the little white book

A directory of resources to help people affected by a brain tumour

Edition 1: October 2016

the little

bookwhite

Greater Manchester

ContentsNetworking 2

Psychological support 10

Support groups 18

Support for carers 22

Support for children 30

Support lines 34

Financial support 36

Complementary therapies 42

Holidays and short breaks 46

Welfare and legal advice 48

Transport services 54

Respite and end of life care 56

Bereavement support 60

What can brainstrust do to help? 66

Introduction 1

IntroductionWeknowhowlostyoucanfeelwhenyouoryourlovedoneisdiagnosedwithabraintumour.Butwealsoknowhowmanyinvaluablesupportservicesthereareavailablelocallythatcanhelpyouateverystepofyourbraintumourjourney.

Hereatbrainstrustwe’vebeenworkingtirelesslywiththehelpofourfantasticvolunteerssearchinghighandlowforuseful,localservicesforpeopleaffectedbyabraintumour.Thisdirectory,focusingonthecharitysector,includesinformationonsomeofthebestoftheseservicesinGreaterManchester.Wehopeyoufindittobeanauthoritativeguideandthatithelpsyouaccesstheseresourcesinyourareaquicklyandwhenyoumostneedthem.

Wemaynothaveincludedeverythingherejustyet,butwehavebeenabletobringtogethermanysourcesofhelpthatwe’recomfortablewithandthatweregularlyrecommendtoourcommunity.Youcanfindthemostuptodateversionofthisinformation,andmoreonlineatwww.braintumourhub.org.uk

Thingschange.Newserviceswillpopup,andsomemaystopoperatingorchangetheirfocus,butwewillbereviewingtheinformationwithinthisdirectoryeveryyear.Ifthereareanyadditionalservicesthatyouwouldliketoseeinhere,pleasegetintouchwithuson01983 292 405oremailhello@brainstrust.org.uk

ThisguidewouldnothavebeenpossiblewithoutthesupportofTheRankFoundation,TheVeraWolstencroftChildrenandAnimalCharitableTrustandtheNationalLotterythroughtheBigLotteryFund.

Wehopeyoufindituseful.

From all the team at brainstrust

2 Networking Networking 3

Servicename Serviceprovider Phonecontact Location Emailandwebaddress Briefdescription

Stockport Social Groups

BeechwoodCancerCare

0161 476 0384 BeechwoodCancerCareCentre,ChelfordGrove,StockportSK3 8LS

enquiries@beechwoodcancercare.co.uk

www.beechwoodcancercare.org.uk/cancer-care-services/groups/

Thischarityoffersanumberofinteresting,inclusiveandsocialgroups.TheseincludetheBeechwoodchoirforthoseaffectedbycancereveryTuesday,TaiChieveryWednesday,theshed/gardeninggroup,thecraftgroup,theartgroup,andregularcoffeemornings.

Wigan Brain Injury Drop-in

HeadwayWiganandLeigh

0758 083 2106 SunshineHouseCommunityCentre,VauxhallRoad,Wigan,GreaterManchesterWN1 3LU

headwaywiganandleigh@gmail.com

www.headwaywiganandleigh.co.uk

Thischarityrunregulardrop-insessionsforthoseaffectedbyanacquiredbraininjury.Theyhost12sessionsayearonthelastThursdayofthemonthbetween1pmand3pm.

The essence of networking is to share experiential sympathy and understanding which can be beyond the scope of health care professionals. Networkingalsoallowsyoutomeetothersfromthewidercommunity–notjustthosewhotypicallyattendsupportgroups.Thesepeoplecanincluderesearchers,fundraisers,charityworkersandotherinterestedparties.

Itisimportanttobeawarethatwhilstnetworkingeventscanbeasourceofexcellentinformation,theyaremuchmore‘free-flowing’thanfacilitatedsupportgroups.Thediscussionisnotcontrolled,opinionscanbesubjective,andtheymaynotconstitutemedicaladvice.

Networking

Manchester Cancer Get Togethers

BeingThere 0845 123 23 29 NewMostonClub,64ParkfieldRoadNorth,NewMostonM40 3RQ

info@beingthere.org.uk

www.beingthere.org.uk/get-support/

Hereyou’rewelcometojoininwithanumberof‘gettogethers’forpeoplewithcancer,carersandfamilymemberslivinginGreaterManchester.Theseareinformal,supportivegroupsessionswherepeoplecanmixandhaveachat.Sometimesthegroupshavetalksfromexternalspeakersaswellasrelaxationorartssessions.Transportandrefreshmentsareprovided(suggesteddonation£2).Therearefourgroupsintotal;NorthManchester,SouthManchester,SalfordandTrafford.

North Manchester Yoga, Meditation, Pilates and Walking Group

ChaiCancerCare 0808 808 4567 HeathlandsVillage,HeathlandsDrive,Prestwich,Manchester,LancashireM25 9SB

www.chaicancercare.org/what-we-do/what-our-services-are/groups-activities/

ThischarityfocusesonprovidingservicestoanymembersoftheJewishcommunityaffectedbycancerincludingpatients,familiesandfriends.Thesegroupactivitiesaretheretohelpyouconnectwithotherswhoareinasimilarsituationtoyouwhilstlearningnewskills,keepingfitandhavingfun.

Bolton Cancer Walking Group

BoltonMacmillanCancerInformation&Support

01204 663059 MCISS,GilesHouse,43ChorleyNewRoad,BoltonBL1 4QR

boltoncancerinfo@nhs.net

www.boltonmacmillansupport.org.uk/support/local-support-groups

Walkingisaconvenient,cheapandfunwaytoparticipateinaphysicalactivitywhenyouarelivingwithacancerdiagnosis.Allyouneedisapairofcomfortablewalkingshoesandyou’reonestepclosertoincreasedmentalandphysicalwellbeing.ThegroupmeetsonthefirstFridayofeachmonthat1pmatvariousplacesintheBoltonareaallyearround.

Bolton Cancer Voices

01204 595562 or07773164235

TheFriendsMeetingHouse,SilverwellStreet,BoltonBL1 1PP

boltoncancervoices@yahoo.com

Thischarityoffersaninspirational,welcomingchoiropentoanyonewhohasreceivedacancerdiagnosisofanytype.Thechoirprovidesapositive,motivationalanddiversionaryenvironmentwheremembershavefun,enjoythechallengesandexhilarationofperformingandhaveafocusasidefromtheirillness.Itoffersaninformalforumtomeetwithothersinasimilarsituationandbenefitfrommutualsupportandunderstanding.Membershipisfreeandthereisnorequirementtoreadmusicorauditionstoworryabout.RehearsalstakeplaceonMondaysbetween7.30pmand9.00pm.

North West Weekly 5K Runs

parkrunUK Variouslocations helloUK@parkrun.com

www.parkrun.org.uk/events

Thesefree,weekly,5kmtimedrunstakeplaceinpleasantparklandsurroundingsthroughouttheUK.Theyareopentopeopleofallabilities,canbecompletedatyourownpace,andcanactasrewardingandsociablestressrelievers.Allrunsstartat9amonSaturdaymorning.Therearecurrently45weeklyparkrunsintheNorthWest.

