A Client and Family Guide - San Diego Regional...
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Transcript of A Client and Family Guide - San Diego Regional...
A Client and Family Guide
SAN DIEGO REGIONAL CENTERwww.sdrc.org
Serving Individuals with Developmental Disabilities in San Diego and Imperial Counties
ContentsUsing the Client and Family Guide 1
History and Development of the Regional Center System 2
About the San Diego Regional Center 3
Organization of the San Diego Regional Center 4
Eligibility Criteria for Persons Age 3 and Over 6
Eligibility Criteria for Persons Younger than 3 Years of Age 8
Seeking Services 9
Services Provided 10
General Information about Regional Center Services 12
Your Right to a Fair Hearing 13
Rights of Persons with Developmental Disabilities 14
Office Locations Back Cover
ThisguidehasbeenpreparedtohelpanswerquestionsthatclientsandfamilieshaveaboutSanDiegoRegionalCenterandtheservicesitprovides.
Theguideincludesthefollowing:
Organization of the San Diego Regional Center
Services provided by the San Diego Regional Center
Who may receive San Diego Regional Center services
Who provides these services
What to do if you are dissatisfied with a decision made by the San Diego Regional Center
PleasereviewthisguidecarefullyanddiscussanyquestionsyoumayhavewithyourSanDiegoRegionalCenterservicecoordinator.
Using the Client and Family Guide
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TheSanDiegoRegionalCenterisoneof21RegionalCentersforpersonswithdevelopmentaldisabilitiesintheStateofCalifornia.RegionalCenterswereoriginallystartedaspilotprojectsinSanFranciscoandLosAngelestoassistpersonswithintellectualdisabilities(mentalretardation)andtheirfamiliesinlocatinganddevelopingservicesandprogramswithintheircommunities.Theseoriginalcenterswereestablishedin1965underlegislationsponsoredbyAssemblymanFrankD.Lantermanandothersinanswertotheneedsoffamiliesofpersonswithintellectualdisabilities.In1969,newlegislation(TheLantermanMentalRetardationAct)becameeffective.ThisnewactestablishedthestatewideRegionalCenternetwork.
History and Developmentof the Regional Center System
LegislativechangessponsoredbyAssemblymanLantermanexpandedthepopulationservedbyRegionalCenterstoincludepersonswithintellectualdisabilities,cerebralpalsy,epilepsy,autism,orotherdisablingconditionssimilartoanintellectualdisability.By1977,all21RegionalCenterswereinplacetoservethepopulationwithineachoftheirgeographicareas.Thesegeographicareasusuallycorrespondtocountyboundaries.TheSanDiegoRegionalCenterwasthethirdRegionalCenterestablishedinCalifornia.ItservespeoplelivingwithinthegeographicboundariesofSanDiegoandImperialcounties.
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TheSanDiegoRegionalCenteropenedin1969andisaserviceofSanDiego-ImperialCountiesDevelopmentalServices,Inc.TheSanDiegoRegionalCenterservesasafocalpointwithinthecommunitythroughwhichapersonwithadevelopmentaldisabilityandhisorherfamilycanobtainservicesand/orbereferredtoappropriatecommunityresources.ItisthephilosophyoftheSanDiegoRegionalCenterthateachclientshallbeprovidedwithopportunitiestoparticipateineverydaylivingexperiencesthatpermitdevelopmenttothehighestpotential.
State Contract ThemoneyusedbytheSanDiegoRegionalCentertopayforservicecomesfromtheStateofCalifornia’sDepartmentofDevelopmentalServicesundercontractwithSanDiego-ImperialCountiesDevelopmentalServices,Inc.
Board of Directors, San Diego-Imperial Counties Developmental Services, Inc. TheBoardofDirectorsreflectsthegeographicandethniccompositionofthepopulationofSanDiegoandImperialcounties.Aminimumof50%ofthemembersoftheBoardarepersonswithdevelopmentaldisabilitiesortheirparentsorlegalguardians.OtherBoardmembersareindividualswithademonstratedinterestin,orknowledgeof,developmentaldisabilities.
