Dear

The COVID-19 pandemic has shaken our world and health systems and has had a major impact on people living with other diseases, especially cancer. We recognize that this impact goes well beyond cancer screening and care; however, we do want to raise some of the issues we have observed in our community.

Prior to the pandemic, death rates in some types of cancer had started to stabilise or even decrease as patients took a more active role in primary and secondary prevention and their own care, while cancer services improved and more treatments became available.1,2 The COVID-19 pandemic has severely disrupted cancer detection and care services globally3: 2020 saw an approximately 40 per cent drop in diagnoses of cancer4. A recent study published in the BMJ journal demonstrated that delays to treatment can have a detrimental effect.5 We recognise that healthcare systems are under unprecedented pressure due to the COVID-19 pandemic and that the global crisis has not ended yet, but the data show us that we need to take action to actively address the issues in cancer care if we are to continue improving outcomes.

We, cancer-focused organisations, are ready to support governments in the effort to help cancer patients globally. To improve the situation for cancer patients, governments should:

1) Ensure that patients can access diagnosis and treatment safely Health systems should design COVID-secure pathways so that services for cancer patients can remain open and, where possible, provide alternative treatment modalities, such as home chemotherapy if both the treating provider and patient agree to help shield patients. Health authorities should communicate the range of actions that have been taken to allay patients’ fears about COVID-19 and their condition, including appropriate measures to tackle cancer-related complications, such as cancer-associated thrombosis, cardiovascular diseases, mental health, pain, malnutrition and more. 1 Screening, assessment programmes and other means of diagnosing cancer early must also be restored and supported, as well as efforts to raise awareness of these programmes.

2) Identify the impact of the pandemic on cancer services and design services to mitigate thisThis means collecting and analysing data on the patients who were not diagnosed in 2020, modelling the likely additional demand for services due to missed diagnoses and appointments. In addition, it means investing in the workforce and physical capacity to meet this need, given the likely increase in the number of patients diagnosed at a late stage. We already have some analysed data available and we are willing to provide you with all relevant documentations.

3) Resource cancer services properly and safely for the long termPatients must be at the centre as action is taken to rebuild and improve cancer services. This means efforts to increase multi-disciplinary care, to treat cancer and related symptoms (as described above). Early diagnosis of cancer needs to be accelerated and the uptake of innovation in cancer care and treatment must happen at pace and scale to overcome the setbacks to progress

experienced in 2020. Every effort should be made to ensure that cancer services are not disrupted by any future austerity measures, recognizing that spending on cancer has been stable for decades.7 Moreover, the potential effects of COVID-19 on cancer care could be long term and not only be limited to this year/during the pandemic due to upstaging and workforce resiliency. We are ready to collaborate with you to uplift the cancer care in your country with our resources and expertise.

Today, we want all governments to make a difference by saying: “I am committed, and I will invest in prevention, early diagnosis and treatment of cancer.”

We, the signatories of this letter, are expressing an interest to collaborate with governments to improve the situation of cancer patients.