10 Psychologicalsupport Psychologicalsupport 11

Bespoke Cancer Care Programme

BeechwoodCancerCare

www.beechwoodcancercare.org.uk/cancer-care-services/patients/

Initially,aftermakingcontactwiththischarity,youwillbeofferedapersonal,confidentialassessmenttotalkthroughhowyouarefeelingandwhatyourcurrentprioritiesare.Followingthisyouwillbegiventheoptiontotakepartinatailor-madeprogrammeatthecentrebetween10amand3.30pm,onedayaweek,foreightweeks.Alsoonofferarebacktowork,mindfulnessmeditationandbeconfidentprogrammes.

Alongside the care you receive from doctors, nurses and other health professionals you may wish to seek psychological and emotional support.

Itisquiteusualtoexperiencestress,worryandconcernsasaresultofabraintumourdiagnosisortreatment.Itmayleadyoutoexperienceoneormoreofthefollowing,anxiety,uncertaintyaboutthefuture,anger,adjustmentdifficulties,distress,familycommunicationproblems,changesinbodyimage,depression,decision-makingdifficulties,challengesbalancingillnessandtreatmentalongsidethedemandsoflife.

Somepeoplecanfindithelpfultodiscusstheirfeelings,needsandconcernsinaconfidentialspacewithateamexperiencedinhelpingpatientsandthoseclosetothem.Herewehavesomeoptionsforyou.

Psychologicalsupport

Problem Solving and Emotional Counselling

TheGaddumCentre

0161 834 6069 GaddumHouse,6GreatJacksonSt,ManchesterM15 4AX

info@gaddumcentre.co.uk

www.gaddumcentre.co.uk/counselling-more-info/

Weknowthatyousometimesneedhelpdevelopingnewcopingstrategiesduringstressfulperiodsofyourbraintumourjourney.Counsellorsinvolvedwiththisservicecanprovideyouwithbothemotionalandpracticalsupportusinga‘problemsolving’approachwhichcombinesthebestadvocacypracticewiththebestofcounselling.

Emotional Support and Back to Work Scheme

BASIC(BrainandSpinalInjuryCharity)

0161 707 6441 554EcclesNewRoad,SalfordM5 5AP

enquiries@basiccharity.org.uk

www.basiccharity.org.uk

Thischaritycanofferyouvariousemotionalsupportservices,includingcounsellingifyouhavebeenaffectedbyabraintumour.Theycanalsooffervocationalassessments,supportandcounsellingifyourworkhasbeenaffectedbyyourdiagnosisandtreatment.

Wellbeing Counselling Service

MacmillanWellbeingCentre

0161 746 2080 MacmillanWellbeingCentre,IntheGroundsofTraffordGeneralHospital,MoorsideRoad,Davyhulme,ManchesterM41 5SN

cancerinformation-trafford@nhs.net

www.macmillancentretrafford.org

Wesometimesfeelthatweneedtoprotectourlovedonesfromourinnermostworriesandconcernswhichmaypreventusfromtalkingfreely.Itcanbeeasiertotalkwithsomeoneoutsideourusualcircle,suchasacounsellorwhoistrainedtolistenandhelpusworkthroughourdistressanddifficulties.Thisserviceoffersconfidentialcounsellingtoadultsandcarerswhoareaffectedbycancerandotherlife-threateningillnesses.Sessionslastuptoonehourandareusuallyweekly.

Emotional Support for Life-limiting Illnesses

BeingThere 0845 123 23 29 2–4PrimroseAvenue,Urmston,ManchesterM41 0TY

info@beingthere.org.uk

www.beingthere.org.uk/get-support/

Thestaffandvolunteersherearefriendly,approachableandreadytolistentoyourconcernswhetheryouarelivingwithalife-limitingillnessyourselforareinacaringrole.ThecharityhasofficesinNorthandSouthManchester,SalfordandTrafford.

Bury Drop-in Cancer Support

BuryCancerCare 0161 764 6609 AbbeyfieldHouse,406BoltonRoad,BuryBL8 2DA

www.burycancersupportcentre.btck.co.uk

www.facebook.com/burycsc

Thisuniquedrop-inserviceisrunforthosetouchedbycancerincludingpatients,carersandrelatives.Tomakethissupportashassle-freeaspossibletherearenoreferralsnecessaryandyoudon’thavetomakeanappointment.Support,offeredbyqualifiedandexperiencedprofessionals,canbegivenforaslongasyouneeditandisflexibleintermsoflocation.Thestaffherecanofferyouinformation,guidanceandadvice.Thecentrehasacafeservinghomemadefoodanddrinks.

Individual and Group Counselling Sessions

LavenderRibbonCancerSupport

0845 2 088 066 10MarketStreet,Ashton-under-Lyne,LancashireOL6 6BX

info@lavenderribboncs.org

www.lavenderribboncs.org/counselling

Weknowitisusualtoexperiencestress,worryandconcernsasaresultofyourcancerdiagnosisortreatment.Thisserviceoffersonetoone,partnerandgroupcounsellingsupportsessionsforpeopleaffectedbycancerinGreaterManchester.Thiscanhelpyoudiscussyourfeelings,needsandconcerns,inaconfidentialspacewithsomeoneoutsideofyournormalcircleoffriendsandfamily.

Oldham Confidential Counselling Sessions

OldhamCancerSupportCentre

0161 770 8751 TheEnaHughesCentre,ElllesmereStreet,FailsworthM35 9AD

oldhamcancersupportcentre@hotmail.co.uk

www.oldhamcancersupportcentre.com/#!our-services/cx96

Thesecounsellingsessionsareofferedtohelpyouexploreanydifficultissueswhicharehavinganadverseeffectuponyourpsychological,emotionalorphysicalwell-being.Eachsessionisrunbyatrainedcounsellorandlastsforaround50minutes.Therearealsovolunteerdriversonhandtogetyoutoandfromthesessionifyouhavelimitedmobility.

Mindfulness Based Stress Reduction Programme

MindinSalford 0161 212 4880 MindinSalford,TheAngelCentre,1StPhilipsPlace,SalfordM3 6FA

info@mindinsalford.org.uk

www.mindinsalford.org.uk/mindfulness/

This8-weekcoursehasbeenrunningforoverfiveyearsandhasledtodramaticallyreducedstresslevels,bettersleepingpatterns,reducedanxietyandimprovedmoodinattendees.Thecourseteachessimpletechniquesandpracticestogiveyouagreaterabilitytocopewithemotionalupset.

18 Supportgroups Supportgroups 19

Support groups are a place for people to give and receive both emotional and practical support as well as to exchange information.Peoplewithabraintumour,aswellastheirfriendsandfamilies,findsupportgroupstobeavaluableresourcewherepeoplecansharemedicalinformation,getconfirmationthattheirfeelingsare“normal,”educateothers,orjustletoffsteam.Whensomeoneissearchingforasupportgroup,thesinglemostimportantthingtoremembermaybe:ifthegroupdoesn’tfeelrighttoyouordoesn’tmatchyourneeds,tryadifferentgroup.Therearemanyoptionsavailable.

