ANNUALRE

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2013

The National MS Society works to address the challenges of each person affected by multiple sclerosis. To fulfill this mission, the Society funds cutting-edge research, drives change through advocacy, facilitates professional education, collaborates with MS organizations around the world and provides programs and services designed to help people living with MS and their families move forward with their lives. The Society is dedicated to achieving a world free of MS.

The New York City – Southern New York Chapter of the National MS Society is committed to serving the 12,000 people living with MS in the five boroughs, Westchester, Putnam, Rockland, Orange and Sullivan counties. We help empower people affected with MS and their families by raising funds locally to provide hundreds of comprehensive support services

and programs and support the Society’s critical research initiatives.

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FACTSABOUT

MS

Affects 2.3 million people worldwide

A chronic, often disabling disease that attacks the central nervous system (the brain, optic nerves and spinal cord)

Symptoms range from numbness and tingling to loss of vision and paralysis

Typically diagnosed in prime-of-life

years, ages 20 to 50

Most common neurological disease leading to disability in young adults

Women are diagnosed two to three times more than men

®

JOIN THEMOVEMENT

Dear Friends of the Chapter,

This year, an untold number of steps were taken to connect hundreds of people to the MS movement and move us closer to a world free of MS. New relationships were forged as so many individuals were inspired to join our movement. Life changing differences were made for many of the 12,000 people living with MS that we serve and we were proud to work in partnership with our donors, volunteers, healthcare professionals, corporations, fundraising event participants, legislators and community organizations, to name a few. Every person’s efforts and contributions helped us to deliver on our shared promise to do something about MS now.

To advance our mission, we connected people with resources and each other, whether it was through our annual Walk MS, a wellness program, a professional education program or a visit to a legislator’s office and we remained steadfast with our commitment to find a cure for the disease by contributing to the Society’s national NOW (“No Opportunity Wasted”) research campaign.

Tireless momentum is needed across all fronts, along with great resolve to improve lives and create a world free of MS. We are proud to present our Annual Report for Fiscal Year 2013 which reflects the positive impact we have made in the community and reflects the fact that the New York City – Southern New York Chapter of the National MS Society is the best investment to find solutions for MS.

Sincerely,

Peter Goettler, Chairman, Board of TrusteesNew York City – Southern New York Chapter of the National MS Society

Robin Einbinder, PresidentNew York City – Southern New York Chapter of the National MS Society

PERSISTENTMOMENTUM////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

HIGHLIGHTS////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

More than

$900,000was secured in

donated advertising

to promote

fundraising events.

NineNew York City –

Southern New York-based

individual research projects

and research fellowships were

funded by the Society.

The chapter raised $11.2million,

of which nearly $2.3 million was

allocated to the National MS Society’s

continuing research initiatives and

national activities and $6.3 million was

dedicated to programs and services for

for people living with MS, their

families and friends.

The chapter continued

to maintain expense control,

with fundraising costs

of 23% and

administrative costs of 2%.

2013More than

$800,000was raised for

the Society’s NOW

research campaign.

HIGHLIGHTS////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

The annual

Brain Games dinner

raised more than

$400,000.Nearly 5,000

Bike MS NYC

participants raised

nearly $3 million.

More than

$150,000 was raised by the

Books for a Better Life

Awards.

The

Race Against MS

raised nearly

$500,000.

More than

10,000 Walk MS

participants

raised

$2.7 million.

More than

$140,000was raised by the

Women on the Move

Luncheon.

1,200

Climb to the Top

participants raised

$900,000.

2013

HIGHLIGHTS////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

200people

benefited from

employment

resources.

Nearly

6,000people participated

in 218 programs.

Nearly 1,900people participated in

support groups, and

recreation, wellness,

and social activities.

More than 800healthcare professionals

were successfully engaged in

training programs designed

to educate and promote

working with individuals

living with MS.

Fourhigh school seniors,

one living with MS,

and three with parents

living with MS, received

college scholarships.

2013

The chapter continued

to advocate for funding for

MS research through the

National Institutes of Health

and the Congressionally

Directed Medical Research

Program.

During MS Awareness Week,

260 clients participated

in six programs, 28 medical

students were engaged and

thousands were reached as

part of public awareness

outreach.

The needs of more

than 400 people were

met via direct financial

assistance for homecare,

durable medical equipment,

rehabilitation, counseling

and more.