Signed

References:1. Hashim, D., Boffetta, P., La Vecchia, C., Rota, M., Bertuccio, P., Malvezzi, M. and Negri, E., 2016. The global decrease in cancer mortality: trends and disparities. Annals of Oncology, 27(5), pp.926-933. 2. Cancer.org. 2018. Facts & Figures 2018: Rate Of Deaths From Cancer Continues Decline. [online] Available at: https://www.cancer.org/latest-news/facts-and-figures-2018-rate-of-deaths-from-cancer-continues-decline.html [Accessed 2 October 2020]. 3. Richards, M., Anderson, M., Carter, P. et al. The impact of the COVID-19 pandemic on cancer care. Nat Cancer 1, 565–567 (2020). https://doi.org/10.1038/s43018-020-0074-y. Accessed September 2020. 4. a. De Vincentiis L, Carr RA, Mariani MP, et al Cancer diagnostic rates during the 2020 ‘lockdown’, due to COVID-19 pandemic, compared with the 2018–2019: an audit study from cellular pathology Journal of Clinical Pathology 19 June 2020 doi: 10.1136/jclinpath-2020-206833 (https://jcp.bmj.com/content/early/2020/06/19/jclinpath-2020-206833) b. Elisabeth Mahase Covid-19: Urgent cancer referrals fall by 60%, showing “brutal” impact of pandemic BMJ 2020; 369 doi: https://doi.org/10.1136/bmj.m2386 c. Maringe C, et al The impact of the COVID-19 pandemic on cancer deaths due to delays in diagnosis in England, UK: a national, population-based, modelling study The Lancet August 2020 doi: https://www.thelancet.com/action/showPdf?pii=S1470-2045%2820%2930388-0 d. NHS England Waiting times for suspected and diagnosed cancer patients for April 2020 June 2020 doi: https://www.gov.uk/government/statistics/waiting-times-for-suspected-and-diagnosed-cancer-patients-for-april-2020 e. Harvey W, et al Changes in the Number of US Patients With Newly Identified Cancer Before and During the Coronavirus Disease 2019 (COVID-19) Pandemic August 2020 doi: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7403918/ 5. Hanna, T., King, W., Thibodeau, S., Jalink, M., Paulin, G., Harvey-Jones, E., O’Sullivan, D., Booth, C., Sullivan, R., Aggarwal, A., 2020 Mortality due to cancer treatment delay: systematic review and meta-analysis [online], Available at: https://www.bmj.com/content/371/bmj.m4087 6.Joint statement, Making cancer-related complications and comorbidities an EU health priority [online] Available at: https://ecpc.org/wp-content/uploads/2020/07/Final-Cancer-Comorbidities-Joint-statement-1.pdf 7. Hofmarcher, T. et al. (2019), Comparator Report on Cancer in Europe 2019, IHE Report 2019:7. IHE: Lund, Sweden https://ihe.se/wp-content/uploads/2020/10/IHE-Report-2019_7_.pdf

Martine WirtzPsychologistA heart for cancer sick children

Flori DegrassiA.N.D.O.S. onlus NazionaleA.N.D.O.S. onlus Nazionale

Radu IanoviciEconomistABC Suceava

Ornella CampanellaPresidentaBRCAdabra Italian advocacy BRCA carriers

Jose Francisco Antunes RodriguesPresidentAC RIM Associação de Cancro do Rim de Portugal

Antonia Palmer; Kathy MottonDirector ; SecretaryAc2orn: Advocacy for Canadian Childhood Oncology Research Network

James BurtEVP - EMENAAccord Healthcare

Liolio KolyperaPresident of the BoardAchaia’s Association of Women with Breast Cancer “ALMA ZOIS” (West Greece)

Mariano VottaDirector of Active Citizenship Network, Head of EU AffairsActive Citizenship Network/Cittadinanzattiva

Nicoletta CeranaChairwomanActo Alleanza contro il Tumore Ovarico Onlus

Fatima CardosoPresidentAdvanced Breast Cancer Global Alliance

Paul Opoku AgyemangExecutive DirectorAfrican Cancer Organisation

Verna BrackettAdministrative and Finance OfficerAfrican Caribbean Leukaemia Trust (ACLT)

Giorgio Lo IaconoMD - International Liaison OfficerALCASE Italia

Agata PolińskaVice PresidentAlivia- FUNDACJA ONKOLOGICZNA

Eduardo PisaniCEOAll.Can International

Helga ThurnherChairpersonAlliance of oncological patient organizations (Austria)

Marta KostrováNatRep for ED and ECPCAlliance of Women with Breast Cancer

Martin ZanniHead Marketing Hematology / OncologyAMGEN Europe

Helen MorementCEOAMMF - The Cholangiocarcinoma Charity

Paul GrafChairmanAntwerp Association for Gelaryngectomers-VZW

Paul GrafChairmanAntwerpse Vereniging voor Gelaryngectomeerden-vzw

Evgenia AleksandrovaChairwomanAPOZ and Friends

Dr. Dégi László CsabaPresidentAPSCO

Sami Khatib MD (Jordan)AMAAC Secretory GeneralArab Medical Association Against Cancer (AMAAC)

Jana KoželskápředsedkyněARCUS - onko centrum, z.s.