Supportgroups

Bolton Cancer Support Group

07463773924 BoltonHospiceDayUnit,QueensParkStreet,ChorleyNewRoad,BoltonBL1 4QT

juliewhite123@live.co.uk

Thiswelcominggroupprovideyouwithaconfidentialenvironmenttoshareinformation,supportandexperienceswithpeoplewhoknowexactlywhatyou’regoingthrough.Hereyoucanmeetnewpeopleandmakenewfriendswithpeoplewho’vebeeninyourshoes.ThegroupmeetonthethirdWednesdayofeachmonthbetween7pmand9pm.

Living With & Beyond Cancer Support Group

MacmillanCancerSupport

0776 766 3099 PostGraduateCentre,NorthManchesterGeneralHospital,DelaunaysRoad,Crumpsall,ManchesterM8 5RN

a.davenport1@manchester.gov.uk

www.manchestercommunitycentral.org/news/living-and-beyond-cancer-support-group

Thisestablishedgrouphasbeenrunningfortwoyearsandnewmembersarealwayswelcome.Itaimstoprovideasettingwhichpromotescareandsupportforthoseaffectedbycancer.Thereisalivelychateachtimeonadifferentthemewitheveryonesharingandlearningfromeachother.ThegroupmeetsonthesecondThursdayofeveryothermonth10amto12noon.

20 Supportgroups Supportgroups 21

The ‘Beanies’ Support Group

BeechwoodCancerCare

Thisisasupportgroupforanyonewhohashadacancerdiagnosisorwhohas‘been’apatientorcareronaBeechwoodprogramme.ThegroupmeetsonthefirstFridayofeverymonthbetween1pmand3pm.

Oldham Patients’ Support Group

ThisPatients’SupportGroupgivesyoutheopportunitytomeetotherpeopleinasimilarsituationandparticipateinmeaningfuldiscussion.ThesegroupsupportsessionsarefacilitatedbyachemotherapysisterfromChristie’sandbyoneofthecharitiesownCounsellors,butallactivitiesanddiscussiontopicsaredecidedbymembersofthegroup.ThegroupmeetsonthelastWednesdayofeachmonthbetween11amand2pm.

22 Supportforcarers Supportforcarers 23

Being a carer is not a job you apply for. We know. It’s also one of the hardest jobs you might have to do.Youcouldbefacinglookingaftersomeonewithbothacancerdiagnosisandtheprospectofasignificantlydebilitatingneurologicaldisease.Becauseofthisit’simportantthatyougetthehelpyouneedtoo.Thereisalotoutthereforyou.

Supportforcarers

Gateway Support Worker Drop-in

SalfordCarers’Centre

0161 834 6069 SalfordCarers’Centre,1StPhilipsPlace,ChapelStreet,SalfordM3 6FA

carers.centre@salford.gov.uk

www.salfordcarerscentre.co.uk

Thesedrop-insessionsgiveyouachancetotalktotrainedsupportworkerswhocanofferyouadvice,signpostingandsupport.Thesessionsrunfrom10amuntil12noonusuallyeveryWednesday.Themeetingplacevaries;pastsessionshavetakenplaceatPendleton,Eccles,WalkdenandSwintonGateway.

Salford Young Carers and Young Adult Carers Services

SalfordCarersService

www.salfordyoungcarers.org/contact/

www.salfordyoungcarers.org/how-we-can-support-you/

Weknoweveryyoungcarerhasdifferentneedssothisservicecanprovideyouwithindividuallytailoredsupportpackageswhicharedevelopedwiththehelpofanamedsupportworker.Dependingonyoursituationthepackagemayinvolveindividualsupport,specialistsupport,educationand/orfamilysupport.

Bury Carers Drop-in

BuryCarers’Centre

0161 763 4867 BuryCarers’Centre,VictoriaBuildings,9SilverStreet,BuryBL9 0EU

admin@burycarers.com

www.carers.org/local-service/bury

Thesedrop-insessionsgiveyoutheopportunitytoregisterasacarerwithBuryCarersCentreandreceivesomeusefulinformationandadviceoncaring.Moreover,thisinformalandwelcomingenvironmentcanhelpyoumeetothercarersandmakenewfriends.Thereisusuallyfreetea,toastandmaybeevenabitofcakewaitingforyou!ThesessionsareheldeveryFridaymorningbetween10amand12pm.

Carers’ Group and Drop-in

Ifyouarecaringforafamilymemberorfriendthismeetinggroupgivesyouthechancetohaveabreakforafewhours.Thegroupaimstocombatcarerisolationandinsteadprovidecompanionshipandtherealisationthatyouarenotalone.ThecarergroupmeetsonthelastMondayofeachmonthbetween10amand2pmandlunchisprovided.Youcanalsodrop-intothecentreforacupofteaandachatwithoneoftheirvolunteerreceptionistswhowillhaveplentyofrelevantinformationavailable.

Stockport Carers Programme

BeechwoodCancerCare

www.beechwoodcancercare.org.uk/cancer-care-services/carers/

Thischarityworkstoidentifythespecificneedsofeachcareranddeveloptailor-madestrategiestomeetthoseneeds.Carersareinitiallyofferedaseriesof6onetoonesessionswiththeoptiontoexplorecomplementarytherapies.Carerscanalsoaccessamonthly“Dropin”onaTuesdayevening,thisisanopportunitytomeetothersinsimilarsituations,toprovidemutualsupportanddevelopnewfriendships.

Carer Support Group Meetings and Events

ManchesterCarersForum

0161 819 2226 ManchesterCarersForum,GaddumHouse,6GreatJacksonStreet,Manchester,LancashireM15 4AX

info@manchestercarersforum.org.uk

www.manchestercarersforum.org.uk/event-list/events-calendar/

IfyouareacarerlivinginManchester,youcanaccesstheseregularcarersupportforummeetings.Thesemeetingsgiveyoutheopportunitytodiscussanycaringrelatedissuesandlistentotheexperiencesofotherswhohavefacedsimilarday-to-daychallenges.Eachmeetingkicksoffwithacomplimentaryfingerbuffet.Theforummeetingtakesplacebetween12pmand2pmonthefirstMondayofeverymonth.Alsoavailablearemonthlycarersupportgroupsincentral,North,SouthandEastManchesterwithregularguestspeakers,pampertreatmentsandlunchprovided.

Carers’ Coffee Morning

01204 663059 BoltonHospice,QueensParkSt,BoltonBL1 4QT

boltoncancerinfo@nhs.net

Thisservice,runjointlywithBoltonHospiceandBoltonCarersSupport,offersamonthlyCarers’CoffeeMorningifyouarecaringforsomeonewithcancer.Itisanopportunityforyoutotalkwithpeoplewhounderstandwhatyou’regoingthroughandgetinformationandadvice.TheCarers’CoffeeMorningisheldonthefirstMondayofeachmonthbetween10amand12pmatBoltonHospice.

