www.frambu.no

Frambuleir

Summer camps for children, youths and young adults with a rare disorder

Gro Trae

Clinical nutritionist

Frambu Centre of Rare Disorders

Norway

www.frambu.no

Frambu Centre for Rare Disorders, Norway

• Courses for families

• Courses for proffesionals

• Local guidance

• Research and develompent

• Information material

• Summer camps

Oslo

www.frambu.no

The purpose of Frambu’s summer camps • To offer holiday experiences in a safe and inclusive

environment with the purpose to use these gained experiences in their leisure time back home

• To be an arena offering learning opportunities and experiences to better cope with, and overcome some of the challenges related with everyday life

• The main goals for the participants are to meet others in the same situation as themselves, exchange experiences and to connect to social networks

www.frambu.no

www.frambu.no

Anticipation Belonging

Independence New perspectives

Learning to cope

Homesick

Challenging New friends Excited

Stretching the boundaries

Fun activities Taking it easy

Fitting in

Being taken seriously Memories for life

www.frambu.no

Frambu’s Coordinator

Camp leader

Camp leader

Group leader*

Group leader*

Group leader*

Group leader*

Group leader*

Frambu’s physician

Activity leader

= Assistant

Frambu’s administration

Activity leader Medical student

Nursing student

* Each group leader has his/her own contact person from the staff of Frambu

www.frambu.no

Who is participating?

• Children, youths and young adults with rare disorders – Without parents, caregivers or assistants

• 75% of these having Frambu as their competence service centre – The rest is from other Norwegian competance services

– Camp 1 (2 weeks) – 50 participants 10 - 16 years

– Camp 2 (2 weeks) – 50 participants 16 - 30 years

– Camp 3 (2 weeks) – 50 participants 14 - 20 years

– Camp 4 (1 week) – 30 participants 18 – 35 years

www.frambu.no

The camps are popular for both people with and without a rare disorder!

• 320 applicants for the job as camp assistant: 30% new applicants og 70% with camp experience – Mostly young students

– Frambu has engaged a person to

employ the staff

• 323 applications for participating

in total – relatively evenly distributed

through the four camps

www.frambu.no

Some of our challenges

• Finding the balance in how much we as professionals get involved – we want the camps to ”live their own lives” to the greatest extend

• Finding the balance in how many youths which can participate at each camp

• Be able to adapt to each individual’s

needs

• To do deliberate decisions when we

choose out the participants

- finding the right group composition

www.frambu.no

Why does it work so well?

• Through many years of organizing summer camps, Frambu has developed a certain “camp culture” that is passed on from one year to another

• We try to perserve this camp

culture by finding the

appropriate balance of

experienced and new camp

workers, making new assistants

assimilate quickly

www.frambu.no

Stretching the boundaries

www.frambu.no

New friends

www.frambu.no

Fun activities

www.frambu.no

Fitting in

www.frambu.no

Memories for life

www.frambu.no

Thank you!