About the San Diego Regional CenterSan Diego Regional Center Responsibilities ServicesoftheSanDiegoRegionalCentermayonlybeprovidedwhenauthorizedorrequestedbyanadultapplicantorclient;theparentsorguardianofaminorapplicantorclient;theconservatorofanadultapplicantorclient;orbycourtorder.TheresponsibilitiesofaRegionalCenterinclude,butarenotlimitedto,thefollowing:• Case finding and intake• Assessment, evaluation and diagnosis• Development of an Individual Program Plan (IPP) for
each client• Purchase of services to meet IPP or IFSP
(Individualized Family Service Plan) objectives• Advocacy for the protection of legal, civil and service
rights• Resource development, program evaluation and
community education• Information and referral services
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ToserveSanDiegoandImperialCounties,theSanDiegoRegionalCenterisorganizedasfollows:
Application for Services/Intake ThefirstSanDiegoRegionalCentercontactforindividualsandtheirfamiliesiswithaservicecoordinatorassignedtotheIntakeunit.Thisunithastheresponsibilityofcoordinatingtheintakeprocess,explainingthenatureoftheSanDiegoRegionalCenterandservicesavailable,assessingtheperson’sdevelopmentalneedsanddevelopinganinitialIPP.
Organization of the San Diego Regional CenterOngoing Services OnceapersonisdeterminedeligibleforSanDiegoRegionalCenterservices,thatperson’scaserecordisthentransferredtoaCaseManagementunitthatprovidesongoingcoordinationofservicesthatareneeded. Forindividualswhoresidewiththeirfamiliesorintheirownhomes,servicesareprovidedbystafffromtheofficeintheclient’sgeographicarea.TheseCaseManagementunitsarelocatedinCentralSanDiegoCounty,EastSanDiegoCounty,SouthSanDiegoCounty,NorthSanDiegoCountyandImperialCounty. ServicesforindividualswhoarenotresidingwithfamiliesareprovidedthroughotherCaseManagementunits.Theseunitsworkwithindividualslivinginfamilycarehomes,smallandlargegrouphomes,intermediatecarefacilitiesandothertypesoflicensedresidentialfacilities.Therearealsolinkageswiththestatedevelopmentalcentersystemandassistancetoclientsineitherenteringorleavingthatsystem.
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Case Management Services AservicecoordinatorisassignedtoeverypersonwhoisaclientoftheSanDiegoRegionalCenter.Thisisthepersontocontactforanyquestionsorconcernsthatyoumayhaveaboutneedsorservices.TheservicesprovidedbytheSanDiegoRegionalCenterareindividualizedanddependuponneeds,sofeelfreetoaskyourservicecoordinatorforassistance.
Clinical Services Inordertoassurethatclientsreceivecomprehensiveservices,theSanDiegoRegionalCenteremploysclinicalstaff.Weusecliniciansinthecommunitytomeetspecificneedsasidentified.
Community Services TheCommunityServicesstaffisresponsibleforpublicinformation,communityeducation,andresourcedevelopment.
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AnyresidentofSanDiegoorImperialCountybelievedtohaveadevelopmentaldisabilitymayreceiveintakeservicesthroughtheSanDiegoRegionalCenter. AnyonemaydirectapersonsuspectedofhavingadevelopmentaldisabilitytotheSanDiegoRegionalCenter.Formalapplicationhowevermustbemadebyanadultapplicant,parent,conservatororguardian. ResidentsofImperialCountymayapplyforservicesattheSanDiegoRegionalCenterofficeinImperial.ResidentsofSanDiegoCountyapplyattheheadquartersofficeoftheSanDiegoRegionalCenter.
Eligibility Criteria for Persons Age 3 and OlderSection 54000. Developmental Disability.(a) “DevelopmentalDisability”meansadisabilitythatisattributabletointellectualdisability,cerebralpalsy,epilepsy,autism,ordisablingconditionsfoundtobecloselyrelatedtointellectualdisabilityortorequiretreatmentsimilartothatrequiredforindividualswithintellectualdisability.(b) TheDevelopmentalDisabilityshall:(1) Originatebeforeageeighteen;(2) Belikelytocontinueindefinitely;(3) Constituteasubstantialdisabilityfortheindividualasdefinedinthearticle.(c) DevelopmentalDisabilityshallnotincludehandicappingconditionsthatare:(1) Solelypsychiatricdisorderswherethereisimpairedintellectualorsocialfunctioningwhichoriginatedasaresultofthepsychiatricdisorderortreatmentgivenforsuchadisorder.Suchpsychiatricdisordersincludepsycho-socialdeprivationand/orpsychosis,severeneurosisorpersonalitydisordersevenwheresocialandintellectualfunctioninghavebecomeseriouslyimpairedasanintegralmanifestationofthedisorder.