30 Supportforchildren Supportforchildren 31

We often get asked for guidance on having that difficult conversation with a child following a brain tumour diagnosis of a parent, sibling or friend. Therearemanyorganisationsavailablewhichareexperiencedinprovidingspecialisedcareforchildrenaffectedemotionallybycancer.Theseservicescanhelpparentsfeelbetterequippedandmoreconfidentaboutprovidingthesupporttheirchildneedswhilstgivingthechildachancetoexpresstheirthoughtsandfeelingsinasafeenvironment.

Supportforchildren

North Manchester Music Therapy for Children

ChaiCancerCare 0808 808 4567 HeathlandsVillage,HeathlandsDrive,Prestwich,Manchester,LancashireM25 9SB

Thischarity,specificallyaimedattheJewishcommunityinManchester,offersvarioustherapies,includingplay,musicandarttherapy,forchildrenandteenagersdirectlyaffectedbyacancerdiagnosisintheirfamily.Therapistsatthiscentrearespeciallytrainedandqualifiedtosupportchildrenfromtheageoftwo.

Children and Young People’s Counselling

RelateGreaterManchesterSouth

0300 003 2331 GreaterManchesterSouthRelateCentre,346ChesterRoad,Cornbrook,ManchesterM16 9EZ

enquiries@relategms.co.uk

www.relate.org.uk/greater-manchester-south/children-and-young-peoples-counselling

Thiscounsellingservicecanhelpyourchildthroughtoughpatchesbygivingthemachancetotalkaboutanythingthat’sontheirmindinaconfidential,comfortingenvironment.Havingsomeoneoutsideoftheirhomeorschoollifecanreallyhelpthemtoseetheirproblemsinanewlight.

32 Supportforchildren Supportforchildren 33

Manchester Child Play Therapist

ManchesterPlayTherapy

07812 089 760 Variouslocations info@manchesterplaytherapy.co.uk

www.manchesterplaytherapy.co.uk/play-therapy-benefits.html

Playtherapycanhelpyourchildunderstandmuddledfeelingsandupsettingeventsattheirownlevelandattheirownpacewithoutfeelinginterrogatedorthreatened.Playtherapiststypicallyworkwithchildrenaged3–13butcanalsoworkwithadolescentsandevenadultclients.Sessionsareusuallyattendedweeklyforaperiodoftimedecidedonbyyouandtheplaytherapist.

34 Supportlines Supportlines 35

Support lines are an invaluable service available to brain tumour patients and their carers. Theyareoftenavailablewhenaclinicianisn’t,andtheadvicecanbeobjective.Someofthehelplinesaredrivenbypatientandcarerexperience,meaningthepersonontheendofthephonemayknowexactlywhatyouaregoingthrough.Thephonesupportyoureceivemaynotconstitutemedicaladvice,butitwillcomplementitandhelpyoutoanswerquestionsyoumayhave.

Supportlines

brainstrust24/7 Helpline

brainstrust 01983 292405 brainstrust,4YveryCourt,CastleRoad,Cowes,IsleofWightPO31 7QG

hello@brainstrust.org.uk

www.brainstrust.org.uk

Withbrainstrust’s24/7, 365daysayearsupportline,patients,carersandfamiliescanpickupthephoneoremailandknowthattheywillhaveanimmediate,personalresponse.

Cancer Information Nurses

CancerResearchUK

0808 800 4040 www.cancerresearchuk.org Forquestionsaboutcancerorfurtherinformation,youcanspeaktoacancerinformationnurseonMondaytoFriday,between9amand5pm.

Cancer Support Line

0808 808 0000 www.macmillan.org.uk Ifyouhaveanyquestionsaboutcancer,needsupport,orifyoujustwantsomeonetotalkto,youcancallfreeMondaytoFriday,between9amand8pm.

Contact a Nurse Helpline

Brain&SpineFoundation

0808 808 1000 helpline@brainandspine.org.uk

www.brainandspine.org.uk/helpline

Thisfreeandconfidentialhelplineallowsyoutocontactanursetodiscussyourbraintumourdiagnosisandanyqueriesyoumayhave.ItisopenMondaytoThursdaybetween9amand2pmand9amto1pmonFridays.

36 Financialsupport Financialsupport 37

Financialsupport

Macmillan Cancer Grants

0808 808 0000 Various financialguidance@macmilan.org.uk

www.macmillan.org.uk

Theseareoneoffpayments(around250pounds)foradults,youngpeopleorchildrenwithcancer.Toapply,askyourlocalhealthcareprofessionaltosupplyyouwithanapplicationform.Thegrantteamwillreviewtheapplicationandifapproved,paymentsaregenerallysentoutwithin3workingdays.

Pregnancy Grants for Cancer Patients

Mummy’sStar 17 TheCroft,Hadfield,DerbyshireSK13 1HN

info@mummysstar.org

www.mummysstar.org/grants/

Thischarityoffersgrantstosupportandprovidesomefinancialrelieftowomenandtheirfamilieswhohavebeenaffectedbycancerduringpregnancy.Eligiblegrantsinclude,butarenotlimitedto,recompensingforunpaidleave,contributingtothecostofcounsellingservices,payingfortravelcoststoappointments,payingforhomechildcareandpayingforahousecleaner.

Having a brain tumour will, at some point, impact on you financially as well as physically and emotionally. Lookthistigerintheeye.Themorepreparedyouare,themoreyouwillbereadyifyouneedadditionalsupport.Muchbettertobeproactive,thanreactive.Thegoodnewsisthatthereisawealth(pardonthepun)ofhelpoutthere.

Bury Brain Tumour Financial Support

TheJoshuaWilsonBrainTumourCharity

0161 883 2213 TheJoshuaWilsonBrainTumourCharity,WarthBusinessCentre,Suite410,WarthRoad,BuryBL9 9TB

hello@joshwilson.org.uk

www.joshwilson.org.uk/how-can-josh-help/

Thisserviceaimstoprovidespecificfinancialsupporttofamiliesofchildrenwhohaveorhavehadabraintumour,withspecialfocusonthosewhoalsohavepost-surgerydisabilities.Thisfinancialsupportcanincludehelpwiththepurchaseofspecialistequipment,withhomeadaptations,withpost-treatmentholidays,toassistincasesoffinancialhardshipwhereparentshavelostincomeduetobeingunabletoworkwhilecaringfortheirsickchild,andmanyotherinstances.Applicationsforassistanceareconsideredonacasebycasebasisbythecharity’strusteepanel.

Manchester District Nursing Institution Fund

TheGaddumCentre

www.gaddumcentre.co.uk/trust-funds-more-info/

Thesegrantsmaybegivenforreliefforpeopleonlowincome,personswhoaresick,convalescentordisabledbyprovidingorpayingforitemsorserviceswhichwillalleviatesufferingorassistwithrecovery.However,nograntmaybemadedirectlytorelieverates,taxesorotherpublicfunds.

Manchester Relief in Need Fund

TheGaddumCentre

ThistrustfundgrantisavailabletopeoplewholiveinthecitiesofManchester,SalfordandTraffordandrequirefinancialrelief.TheTrusteesmeetduringthelastweekofeverymonth,andapplicationsmustbereceivedbythe15thofeverymonth.Thereisalsoaparalleltrustfundyoucanapplyforwhichfocusesspecificallyonchildreninneedoffinancialassistance.

