thebusinessmodelisbasedonaconceptknownas“venturephilanthropy”–agrowingbusinesspracticeforcharitable organizations that involves funding drug research with for-profit companies for the purpose offinding a cure for a rare disease. The Foundation is considered the national leader in venture philanthropy.

•Thisbusinessmodelhasyieldeddozensofcollaborationswithleadingbiotechcompaniesandadrugdevelopment pipeline with more than 30 promising therapies. Since 1998, the Foundation and its nonprofitaffiliate Cystic Fibrosis Foundation Therapeutics, Inc., (CFFT) have raised and invested hundreds of millions of dollars for promising scientific research with biotech firms.

•TheFoundationinvestsmoremoneyindrugdevelopmentwithbiotechfirmsthananyotherdiseasefoundation in the country, according to CenterWatch Monthly, an industry trade publication.

•TheFoundation’sbusinessmodelhasbeenfeaturedinsomeofthenation’smostprestigiousmediaoutlets,including Forbes, BusinessWeek, The Boston Globe and National Public Radio. It has been recognized by the National Institutes of Health, emulated by a growing number of nonprofits and is the subject of two Harvard Business School case studies.

•Forthefirsttimeinthehistoryofthedisease,therearetherapiesintheCFFoundation’sdrugdevelopmentpipeline that address the underlying cause of cystic fibrosis rather than just the symptoms, and hold thepromise of significantly improving quality of life and life expectancy. More important, they are unlocking the door to new research paths that could eventually lead to a cure for CF.

•Oneofthesecompounds,Kalydeco®(formerlyVX-770)wasapprovedbytheFDAonJanuary31,2012;in clinical trials the drug showed that it could actually fix the biochemical flaw in some CF patients with aparticularmutation,foundinabout4%ortheCFpopulation.Kalydeco®isnowbeingpairedwithanothercompound,VX-809andisinclinicaltrialsforothermutations.

•VirtuallyeveryapprovedCFdrugavailabletodaywasmadepossiblebecauseofsupportfromtheFoundation and its nonprofit affiliate, CFFT. Since the 1980s, the Foundation and CFFT have played an integral roleinthedevelopmentofPulmozyme®,TOBI®,azithromycinandhypertonicsalineforuseasCFtreatments.

THE CYSTIC FIBROSIS FOUNDATION’SUNIQUE AND SUCCESSFUL BUSINESS MODEL




1. The Foundation is adding tomorrows every day. When the Foundation was established, children born with CF were not expected to live long enough to attend elementary school. Thanks to research and care supported by the Foundation, the median predictedageofsurvivalisnowmorethan38years;morethandoublewhatitwas25yearsago.

2. The Foundation is leading the quest for new treatments and a cure. The Foundation has committed hundreds of millions of dollarstoCFdrugdiscoveryanddevelopment.VirtuallyeveryapprovedCFdrugavailabletodaywasmadepossiblebecauseofFoundation support.

3. The Foundation is making history. Foundation-backed researchers discovered the defective gene that causes CF in 1989.Since then, CFF has funded virtually every approved CF drug available today. On January 31, 2012 the FDA approved the drug Kalydeco™(previouslyknownasVX-770).Thisdrugisabreakthroughbecauseitisthefirsttoaddresstheunderlyingcauseofcystic fibrosis. It will correct a specific CF mutation, G551D, which is present in about 4 percent of people with CF in the U.S.

4. The Foundation is efficient. The CF Foundation is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau’s Wise Giving Alliance. With nearly 90 cents of every dollar raised going to research you can feel confident that you are making a difference.

5. The Foundation is making a difference. Today, more than 45 percent of all people with CF are age 18 or older, thanks to wiseinvestments made by the Foundation in research and comprehensive care. To ensure excellent care, the Foundation hasimplemented a quality improvement program at its nationwide network of 110 CF care centers. In addition, the Foundation has launched the Program for Adult Care Excellence (PACE), a national initiative to enhance care for adults with CF.