STATEMENT OF ACTIVITIES FOR THE YEAR ENDING SEPTEMBER 30, 2013 PUBLIC SUPPORT AND REVENUESpecial events 9,608,527 Less: Direct benefit to donor costs (683,585)Contributions revenue 2,002,385 Legacies and bequests 230,554 Interest and dividends 116,618 Net realized and unrealized gains on investments (26,555)Service Program fees 1,980Total revenue 11,244,924 EXPENSES Program Services: Research 2,321,179Public support for National activities 1,823,783 Client programs 2,141,601 Community programs 1,023,079Professional education and training 140,971 Public education 1,138,824Total program services 8,589,437 Support Services: Fundraising 2,652,116Management and general 224,645 Total support services 2,876,761 Total expenses 11,466,198 Change in net assets (221,274) Net assets, beginning of year 2,300,962Net assets, end of year 2,079,688

STATEMENT OF FINANCIAL POSITION FOR THE YEAR ENDING SEPTEMBER 30, 2014 ASSETSCurrent Assets Cash and cash equivalents 1,528,992Contributions receivables 78,297 Contributions receivables – due from National 40,190Prepaid expenses and other assets 452,330Total Current Assets 2,099,809 Non-Current Assets Investments 2,642,142Property and equipment, at cost, net of accumulated depreciation and amortization 192,493 Due from National Multiple Sclerosis Society 138,371Total Non-Current Assets 2,973,006Total Assets 5,072,815 LIABILITIES AND NET ASSETS LiabilitiesAccounts payable and accrued expenses 541,056 Deferred revenue 2,143,281Deferred rent 319,727Due to National Multiple Sclerosis Society 74,428 Due to Chapters 14,635Total Liabilities 3,093,127 Net AssetsUnrestricted Undesignated 1,013,199Board-designated endowment 208,215 1,221,414Temporarily restricted 758,274 Total net assets 1,979,688 Total liabilities and net assets 5,072,815

FINANCIAL STATEMENT////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

We provide a range of programs and services to the more than 12,000 people impacted by MS, with the goal of empowering them so they can live better lives.EDUCATION• Programs for the newly diagnosed • Educational pamphlets and brochures• Educational seminars (in-person, teleconference and online) • Educational programs in Spanish• Information Resource Center (IRC) that responds to questions by phone or e-mail• E-newsletters and magazines: Momentum, MSConnection and E-vent News • Timely updates on research and treatment information

EMPLOYMENT ASSISTANCE AND INFORMATION• Counseling on employment issues • Workshops and support groups• Career testing and referrals to job training programs

INDEPENDENT LIVING• Annual Legal Day • Computer Outreach Program • Entitlement, housing, insurance and legal information, assistance and referrals• Information and referrals to social services, independent living resources and long-term care services

FAMILY AND SOCIAL PROGRAMS• Programs for children, parents, couples and caregivers • Adult day programs • Self-help groups • Online creative writing • Programs for children and teens living with MS • Access the Apple: Community Outings • Networking events for people living with MS in their 20s and 30s• Support groups for children, spouses, partners, parents and caregivers

COUNSELING• In-person and teleconference support groups • Peer support• Referrals to mental health providers

MOVING LIVES FORWARD: PROGRAMS & SERVICES////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

WELLNESS• Adaptive exercise and blended wellness activities, including yoga, Pilates, aquatics and sports such as bowling, horseback riding, hand cycling, golf and tennis • Information and referrals to healthcare professionals and wellness resources

PROFESSIONAL EDUCATION• Janet Pearce MS Nurse Education Program • College and graduate school internships • In-service trainings • Professional Resource Center • Grand Rounds

ACTIVISM• Public advocacy • Government Relations committee • Action Alert committee • New York MS Coalition Action Network

DIRECT FINANCIAL ASSISTANCE• Care management • Counseling• Equipment loan and purchases • Home and auto modifications• Home and respite care • Medical transportation• Occupational, physical and speech therapy • Home delivered meals• Air conditioners • College scholarships • Critical short-term assistance

LOS PROGRAMAS Y SERVICIOS EN ESPAÑOL INCLUYEN:• Servicios de asistencia • Programas de consejería y grupos de apoyo• Programas educacionales • Asistencia e información sobre empleos• Programas de recreación y mantenimiento físico

Centro de información y recursos incluyendo boletines informativos que ofrecen la ultima información en temas variados para las personas que viven con EM, sus amigos y familiars.