The Dr Garrett Memorial Trust Fund

TheGaddumCentre

Thegrantprovidesholidaysforchildrenandtheircarerswhohavenothadafundedholidayduringthepastthreeyears.YoumustberesidentintheCityofManchesterandinneedofaholidaybecauseof“sickness,disabilityorpoverty”toreceivethefunds.ThegrantscanalsobemadetofundgroupholidaysandapplicationsmustbereceivedbytheendofAprileachyear.

The Lord Mayor of Manchester Charity Appeal Trust Fund

TheGaddumCentre

Thefundprovidesone-weeklowcostholidaysinGreatBritainforfamilieswhohavenothadafundedholidaytogetherduringthepastthreeyears,whoareonalowincomeandareresidentsintheCityofManchester.ApplicationsmustbesubmittedbyaprofessionalpersononbehalfofthefamilyandmustbereceivedbytheendofAprileachyear.

42 Complementarytherapies Complementarytherapies 43

There are many reasons why people choose to use complementary therapies.Somepeoplefindtheyhelpthemcopewiththestressescausedbycanceranditstreatments.Manytherapiesarerelaxing,andmayliftyourspiritswhenyouaren’tfeelingyourbest.Complementarytherapiesmayhelpyou:l feelbetterandimproveyourqualityoflifel feellessstressed,tenseandanxiousl sleepbetterl withsomeofyourcancersymptomsl withsomeofthesideeffectsofyourcancertreatmentl feelmoreincontrol

Readontofindoutwhatisavailableneartoyou,andplease,remembertoseektheadviceofyourdoctorbeforestartinganynewtherapy.

Complementarytherapies

Oldham Complementary Therapy Service

ThischarityoffersavarietyoftherapiesincludingIndianheadmassage,reflexology,hotandcoldstonetherapy,Thaifootmassage,reiki,holisticfacialsandaromatherapy.Eachsessionlastsroughly45minutesandyourfirstsixarefree.Ifyouhavelimitedmobilitytherearevolunteerdriversavailablewhowillcollectyouatapre-arrangedtimefromyourhome,andthenreturnyouafteryourtreatmentforfree.

44 Complementarytherapies Complementarytherapies 45

Tameside Complementary Therapies

WillowWood 0161 330 1100 WillowWoodHospice,WillowWoodClose,MellorRoad,Ashton-under-LyneOL6 6SL

admin@willowwood.info

www.willowwood.info/patients-and-families/complementary-therapy

Thischarityhasdevelopedacourseoftherapiesfordayhospice,inpatients,andoutpatientstorelievestress,andhelpyouachieveasenseofwell-being.Thetherapiesonofferincludearomatherapy,massage,reflexology,reiki,andhairtreatments.

Therapies for Brain and Spinal Injuries

BASIC(BrainandSpinalInjuryCharity)

0161 241 5334 554EcclesNewRoad,SalfordM5 5AP

bodybasic@basiccharity.org.uk

www.basiccharity.org.uk/complementary-therapies

Thischaritycanofferarangeofcomplementarytherapiestoclientsandcarersincludingaromatherapymassage,acupuncture,reflexologyandmassage.

Wigan Therapy Sessions

Wigan&LeighHospice

01942 525566 Wigan&LeighHospice,KildareStreet,Hindley,WiganWN2 3HZ

info@wlh.org.uk

www.wlh.org.uk/our-care/therapy-services

Thishospiceoffersvarioustherapysessionstofamilymembersaswellaspatients,includingaromatherapy,reflexology,reikiandhopiearcandles.Thesessionstypicallylastanhourandupto12sessionsareavailableforpatientsandupto6sessionsforfamilymembers.Patientsandvisitorscanalsoenjoythepeacefulreflectionroomwheresomemaywishtopray,meditateorlistenquietlytomusic.

Tameside Supportive Treatments for Cancer

www.lavenderribboncs.org/supportive-treatments

Thischarityprovidessupportivetreatmentswhichaimtoalleviatesymptomsassociatedwithadiagnosisofcancerandtheside-effectsoftreatment,throughtheuseofavarietyoftechniques,including;reiki,reflexology,massageandaromatherapy.

46 Holidaysandshortbreaks Holidaysandshortbreaks 47

Going on holiday is a good way to relax and get away from things. Manypeopleliketoplanaholidayfortheendoftheirtreatment.Otherswanttogobeforeorevenduringtreatment.Whetheryou’retravellingforworkorplay,talktoyourdoctorsandnursestohelpyouplan.Theymaybeabletosuggestagoodtimetogo,aswellashelptodecidewhatisrealisticforyou.Herearesomepeoplethatcouldmakeorganisingyournextholidaythatbiteasier.

Holidaysandshortbreaks

Family Holiday Home Breaks

React 020 8940 2575 CalaGranHolidayPark,FleetwoodRd,FleetwoodFY7 8JY

react@reactcharity.org

www.reactcharity.org/holidays.php

Thischaritycanofferyouandyourfamilyaweek-longholidayinoneoftheirthree-bedroomholidayhomesaroundtheUK.Thehomesarelocatedinfamily-friendlyparksandcanaccommodatesixpeopleincomfort.Thehomesareself-cateringandsitefeesareincluded.ThenearestholidayhomeislocatedinCalaGran,Blackpoolwhichisjust2milesfromtheseasidewithplentyofindoorandoutdooractivitiesincludingchildren’ssplashzone,softplayarea,farmandawiderangeofshops,barsandrestaurants.Unfortunately,themobilehomesarenotwheelchairadaptedhowevertheymaybeabletocontributetowardsanequivalentholidayifyousendthemrelevantinformationandprices.

48 Welfareandlegaladvice Welfareandlegaladvice 49

You may be entitled to a range of benefits which can make things easier for you.Butnavigatingthewelfaresystemcanbeahugechallenge,andsometimesyouneedsomeonewhocanguideyouthroughthemazeofhelpthatisavailable.Theseservicesmayalsobeabletoadviseonthingslikegettingabluebadge,yourrightsatworkandotherlegalissuessuchaswillsandpowerofattorney.

Welfareandlegaladvice

Stockport Legal Panel

BeechwoodCancerCare

0161 476 0384 BeechwoodCancerCareCentre,ChelfordGrove,Stockport,CheshireSK3 8LS

www.beechwoodcancercare.org.uk/cancer-care-services/legal-panel/

Weknowthatdealingwithlegalissuescancreatefurtherstressandanxietyatatimethatisalreadyemotionallyexhausting.Thischarityhasjoinedwithanumberoflawyerfirmstoofferhighqualitylegalservicesappropriateforyouandyourfamily.TheLegalPanelhasexpertiseinemploymentlaw,clinicalnegligence,occupationalandindustrialcancer,residentialconveyancing,wills,trusts,probateadviceandpowerofattorney.