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(2) Solelylearningdisabilities.Alearningdisabilityisaconditionwhichmanifestsasasignificantdiscrepancybetweenestimatedcognitivepotentialandactuallevelofeducationalperformanceandwhichisnotaresultofgeneralizedintellectualdisability,educationalorpsycho-socialdeprivation,psychiatricdisorder,orsensoryloss.(3) Solelyphysicalinnature.Theseconditionsincludecongenitalanomaliesorconditionsacquiredthroughdisease,accident,orfaultydevelopmentwhicharenotassociatedwithaneurologicalimpairmentthatresultsinaneedfortreatmentsimilartothatrequiredforintellectualdisability.
Section 54001. Substantial Disability.(a) “Substantialdisability”means:(1) Aconditionwhichresultsinmajorimpairmentofcognitiveand/orsocialfunctioning,representingsufficientimpairmenttorequireinterdisciplinaryplanningandcoordinationofspecialorgenericservicestoassisttheindividualinachievingmaximumpotential;and(2) Theexistenceofsignificantfunctionallimitations,asdeterminedbytheregionalcenter,inthreeormoreofthefollowingareasofmajorlifeactivity,asappropriatetotheperson’sage:(A) Receptiveandexpressivelanguage;(B) Learning;(C) Self-care;(D) Mobility;
(E) Self-direction;(F) Capacityforindependentliving;(G) Economicself-sufficiency(b) TheassessmentofsubstantialdisabilityshallbemadebyagroupofRegionalCenterprofessionalsofdifferingdisciplinesandshallincludeconsiderationofsimilarqualificationappraisalsperformedbyotherinterdisciplinarybodiesoftheDepartmentservingthepotentialclient.Thegroupshallincludeasaminimumaprogramcoordinator,aphysician,andapsychologist.(c) TheRegionalCenterprofessionalgroupshallconsultthepotentialclient,parents,guardians/conservators,educators,advocates,andotherclientrepresentativestotheextentthattheyarewillingandavailabletoparticipateinitsdeliberationsandtotheextentthattheappropriateconsentisobtained.(d) Anyreassessmentofsubstantialdisabilityforpurposesofcontinuingeligibilityshallutilizethesamecriteriaunderwhichtheindividualwasoriginallymadeeligible.
Section 54002. Cognitive. “Cognitive”asusedinthischaptermeanstheabilityofanindividualtosolveproblemswithinsight,toadapttonewsituations,tothinkabstractlyandtoprofitfromexperience.
Source: California Code of Regulations, Title 17
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ThisClientandFamilyGuideisforpersonsolderthan3yearsofage.Infantsandtoddlersage0-3areservedundertheCaliforniaEarlyStartProgram.Listedbelowisabriefhighlightofthisprogram.
Prevention Resources and Referral Services (PRRS) Eligibility:• EligibilitydeterminedbySDRCthroughEarlyStart
Intake.ServicesprovidedthroughExceptionalFamilyResourceCenter
• Birthtoage3years• ResidenceinSanDiegoorImperialCounty• Nofinancialqualifications• Riskofdevelopmentaldisability(twoormore
factorsofbeingaprematurebabyoflessthan32weeksfrombirth,asphyxiaand/ormultiplecongenitalanomalies)
OR• Age24monthsorolderwith33-49%delayinone
ofthefollowingdevelopmentalareas:Cognitive;Physical;Communication;Adaptive;Social/Emotional
OR• Parentoftheinfant/toddlerisapersonwitha
developmentaldisability.
PRRS Services: ThefocusofthePRRSisprimarilytoprovideoutreach,information,referraltogeneticresourcesandfollow-uptoparentsandcaregiversofat-riskbabies(birthto36months).