6. The Foundation is strategic. The Foundation’s unique approach to drug discovery has yielded a pipeline with more than30 potential therapies in development for CF. We support a broad range of research efforts, which have led to potential therapies that combat the symptoms of CF as well as those that address the root causes of the disease. The odds of producing successfultherapies and a cure improve with each added therapy.

7. The Foundation is taking action. Working with a network of volunteers across the country, the Foundation provides people with CF a voice in Congress. The Congressional CF Caucus has 142 members, making it one of the largest caucuses in Congress. 8. The Foundation is forward-thinking. In 2012, to supplement contributions raised by its dynamic agenda of Great Strides and special fundraising events, the Foundation launched our Partners In Progress annual fund campaign. This is in additionto our ongoing Milestones to a Cure campaign.

9. The Foundation is innovative. The Foundation’s unique business model has been recognized by the National Institutes of Health and by publications such as Forbes, The New York Times, The Wall Street Journal and Business Week.

10. The Foundation is far-reaching. The Foundation has more than 75 chapters and branch offices throughout the country and supports and accredits a nationwide network of over 110 care centers. The CF Services Pharmacy, the Foundation’swholly-owned subsidiary, makes therapies available to nearly 8,000 CF patients nationwide and advocates on behalf ofpatients by working with insurance plans to cover prescription medicines.

YOUR FUNDRAISING EFFORTS MAKE A HUGE IMPACT




Whether you are a tech person, social butterfly, or working 9 to 5, we have great suggestions to help you reach your fullest fundraising potential! Of course, you can always mix and match. Find out what kind of fundraiser YOU are!

COMPUTER SAVVYOn Facebook, give thanks and get sponsors at the same time: Update your status with your fundraising goal and thank sponsors by writing on their Facebook wall. Your updates in the Facebook News Feed will inspire others to donate!

Retweet: On Twitter, become a follower of the Cystic Fibrosis Foundation. Then retweet messages you read and be sure to ask your followers to donate to you.

YouTube: Record a personal video message asking for support for your fundraising efforts,keep the video diary of your experience with The Peachtree Society, or thank people whosponsor you by video.

Inspire your friends with CF facts: Include statistics and CF related news in your statusupdate and emails.

Blog your way to fundraising success: Keep an online journal of your fundraising progressand announce fundraisers!

CORPORATEEmail Signature: Add a link to your fundraising web page in your signature line. Each time you send a message, the recipient will be provided the opportunity to sponsor you.

Sell goodies to your co-workers: Pick up the most sought-after sweets and set up a snack area near the photocopy machine. Put a sign up that reads “suggested donation $1.”

Corporate Matching Gifts: Ask your HR department if your company has a matching gift program. If not, suggest an employee match, or get your boss to match the proceeds collected at your next fundraiser. Don’t be shy. You never know who might be your next big supporter!

WHAT KIND OF FUNDRAISER ARE YOU?




CORPORATE CONTINUED“Denim Days” or “Dress Down Days”: First get corporate approval, and then charge people $5 to wear jeans to work on Friday, or $20 for the whole week. Everyone can benefit from a more relaxed work atmosphere. Help people be comfortable on the job while contributing to a great cause.

Office Lunch Fundraiser: Get food donated or have co-workers bring in their favorite dishes! Charge $5 per plate—charge more for additional side dishes!

SOCIAL BUTTERFLYDinner with Friends: Ask your local restaurant if they will donate a portion of one evening’s proceeds to your fundraising total. Make flyers with the information and invite everyone you know to dine there on that evening. You’ll bring in more business to the restaurant and more money to your fundraising efforts.

Raffle it off!: Use your connections and fabulous social skills to acquire irresistible prizesdonated for a raffle. You can ask businesses that you frequent (restaurants, spas, hair salons, sports venues) to donate. Sell tickets at $2 each or 10 tickets for $15—people can’t say noto that bargain!