Manchester Benefits Advice and Information Hub

CitizensAdviceManchester

03444 111 222 CustomerServiceCentre(GroundFloorExtension),TownHall,AlbertSquare,ManchesterM60 2LA

www.citizensadvicemanchester.org.uk ThisInformationHub,basedatManchesterTownHallCustomerServiceCentre,canofferyouabriefassessment,bookyouanappointmentifneededandhelpyouaccessonlineadviceandinformationorsubmitelectronicforms.ThereisalsoaFreePhoneserviceintheCustomerServiceCentretocalltheCABadviceline.

Cheetham and Crumpsall Benefits Advice

CheethamHillAdviceCentre

0161 740 8999 1MorrowfieldAvenue,CheethamHill,ManchesterM8 1AR

www.cheethamadvice.org.uk Thischarityprovidesconfidentialhelp,advice,informationandsupporttolocalresidentsofCheethamandCrumpsall.Theycanofferadviceonwelfarebenefits,healthservices,debtandmore.

Rochdale Free Legal Advice

RochdaleLawCentre

01706 657766 15 DrakeStreet,RochdaleOL16 1RE

admin@rochdalelawcentre.org.uk

www.rochdalelawcentre.org.uk

Thischarityprovidesfree,independent,highqualityspecialistlegaladviceandrepresentationtoindividualsinGreaterManchesterandsomesurroundingareas.Theyspecialiseinhousingandemploymentmatters.Thereceptionandgeneralofficetelephonelineareopenfrom9amto1pmonMondaysandTuesdaysand9amto2pmWednesdaytoFriday.

Financial and Benefits Advice

www.lavenderribboncs.org/financial-support

Werealiseacancerdiagnosismayimpactonyourabilitytoworkandthatadoptingchangestodietandlifestyle,purchasingnutritionalsupplements,buyingwaterfilters,andotherequipmentthatyoumaybeadvisedtousecanbeincrediblyexpensive.Thischarityprovidesindependent,impartial,confidentialandfreeadviceonbenefits,taxcreditentitlementsandmore.

Welfare Rights and Debt Advice

MindinSalford 0161 212 4880 MindinSalford,TheAngelCentre,1StPhilipsPlace,SalfordM3 6FA

info@mindinsalford.org.uk

www.mindinsalford.org.uk/welfare-rights-and-debt-advice/

ThischarityprovideswelfarerightsanddebtadviceforpeopleinSalfordreceivingtreatmentforamentalhealthcondition,whetherfromtheirGP,Psychiatrist,CPNorotherspecialist.Theadviceisfree,independentandimpartialandwillhelpyoutackleanyfinancialdifficultyyoumaybehaving.TheycanalsohelpyounegotiatetheminefieldofbenefitsfromUniversalCredit,PIP,ESA,JSAandmanyothers,togetthewelfaresupportyouareentitledto.

54 Transportservices Transportservices 55

Getting around if you have a brain tumour can be hard. But it’s something you need to do.Whetherit’sfortreatmentathospital,ortocarryonlivingyourlifetothefullyouwillneedtotravel.Butmanyaffectedbyabraintumourareunabletodrive,andtaxisandpublictransportcanbeexpensiveandconfusing.Don’tworry–youarenotalonehere,andthere’squitealotouttheretogetyouonyourway.

Transportservices

National Concessionary Travel Pass

TransportforGreaterManchester

0161 244 1050 TravelConcessions,CustomerServices,POBox429,ManchesterM60 1HX

concessionary.travel@tfgm.com

www.tfgm.com/journey_planning/Tickets/Pages/tickets_low_fares_disabled.aspx

IfyouarearesidentofGreaterManchesterandhaveadisabilitywhichmakestravelmoredifficultyoucanapplyforaNationalConcessionaryTravelPass(NCTP)issuedbyTransportforGreaterManchester.Ifyouqualify,youcantravelforfreeonlocalbusesanywhereinEnglandbetween9.30amand11pmMondaytoFriday,andalldayatweekendsandonpublicholidays.SomedisabledpeoplewillqualifyforaConcessionPluspasswhichalsoallowsyoutotravelforfreeonbusesatalltimesinGreaterManchester.

Free Ambulance Transport for Hospital Appointments

TheChristie 0161 446 8114 or0161 446 8143

TheChristieNHSFoundationTrust,WilmslowRoad,ManchesterM20 4BX

www.christie.nhs.uk/about-the-christie/visiting-the-christie/ambulance-transport.aspx

IfyouareapatientattendingtheChristieandyourmedicalconditionmeansyoucannotgettoyourappointmentinanyotherwayyoumayaccessthePatientTransportServices(PTS).Ifyouqualify,thisservicecanpre-bookambulancetransporttothehospitalforanyfutureappointmentsyoumayhave.

56 Respiteandendoflifecare Respiteandendoflifecare 57

When you’re caring for someone full-time or for long periods, you need to have breaks otherwise you may start to feel stressed, resentful or even unwell.Andbelieveitornot,thepersonyouarelookingaftermaywantabreakfromyou!Herearesomeorganisationsthatcouldhelpyouunderstandrespitecare,andtheycanalsohelpyouwithplanningforcaretowardstheendoflife,shouldyouneedtodothis.

Respiteandendoflifecare

Specialist Palliative and End of Life Care

WillowWood 0161 330 1100 WillowWoodHospice,WillowWoodClose,Ashton-under-LyneOL6 6SL

www.willowwood.info/patients-and-families/inpatient-care

Thischarityprovidesspecialistpalliativecaretopeopleintheircarewhohavecomplexsymptomsorareattheendoflife.Theyhaveaholisticapproachtoassessmentstakingintoaccountmedical,psychologicalandsocialneeds.Thecaregivenisgenerallyshorttermwithafocusongettingyoubackhomesoyoucanenjoyandgetthemostoutoflife.

Tameside and Glossop Day Hospice Service

dayhospice@willowwood.info

www.willowwood.info/patients-and-families/day-hospice

Weknowthatbeinginafull-timeinpatientenvironmentisnotforeveryone.Withthisservice,youcanreceivespecialistpalliativecareonceaweek.Theserviceincludesassessmentsbyhealthcareprofessionals,symptomcontrolmethods,complementarytherapy,emotionalandpsychologicalsupport,planningforfuturecareanddiversionaltherapiesincludingarts,crafts,gamesandquizzes.

58 Respiteandendoflifecare Respiteandendoflifecare 59

Inpatient, Day and Home Hospice Service

BuryHospice 0161 725 9800 BuryHospice,RochdaleOldRoad,BuryBL9 7RG

www.buryhospice.org.uk Thischarityofferscomprehensiverespitesupportthroughtheirinpatientanddayhospiceservices.Theinpatientcarepromotesahomefromhomeenvironmentwhereyouwillbegivenyourownroomoverlookingthegarden,withyourownTV,telephoneandWi-Fiaccess.Iffull-timehospicecareisnotappropriate,youmaywishtoattendthedayhospiceserviceinsteadasachancetosocialise,unwindandparticipateinarangeofactivitiesandtherapiessuchasquizzes,artsandcrafts,gamesandperformances.Thesupportservicescanalsobeofferedathomeifyouprefer.

