Prof. Ninoslav Mimica, MD, PhDPresident

Alzheimer CroatiaVlaška 24, HR-10000 Zagreb, Croatia

E-mail: alzheimer@xnet.hr

ALZHEIMER CROATIAOUR FIRST 16 YEARS

9th Panhellenic Interdisciplinary Conference on Alzheimer’s Disease & Related Disorders &1st Mediterranean on Neurodegenerative Diseases

Thessaloniki, Greece14 – 17 May, 2015

Content of presentation

ALZHEIMER CROATIA (AC) About us Our activities Future plans

2

ALZHEIMER CROATIA (AC)

NGO, founded in 1999 in Zagreb Hrvatska udruga za Alzheimerovu bolest

(Alzheimer Hrvatska) Aim: Help people with dementia (PWD) Help families and carers Fight stigma Bring education to target and general population

Almost whole work is done by volunteers (Secretary 4 h/day)

3

ALZHEIMER CROATIA – full member ofAlzheimer’s Disease International & Alzheimer Europe

ADI - 84 country members

AC – 2005 – provisional member2006 – full member

AC – 2009 – provisional member2012 – full member

AE – 31 country members

4

The estimated number of PWD and carers in Croatia

Republic of Croatia4.29 million people

>85 000 people with dementia in Croatia+

215 000 informal carers

Total about 300 000 people involved(PWD + informal carers)

Number of persons with dementia in the World

Number of persons with dementia in Croatia

In Croatia every 3 hours new case of dementia

Alzheimer Croatia officein Vlaška 24, Zagreb working since 2009

9

ALZHEIMER CROATIAinformation / advise / contact

Stationary phone line: +385 1 5601 500

Mobile line: SOS (help-line 24/7/365)

+385 91 569 16 60At disposition to members andeverybody interested

E-mail address: alzheimer@xnet.hr

Web site: www.alzheimer.hr

Alzheimer Croatiaon internet

Portal: alzheimer.hr Blog: blog.alzheimer.hr

ALZHEIMER CROATIAREGULAR ACTIVITIES

Counselling: For familly members and all other interested In our office (Vlaška 24, Zagreb) 2 x weekly

Self-help group: for careers

In our office (Vlaška 24, Zagreb) 1-2 x weekly

12

ALZHEIMER CROATIAEducation

4 booklets published Large number of copies Distributed in public many times Distributed in almost every Old peoples Home

in Croatia Sent to all GP’s Sent to all members of AC and their families

Printed popular educative materials in Croatian

Journal “Medix”Special topic of this number:

Alzheimer’s disease and other dementias

Number 101/2012 84 pages 14 articles 29 authors

15

Promote healthy life style to reduce the risk of dementia

ALZHEIMER CROATIAMedia

Board members of AC have been presentin media for numerous occasions: TV Radio NewspapersMagazines Round tables Etc.

17

ALZHEIMER CROATIARaising awareness on AD - public events

World Alzheimer’s Day (WAD)Zagreb, Cvjetni plac, September 21, 2006 & 2007

“Work locally think globally”

ALZHEIMER CROATIAWorld Alzheimer Day (WAD)

September 21, 2008, Jelačić plac, Zagreb

19

ALZHEIMER CROATIAWAD 2009 - Zagreb

Signing the ADI Global Dementia Charter and Petition on AD

20

ALZHEIMER CROATIAWAD – September 21, 2011, Zagreb

21

ALZHEIMER CROATIAWAD 2012

Guillermo Nagore in ZagrebLa Memoria es el Camino

Walking for AD 7500 km fromSantiago de Campostela to Jerusalem

Pupils from Nursing Schoolworking as volunteers on AC stand

22

ALZHEIMER CROATIAWAD 2013 & First Alzheimer’s Café

23

September – World Alzheimer Month

Since 2014

ALZHEIMER’S MEETINGS IN CROATIAprofessional-research meetings

Three Symposiums onPsychogeriatrics (Rab)Seven Congresses on AD Zagreb 2004 Zagreb 2005 Brijuni 2006 Island St. Andrew 2008 Zadar 2010 Primošten 2012 Brela 2014

Numerous public lectures

3rd Croatian Congress on Alzheimer’s Diseasewith international participation

Congress participantsholistic approach

Psychiatrists Neurologist Neuroscientists Psychologists Social workers Nurses Occupation therapists Journalists

AC members (PWD,family members, carers)

Pharmacists Rehabilitation proffesionals Lawyers GP’s/Family doctors Students & others