Mary VellaPresidentArthritis and Rheumatism Association Malta-VO/0425

Carlos CastroPresidentAsociacion ALE, IAP

Charo Hierro RacioneroPresident ASACOAsociación de Afectados por Cáncer de Ovario (ASACO)

César Comuñas AlfaroSecretarioAsociación de Cáncer de Próstata ANCAP

Begoña BarraganPresidentAsociación Española de Afectados por Linfoma, Mieloma y Leucemia (AEAL)

Alejandra de CimaFounder and PresidentAsociación Mexicana contra el Cáncer de Mama, A.C. (Fundación CIMA)

Alina PatrahauPresident &CEOASOCIATIA DARUIESTE ARIPI

Anka MateescuVice PresidentAsociatia Romana impotriva Leucemiei

Joan Puente OrtésPresidenteAsPaFa Cáncer Renal

Alexandre LourençoPresidentAssociação Portuguesa de Administradores Hospitalares (APAH)

Joaquim da Cruz DomingosPresidentAssociação Portuguesa de Doentes da Próstata

Mihael SeverinacProject AssistantAssociation Firefly

Karen E. Knudsen, MBA, PhDPresidentAssociation of American Cancer Institutes

Minna AnttonenExecutive DirectorAssociation of Cancer Patients in Finland

Krista Nelson, MSW, LCSW, OSW-C, FAOSWPresidentAssociation of Community Cancer Centers (ACCC)

Savo PilipovicPresident of AssociationAssociation of melanoma patients

Ümit DereliSecretary GeneralAssociation of Research-Based Pharmaceutical Companies (AIFD)

Puya Dehgani-MobarakiPresidentAssociazione “Naso Sano”

Roberto MaroldiFull Professor of Radiology - Head, Dept. of Diagnostic Imaging · University of BresciaAssociazione Italiana di Oncologia Cervico Cefalica

Giordano BerettaAIOM PresidentAssociazione Italiana di Oncologia Medica (AIOM)

dott.ssa Mariuccia FranzoniLogopedistaAssociazione Italiana Laringectomizzati OdV (AILAR)

Giovanna NierorestorerAssociazione Italiana Malati di Melanoma e tumori della pelle A.I.Ma.Me.

Filippo La TorreMEDICO CHIRURGOAssociazione Italiana Stomizzati AISTOM- ODV

Ivana TruccoloPresidentAssociazione Nazionale Guariti O Lungoviventi Oncologici - ANGOLO ODV

Marco RossiMD ProfessorAssociazione Oncologica Pisana Piero Trivella

Edoardo FioriniPresidentAssociazione PaLiNUro APS

Mr Dirk KoschePresident, Established MarketsAstellas Pharma Europe Ltd

David FredricksonExecutive Vice-President, Oncology Business UnitAstraZeneca

Luigi AntoniazziVP Europe, Clinical Nutrition Baxter

Dr. Svetlana Kobina, M.D. PhDHead of Global Oncology Medical AffairsBayer Pharmaceuticals

Siobhán FreeneyFounderBeing Dense (Beingdense.com)

Rachel GilesChairBelangenvereniging VHL (Dutch VHL Organisation)

Nicole smithPresident/FounderBella Lisa Pancreatic Cancer Foundation

Andrea Maddox-SmithCEOBladder Cancer Advocacy Network

Marco Timmers, PhD CEO Byondis

Anthony MooreDirectorBladder Cancer Australia Charity Foundation

Dr Stephanie DemkiwCofounder and ChairBladder Cancer Awareness Australia

Ferg DevinsSurvivor and Volunteer Chair of the BoardBladder Cancer Canada

Francesco Di MarcoHead of Therapeutic Area OncologyBoehringer Ingelheim

Patricia Calloud de FaudeurPresidentBorstkanker Vlaanderen

Pauwels Andre Vice PresidentBorstkankerMAN vzw

Dr Helen BulbeckDirector of policy and servicesBrainstrust - the brain cancer people.