Specialist End-of-life Care

Wigan&LeighHospice

info@wlh.org.uk

www.wlh.org.uk/our-care/patient-care

Theinpatientserviceofferedbythishospicecanaccommodatepatientswhoneedspecialistsymptomcontrol,transitionalcarefromthehospitaltohome,urgentrespitecareandendoflifesupport.

60 Bereavementsupport Bereavementsupport 61

Bereavementsupport

Children and Family Bereavement Service

TheGaddumCentre

0161 834 6069 GaddumCentre,6GreatJacksonStreet,ManchesterM15 4AX

www.gaddumcentre.co.uk/bereavement-more-info/

Theservicehas15yearsofexperienceworkingwithyoungpeopleinManchesterandSalfordfollowingbereavement.Thisservicepreferstoallowaperiodtimefollowingadeathbeforeofferingsupporttomakesurethishelpdoesnotinterruptthenormalgrievingprocess.

Adult Bereavement Service

TheGaddumCentre

0161 834 6069 GaddumCentre,6GreatJacksonStreet,ManchesterM15 4AX

www.gaddumcentre.co.uk/bereavement-more-info/bereavement-service-for-adults/

Thesupportofferedbythiscounsellingservicebeginswithaninitialappointmentwithanexperiencedtherapist.Allfuturesessions,alsoledbyexperiencedprofessionals,aretailor-madetohelpalleviateisolation,improvecopingstrategiesandultimatelyhelpyoumoveforwardwithyourlife.

Unfortunately not everyone survives having a brain tumour.Whenapersonyoulookafterdies,youmaybenotonlylosingalovedone,butasacareryoumaybelosingyoursenseofpurposewhenyourcaringroleends.Itmaynotfeellikeit,buttherearemanypeoplewhoyoucanturntoforhelpandsupport,includinghealthandsocialservicesprofessionalswhoarebecomingmoreawareofthisimpact.

Bereavementcareandsupportisavailabletocarers,familyandclosefriendsfromavarietyoforganisations.Familymembersandfriendscanalsoprovideemotionalsupport.

Counselling and Bereavement Centre

ReubensRetreat

01457 680023 Reuben’sRetreat,Suite1,StMichaelsCourt,StMichaelsSquare,StamfordStreetCentral,Ashton-under-LyneOL6 6XN

enquiries@reubensretreat.org

www.reubensretreat.org

ThiscounsellingandbereavementserviceissetinamagnificentbuildinginthePeakDistrict.Heretheyfocusonprovidingcomfortandcounsellingforsiblingsandparentswhohavelosttheirchildtoabraintumour.TheyalsohaveacounsellingsuiteinAshton-under-Lyne.

Stockport Bereavement Group

BeechwoodCancerCare

Thisisarelaxed,flexibleandaccessiblegroupforthosewhohavelostlovedones.Theirsupportaimstobeunderstandingandempathictoyourcircumstances.Meetingsareheldon1stTuesdayofthemonthbetween5pmand7pmandthe3rdWednesdayofthemonthbetween2.30pmand4.30pm.

Bereavement Support Group and Counselling

www.willowwood.info/patients-and-families/bereavement-counselling

Thischarityoffersafreeandconfidentialcounsellingserviceforpatients’relativesandcarers,aswellaschildrenandyoungpeopleaged7 to 17,whohaveexperiencedthedeathofalovedone.Theyhopetoprovideprivate,confidentialandsupportivespacetoexploreandmakesenseofyourexperienceswithoutjudgement.TheyalsohostamonthlyBereavementSupportGroup,onthefirstWednesdayofthemonthbetween6.30and8pm.

Bereavement Counselling and Remembrance Evenings

Wigan&LeighHospice

info@wlh.org.uk

www.wlh.org.uk/our-care/bereavement-care

Thishospiceprovidescareforyourwholebereavementjourneynotjustimmediatelyafteryourloss.Supportbeginsbeforethepersondies,supportingfamily,friendsandcarersofthepatient;preparingthemforthelossofalovedone.Followingthelossofsomeoneinthehospice’scare,trainedcounsellorsandvolunteershelppeoplecometotermswiththeirgriefandtorebuildthemselvesemotionally.Theyalsohostquarterlyremembranceeveningstoprovideaforumforthosewhohaverecentlylostalovedoneinthehospice’scaretocometogetherandrememberthem.

66 Whatcanbrainstrustdotohelp? Whatcanbrainstrustdotohelp? 67

Whatcanbrainstrustdotohelp?

HelpavailableAttimesitmayfeellikeit,butyouarenotalone.Everyoneinthebrainstrustcommunityhasexperienceofwhatitisliketobediagnosedandtolivewithabraintumour.Wecanhelpyoutofeellessisolated–weunderstand.Belowareexamplesofthehelpavailabletoyoufrombrainstrust.Don’thesitatetogetintouchandtalktopeoplewhohavebeenwhereyouarenow.We’llhelpyougetbackontopofthings.

Whatcanbrainstrustdotohelp?Formoreinformationaboutanyoftheseresources,visitwww.brainstrust.org.uk,contacthello@brainstrust.org.ukorcall01983 292 405.

Resourcestokeepyouinformedl InformationStandardcertifiedinformation onourwebsitewww.brainstrust.org.uk.Clear,accurate,balanced,

evidence-basedandup-to-dateinformation,certifiedbytheInformationStandard.

l 24/7helpline Weknowthatyoudon’tjustneedtotalktosomeone9-5.

We’vebeenthere.Weknowthefearsandtheneedtotalktosomeonewhounderstandsatallhours.That’swhyyoucancallusanytime.Open24hoursaday,7daysaweek,thebrainstrusthelplineoffersbraintumourpatientsandcarerssupport,informationandpragmaticadviceoverthephoneandbyemail.Call01983 292405oremailhello@brainstrust.org.uk

l Helpyoutounderstandtheimplicationsofthediagnosis Abraintumourdiagnosiscanbeveryscary,anditisdifficultto

identifywhatyouneedandwanttoknow.Wecanchatthroughtheimpactwithyou,tohelpputyoubackincontrol.

l Interpretationofmedicalrecords Medicaljargonandterminologymaybeusedintherecords.

Ifyouchoosetolookatyourrecords(andyouareentitledto)youmayneedhelpunderstandingthem,sointerpretationcanbeprovided.Contactbrainstrustonhello@brainstrust.org.ukorcall01983 292405.

l Helpyouseekasecondopinion Wearemindfulthateveryonereactstoaseriousdiagnosisin

differentways.Itisyourrighttoseekfurtheropinions,andthiswillempowersomepeople.Somepeoplewouldprefernottoexercisethisright.Somepeopleprefertoknowaslittleaspossibleabouttheirdiagnosis;somepeopleliketorelinquishcontroloftheirsituationtoothers.Alloftheseareperfectlynormalandacceptablewaysofcoping.Andseekingsecond,eventhirdopinionscancauseconfusionandstress.Buttheycaninform,andhelpwithdecision-making.Theycanalsobereassuring.Wecanonlytalkfromourexperience.