Benefit Concerts/Gigs: If you know a rock band, jazz group, DJ, comedian, or string quartet, ask them if they will do a benefit for The Peachtree Society at a local club or coffeehouse.

Karaoke Night: Contact your favorite karaoke spot and get a portion of the proceeds to gotoward your goal. Bring all of your friends out!

Guest Bartending: Ask your local bar if they’ll allow you to be a guest bartender for a night. All the tips go to your fundraising goal!

WHAT KIND OF FUNDRAISER ARE YOU?




1) Conduct an e-mail campaign using your fundraising webpage CF Foundation will provide you with a username and password. Login to your personal webpage to upload your address books. Here you can utilize the templatesprovided or write a personal letter to your contacts asking for support.

*TIP: Ask for a specific amount or range and set a deadline. For example: Email 25 people and askfor $50 by July 15, 2013. If only 10 respond you will have $500 towards your goal. This creates a sense of urgency and you can follow-up after the deadline.

Can’t remember your link? Tell potential donors to go to go HERE where they can search Honorees to find your web-page. To donate to your campaign, they should click on your name.

2) Use Social Media Networks Each candidate will have the opportunity to upload a CFF widget to your FB page that will directdonors to your webpage.

Tips: Keep raising your fundraising goal if you are getting close to encourage donors! Keep yourwebpage up to date with the latest info on your campaign and any events you have coming up. Send out updates and reminders often to keep it in the forefront and set a deadline!

3) Send a personal letter on your letterhead or use The Peachtree Society logoSamplelettersareincluded.Askfriends,family,co-workers&neighbors;butdon’tforgetcompanieswith which you do business, your insurance agent, doctor, dentist, lawyer, etc. Think about where you spend your money- those people have a vested interest in you already as a customer. They will be happy to support you! With this letter, include the link to your webpage, as well as one of the sponsorship forms for them to fill out and send back with their donation.

You may want to include an envelope already addressed to the Cystic Fibrosis Foundation- stamping optional. Successful fundraisers say they get a great response, because it made it so easy for contributors torespond.Donationsare100%taxdeductible.

4) Sell 100% Tax Deductible program acknowledgements This is a GREAT way for businesses to showcase themselves and their support of your Honoree status.

• Full Page $500• Half Page $250• Business Listing $100

FUNDRAISING REVENUE GENERATORS




5) Ask about matching gifts Ifyourcompanyparticipatesinmatchinggifts,askEVERYONEyouworkwithtosupportyou.Theywill fill out their portions of the company’s matching-gift forms and give them to you to turn in with their donations. The CF Foundation will complete the forms and mail them in to double your money. Visitwww.matchinggifts.com/cff/ to see if a company has a matching gift program.

6) Organize an Event Examples include cornhole tournament, restaurant crawl, happy hours with silent auctions, winedinners and more. Local bars and restaurants love to do things that bring people in, especially when it helps a charity. This has proven to be a very successful way to add to your funds raised. See if yourfavorite site will donate happy hour food and a limited selection of beverages, such as beer and soft drinks (with all other drinks available for purchase at a cash bar – that’s where they make their money), charge $20 per person to attend, with all the proceeds going to your campaign. Your contacts won’t mind donating $20 this way! Have ideas? Discuss them with your fundraising coach before proceeding to ensure you are following all the local laws and policies.

7) Sell tickets to the eventBeing recognized as one of Metro Atlanta’s Rising Leaders is an honor and your friends, family, and colleagues will want to support you. Selling tickets to the event is an easy way for them to show their support while enjoying a fun evening on the water with entertainment, food, and drinks.Example: Sell 10 tickets you are half way to your goal. Sell 20 tickets and you have met your goal and can now strive to be The Peachtree Society Professional of the Year. Tickets to the event $85 per person. Sponsorship opportunities are also available.