Aline Lauda Freitas ChavesPresidentBrazilian Group of Head and Neck Cancer

Cristina Guerrero PaezDirectorBreast Cancer Organisation

Christos MarkopoulosProfessor of Surgery, President of UEMS-DBSBreast Surgery Division of UEMS

Shirley Bianca L. MüselerAdvisorBRESO Breast Surgeon Certification

Emmanuel ChantelotExecutive Director, Policy & Government Affairs EuropeMiryah MorrisDirector, Global Advocacy, Oncology Bristol Myers Squibb

Anastasios KanatasProfessor in Oral and Maxillofacial SurgeryBritish Association of Head and Neck Oncologists

Renate HaidingerPresidentBrustkrebs Deutschland e.V.

Plamen TaushanovChairmanBulgarian Association for Patients’ Defense

Niya ChariDirector of Health PolicyCanadian Breast Cancer Network

Jackie ManthornePresident & CEOCanadian Cancer Survivor Network

Jennifer NebeskyPresident and CEOCanadian Liver Foundation

Jaap VerweijManaging DirectorCancer Drug Development Forum (CDDF)

Nick PhillipsDirectorCancer Research & Genetics UK

Frederick MerlierPresidentCancer vessie france les zuros

Eva BackmanPresidentCancerföreningen PALEMA

Leonor BelezaPresidentChampalimaud Foundation

Mark WeberCo-FounderCharlotte Pancreatic Cancer Alliance

István BaloghPresidentChildren Cancer Foundation

Nick YorkChairCLL Advocates Network (CLLAN)

Dr. Brian KoffmanExecutive Vice President & Chief Medical OfficerCLL Society

Eva VillalbaExecutive DirectorCoalition Priorité Cancer au Québec

Barry SteinPresident/CEOColorectal Cancer Canada

Alina ComanescuFounderCommunity Health Association Romania

Teresa RegueiroPresident and founderComunidad Española de Pacientes con Mieloma Múltiple

Drazen VincekHead of the organisationCroatian Leukemia and Lymphoma Society

Ken KellerPresidentDaiichi Sankyo Inc.

Carmen UscatuPresidentDăruiește Viață / Give Life

Karin KastratiCEODas Lebenshaus e.V.

Bertrand DucreyChief Executive OfficerDebiopharm International SA

Johannes BrunsSecretary GeneralDKG

Jacqueline DalyDirector of ServicesEast Galway & Midlands Cancer Support

Ken MastrisPresidentECPC

Edit Báródisecretary of the associationEgészség Hídja Összefogás az Egészségért a Mellrák Ellen Egyesület

Fabio AndreolaChief Executive OfficerElesta S.p.A.

Dr. Monteic A. SizerNational RepresentativeElvin Howard, Sr. Pancreatic Cancer Advocacy Foundation

Stuart P. Feldman, MDPresidentEmpire State Hematology and Oncology Society

Karla Ruiz de CastillaPresidentESPERANTRA

Rosanna D’AntonaPresidentEuropa Donna Italia

Gertrude AbelaPresidentEuropa Donna Malta

André DeschampsChairmanEuropa Uomo

Bernard GrimmHealthcare DirectorEuropaBio

Iga RawickaVice PresidentEuropaColon Poland

Jana Pifflová ŠpankováPresidentEUROPACOLON Slovakia

Sarah CollenEU Policy ManagerEuropean Association of Urology

Mike MorrisseyChief ExecutiveEuropean Cancer Organisation

Nathalie MollDirector GeneralEuropean Federation of Pharmaceutical Industries and Associations EFPIA

Professor Wojciech GolusińskiPresidentEuropean Head and Neck Society

Prof. John GribbenPresidentEuropean Hematology Association

Emma WoodfordDirectorEuropean Oncology Nursing Society

Dr Denis LacombeDirector GeneralEuropean Organisation for Research and Treatment of Cancer (EORTC)

Alex EniuDeputy Scientific DirectorEuropean School of Oncology

Isabel T. Rubio RodriguezMDEuropean Society of Breast Cancer Specialists

Isabel T. RubioBreast Surgical Oncologist, ESSO President-electEuropean Society of Surgical Oncology (ESSO)

Lily ReisserETHA SecretariatEuropean Thrombosis and Haemostasis Alliance (ETHA)