California Early Start Program Eligibility:• Birthtoage3years• ResidenceinSanDiegoorImperialCounty• Nofinancialqualifications
Eligibility Criteria for Persons Youngerthan 3 Years of Age
• Developmentaldelayinoneormoreofthefollowingfiveareas:Cognitive;Physical;Communication;Adaptive;Social/Emotional
• Under24months:33%delayinonedevelopmentalarea
• 24monthsandolder:50%delayinonedevelopmentalareaor33%delayin2ormoredevelopmentalareas.
OR• EstablishedRiskfordevelopmentaldisability:
Conditionsknowntocausedelaysindevelopment(e.g.Downsyndrome,Prader-Willi,SpinaBifida).Neednotbedemonstratingdelaysattimeofreferral.
California Early Start Services: Evaluationinthefiveareasofdevelopmenttodetermineeligibility. DevelopmentofanIndividualizedFamilyServicePlan(IFSP),includingage3transitionplanning.CoordinationofrequiredEarlyInterventionservicesbasedontheneedsofthechild.Servicesmayinclude:•AssistiveTechnology •PhysicalTherapy
•Audiology •NursingServices
•OccupationalTherapy •VisionServices
•HealthServices •SocialWork
•ServiceCoordination •SpecialInstruction
•PsychologicalServices •SpeechandLanguage
•NutritionalServices •Transportation
•FamilyTraining,counseling,homevisits
•MedicalServices(evaluationsforearlyinterventionservices)
Source:California Early Start Intervention Services Act, Title 14
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ApplicationforservicesinvolvesaninitialcontactwithanIntakeservicecoordinator.Thiscontactisoftenmadebytelephone.Atthistime,SanDiegoRegionalCenterservicesareexplainedandinformationisobtainedregardingtheapplicant. IftheapplicantiseligibleforSanDiegoRegionalCenterservices,ameetingisheldtodevelopanIndividualProgramPlan.FortheprovisionofongoingservicesthecaseistransferredtotheCaseManagementunitservingthegeographicareawheretheclientresides. If,followingassessment,apersonisfoundineligibleforRegionalCenterservices,theIntakeservicecoordinatorwillreferthepersontoamoreappropriateserviceandthecasewillbeclosed.Thepersonandfamilyareinformedoftheirrighttoappealthedecisioniftheydisagree.
Seeking Services
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TheSanDiegoRegionalCenterprovidesavarietyofservicestopersonswithdevelopmentaldisabilities,theirfamilies,andthecommunity.Theseservicesareinadditiontothoseprovidedwithinthehealth,education,andsocialservicessystems.
Assessments Assessmentsareprovidedfollowingtheinitialapplicationforservices,duringtheintakeandassessmentperiod.ThesearedoneforthepurposeofestablishingeligibilityforSanDiegoRegionalCenterservices,andalsotoprovidethebasisforaninitialIndividualProgramPlanforeligibleclients.Abasicassessmentconsistsofsocial,medical,andpsychologicalevaluations,includingareviewofhistoricaldata.Whenindicated,othertypesofevaluationsarealsoperformed.PersonswhoareSanDiegoRegionalCenterclientsmaybereevaluatedperiodically,astheirneedschange.
Individual Program Plan (IPP) AfteranindividualisfoundtobeeligibleforSanDiegoRegionalCenterservicesandneedsareidentified,awrittenplanisdeveloped.ThisplaniscalledtheIndividualProgramPlan(IPP).Itincludesgoalsandobjectivesdesignedtomeetclientneeds.Thedevelopmentoftheplaninvolvestheparticipationoftheclient,family,SanDiegoRegionalCenterstaff,andothersasappropriate.TheIPPisreviewedatleastannuallyandaschangesoccurrequiringmodification.Whentheplanisreviewed,theperformanceoftheservicecoordinatorisalsoreviewed.
