Education and Youth Fundraising Pack

Whether lives are measured in days, weeks, months or years, we are here to make every moment count. We support families from diagnosis to end of life and throughout bereavement with a range of nursing, practical, emotional and medical care.

Our bespoke support is free of charge to families and available 365 days a year.

Our care service includes short breaks at our two hospices (Shooting Star House in Hampton and Christopher’s in Guildford), Hospice at Home, day care, symptom management, end-of-life care, bereavement care and a comprehensive range of therapies and support groups for the whole family.

It costs £10 million a year just to maintain our current level of care. Around 10% of that income comes from government funding, so we rely on our supporters’ generosity to keep the service running.

What’s more, we know there are many more families desperate for our vital support, so it’s crucial we raise more funds to provide more care.

Shooting Star Chase is a leading children’s hospice charity caring for babies, children and young people with life-limiting conditions, and their families.

make every moment count

Your Education and Youth Fundraising Pack

Get in touch at hello@shootingstarchase.org.uk or by calling 01932 823100

Donating your fundraising

When your fabulous fundraising is finished we would be delighted to receive your donation via:

Bank transferAccount Shooting Star ChaseSort Code 20-81-11A/C No 90063525

Cheque made payable to Shooting Star Chase and sent to our Fundraising officeBridge HouseAddlestone RoadSurreyKT15 2UE

Onlineshootingstarchase.org.uk/donate

Welcome to your Education and Youth Group Fundraising Pack. Inside you will find all sorts of useful resources and information to get you started.

We are here to support you every step of the way so if you are planning some fundraising let us know, we’d love to hear from you.

We can provide assembly presentations, class workshops and fundraising materials like balloons, stickers and collection cans and loads more to help get you started.

There’s loads of great support on our website so visit shootingstarchase.org.uk/schools for ideas and resources. Whilst you are there don’t forget to check out our family stories and videos too!

Georgina BrookesEducation and Youth Fundraiser georgina.brookes@shootingstarchase.org.uk01932 823121

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Shooting Star Chase at your schoolInvite us to your school for an assembly or class presentation to hear all about Shooting Star Chase. We can even provide age-appropriate, tailored learning with our music therapy pack or quality of life workshop.

Get in touch to find out more and to book an exciting and inspiring session for your pupils!

Visit shootingstarchase.org.uk/atschool or email schools@shootingstarchase.org.uk for more information.

CreateCreate is our simple and easy-to-use tool that helps you create bespoke materials to promote your support of Shooting Star Chase.

Whether you want to put together a poster, a leaflet, tickets, invites or certificates – simply pick a template, personalise it and in just a few minutes your creation will be delivered straight to your inbox ready to email, print, tweet or share!

Visit shootingstarchase.org.uk/create to get creating!

Ways to help

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One million 5p ChallengeWith the help of your spare five pence pieces we are hoping to raise £50,000 – that’s 1 million 5ps – so we can fund a full-time senior Hospice at Home nurse. All you have to do is recycle an old water bottle, pop our 5p challenge sticker on the front and fill it with 5ps! Try it as a class or make it a race between form groups.

Visit shootingstarchase.org.uk/5pchallenge for more information and to download your label.

onegoodthingthing

onegoodthingWe want to make sure our charity shops are packed full of fabulous things, so get your school on board and become onegoodthing champions.

Ask everyone to simply donate one quality item and you can help stock an entire shop full of brilliant stuff! We can even supply you with our awesome onegoodthing donation bags and a final valuation of how much your school’s helped to raise.

Email schools@shootingstarchase.org.uk for more information.

Perform a sponsored play or host a comedy night

Hold a sponsored sports day

Tackle one of our challanges

Have a scrummy bake sale

Put on a talent show

Donate some things to our shops

Do a wacky race

Schools calendar 16-17 DC2016577.indd 1 13/06/2016 12:01:26

September October NovemberReady, Steady, Jelly! Try making structures from jelly with a suggested donation for competition entry. Who can make the highest tower?

Help your pupils determine states of matter. Is jelly a liquid, solid or gas?

Make and bake with a Halloween theme. Witchy cupcakes and monster brownies will go down a treat at a spooky bake sale. Can your class come up with some kooky combinations such as beetroot and chocolate or strawberries and basil? Tweet us your pics @sschospices

Explore the nutritional value of food whilst planning and baking these freaky treats.

Sponsored Silence – a teacher’s dream! Can your class sign along to one of our Friendly Hands Makaton group’s songs? Learn some Makaton at shootingstarchase.org.uk/makaton

Use this activity to explore non-verbal communication, learn some Makaton and make flash cards.

December January FebruaryLet’s get festive! Write your own Christmas cracker jokes and make Christmas cards to sell at your Christmas fair. Try out limericks and riddles too. Don’t forget our festive templates on shootingstarchase.org.uk/create

Get some creative writing happening. Use this fundraising activity as a medium to explore vocabulary, articulation, composition, handwriting and spelling too!