Yann Le CamChief Executive OfficerEURORDIS-Rare Diseases Europe

Tamara MilagrePresidentEVITA - Hereditary Cancer

Tine van der SchaafsecretaryEWMnetwork

Cezar IrimiaPresidentFederation of Cancer Patients Associations

Maira CaleffiVolunteer PresidentFEMAMA

Lydia MakaroffCEOFight Bladder Cancer

Dr Lama ShararaDirector GeneralFondation A.R.CA.D, Aide et Recherche en CAncérologie Digestive

Anna FalangaScientific DirectorFondazione ARTET Onlus

Pietro PrestiManaging DirectorFondazione Edo ed Elvo Tempia

Federica ValsecchiResearch Project ManagerFondazione Nadia Valsecchi

Marko MilovanovićPresident of the associationForum pacijenata Srbije

Mariana AuadVicepresidentaFundación Argentina de Mieloma

Edith GrynszpancholcPresidentFundación Natalí Dafne Flexer

Łukasz RokickiCarita PresidentFundacja Carita im. Wiesławy Adamiec

Artur JurczyszynMD PhDFundacja Centrum Leczenia Szpiczaka

Szymon ChrostowskiPresidentFundacja Wygrajmy Zdrowie

Catalina NegaraDirectorFundatia Renasterea

Gail AttaraChief Executive OfficerGastrointestinal Society

Silvia P NeciosupDIRECTOR OF MEDICINE, MEDICAL ONCOLOGISTGECOPERU

Magdalena MagieraCo-Founder and ChairmanGlioma-Center Foundation

Andrew SpiegelExecutive DirectorGlobal Colon Cancer Association

Mrs Hilary D J MaxwellCEO & Chair of GO GirlsGO Girls

Papachrisanthaki LabriniChairwomanGroup of Volunteers Against Cancer “AgaliaZO” of Western Greece

Begoña BarraganPresidentGrupo Español de Pacientes con Cáncer (GEPAC)

Paul McCarthy and Ridwaan JhetamPaul McCarthy, Oncology Regional Lead, Europe, and Ridwaan Jhetam, Regional Medical Director, EuropeGSK

Amanda HollingerExecutive DirectorHead & Neck Cancer Alliance

David StanburyTRUSTEEHead & Neck Cancer UK (HANCUK)

Paraskevi MihalopoulouPresident BODHELLENIC ASSOCIATION OF WOMEN WITH BREAST CANCER ALMA ZOIS

Georgios KapetanakisSecretary of BoardHELLENIC CANCER FEDERATION

Amanda PsyrriPresident, Chief of Medical Oncology and Associate Professor of Medicine, National Kapodistrian Uni of Athens Med schoolHellenic Society of Head and Neck Cancer - HeSHNCA

Silvia SebastianiGroup Head of Medical AffairsHelsinn Healthcare SA

Anne Krolikowski, CAEExecutive DirectorHematology/Oncology Pharmacy Association (HOPA)

Hripsime MartirosyanFounding CEOHENARAN charitable foundation

Rudy BessFounding DirectorHope Light Foundation

Sven van EgmondCo-founderHUKAs (Dutch Skin Cancer Foundation)

Kara AlikpalaFounding presidentICANSERVE Foundation

Flaminia FegarottiInternational RelationsIncontraDonna Onlus

Mark A. Henderson, MDPresidentIndiana Oncology Society

José Fernando do prado mouraMedical oncologyInstituto de medicina integral professor Fernando figueira

Luciana HoltzFounder and PresidentInstituto Oncoguia

Kathy OliverChair and Co-DirectorInternational Brain Tumour Alliance (IBTA)

Prof Julia DowningChief ExecutiveInternational Children’s Palliative Care Network (ICPCN)

Anna FalangaChairmanInternational Conference on Thrombosis and Hemostasis Issues in Cancer

Suzette KoxSecretary GeneralInternational Generic and Biosimilar Medicines Association (IGBA)