Services ProvidedCase Management Services TheprimarygoaloftheSanDiegoRegionalCenteristoprovidesupportservicesthatallowtheclienttoliveathomewheneverpossible.Toachievethisgoal,servicecoordinatorsassisttheclientinsecuringneededservicesthroughreferralorpurchase,bycoordinatingserviceprograms,andbyadvocatingforprovisionofservicesthroughothercommunityagencies.Similarservicesarealsoprovidedinthoseinstancesinwhichtheclientresidesinaresidentialfacilityorastatedevelopmentcenter. TheSanDiegoRegionalCenterencouragescollaborativeworkingrelationshipswithclientsandtheirfamiliessothatneedsandproblemscanbereadilycommunicatedandaddressed.Tofacilitatethisprocess,shorttermcounselingservicescanbeprovided.Theseservicesmayincludeadiscussionoftheimpactoftheperson’sdisabilityonthefamilyunit,supportduringcrisisand,ifneeded,assistancewithbehaviormanagement.Theseservicesareavailabletotheindividualclientand/orfamilymembers.
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Purchase of Service Insecuringservicesandsupports,thePlanningTeamshallfirsttakeintoconsiderationnaturalsupportsandgenericagencieslegallyresponsibletoserveallmembersofthegeneralpublicandreceivespublicfundsforprovidingtheseservices.TheSanDiegoRegionalCentermaypurchaseservicesthatdonotsupplantthebudgetofanygenericagency:• Respite• Licensed residential placement (a fee schedule is
used for computing parental reimbursement for placement of minors)
• Independent Living Services• Supported Living• Supported Employment• Adult day training activities• Transportation to work/day training• Behavioral services
Clinical Services Becausemanyclientshavemultipleneeds,clinicalstaffisavailabletoworkwithCaseManagementstaffonacase-by-casebasis.SanDiegoRegionalCentercliniciansalsoworkwithcommunityagenciesandprogramstoassistinthedevelopmentandcoordinationofservicesforpersonswhohavedevelopmentaldisabilities.
Community Services Publicinformation,communityeducation,thedevelopmentofneededresources,andevaluationofcommunityprogramsareprovidedbythestaffofthisdepartment.Includedintheseservicesarethepublicationofanewsletter,maintenanceofafilmlibrary,andtechnicalassistancewithgrantproposals.Evaluationactivitiesarecoordinatedwiththoseagencieshavingresponsibilityforlicensureandaccreditation.
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FinancialstatusoftheapplicantorfamilyhasnobearingonSanDiegoRegionalCentereligibility. Nofeesarechargeddirectlytotheclient/familyfordiagnosisandongoingcasemanagementservices.Areimbursementfeebasedonthecostofraisingthechildathomeisrequiredbythestateforout-of-homeplacementofminors.Familieswhoreceiverespiteordaycaremayberequiredtoparticipateinfundingtheservice.Familieswhomeetthecriteriaforcostparticipationareasfollows:• the family has a child who is at least 3 years old but
younger than 18, is receiving San Diego Regional Center services, and lives in the family home.
• the child does not receive Medi-Cal.• the family has an income that is at least 400% above
the federal poverty level. AnAnnualFamilyProgramFeemaybechargedtoparentsofchildrenages3-18forcertainservicesifthefamilysizeandincomeareabovedesignatedlevels. Transportationisexpectedtobeprovidedbytheclient/family.However,travelarrangementsmaybemadeonaverylimitedbasisforclientswhohavenomeansofarrivingatscheduleddiagnosticappointments. Servicesareprovidedregardlessofrace,color,creedorsex.TheSanDiegoRegionalCenterhasaresponsibilitytorepresentthecommunityitserves.SanDiegoRegionalCenterstaffmembersarerepresentativesofthecommunity’sethnicmix. Whenaperson,orhis/herparent,guardianorconservator,nolongerneedsorwantsSanDiegoRegionalCenterservices,theyarediscontinued.In
General Information about Regional Center Services
thesesituations,thecaserecordisplacedintheSanDiegoRegionalCenterinactivefiles.However,theclientremainsregisteredwiththeSanDiegoRegionalCenterintheeventoffurtherserviceneeds.Whenaneedarisesforservicesinthefuture,theclient,afamilymember,conservatororguardianmaycalltheIntakeofficetodiscussserviceneedsandrequestthatthecasebereactivated.IfaclientmovesoutoftheSanDiegoRegionalCenterserviceareatoanotherpartofCalifornia,thecaserecordwillbetransferred,uponauthorizedrequest,totheRegionalCenterservingthatarea.IftheclientmovesoutofCalifornia,thecaserecordisclosed. Conservatorshipandguardianshipinformationcanbeobtainedbycontactingtheservicecoordinator. Caserecordsareconfidentialandinformationwillonlybereleasedwiththesignedauthorizationoftheclient(ifhe/sheis18yearsofageorolder),ortheparent,conservator,orguardian. Reviewoftheclient’sSanDiegoRegionalCentercaserecordistherightoftheadultclient,theparentorguardianofaminorchild,ortheconservatorofanadult.SucharequestismadebywritingtotheExecutiveDirectoroftheSanDiegoRegionalCenterwhowilldesignateastaffmembertoassisttheindividualinreviewingtherecord.Ifcopiesaredesired,afeemaybechargedforcopying. LawsaffectingtheRegionalCentercanbeviewedontheCaliforniaStateDepartmentofDevelopmentalServiceswebsiteatwww.dds.ca.gov.