Start the year with our onegoodthing campaign. We have brilliant bags that we’d love you to fill with onegoodthing for us to sell in our fabulous shops. shootingstarchase.org.uk/onegoodthing

This is a great activity to bring in geography across the year groups. Try mapping out where Shooting Star Chase’s shops are and locate the one closest to your school.

Stuck inside? Lots of rainy days? Host a balloon bursting fundraiser and pay to pop to brighten up any grey day.

This activity could be used to explore how sounds are made.

MayAprilMarchMarch for March with a sponsored playground march-a-thon! Find a Shooting Star Chase fundraiser form in this pack.

Mix up your marching with movement sequences as part of PE. Work in small groups to encourage team work.

Got Skills? Set pupils the task of learning a new skill over Easter. Anything from origami, magic or crochet, to 20 new words in another language. Present your new skill to your class or even your whole school during assembly.

This activity encourages pupils to explore their own interests and take responsibility for their learning and development.

During May it’s Children’s Hospice Week. Get on board and support Shooting Star Chase, your local children’s hospice.

Families looking after a child with complex medical needs face lots of challenges. Explore with pupils what challenges they face and look at new ways of helping each other.

JulyJune AugustHost a welly flinging competition with your old wellies at your next sports day and then use them as planters. Sell them at your next school fete to raise money.

Once your wellies have been well flung, fill them with soil and seeds and watch them grow; a practical activity to explore plants.

Messy Madness! Get sponsored to get as messy as possible or ask for donations to take part a messy madness event. How about a prize for the messiest person at the end of the event – what great fun to finish the school year!

How much mess can be created? Try calculating the volume of different containers then fill them with your mess making substances.

One Million 5p Challenge. You count your 5ps, we use them to make every moment count. Challenge your pupils to take part over the summer holidays to see who can fill their recycled bottle with the most 5ps. Find out more about our One Million 5p Challenge at shootingstarchase.org.uk/5pchallenge

Try setting some simple sums and money counting for pupils to try using their collected 5ps.

Fundraising ideas calendar

Event Event date

Mr/Mrs/Miss/Ms First name Surname

Company/Organisation/Team (if applicable)

Phone no. Age (if under 18)

Email

Address

Postcode

Full name inc. title Full home address Postcode Gift Aid Date given

Total donation

Dr A Sample 123 Sample Street SS1 1SS 01/03/14 £20

Please sponsor me!

Shooting Star Chase would like to keep you updated with our news, events and appeals. We will not share your details with anyone else. Please tick below to let us know how you would like to be contacted.

Shooting Star Chase, Bridge House, Addlestone Road, Surrey, KT15 2UE. t 01932 823100 f 01932 858399 e hello@shootingstarchase.org.uk w shootingstarchase.org.uk Registered Charity No. 1042495

I’m happy for Shooting Star Chase to contact me: via mail via email via telephone via text

By providing us with personal data you consent to the terms and conditions of our privacy statement available at shootingstarchase.org.uk. You can unsubscribe at any time by getting in touch with our Supporter Care Services team on 01932 823115 or supportercare@shootingstarchase.org.uk.

Full name inc. title Full home address Postcode Gift Aid Date given

Total donation

It’s really easy to pay in your sponsorship money

Post Please send a cheque with this form to Shooting Star Chase, Bridge House, Addlestone Road, Surrey, KT15 2UEPhone Call us on 01932 823100 and we can take a card paymentOnline Go to shootingstarchase.org.uk/donate

If you have any enquiries please email fundraising@shootingstarchase.org.uk

You can make your donation go further with Gift Aid

If I have ticked the box headed Gift Aid, I confirm that I am a UK income or capital gains taxpayer. I have read this statement and want Shooting Star Chase to reclaim the tax on the donation detailed above, given on the date shown. I understand that I must pay an amount of income tax and/or capital gains tax in the tax year at least equal to the amount of tax that all the charities and CASCs I donate to will reclaim on my gifts for that tax year. I understand that if I pay less Income Tax/or Capital Gains tax in the current tax year than the amount of Gift Aid claimed on all of my donations it is my responsibility to pay any difference. I understand the charity will reclaim 25p of tax on every £1 that I have given.

Orla’s story

“When you’re only going to have such a small amount of time you want that time to be as good as it can be.”

Registered Charity No: 1042495

Following a devastating diagnosis during pregnancy, parents Helen and Ben didn’t think they’d get more than a few hours with their baby. But Orla came out fighting and the family spent three days together, making precious memories they’ll never forget.