Marta SzulcExecutive DirectorInternational Kidney Cancer Coalition

Serdar ErdoganDirector of GMANInternational Myeloma Foundation

Matthew Obinna Nwaneri, MD, MBAPresidentIowa Oncology Society

Jan SwiderskiDirector Global Public Affairs and Patient AdvocacyIpsen Pharma SAS

Erich SteyaertAdvocacy OfficerIrish Cancer Society

Yvonne O’MearaCo Founder of the ISGOPPIIrish Society of Gynaecological Oncology Public & Patient Involvement Group

Anouk De VroeyHead Government Affairs & Policy, Pharmaceuticals & Vaccines, Janssen EMEAJanssen

Dr. Sami KhatibPresident of the SocietyJordan Oncology Society

Juliet IbrahimFounderJuliet Ibrahim Foundation

Christopher Dakhil, MD, FACPPresidentKansas Society of Clinical Oncology

Asli OrtakmacPresident of Kanser SavaşçılarıKanser Savaşçıları Association

Menia KoukougianniFOUNDER-MANAGERKARKINAKI Awareness for Childhood and adolescent cancer

Zoe GrammatoglouPresident of the BoardKEFI Association of Cancer Patients

Dr Barbara J KennerFounderKenner Family Research Fund

Rose WoodwardFounder and CEOKidney Cancer Support Network

Nick TurkentineChief Operating OfficerKidney Cancer UK

Bryan LewisPresidentKidneyCAN

Martin H. Bluth, MD, PhDGlobal Medical DirectorKids Kicking Cancer

Mai NielsenChairmanKræftforeningen Tidslerne

Aline Lauda Freitas ChavesChairLatin American Cooperative Oncology Group - Head and Neck

Sandra HuberPublisherLeben mit Krebs

Erika Patakicoord.Lélek-zet Egyesület “Breath” Association

Xavier BertinVice President Global Business Unit Thrombosis LEO Pharma A/S

Cindy Price GavinFounding Executive DirectorLet’s Win! Pancreatic Cancer Foundation

Norman ScherzerExecutive DirectorLife Raft Group

Willem VerstraetePresidentLiga voor Gelaryngectomeerden

Neringa ČiakienėDirectorLithuanian Cancer Patient Coalition (POLA)

Sandra BalboniPresidentLoto Onlus

Regine Daniel IhlenTreasurer Lung Cancer Europe

Andrea FerrisPresident and CEOLUNGevity Foundation

Linda TantawiCEOLustgarten Foundation

Elke StienissenPresidentLymfklierkanker Vereniging Vlaanderen vzw

Maja KocicPresidentLymphoma Patient Association LIPA

Anna FalangaEditor in chiefMagazine of International Conference on Thrombosis and Hemostasis Issues in Cancer

Balázs RozványiPresidentMagyar Rákellenes Liga - Hungarian League Against Cancer

Professor René LeemansMake Sense Campaign ChairMake Sense Campaign

Cheri Lynn AmbrosePresident / Co-founderPeggy Miller DirectorMale Breast Cancer Coalition

Icó TóthPresidentMallow Flower Foundation/Mályvavirág Alapítvány

Anthony RossiPresidentMalta Colorectal Cancer Awareness Group

Gertrude A. ButtigiegChairpersonMalta Health Network

Eva Schumacher-WulfEditor-in-chiefMamma Mia! Breast Cancer Magazine

Rossana BerardiProf., MDMarcangola

Liz YeatesCEOMarie Keating Foundation

Léa CouletExecutive DirectorMedical Nutrition International Industry (MNI)

Kate O’Regan Communications & Stakeholder Relations Senior ManagerMedicines for Europe

Anne PapinVice-President, Government Affairs & Policy EUMerck

Mary Hesdorffer, NPExecutive DirectorMesothelioma Applied Research Foundation

William H. ShrievesPresidentMid-Shore Pancreatic Cancer Foundation, Inc.