MOVING LIVES FORWARD: PROGRAMS & SERVICES////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

Charles Abrams M.D.State University of New York - Downstate Medical Center

Linnea Asp, Ph.D.Mount Sinai School of Medicine

Laura Balcer, M.D.New York University

Yoko Bekku, Ph.D.New York University

Patrizia Casaccia Ph.D.Mount Sinai School of Medicine

Jonathan Cook, Ph.D.Columbia University

Rebecca Farber, M.D.Mount Sinai School of Medicine

Marie Filbin, Ph.D.Hunter College

Susan Gauthier, D.O.Cornell University Medical College

Yulin Ge, M.D.New York University Medical Center

James Goldman M.D., Ph.D.Columbia University

Yael Goverover, Ph.D.New York University

Matilde Inglese, M.D.Mount Sinai School of Medicine

Gareth John, D.V.M., Ph.D.Mount Sinai School of Medicine

Ilana Katz Sand, M.D.Mount Sinai School of Medicine

Ilya Kister M.D.New York University School of Medicine

Sylvia Klineova, M.D.Mount Sinai School of Medicine

Jia Liu, Ph.D.Mount Sinai School of Medicine

Fred Lublin, M.D.Mount Sinai School of Medicine

Jack Rosenbluth, M.D.New York University Medical Center

James Salzer, M.D., Ph.D.New York University

Bridget Shafit-Zagardo, Ph.D.Albert Einstein College of Medicine

Diana Shineman, Ph.D.Alzheimer’s Drug Discovery Foundation

Leslie Summers deLuca, Ph.D.New York University

Nataliya Ternopolska, M.D.Cornell University Medical College

Wendy Vargas, M.D.Cornell University Medical College

James Weisfeld-Adams, M.D.Mount Sinai School of Medicine

LOCALLY-BASED RESEARCHERS ////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

The chapter supports comprehensive care for people living with MS and their families through its affiliation with eight Centers for Comprehensive MS Care.

Bronx-Lebanon Hospital - Bronx Care MS ClinicBronx, NY

Linda Morgante MS Care Center at Maimonides Medical CenterBrooklyn, NY

Corrine Goldsmith Dickinson Center for Multiple Sclerosis at Mount Sinai Medical CenterNew York, NY

Judith Jaffe Multiple Sclerosis Center at New York Presbyterian Hospital Weill Cornell Medical CollegeNew York, NY

NYU Langone Medical Center - MS Comprehensive Care CenterNew York, NY

New York Hospital – Medical Center of Queens MS Care CenterQueens, NY

Alpha Neurology Multiple Sclerosis Center of Staten Island/Staten Island University Hospital MS ClinicStaten Island, NY

White Plains Medical Center - MS Center at Rye BrookWhite Plains, NY

CENTERS FOR COMPREHENSIVE MS CARE////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

Mike NortonChairman, Board of Trustees

David ShedlarzChairman Emeritus

Peter GoettlerVice Chairman

Jeff SilvermanSecretary

Malcolm P. Wattman, Esq.Treasurer and Chairman, Finance Committee

Richard G. KabobjianChairman, Audit Committee

Dr. Fred D. LublinChairman, Clinical Advisory Committee

Adam PopperChairman, Budget and Compensation Committees

Geoffrey RadbillChairman, Development Committee and Regional Volunteer Leadership Council Liaison

David VerklinChairman, Marketing and Corporate Relations Committee

Nicholas D’Agostino IIIMember, Board of Trustees

James K. DonaghyMember, Board of Trustees

Elizabeth GiardinaMember, Board of Trustees

Dr. Aaron E. MillerMember, Board of Trustees

Sean MurdochMember, Board of Trustees

Lynn M. RuaneMember, Board of Trustees

Leonard Van OrdenMember, Board of Trustees

Peter VermetteMember, Board of Trustees

Meredith VieiraMember, Board of Trustees

Seth WaughMember, Board of Trustees

Roy E. WeathersMember, Board of Trustees

Frank J. BorelliLeadership Council Member

Wayne L. Lopkin, Esq.Leadership Council Member

Susan P. Thomases, Esq.Leadership Council Member

Dorothy CooperLifetime Trustee

Oscar DystelLifetime Trustee

Lester L. LevyLifetime Trustee

James O. Welch, Jr.Lifetime Trustee

BOARD OF TRUSTEES////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////

It is the generosity of donors, event participants, volunteers, corporations and foundations that enables the chapter to support critical MS research and provide comprehensive services and support for people living with MS, their families and friends. Join the movement and help create a world free of MS.

• Register for Bike MS NYC, Climb to the Top or Walk MS NYC - SNY

• Volunteer locally or nationally

• Be a voice within the Society’s online community at msconnection.org

• Connect with the chapter on Facebook or Twitter

• Join the New York MS Coalition Action Network

• Donate generously and inspire others to join you

Visit www.MSnyc.org or call 212-463-7787, option 1 for more information.

THANK YOU FOR JOINING THE MOVEMENT////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////