“We’d lost a child previously from Jeune Syndrome and there was a one in four chance this baby would have the condition too,” explains Helen. A scan at 16 weeks showed their baby’s chest was small and they were referred for further tests which confirmed Jeune Syndrome. Helen and Ben were given the option of ending the pregnancy, but chose to continue. “Jeune Syndrome is a spectrum. You can have it quite mildly where you have smaller lungs than average but they’re able to function, right to the severe end of the scale where the baby can’t take a single breath.”

The family were referred to Shooting Star Chase by their midwife. “We had a look round Christopher’s and we really liked it. Finley, our four-year-old son, loved it. We were told we’d be able to go there after Orla was born whatever happened. Either way we decided it would be the best place so Finley could have memories of her at the hospice rather than see her die in hospital and be scared of hospitals. At the time I was feeling optimistic and I’d convinced myself she’d be OK and wouldn’t need the hospice. But then we had an MRI which confirmed her lungs were too small to survive.”

The family were told palliative care was the best option. “It’s a battle in your head – you want to throw everything at your child to give them a chance of survival but then you don’t want them to survive and have a life of suffering. The doctors all felt that active intervention would have only given Orla a few days and those days would have been in a neonatal unit with tubes everywhere, which wouldn’t have been any life. In the end we got to have three days at Christopher’s with her which we never thought would happen. She was surrounded by her family getting to see and do things we never dreamt possible. The best case scenario we’d allowed in our head was she’d be born, we’d go straight to Christopher’s and she’d pass away within hours, but she came out breathing. We stayed in hospital initially because we wanted to make sure there wasn’t anything that could be done.” When it was decided palliative care was still the most appropriate course of action the family transferred to Christopher’s.

“We went in the sensory room and garden, Finley played music on the pipes and sang to Orla, they went on the roundabout together and I sat on the edge of the trampoline with her while Finley was bouncing. We have so many lovely family memories at Christopher’s.” Orla passed away peacefully in the sensory room surrounded

by her family. “We took her to the Mistral Suite and we all went to say goodbye. Staff organised for Orla’s heart valves to be donated, which will go on to help two people with heart conditions. “We stayed at Christopher’s for another week. Finley had loads of fun while my husband and I got to spend time with Orla. The team helped us create memories and keepsakes – hand and foot prints, photos, casts, finger and thumb prints and a lock of hair. We treasure them all and they help keep Orla’s memory alive. After the funeral we went back to Christopher’s to let balloons off and that’s one of the things Finley really remembers. He rarely gets upset because he remembers Orla with happy memories.”

Following Orla’s death, Helen has accessed Shooting Star Chase’s counselling service. “The counselling has been really good so far and I’ve also received lots of useful advice about how to help Finley.”

The family have since raised thousands of pounds for Shooting Star Chase. “Fundraising has given me a focus. While we were staying at the hospice I signed up for the London Marathon – I needed a goal and I wanted to give something back.” Helen and Ben have also held a Halloween party, done a sponsored run dressed as pumpkins, taken part in our Fire Walk and organised a virtual run. “I wanted something positive to come from Orla’s death. We’re never going to get Orla back but we don’t want her loss to have been for nothing. It’s a nice feeling for us to know all these people now know about her and are aware of what the hospice can offer.

“When you’re only going to have such a small amount of time you want that time to be as good as it can be. There isn’t anything we look back on and wish we’d have done differently. Given the circumstances it couldn’t have been any better. Shooting Star Chase gave us three days together with Orla getting to see and do things we never dreamt would be possible and creating family memories we’ll never forget.”

Shooting Star Chase is a leading children’s hospice charity caring for babies, children and young people with life-limiting conditions, and their families.

Whether lives are measured in days, weeks, months or years, we are here to make every moment count. We support families from diagnosis to end of life and throughout bereavement with a range of nursing, practical, emotional and medical care.

t 01932 823100 f 01932 858399 e hello@shootingstarchase.org.uk w shootingstarchase.org.uk

Follow us on Twitter @sschospices Find sschospices on Facebook

George’s story

“George’s condition is made bearable because of Shooting Star Chase and we simply couldn’t function without them.”

One morning in 2010, George’s parents, Nicky and Phil, found their son lying in bed awake, but unable to move or talk. Terrified, they called an ambulance and George was rushed to hospital.

After a series of tests and scans, and with George now regaining speech and movement, the doctors told Phil and Nicky it was probably a severe migraine or partial seizure. Sadly, George’s episode wasn’t a one off – it marked the start of a serious but undiagnosed condition: “Just six weeks later, George was playing in the garden and suddenly couldn’t talk again,” says Nicky. “From then on, he continued to have regular seizures where he’d go blank, and they gradually got worse over the next year. It wasn’t long before George suffered his first tonic clonic seizure where he falls down and his whole body starts jerking. It was frightening. He was in hospital for a week after that and tests showed he’d had 32 seizures in 24 hours.”