8) Sell event sponsorshipLocal businesses will be happy to be a part of an event that will reach a captive audience. Click HERE to view the varying levels of sponsorship that are available.

FUNDRAISING REVENUE GENERATORS




Business Name:

I’ve joined forces with the Cystic Fibrosis Foundation to make an impact on the global movement to end cystic fibrosis forever. I have been chosen as an honoree for The Peachtree Society: Metro Atlanta’s Rising Leaders and would like to include you as one of my business supporters.

Nearly 90 cents of every dollar of revenue goes to support vital CF research, medical and education programs. In order to reach my fundraising goal, I am asking for your support in the form of a monetary donation. I am a frequent customer of [COMPANY NAME], and would appreciate any support that you would be able to provide.

Currently life expectancy is only 38 years and that is just not long enough. The CF Founda-tion is making milestones with new therapies and drugs that actually correct the basic defect of the CF protein. So now, more than ever, your support is vital. Now is the time to take ac-tion to help end this disease. The more funds that I raise, the sooner we can end this fight.

More information about the Cystic Fibrosis Foundation can be found at www.cff.org. I can be reached at [PHONE NUMBER]. By supporting me and the CF Foundation, [COMPANY NAME] will ultimately help put an end to cystic fibrosis.

Thank you for your support and consideration.

Sincerely,

[Name]

SAMPLE LETTER TO A BUSINESS/ORGANIZATION




SAMPLE PERSONAL LETTER

Hi Name:

I am honored to have been chosen by the Cystic Fibrosis Foundation as one of thehonorees for The Peachtree Society: Metro Atlanta’s Rising Leaders based in large part on my community involvement and career success.

I’ve set my personal fundraising goal at $3,500 and I’m hoping that you will help me achieve it by making a tax-deductible donation. You can give online safely and securely at [INSERT LINK TO YOUR PERSONAL WEB PAGE]. If you prefer, you may mail your donation to the Cystic FibrosisFoundationat2302ParklakeDrive,Ste.210;Atlanta,GA30345.Pleasemakeyourcheck payable to the CF Foundation and add my name in the memo field.

Cystic Fibrosis is a genetic disease that shortens the lives of those it affects to a median age of approximately 38 years. Advances continue to be made in finding a cure, but your help is needed now, more than ever, to keep up the momentum of this life-saving research. For the first time in the CF Foundation’s history, scientific opportunities are coming at a pace that is exceeding our ability to fund them.

You’llfeelconfidentinknowingthatyourgenerousgiftisusedefficientlyandeffectively;nearly90 cents of every dollar of revenue goes to support vital CF research, medical and education programs. Plus, your gift is tax-deductible.

Together, we can make a difference in the lives of those with cystic fibrosis. Thank you forsupporting me in this challenge and for supporting the work of the Cystic Fibrosis Foundation.

Thank you,

NAME2013 The Peachtree Society: Metro Atlanta’s Rising Leader Honoree




Follow-up Letter

I wanted to follow-up on the email I sent you earlier about my participation in the Cystic FibrosisFoundation’s leadership class, The Peachtree Society: Metro Atlanta’s Rising Leaders.

There is still time for you to support my efforts with a donation. Nearly 90 cents of every dollar ofrevenue goes to support vital CF research, medical and education programs. The CF Foundation is making milestones with new therapies and drugs that actually correct the basic defect of the CF protein. So now, more than ever, your support is vital. Now is the time to take action to help end this disease. The more funds that I raise, the sooner we can end this fight.

You can give online safely and securely at [INSERT LINK TO PERSONAL WEB PAGE].

Thank you for your support.

Sincerely,

[Name]

Thank You Letter

Thank you for supporting my participation in the Cystic Fibrosis Foundation’s leadership class, The Peachtree Society: Metro Atlanta’s Rising Leaders and thank you for your donation. Your gift willundoubtedly save lives. You can read more about the Cystic Fibrosis Foundation and the efforts your donation goes to support at www.cff.org.

