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 Bucharest 10 -13 May 2012

9th PanCare MeetingPan-EuropeanNetworkforCareofSurvivorsafterChildhoodandAdolescentCancer

 

Overview

10 May PanCare open  business

meeting

11 May PanCare Open Session 

Inviting EasternEuropean delegates to

the dialogue

12 May Parallel sessionsPanCareSurFup

SROHP meeting

13 May SROHP meeting

The annual gathering of 

the Romanian National

Society of Paediatric

Hemato-Oncology 

10-13May:specialistsfromacrossEuropewillhaveadialogueinamultidisciplinarysettingabout

long-termcareplansforsurvivorsofchildhoodandadolescentcancer.Forthefirsttime,Eastern

Europeanprioritieswillbefirmlyontheagendaandwillberepresentedbyamaximumturnoutof

specialistsfromRomaniaanditsneighboringcountries.

P a n C a r e is a multidisciplinary pan-European

network of professionals, survivors and their families that

aims to reduce the frequency, severity and impact of late

side-effects of the treatment of children and adolescents

with cancer. PanCare is working to achieve equity of access

to care for childhood cancer survivors across Europe, to

perform collaborative research and to act as a resource of 

research based information concerning all late side-effects

of cancer treatment. An important aim of PanCare is to

work with the European Community to increase awareness

and research about childhood cancer survivors. The long-

term strategic aim of PanCare is to ensure that every

European survivor of childhood and adolescent

cancer receives optimal long-term care. 

& the annual meeting of the 

Romanian Society of Paediatric Onco-Hematology SROHP

10 -13 May 2012

Hotel Pullman Bucharest

World Trade Center 

Local organizer:

Register online here: www.pancare-srohp-2012.ro 

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2

Bucharest 10-13 May 2012

10 May

 Room Mexico

13.00 – 14.00 Arrivals and lunch  Sitting buffet in the Paris-Bucharest room

14.00 – 15.30 PanCare Business meeting including

minutes from Amsterdam, Newsletter,

web site, constitution matters and

discussion within the Fertility and

Ototoxicity Working Groups

15.30 – 15.45 Coffee Break  

15.45 – 17.30 PanCare Business meeting cont.

9th PanCare-Meeting in Bucharest, Romania 

10-11 May 2012

(Draft agenda, subject to change) 

 Discover the Belle Epoque beauty of   Bucharest’s centre or see the colossal,

communist-era Palace of Parliament.

 For recommendation for eating out and local attractions please go to the 

conference website:

www.pancare-srohp-2012.ro

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 10-13 May

9.00 – 10.45 Morning Session Chair Julie Byrne

9.00 – 09.15 Opening Speeches Chairs of host organizations Lars Hjorth and

PanCare and Little People Katie Rizvi

President of the Romanian

Paediatric Onco-Hematology Society Despina Baghiu

Representative of the Bucharest University

of Medicine and Pharmacy "Carol Davila" Monica Dragomir 

& the Bucharest Oncology Institute

Survivor representative Alexandru Barac

Patient advocate Paul Catana

9.15 – 09.35 What is PanCare Introduction of the Pan-European Lars HjorthNetwork for Care of Survivors after 

Childhood and Adolescent Cancer.

www.pancare.eu

09.35 – 09.55 PanCareSurFup  Update on the FP7 EU-fundedproject of 16 European institutions 

carrying out research into late effects

of treatment for cancer, to establish

guidelines for follow-up for health care

professionals, survivors and their families

 based on existing evidence.

www.pancaresurfup.eu

Lars Hjorth andconsortium

members

10.45 – 11.00 Coffee Break 

Bucharest

11.00 – 12.20 Morning Session cont. Chair Despina Baghiu

11.00 – 11.20 TEMERARII – 

Romanian case study A case study of TEMERARII – Katie Rizvi

the Romanian Community of cancer 

survivor young people

11.20 – 11.40  Relapsed young adult Presentation and open discussion Monica Dragomir 

care in Romania about follow up care after childhood

and adolescent cancer and the issues

rising about transition from paediatric

to adult medicine 

09.55 – 10.45  Survivorship Assessing the possibility of creatingPassport a European template of an electronic

and ENCCA tool that will contain comprehensive Riccardo Haupt

information on the medical history of 

a cancer survivor. Update on the

FP7 EU-funded project. Presentation

and open discussion, welcoming

contributions about such a tool’s possible

Eastern European dimensions.

www.ENCCA.eu

11 May

 Room Mexico + Seoul 

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 10-13 MayBucharest

11.40 – 12.00  SROHP presentation Overview of the Romanian national Despina Baghiu

priorities and challenges in child-cancer 

and long term follow up of paediatric

cancer survivors12.00 – 12.20  Childhood cancer The National Child Cancer Register Mihaela Bucurenci

registration in Registry has now entered its second year.

Romania 2009 – 2011: Indicators for policy planning and for thelessons learned and development of the first Romanian national

future directions strategy for paediatric cancer 

12.30 – 13.45   Press Conference and Lunch Lunch served in room Paris-Bucharest 

13.45 – 15.00 Afternoon Session Chair Gisela Michel

13.45 – 14.15  Cardiotoxicity  Cardiotoxicity and cardiomyopathy

in long term survivors of childhood

cancer. Possible interventions and

prevention. 

14.15 – 14.45  2 Submitted abstracts TBD 

15.00 – 15.15  Coffee Break  

14.45 – 15.00  Health Related Health-related quality of life study in Amalia KuglisQuality of Life adolescent and young adult survivors

of childhood cancer in Romania, including

results of a medical avoidance questionnaire

and findings on how survivors see their role

in getting sick again or keeping healthy

15.15 – 17.30 Afternoon Session cont. Chair Katie Rizvi

Elvira Van DalenLeontien Kremer 

15.15 – 15.30  Fertility project Fertility study in long term survivors Julie Byrneof childhood cancer Anja Borgmann

Staudt15.30 – 15.45 Ototoxicity project Ototoxicity study in long term Thorsten Langer 

survivors of childhood cancer 

15.45 – 16.15 SurvivorNet International patient group of Alexandra Brownsdon

childhood cancer survivors – updates

16.15 – 16.35 Irish survivor meeting Reports Julie Byrne

Italian survivor meeting Momcilo Jankovic

16.35 – 17.00 Horizon 2020 Running from 2014 to 2020 with an Lars Hjorth €80 billion budget, the EU’s new

programme for research will provide

researchers with access to priority

research infrastructure, and fund

collaborative research to open up new

and promising fields of research.An excellent opportunity to discuss

Eastern European participation17.00 – 17.15 Any other Business Lars Hjorth17.15 – 17.30 Next meeting, farewell Katie Rizvi

and close of meeting Lars Hjorth 

17.30 – 18.00 PanCare photo

19.00 Social program  Bus departs from Hotel to PanCare Networking Dinner 

in Restaurant Caru’ cu bere

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 10-13 MayBucharest

09.00 – 10.45 PanCareSurfUp working meeting for project participants

10.45 – 11.00 Coffee break 

11.00 – 12.30 PanCareSurfUp working meeting continues

13.00 Lunch

The24thRomanianNationalConferenceofPaediatricHematologyandOncology

 

12 May

 Room Mexico

12 & 13 May

 Room Seoul 

we win!cancer, you lose.

www.potisitu.org

We’re looking forward to meeting you in Bucharest!