the little white book - brainstrust · the little book white Greater Manchester . ... Headway Wigan...

A directory of resources to help people affected by a brain tumour

Edition 1: October 2016

the little

bookwhite

Greater Manchester

ContentsNetworking 2

Psychological support 10

Support groups 18

Support for carers 22

Support for children 30

Support lines 34

Financial support 36

Complementary therapies 42

Holidays and short breaks 46

Welfare and legal advice 48

Transport services 54

Respite and end of life care 56

Bereavement support 60

What can brainstrust do to help? 66

Introduction 1

IntroductionWeknowhowlostyoucanfeelwhenyouoryourlovedoneisdiagnosedwithabraintumour.Butwealsoknowhowmanyinvaluablesupportservicesthereareavailablelocallythatcanhelpyouateverystepofyourbraintumourjourney.

Hereatbrainstrustwe’vebeenworkingtirelesslywiththehelpofourfantasticvolunteerssearchinghighandlowforuseful,localservicesforpeopleaffectedbyabraintumour.Thisdirectory,focusingonthecharitysector,includesinformationonsomeofthebestoftheseservicesinGreaterManchester.Wehopeyoufindittobeanauthoritativeguideandthatithelpsyouaccesstheseresourcesinyourareaquicklyandwhenyoumostneedthem.

Wemaynothaveincludedeverythingherejustyet,butwehavebeenabletobringtogethermanysourcesofhelpthatwe’recomfortablewithandthatweregularlyrecommendtoourcommunity.Youcanfindthemostuptodateversionofthisinformation,andmoreonlineatwww.braintumourhub.org.uk

Thingschange.Newserviceswillpopup,andsomemaystopoperatingorchangetheirfocus,butwewillbereviewingtheinformationwithinthisdirectoryeveryyear.Ifthereareanyadditionalservicesthatyouwouldliketoseeinhere,pleasegetintouchwithuson01983 292 [email protected]

ThisguidewouldnothavebeenpossiblewithoutthesupportofTheRankFoundation,TheVeraWolstencroftChildrenandAnimalCharitableTrustandtheNationalLotterythroughtheBigLotteryFund.

Wehopeyoufindituseful.

From all the team at brainstrust

2 Networking Networking 3

Servicename Serviceprovider Phonecontact Location Emailandwebaddress Briefdescription

Stockport Social Groups

BeechwoodCancerCare

0161 476 0384 BeechwoodCancerCareCentre,ChelfordGrove,StockportSK3 8LS

[email protected]

www.beechwoodcancercare.org.uk/cancer-care-services/groups/

Thischarityoffersanumberofinteresting,inclusiveandsocialgroups.TheseincludetheBeechwoodchoirforthoseaffectedbycancereveryTuesday,TaiChieveryWednesday,theshed/gardeninggroup,thecraftgroup,theartgroup,andregularcoffeemornings.

Wigan Brain Injury Drop-in

HeadwayWiganandLeigh

0758 083 2106 SunshineHouseCommunityCentre,VauxhallRoad,Wigan,GreaterManchesterWN1 3LU

[email protected]

www.headwaywiganandleigh.co.uk

Thischarityrunregulardrop-insessionsforthoseaffectedbyanacquiredbraininjury.Theyhost12sessionsayearonthelastThursdayofthemonthbetween1pmand3pm.

The essence of networking is to share experiential sympathy and understanding which can be beyond the scope of health care professionals. Networkingalsoallowsyoutomeetothersfromthewidercommunity–notjustthosewhotypicallyattendsupportgroups.Thesepeoplecanincluderesearchers,fundraisers,charityworkersandotherinterestedparties.

Itisimportanttobeawarethatwhilstnetworkingeventscanbeasourceofexcellentinformation,theyaremuchmore‘free-flowing’thanfacilitatedsupportgroups.Thediscussionisnotcontrolled,opinionscanbesubjective,andtheymaynotconstitutemedicaladvice.