So far I’ve raised [$AMOUNT]. Only [$AMOUNT] more until I reach my goal! I’ll be keeping all ofmy donors in mind, and in my heart. Without your generosity, none of this would be possible.

Sincerely,

[Name]

SAMPLE FOLLOW-UP AND THANK YOU LETTERS

FOR




INTRODUCING THE CLASS OF 2013

Cal AndersonFinancial Planner

MassMutual/The Piedmont Groupof Atlanta, LLC

[email protected]

Aimee AshRegional Manager

[email protected]

Suzanne Cosseboom Marketing Manager

Jim ‘N Nick’[email protected]

Chris DibenedettoField Marketing Manager

Starwood Hotels & [email protected]

Doug GibsonGeneral Manager

Heritage Auction & [email protected]

Jesse GideonCOO

Fresh to [email protected]

Chris PrindivillePartner

Fermata Partners, [email protected]

Jonathan StrobleSenior Manager of External Affairs

Georgia Student Finance [email protected]

Michelle SuttleVPPartnerships

[email protected]

Jonathan (JT) ThompsonNational Marketing Director

APCO/[email protected]

Chris UrquhartMedia SupervisorFitzgerald & Co.

[email protected]

Janell WoodEvent Director

Turner [email protected]

Alex GrecoCopywriter

[email protected]

Dr. Randy HuntChief Fellow Division of Pulmonary,

Allergy & Critical Care MedicineEmory University School of Medicine

[email protected]

Emily LipmanOwner

Raw Denim [email protected]

Adam McFarlandProject Manager

Innovation Delivery TeamOffice of Mayor Kasim Reed

[email protected]

Mandy MehalsoMarketing Coordinator/Photography

The Butler-Swayne Team,Prudential Georgia Realty

[email protected]

Ricky NovakManaging Member

The Strategic Group [email protected]



CYSTIC FIBROSIS FOUNDATIONThe CF Foundation in the News

New Cystic Fibrosis Drug

Brings Gift of a Future

“If there is a useful moral to this

rare tale of scientific success, it

may be the kindergarten maxim:

Work together. The Cystic

Fibrosis Foundation, founded in

FDA Approves New Cystic Fibrosis Drug

“The Cystic Fibrosis Foundation contributed $75 million

to Vertex for research, an example of how patient

advocacy groups have been taking a more direct role in

drug development, in what is often called ‘venture

philanthropy.’” Feb. 1, 2012

Not Just a Cheerleader: Foundation Helped

Drive Cystic-Fibrosis Research

Fibrosis Foundation, founded in

1955, is held up by many as a

model disease-fighting group

that bridges between researchers,

doctors, patients and donors in

perpetual quest for a cure.

Without the foundation, everyone seems to agree, there

would be no VX-770.”

“‘We took the risk’ so the companies would start and projects

would develop the momentum, Beall says. The foundation

has now given or committed to give $315 million to

companies for drug research.”Feb. 23, 2011

Oct. 20, 2011

“Vertex drug is breakthrough for

handful of CF patients, offers

hope to many more”

“FDA approves new cystic fibrosis drug”

“Game changer” CF drug receives FDA

approval

“Vertex gets early OK for new drug”

“Cystic fibrosis drug

wins approval”

CFF & Kalydeco in the News

Jan. 31 - Feb. 2, 2012

“Vertex receives U.S. FDA

approval for Kalydeco to

treat cystic fibrosis”

“FDA approves Vertex cystic

fibrosis drug”

“U.S. approves Vertex

cystic fibrosis drug

Kalydeco”

“FDA approves

Vertex’s cystic

fibrosis drug”

“How science and strategic

collaboration led to a new,

‘personalized’ cystic fibrosis

treatment for some patients”

CFF & KALYDECO IN THE NEWS

Honoree Kit

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