Victor Julio Quesada VarelaPhysicianMieloma.com

Vasile IanoviciVice-presidentMIELOPRO

Mira ArmourCo-founder and Executive DirectorMijelomCRO Croatian Myeloma Patients Network

Samith Kochuparambil, MDPresidentMinnesota Society of Clinical Oncology

Joseph J. Muscato, MD, FACPPresidentMissouri Oncology Society

Jack Hensold, MDPresidentMontana State Oncology Society

Philip LewisPresidentMouth Cancer Foundation

Deepak KhannaPresident MSD Europe and Canada Human HealthMSD

Joyline ChepkorirResearch Assistant (Johns Hopkins University)Mwangaza Cancer Initiative

Martine Elias MSc Executive DirectorMyeloma Canada - Myélome Canada

Viorica CursaruPresidentMyeloma Euronet Romania

Natasha Kammi PresidentMykos Cancer Association

Mariella AgiusExecutive SecretaryNational Alliance for Rare Diseases Support - Malta

George SultanaCouncil MemberNational Association of Pensioners, Malta

Robert W. Carlson, MDChief Executive OfficerNational Comprehensive Cancer Network

Scout NFNExecutive DirectorNational LGBT Cancer Network

David Bakelman CEONational Pancreas Foundation

Arja BroenlandDirectorNederlandse Federatie van Kankerpatientenorganisaties NFK

conrad van driesschedirectorNEOVIDA

Dan Curtis, MDPresidentNevada Oncology Society

Barbara L. McAneny, MDPresidentNew Mexico Society of Clinical Oncology

Jana Pifflova ŠpankovaPresidentNIE RAKOVINE - No To CANCER, SLOVAKIA

Ivan McMinnChairNIPANC

Jimmy Ruiz, MDPresidentNorth Carolina Oncology Association

Federica CastiglioneEx. Director Patient Engagement Region EuropeKees RoksHead Region Europe OncologyNovartis Pharma AG

Ana Tecic VugerMD PhD Medical Oncologist, Breast Cancer OncologyOncoWay, Croatia

Petra AdamkovaDirectorONKO Unie

Ayşe BoraMember of the BoardOnko-Sev

Sharon O’TooleBoard MemberOvacare

Elisabeth BaughCEOOvarian Cancer Canada

Audrey Kurlan-MarcyCofounder/ChairPancreatic Cancer Alliance

Louis BaldachinoChairman & FounderPancreatic Cancer Awareness Gibraltar

Michelle CapobiancoChief Executive OfficerPancreatic Cancer Canada

Alfredo Carrato MD, PhDPancreatic Cancer Europe

Despina ZapounidouPresidentPASMMO- HELLENIC BONE MARROW TRANSPLANTED PATIENTS ASSOCIATION

Masum HossainRegional President, Oncology, International Developed MarketsPfizer

Yesim TuncerInternational Project DirectorPi Women’s Cancer Charity

Hellen KastanaraVice PresidentPIERIA CANCER PATIENTS - PCP

Antonio Mano AzulPresidentPortuguese Academy of Oral Medicine

Joyce Wilcox GraffPresidentPowerful Patient Inc.

Steve ColdicottDirectorprecision medicine forum

Gorica Djokicsecretary of associationProgovori

Runcie C. W. ChidebeExecutive DirectorProject PINK BLUE

Dino VerrelliFounder & CEO Project Purple

Susan OliverChair & TrusteePseudomyxoma Survivor

Svetlana SamardzicPresidentPunim plucima

Jida El HajjarVPQuebec Breast cancer foundation

Cathy HirschPresidentReach to Recovery International

Adrian PogacianChairmanReThinking Europe

Gian Luca BaiocchiProfessorRicerChiAmo Onlus

Sanja Njegic and Michael OberreiterGlobal Head of Patient Partnership and Global Head of Access ManagementRoche

Alan Miller, MD, PhD (as of 01/01/2020)PresidentRocky Mountain Oncology Society

Dan ZaharescuExecutive DirectorRomanian Association of International Medicines Manufacturers ARPIM

Irina Borovova/ Anna SolovyevaPresident / Director of international communicationsRussian Association of Oncological Patients “ZDRAVSTVUY!”

Prof. Dr. med. Hans-Joachim SchmollChief Executive OfficerSachsen-Anhaltische Krebsgesellschaft e.V.

Gouri Shankar BhattacharyyaMedical OncologistSalt Lake City Medical Center

Anna Maria MancusoPresident and Legal RepresentativeSalute Donna Onlus

Adela Ayensa AlonsoGeneral DirectorSalvati A.C.

