Aac and mowat wilson syndrome 0617

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Augmentative and Alternative Communication What? Who? Where? When? Why? and How? Kim Singleton, MS, CCC-SLP Mowat-Wilson Syndrome 2017 International Family Conference June 29 July 1, 2017 Washington, DC

Transcript of Aac and mowat wilson syndrome 0617

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Augmentative and Alternative

Communication

What? Who? Where? When? Why? and How?

Kim Singleton, MS, CCC-SLP

Mowat-Wilson Syndrome 2017 International Family Conference

June 29 – July 1, 2017 Washington, DC

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Disclosure: Kim Singleton has no

relevant financial or non-financial

relationships to disclose.

Kim Singleton, MS, CCC-SLPDirector of Assistive Technology @ Institute on Disabilities@ Temple University

[email protected]

Kim Singleton, MS, CCC-SLP

Mowat-Wilson Syndrome 2017 International Family Conference

June 29 – July 1, 2017 Washington, DC

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Key Concepts Definitions

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Key Concepts

lan·guageˈlaNGɡwij/nounthe method of human communication, either spoken or written, using words in a structured and conventional way.

speechspēCH/noun.the expression of or the ability to express thoughts and feelings by articulate sounds.

Definitions

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Key Concepts

sym·bolˈsimbəl/nouna mark or character used as a conventional representation of an object, function, or process, e.g., the letter or letters standing for a chemical element or a character in musical notation

Definitions

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Key Concepts

Communication

Sym

bo

ls

Holding Up

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Symbol

A symbol “stands for” something else

Objects TV remote = activity of watching show

Parts of objects keys = go for ride

Textures/Fabrics soft fabric of blanket = sleep

Gestures/Signs pantomime throwing = play ball

Pictures photo of Grandma = Grandma

Sounds “kiss sound” = Grandma

Spoken names “Grandma” = Grandma

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Symbol Type

– Letters, pictures, objects, gestures

– Depend on person’s vision, motor skills, & learning/understanding

– Depend on environment (partners, setting, culture)

Teaching Symbol Use

- Models, Models, Models

- Use and see symbols being used

Symbol

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Language

Language requires combining symbols for concrete and abstract communication.

- When motor planning is an issue, telegraphing verbal messages occurs.

- When telegraphing occurs, language development suffers.

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Communication

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AAC

• Augmentative

– Enhances

– Makes (speech) greater or better by adding to it

• Alternative

– Different from the usual or conventional

– Offering or expressing a choice

• Communication

– the imparting or exchanging of information or news.

– means of connection between people or places

Key Concepts

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Key Concepts

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Key Concepts AAC Things• Things you already have

• Things you can easily get or make

• Things you can acquire with resources

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Key Concepts AAC & MWS

• Children with Mowat-Wilson Syndrome often understand more than they expressive communicate.

• When comprehension is better than speech ability it is imperative to look for ways to develop communication using non-verbal ways such as signing or using an AAC system.

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What do you have with you?Discussion

What is your name?

Where do you live?

How are you feeling?

What do you want to do?

How many people live in your house?

What did you do last night?

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Core Vocabulary

Core vocabulary is a small set of simple words, in any language, that are used frequently and across contexts. Approximately 80% of the words in a sample of 100 total words will be core, but many of the core words will be used repeatedly, so the number of different words is small.

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Core Vocabulary

Interjections (social words)

yes no thank you please hi / hello good-bye

Pronouns

I me my mine you it he she we they

Question Words

what when where who why how

Preverbs (helping words)

be is am are was were do did can have will

Verbs (action words) go stop turn make look see

find put open close eat drink get help want need

say tell come read like feel color ‘let’s work’ play

finished / ‘all done’

Adjectives (descriptive words) more one big little

fast slow same different pretty red blue yellow good

bad new old happy sad

Prepositions (placing words) on off in out up down

to for under with

Determiners (pointer words) this that some all

Conjunctions (connecting words) and but

Adverbs (tell when, where, how) not / don’t now

here there away again

attributed to prenrom.com

100 Core Word List based on:

• Banajee List of Toddler Vocabulary

• Dolch Pre-Primer & Primer

• Gail Van Tatenhove First 50 Words

• LAMP Starter Words

• PRC Core Starter Sets • Clinical Judgment

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AAC Modeling• Would we expect children to learn to talk

if they never heard speech?

•Would we learn a new language if no one around us used it?

Why do we expect children to robustly use AAC if we don’t model it?

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Video Aided Language Stimulation

https://youtu.be/QywUaX99-D4

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Key Concepts AAC UsersALL of us AUGMENT our speech with

other forms of communication. (saying +)

ALL of us use ALTERNATIVES to speech

at times (texting, smiling, gesturing).

Some of us use Augmentative or Alternative

Communication ALL of the time.

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Video AAC Example

https://youtu.be/Tp2ROyyyqjo

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AAC Example

Kim’s Personal Video

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Resources AAC Resources

AACCommunity.net

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Resources AAC Resources

https://www.ataporg.org/programs

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AAC Funding• Private Funding

– Insurance

– Private foundations, charitable organizations

• Pilot Club, Lions Club, etc.

– Crowd-funding

– AT Loans

– “Previously owned” or recycled equipment

• Public Funding

– School System (EI, IUs)

– Medicaid (including waivers)

– Office of Vocational Rehabilitation (OVR)

– Medicare

– Telecommunication Device Distribution Programs (TDDP) *exceptions process*

– Skilled Nursing Facility

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What Not To Do

https://youtu.be/8erfGhAHVY4

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AAC TipsConnect! Engage! and Keep the Connection

Model. Model. Model. And Model some more…

Use multiple ways of communicating yourself.

Relax and take your time.

Admit when you don’t understand and work together to clarify.

Assume competence and ability.

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Let’s TalkDiscussion

Kim [email protected]