To make matters worse, George’s seizures had a significant impact on his development. “George seemed to be deteriorating cognitively,” says Phil. “He went from being really bright to struggling to learn and progress at school. We had an MRI and the results showed George has hippocampal sclerosis on the left side – meaning the seizures had irreversibly damaged parts of his brain. He was put on steroids and epilepsy medication to manage his seizures and prevent any more cognitive damage, but we didn’t get a proper diagnosis because the doctors didn’t know the cause. It was really tough – one day our son was absolutely fine and the next he was seriously ill.”

As George’s condition worsened, the family’s community nurse suggested they get support from Shooting Star Chase, but Nicky and Phil had reservations. “We actually ignored the letter until a key worker from Shooting Star Chase called to arrange a visit. We didn’t think we needed help from somewhere like a hospice,” says Nicky. “But we went to Christopher’s and both George and his sister, Mia, loved everything about it – the swimming pool, the garden, the sensory room. They were in their element!”

But for Nicky, it wasn’t until George had his first two-night stay at the hospice that she changed her mind about Shooting Star Chase. “As well as his epilepsy, George has autism and high anxiety so the slightest bit of change is unnerving for him. So, for George’s first short break, Phil slept in the family flats at the hospice while I stayed at home with Mia. But George was so comfortable and at-ease at Christopher’s that he immediately felt at home and Phil felt able to leave after one night. Then I realised we needed the hospice more than we knew.”

George is now 14-years-old and the family have been supported by Shooting Star Chase for five years with services including short breaks, Hospice at Home and a range of therapies. “At the beginning there’s no way I’d leave George but now Christopher’s is the only place I

know he’s safe and happy without us,” says Nicky. “The staff are brilliant and always make him feel welcome – it’s like his second home. He can be confident and independent, and do teenager things like go to youth group, or go to restaurants and the cinema without mum and dad. He says he doesn’t feel ill when he’s there.

“Shooting Star Chase has been a lifesaver for us all. For us as parents, we’ve been able to go abroad together without worrying about George and his safety, and I’ve also really benefited from counselling, parents’ groups and complementary therapies at Christopher’s. As a family we get to enjoy things like the Summer Fun Day at the hospice, which we base our holiday plans around because it’s such a fantastic day.”

The support from Shooting Star Chase has also made a difference to Mia, George’s sister. “Mia was only five when George had his first seizure and we think his condition and everything that goes along with it has had a real impact on her,” says Phil. “She goes to art therapy and siblings’ days, which help so much with her nervousness and stress. When we get Hospice at Home or George goes on a short break we can also spend quality time with her and do the things she wants to do.”

Nicky and Phil still don’t have a diagnosis or prognosis for George seven years on from his first seizure, which means the family are constantly having to cope with the unknown. “We know that any seizure could take him from us and he is reliant on his medication to manage his condition, not treat it,” says Nicky. “The damage from the seizures means his emotional maturity is still that of an eight-year-old but we’ve been told he may well outgrow some elements of the epilepsy and we’re hopeful. Whatever the future holds, dealing with the impact of George’s condition is made bearable because of Shooting Star Chase and we simply couldn’t function without them. They are the greatest support network anyone in our position could wish for. When I look back at my hesitation to accept help I can’t believe how wrong I was.”

Shooting Star Chase is a leading children’s hospice charity caring for babies, children and young people with life-limiting conditions, and their families.

Whether lives are measured in days, weeks, months or years, we are here to make every moment count. We support families from diagnosis to end of life and throughout bereavement with a range of nursing, practical, emotional and medical care.

t 01932 823100 f 01932 858399 e hello@shootingstarchase.org.uk w shootingstarchase.org.uk

Follow us on Twitter @sschospices Find sschospices on Facebook

Registered Charity No: 1042495

Fifi Fitch Sugar Steelie

Chuckles Daffy Scratch Sparklina Beau

Uncle Bobble Thumbley Professor Popplepants

Dr Mo

Dazzler Mrs Pinkypops Nurse Luffley

Pleased to meet youMeet the Shooting Star Chase Friendlies, a group of lively fingerprint characters designed to help break down the misconception that children’s hospices are sad and depressing places.

The fingerprint concept has been created to reflect the charity’s care service – all fingerprints are unique and each family is given care and support based on their individual needs.

There are 16 Friendlies in total, each with their own personality, which includes a variety of ages to show we support the whole family.

Design your own member of the Friendlies!On the next few pages there are blank friendlies templates - show us your creative side and design your own member. When you are done we would love to see them. Tweet us @sschospices. Turn it into a fundraiser and auction off your amazing creations.

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Shooting Star ChaseBridge HouseAddlestone RoadSurreyKT15 2UE

t 01932 823100 f 01932 858399 e hello@shootingstarchase.org.uk w shootingstarchase.org.uk

Follow us on Twitter @sschospices Find sschospices on Facebook Registered Charity No: 1042495