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Theremaybeoccasionswhenanapplicantfor,orarecipientof,servicesfromtheSanDiegoRegionalCenterbecomesdissatisfiedwithadecisionoftheSanDiegoRegionalCenter.Ontheseoccasions,theapplicant,recipientorhis/herauthorizedrepresentativeshallbeaffordedanopportunityforafairhearingontheissue. TheCaliforniaWelfareandInstitutionsCodeSection4700mandatesthatRegionalCentersshallhaveafairhearingprocedureforresolvingconflictsbetweentheRegionalCenterandapplicantsfor,orrecipientsof,service.ThisproceduremaybeusedtoappealanyactionoftheRegionalCenterwhichisbelievedtobeillegal,discriminatoryornotinthebestinterestoftheapplicantorrecipient. Everypersonapplyingfororreceivingagencyservicesmustbeinformedverballyandinwritingaboutthishearingprocedure.Moreover,whenadisputearises,thepersonisremindedoftheavailabilityofthefairhearingprocess,andhe/shemaybeassistedinfillingouttherequisiteform.
Your Right to a Fair HearingUponrequestingafairhearing,theclaimanthastherighttorequestavoluntaryinformalmeetingand/orvoluntarymediation.Thepurposeofthesemeetingsisanattempttoresolvetheissueorissuesinformallypriortothescheduledfairhearing.Ifarequestismadeforaninformalmeeting,theRegionalCenterDirectororhisdesigneeshallofferameetingwithin10daysofreceiptofthefairhearingrequest.Ifamediationisrequested,theRegionalCenterhastheoptionofacceptingordenyingthisrequest.Ifaccepted,amediationisprovidedbytheOAHwithin30daysofrequestforafairhearing.Iftheissuesarenotresolvedbyeitherofthesevoluntaryoptions,theclaimantcanproceedtoFairHearing.YouareentitledtoacopyoftheSanDiegoRegionalCenterfairhearingprocedure.YoumayobtainonebycallinganyoftheofficesoftheSanDiegoRegionalCenter.
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Eachpersonwithadevelopmentaldisabilityisentitledtothesamerights,protections,andresponsibilitiesasallotherpersonsunderthelawsandConstitutionoftheStateofCalifornia,andunderthelawsandtheConstitutionoftheUnitedStates.Unlessotherwiserestrictedbylaw,theserightsmaybeexercisedatwillbyanypersonwithadevelopmentaldisability.Theserightsinclude,butarenotlimitedto,thefollowing:
Section 4502. Access Rights.(a)Arighttotreatmentandhabilitationservicesandsupportsintheleastrestrictiveenvironment.Treatmentandhabilitationservicesandsupportsshouldfosterthedevelopmentalpotentialofthepersonandbedirectedtowardtheachievementofthemostindependent,productive,andnormallivespossible.Suchservicesshallprotectthepersonallibertyoftheindividualandshallbeprovidedwiththeleastrestrictiveconditionsnecessarytoachievethepurposeofthetreatment,services,orsupports.(b) Arighttodignity,privacy,andhumanecare.Tothemaximumextentpossible,treatment,services,andsupportsshallbeprovidedinnaturalcommunitysettings.