Izlen Toker, Rebecca GunternHead, Patient Communications and Advocacy ; Head, Region EuropeSandoz

Robin CohenCEOSandy Rollman Ovarian Cancer Foundation

Alexander ZehnderHead Global OncologySanofi

Savo PilipovicPresident of AssociationSerbian Association of Patients

Mary DeanExecutive DirectorSociety for Immunotherapy of Cancer (SITC)

Gene Saylors, MDPresidentSouth Carolina Oncology Society

Monika PuchowskaMember of the BoardSTOWARZYSZENIE RÓŻOWY MOTYL

Ljiljana VukotaGeneral secretarySVE za NJU (EVERYTHING for HER)

Peter LakwijkChairSvenska Sköldkörtelföreningen

Ken MastrisChairmanTACKLE PROSTATE CANCER

Stephen M. Schleicher, MD, MBAPresidentTennessee Oncology Practice Society

Erick TyssierHead of Government Affairs EuropeTeva Pharmaceuticals Europe

Debra Patt, MD, PhD, MBAPresidentTexas Society of Clinical Oncology

Mahesh Seetharam, MD, FACPPresidentThe Arizona Society of Clinical Oncology

Nicolas PhilippouCEOThe Cyprus Association of Cancer Patients and Friends (PASYKAF)

Maria ButiEU Policy Councillorthe European Association for the Study of the Liver

Nadine PrévostDirector, Community ServicesThe Leukemia & Lymphoma Society of Canada

Pat Garcia-GonzalezCEOThe Max Foundation

James Arthur CaldwellDirectorThe Northern Ireland Rare Disease Partnership

A. Prof. Dr. Mahmoud Salama, MD, PhDDirector of the Oncofertility ConsortiumThe Oncofertility Consortium

Ivana PlechatáCoordinatorThe voice of cancer patients

Peter LakwijkTreasurerThyroid Federation International

MEP Frances FitzgeraldChair of Transforming Breast Cancer Together (TBCT)Transforming Breast Cancer Together

Gertrude NakiguddeCEOUganda Women’s Cancer Support Organisation

Sonali JohnsonHead, Knowledge, Advocacy and PolicyUnion for International Cancer Control (UICC)

Vandana GuptaFounder & TrusteeV Care Foundation

Osman toktasAsst. Prof. Dr.Van association to fight breast cancer

María Eugenia Aponte-RuedaPresidentVenezuelan Breast Cancer Research and Education Foundation

Dr. Ingrid ReschChairman of the boardVerein zur Foerderung der Senologie/Brustkrebs. e. V.

Han SteutelPresidentvfa

Chandra ClarkExecutive DirectorVHL Alliance

Shaantanu DondeHead of Portfolio Management - Medical Affairs ( DevelopedMarkets & JANZ)Viatris

Richard Ingram, MDPresidentVirginia Association of Hematologist & Oncologist

Beate BartèsPresidentVivre sans Thyroïde

PresidentWest Virginia Oncology Society

Dr. Vladimir LazarChief Scientific and Operating OfficerWIN Consortium

Benjamin M. Parsons, DOPresidentWisconsin Association of Hematology & Oncology

Silvia NovelloPresidentWomen Against Lung Cancer in Europe

Assia KonsoulovaChairWomen for oncology - Bulgaria

Prof.ssa Rossana BerardiPresidentWomen for oncology - Italy

Barbara WilsonFounder & DirectorWorking With Cancer

Alex FilicevasExecutive DirectorWorld Bladder Cancer Patient Coalition

Mary Lynne Van PoelgeestPresidentWorld Federation for Incontinence and Pelvic Problems- WFIPP - WFIP

Clara MacKayCEOWorld Ovarian Cancer Coalition

Dr Stephen ConnorExecutive DirectorWorldwide Hospice Palliative Care Alliance

Olakekan Ajayi, PharmD, MBAPresidentWyoming State Oncology Society

Salih YuceChairmanYoung Accumulation Association

Ekaterini KounalakiChair of BoDΕΥ ΖΩ Living Well with Cancer