CROATIAN ALGORITHM FORPSYCHOPHARMACOLOGICALTREATMENT OFALZHEIMER’S DISEASE

3rd Croatian Congress on Alzheimer’s DiseaseBrijuni, 7-10 Sept 2006

PROF. VERA FOLNEGOVIĆ-ŠMALC, MD, PhDNINOSLAV MIMICA, MD, PhDGORDAN MAKARIĆ, MDANTE SILIĆ, MDROBERT VARDA, MD, MSc

ALZHEIMER CROATIALetter to Croatian Health Insurance Agency asking thatantidementia drugs should be reimbursed according to

Croatian pharmacological algorithm for AD

30

ANTIDEMENTIA DRUGS ARE STANDARD THERAPY FOR ALZHEIMERDISEASE AND SHOULD BE AVAILABLE TO ALL PWD

donepezil

rivastigmin

galantamin

1992. g.

2000. g.

1996. g.

memantin

2003. y.

2000. y.

1996. y.

2001. y.

31Antidementia drugs are only

partially reimbursed

EXPERIMENTAL (POTENTIALY INOVATIVE)TRETAMENT OF ALZHEIMER’S DISEASE

International multicentre clinical studies ofantidementia drugs should be performedin Croatia:

TauRx (LMTX)(3 studies ongoing)

32

ALZHEIMER CROATIAShowcase at ADI Conference 2006

ADI ConferencePerth 2015

34

ALZHEIMER CROATIAPosters on various Conferences

ALZHEIMER CROATIAArt against stigma of AD

Exhibitions of sculptures, paintings &photos on AD

Exibitions of drawings of PWD Humanitarian public happenings & eventsMovie presentationsMusic concerts Fashion shows

36

ALZHEIMER CROATIAArt programme – Brijuni 2006

Exhibition of sculpture constructs due to 100thanniversary of disease recognition under title: “In Honour of Alois Alzheimer”

(doc. dr. sc. Eduard Pavlović)

ALZHEIMER CROATIAExibitions of paintings and drawings

Prim. dr. sc. Ljubomir Radovančević2008

Zvonko Ozmec, PWD2010

ALZHEIMER CROATIAExibition of photos

201239

International Day of Older PersonsOctober 1st, 2014

ALZHEIMER CROATIAOpen-air concert & retro fashion show

Zagreb, 2007 & 2008

41

President of Croatia Ivo Josipovićvisiting stand of Alzheimer Croatia

Zagreb 2012

PROJECTAlzheimer Café in Croatia

43

Zagreb

First Memory Walk in Croatia, Sept. 21, 2014Zagreb, World Alzheimer’s Day

with Major in front of Alzheimer Croatia office

CROCAD-14, BRELAMEMORY WALK

ACTION FOR DEMENTIA

Alzheimer CroatiaState award for best volunteer 2011

46

Alzheimer CroatiaAnnual award of Town Zagreb for 2012

47

ALZHEIMER CROATIAConclusion & plan for near future

Alzheimer’s disease is public-health priority of 21st century

49

Mediterranian Alzheimer Alliance

ALZHEIMER CROATIADEMAND

Due toWHO DEMENTIA REPORT

Croatia should ASAPdevelop the

NATIONAL DEMENTIA ACTION PLAN

The role of Croatian Alzheimer Alliance

Croatian Alzheimer Alliance

What we need to achive in Croatia*TIMELYDIAGNOSES•Developementof RegionalCentres fordiagnostics andtreatment(Zagreb, Osijek,Rijeka, Split)

SUPPORTRESEARCH•Basic•Clinical•Social•Translational

ESTABLISHED REGISTEROF PEOPLE WITHALZHEIMER’S DISEASE

SOCIAL SUPPORTAND FINANCIALSUPPORT TOCAREGIVERS

DEVELOPMENT OFSOCIAL CAREFACILITIES (DAY CARECENTRES, NURSINGHOMES)

DEVELOPEPALIATIVE CARE

RAIISING AWARENESS ANDFIGHT AGINST STIGMA• Support Alzheimer Croatia

STANDARDTREATMENT WITHANTIDEMENTIADRUGS• Fully reimbursed

*Mimica N, Kušan Jukić M. Neurol. Croat. 2014;63(Suppl. 2):159-167.

Round table “National Strategy on AD”Brela, October 4, 2014

Zagreb, October 10, 2014Zagreb, December 15, 2014Zagreb, January 26, 2015Zagreb, March 24, 2015

According to WHO Dementia ReportCroatia should in 2015 develop the

national strategy / planfor fight against Alzheimer’s Disease

and other dementias

Thank you for your attention!