Rights of Persons with Developmental Disabilities(c) Arighttoparticipateinanappropriateprogramofpubliclysupportededucation,regardlessofdegreeofdisability.(d) Arighttopromptmedicalcareandtreatment.(e) Arighttoreligiousfreedomandpractice.(f) Arighttosocialinteractionandparticipationincommunityactivities.(g) Arighttophysicalexerciseandrecreationalopportunities.(h) Arighttobefreefromharm,includingunnecessaryphysicalrestraint,orisolation,excessivemedication,abuse,orneglect.(i) Arighttobefreefromhazardousprocedures.(j) Arighttomakechoicesintheirownlives,including,butnotlimitedto,whereandwithwhomtheylive,theirrelationshipswithpeopleintheircommunity,thewaytheyspendtheirtime,includingeducation,employment,andleisure,thepursuitoftheirpersonalfuture,andprogramplanningandimplementation.
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Section 4503. Personal Rights. Eachpersonwithadevelopmentaldisabilitywhohasbeenadmittedorcommittedtoastatehospital,communitycarefacility,orhealthfacilityshallhaverightswhichinclude,butarenotlimitedto,thefollowing:(a) Towearhisorherownclothes,tokeepandusehisorherownpersonalpossessionsincludinghisorhertoiletarticles,andtokeepandbeallowedtospendareasonablesumofhisorherownmoneyforcanteenexpensesandsmallpurchases.(b) Tohaveaccesstoindividualstoragespaceforhisorherprivateuse.(c) Toseevisitorseachday.(d) Tohavereasonableaccesstotelephones,bothtomakeandreceiveconfidentialcalls.(e) Tohavereadyaccesstoletterwritingmaterials,includingstamps,andtomailandreceiveunopenedcorrespondence.(f) Torefuseelectroconvulsivetherapy.(g) Torefusebehaviormodificationtechniqueswhichcausepainortrauma.
(h) TorefusepsychosurgerynotwithstandingtheprovisionsofSections5325,5326,and5326.3.Psychosurgerymeansthoseoperationscurrentlyreferredtoaslobotomy,psychiatricsurgery,andbehavioralsurgeryandallotherformsofbrainsurgeryifthesurgeryisperformedforanyofthefollowingpurposes:(1) Modificationorcontrolofthoughts,feelings,actions,orbehaviorratherthanthetreatmentofaknownanddiagnosedphysicaldiseaseofthebrain.(2) Modificationofnormalbrainfunctionornormalbraintissueinordertocontrolthoughts,feelings,action,orbehavior.(3) Treatmentofabnormalbrainfunctionorabnormalbraintissueinordertomodifythoughts,feelings,actions,orbehaviorwhentheabnormalityisnotanestablishedcauseforthosethoughts,feelings,actions,orbehavior.(i) Tomakechoicesinareasincluding,butnotlimitedto,hisorherdailylivingroutines,choiceofcompanions,leisureandsocialactivities,andprogramplanningandimplementation.(j) Otherrights,asspecifiedbyregulation.
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Section 4504. Denial of Rights for “Good Cause” by a Licensed Residential Facility. Residentsoffacilities,licensedbytheStateofCaliforniatoservepersonswithdevelopmentaldisabilities,mayhavespecificrightsdeniedthembythelicensee.Thesespecificrightsmaybedeniedonlyunderthefollowingconditions: Theprofessionalpersoninchargeofthefacilityorhisdesigneemay,forgoodcause,denyapersonanyoftherightsspecifiedundersubdivisions(a),(b),(c),(d),and(e)ofSection4503.Toensurethattheserightsaredeniedonlyforgoodcause,theDirectorofDevelopmentalServicesshalladoptregulationsspecifyingtheconditionsunderwhichtheymaybe
denied.Denialofaperson’srightsshallinallcasesbeenteredintotheperson’streatmentrecordandshallbereportedtotheDirectorofDevelopmentalServicesonaquarterlybasis.ThecontentoftheserecordsshallenabletheDirectorofDevelopmentalServicestoidentifyindividualtreatmentrecords,ifnecessary,forfutureanalysisandinvestigation.Thesereportsshallbeavailable,uponrequest,toMembersoftheLegislature.Informationpertainingtodenialofrightscontainedintheperson’streatmentrecordshallbemadeavailable,onrequest,totheperson,hisattorney,hisparents,hisconservatororguardian,theStateDepartmentofDevelopmentalServices,andMembersoftheLegislature.