Webelievethatyouneedtobeinformedtomakedecisions.Andthatmightmeangatheringinformationandthendecidingnottomakeadecision.That’sadecisiontoo!Formoreinformationonsecondopinions,visit‘Justbeentold?’onwww.brainstrust.org.uk/advice-symptoms.php

l Clearsignposting brainstrustcanpointyoutowardsvaluableresourcestohelpnavigate

yourjourney.

l www.braintumourhub.org.uk Createdforbraintumourpatientsandcarers,thebraintumourhub

isanauthoritative,easytonavigatedatabaseofbraintumoursupportresourcesandUKbasedbraintumourclinicaltrials.Itisintuitive,easytouse,developedwithclinicians,patientsandcarers,andconstantlyevolvingwithregularupdates.

Resourcestohelpyoufeelmoreincontroll Coaching Atbrainstrustwelisten,listensomemoreandthenaskquestions.

Wefocusonachievingspecificimmediategoals,whichrelatetospecificareas.Forexample,weighinguptheprosandconsofhavingaparticulartreatment,orovercomingaproblemwithcaring.Wealsoknowthatthroughcoaching,clientscanexperienceasenseofhealing,astheymakecourageousdecisionsabouttheirlivesandwork.Coachingfocusesonthefutureandthedevelopmentofaworkablesolution.It’saboutdevelopingstrategiesandclaritytoachieveabetterqualityoflife.

l Counselling Whenthereistoomuchdistressandapsychologicalintervention

isneeded,counsellingcanbeuseful.Itissuitableforsomeonewhoisstrugglingtocopeorfeelingveryanxiousanddepressedandthereforefindingithardtofocusonspecificimmediategoals.Counsellinghasabroaderfocusandgreaterdepththancoachingandsoisusuallyaslower-pacedintervention.Itisconcernedwiththeindividualandtheirrelationshiptoself,aswellaswiththeirfamilyandcommunities.Itislesssolutionfocusedthancoaching(sometimesthereisnosolutiontotheproblem)andinsteadaimstohelptheindividualmakesenseofthesituationinwhichtheyfindthemselvesinordertomakebetterdecisionsaboutwhattheywantandneedforthefuture.Insomesituationsformalcounsellingmaynotbeappropriateandinsteadasupportivelisteningrelationshipmightbemoreuseful.

l Hypnotherapy Thereisplentyofevidencethathypnotherapyhelpspeoplewith

cancerandthosewhocareforthem.Hypnotherapycanbeusedasacomplementarytherapyalongsideconventionalmedicaltreatmentsandforanumberofdifferentpurposes.Hypnotherapycanhelpbraintumourpatientsandcarersto:manageanxiety,reducestress,createadifferentexperienceofpain,buildconfidenceandoptimism,prepare

l SnaggleToothSplat www.brainstrust.org.uk/advice-resources.php#7

Writtenforbrainstrusttohelpparentcarersorpatientsbroachabraintumourdiagnosiswiththeirchildren.ItisabeautifullyillustratedbookandhasfeaturedintheBMAnewsletterandOncologynews.Theforwardhasbeenwrittenbythelovelyactressandbrainstrustsupporter,JulieWalters.Ifyouareaparentwhohasbeendiagnosedwithabraintumour,orarelookingafterapoorlylittlepatient,thenyoucanhaveacopyofthisbook,forfree.

l Who’sWHOinYOURclinicalteam www.brainstrust.org.uk/advice-resources.php#6

Manypatientsfindthattheyarelefttomanagetheircarepathwayforthemselves.brainstrusthasdevelopedthishandyresourcetohelpyounavigateyourjourney.Itoutlinesallthehealthcareprofessionalswhomaybeinvolvedinyourjourneyandtellsyouwhatitistheydo.

Written by Karen BoswellIllustrations by Jason Mortimer

forsurgeryandpromotepost-operativehealing,reducesideeffectsoftreatments,e.g.nauseaandfatigue,optimiseahealthylifestyletobuildresilience.

Practicalresourcesyoucanpickupl Brainbox www.brainstrust.org.uk/advice-resources.php#2

Thebrainstrustbrainbox–the‘musthave’supporttoolkitforpeoplewithabraintumourdiagnosisandtheircarers.Weappreciatehowdifficultthingscanbeonceyouarediagnosedwithabraintumour;the‘4.00ammoments’,thetravellingtoandfromappointments,thestreamofquestionsthatpopintoyourhead,tryingtorememberthejobsofallthepeoplethatyou’llmeetonyourjourney,andknowingwhototurntoandwhen.Ajugglingactthatyoudon’tneedwhenyoujustwanttofocusyourenergyonfeelingbetter.Sotoassistbraintumourpatients,weprovidethisuniqueinvaluableaid.

l LittleWhiteBook www.brainstrust.org.uk/advice-resources.php#5

Acomprehensive,easytonavigatecompendiumofUKbraintumoursupportresources.

A compendium of brain tumour support resourcesEdition 1: September 2011

the little

bookwhite Who’s WHO in YOUR clinical team

Version 2.1: December 2013

HYLYW-2.1 version.indd 1

10/02/2014 15:43

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72 Whatcanbrainstrustdotohelp?

Resourcestohelpyoufeellesslonelyl Meetup www.meetup.com/brainstrust

AtabrainstrustMeetup,membersofthebraintumourcommunitygettogethertohavefun.Nomatterwhereyouareonyourjourneyorwhatroleyouhave(suchascarer,patient,healthcareprofessional)youcanshare

experiences,andseekinformationfrompeoplewhoknowwhatyou’regoingthrough.Butonlyifyouwantto.Feelfreetojustcomealongandenjoy.PastMeetupshaveinvolvedpizzaandwine,pubgrub,andcreamteas.

l facebookbrainstrustbraintumoursupportgroup www.facebook.com/groups/braintumoursupportbrainstrust/

Ifyouareonfacebook,youcanjointhisclosedsupportgroupwherealotofveryfriendlypatientsandcarershangout.Itisareallywarmandwelcominggroupwhowillcomfortyou,answerquestions,makeyousmile,andimportantlyareinthesameboatasyou.

l facebookUKbraintumourcarersgroup www.facebook.com/groups/ukbraintumourcarers/

ThisisagrouppageforcarersofpeoplewithbraintumoursintheUK.Itcanbeveryhardandlonelybeingacarer,sothisgroupisforanycarerstoaskothersquestionsaboutcare,offeradvice,haveageneralchat,agoodlaughorrant/soundoffwhenyouneedtowithoutoffendingorupsettingthosetheylookafter.

There are over 55,500 people living with a brain tumour in the UK.brainstrust is the charity and the community that’s here to help thesepeople and those who look after them, whoever they are and no matter where they are on their journey.

We know we don’t have all the answers, but chances are we know someone who does. Get in touch today, for 24/7 help on 01983 292 405or email hello@brainstrust.org.uk

www.brainstrust.org.uk

The little white book – Greater Manchester, edition 1, published by brainstrust October 2016,due for review October 2017.

the little white book - brainstrust · the little book white Greater Manchester . ... Headway Wigan...

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the little white book - Brainstrust, brain tumour charity Support...like to see in here, please get in touch with us on 01983 292 405 or email hello@brainstrust.org.uk This guide would

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