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Section 4731. Complaint Procedure.(a)Eachconsumeroranyrepresentativeactingonbehalfofanyconsumerorconsumers,whobelievesthatanyrighttowhichaconsumerisentitledhasbeenabused,punitivelywithheld,orimproperlyorunreasonablydeniedbyaregionalcenter,developmentalcenter,orserviceprovider,maypursueacomplaintasprovidedinthissection.(b)Initialreferralofanycomplainttakenpursuanttothissectionshallbetothedirectoroftheregionalcenterfromwhichtheconsumerreceivescasemanagementservices.Iftheconsumerresidesinastatedevelopmentalcenter,thecomplaintshallbemadetothedirectorofthatstatedevelopmentalcenter.Thedirectorshall,within20workingdaysofreceivingacomplaint,investigatethecomplaintandsendawrittenproposedresolutiontothecomplainantand,ifapplicable,totheserviceprovider.Thewrittenproposedresolutionshallincludeatelephonenumberandmailingaddressforreferringtheproposedresolutioninaccordancewithsubdivision(c).(c)Ifthecomplainantisnotsatisfiedwiththeproposedresolution,thecomplainantmayreferthecomplaint,inwriting,totheDirectorofDevelopmentalServiceswithin15workingdaysofreceiptoftheproposedresolution.Thedirectorshall,within45daysofreceivingacomplaint,issueawrittenadministrativedecisionandsendacopyofthedecisiontothecomplainant,thedirectoroftheregional
centerorstatedevelopmentalcenter,andtheserviceprovider,ifapplicable.Ifthereisnoreferraltothedepartment,theproposedresolutionshallbecomeeffectiveonthe20thworkingdayfollowingreceiptbythecomplainant.(d)Thedepartmentshallannuallycompilethenumberofcomplaintsfiled,byeachregionalcenterandstatedevelopmentalcentercatchmentarea,thesubjectmatterofeachcomplaint,andasummaryofeachdecision.Copiesshallbemadeavailabletoanypersonuponrequest.(e)Thissectionshallnotbeusedtoresolvedisputesconcerningthenature,scope,oramountofservicesandsupportsthatshouldbeincludedinanindividualprogramplan,forwhichthereisanappealprocedureestablishedinthisdivision,ordisputesregardingratesorauditappealsforwhichthereisanappealprocedureestablishedinregulations.Thosedisputesshallberesolvedthroughtheappealsprocedureestablishedbythisdivisionorinregulations.(f)Allconsumersor,whereappropriate,theirparents,legalguardian,conservator,orauthorizedrepresentative,shallbenotifiedinwritinginalanguagewhichtheycomprehend,oftherighttofileacomplaintpursuanttothissectionwhentheyapplyforservicesfromaregionalcenterorareadmittedtoadevelopmentalcenter,andateachregularlyscheduledplanningmeeting.
Source: California Welfare and Institutions Code
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San Diego-Imperial Counties Developmental Services, Inc.4355 Ruffin Road, San Diego, California 92123(858) 576-2996 ⋅ www.sdrc.org
H e a d q u a r t e r s4355RuffinRoad
SanDiegoCA92123
858-576-2996
IntakeUnit:858-576-2938
EarlyStartUnit:858-496-4318
I m p e r i a l C o u n t y512W.AtenRoad
ImperialCA92251
760-355-8383
S o u t h S a n D i e g o C o u n t y2727HooverAvenue,Suite100
NationalCityCA91950
619-336-6600
E a s t S a n D i e g o C o u n t y8760CuyamacaStreet,Suite100
SanteeCA92071
619-596-1000
N o r t h S a n D i e g o C o u n t y5931PriestlyDrive,Suite100
CarlsbadCA92008
760-736-1200