Networking



Manchester Cancer Get Togethers

BeingThere 0845 123 23 29 NewMostonClub,64ParkfieldRoadNorth,NewMostonM40 3RQ

[email protected]

www.beingthere.org.uk/get-support/

Hereyou’rewelcometojoininwithanumberof‘gettogethers’forpeoplewithcancer,carersandfamilymemberslivinginGreaterManchester.Theseareinformal,supportivegroupsessionswherepeoplecanmixandhaveachat.Sometimesthegroupshavetalksfromexternalspeakersaswellasrelaxationorartssessions.Transportandrefreshmentsareprovided(suggesteddonation£2).Therearefourgroupsintotal;NorthManchester,SouthManchester,SalfordandTrafford.

North Manchester Yoga, Meditation, Pilates and Walking Group

ChaiCancerCare 0808 808 4567 HeathlandsVillage,HeathlandsDrive,Prestwich,Manchester,LancashireM25 9SB

www.chaicancercare.org/what-we-do/what-our-services-are/groups-activities/

ThischarityfocusesonprovidingservicestoanymembersoftheJewishcommunityaffectedbycancerincludingpatients,familiesandfriends.Thesegroupactivitiesaretheretohelpyouconnectwithotherswhoareinasimilarsituationtoyouwhilstlearningnewskills,keepingfitandhavingfun.



Bolton Cancer Walking Group

BoltonMacmillanCancerInformation&Support

01204 663059 MCISS,GilesHouse,43ChorleyNewRoad,BoltonBL1 4QR

[email protected]

www.boltonmacmillansupport.org.uk/support/local-support-groups

Walkingisaconvenient,cheapandfunwaytoparticipateinaphysicalactivitywhenyouarelivingwithacancerdiagnosis.Allyouneedisapairofcomfortablewalkingshoesandyou’reonestepclosertoincreasedmentalandphysicalwellbeing.ThegroupmeetsonthefirstFridayofeachmonthat1pmatvariousplacesintheBoltonareaallyearround.

Bolton Cancer Voices


01204 595562 or07773164235

TheFriendsMeetingHouse,SilverwellStreet,BoltonBL1 1PP

[email protected]


Thischarityoffersaninspirational,welcomingchoiropentoanyonewhohasreceivedacancerdiagnosisofanytype.Thechoirprovidesapositive,motivationalanddiversionaryenvironmentwheremembershavefun,enjoythechallengesandexhilarationofperformingandhaveafocusasidefromtheirillness.Itoffersaninformalforumtomeetwithothersinasimilarsituationandbenefitfrommutualsupportandunderstanding.Membershipisfreeandthereisnorequirementtoreadmusicorauditionstoworryabout.RehearsalstakeplaceonMondaysbetween7.30pmand9.00pm.



North West Weekly 5K Runs

parkrunUK Variouslocations [email protected]

www.parkrun.org.uk/events

Thesefree,weekly,5kmtimedrunstakeplaceinpleasantparklandsurroundingsthroughouttheUK.Theyareopentopeopleofallabilities,canbecompletedatyourownpace,andcanactasrewardingandsociablestressrelievers.Allrunsstartat9amonSaturdaymorning.Therearecurrently45weeklyparkrunsintheNorthWest.

Jimpilky

Sticky Note

NEW SERVICE - ROW 2

10 Psychologicalsupport Psychologicalsupport 11


Bespoke Cancer Care Programme

BeechwoodCancerCare


[email protected]

www.beechwoodcancercare.org.uk/cancer-care-services/patients/

Initially,aftermakingcontactwiththischarity,youwillbeofferedapersonal,confidentialassessmenttotalkthroughhowyouarefeelingandwhatyourcurrentprioritiesare.Followingthisyouwillbegiventheoptiontotakepartinatailor-madeprogrammeatthecentrebetween10amand3.30pm,onedayaweek,foreightweeks.Alsoonofferarebacktowork,mindfulnessmeditationandbeconfidentprogrammes.

Alongside the care you receive from doctors, nurses and other health professionals you may wish to seek psychological and emotional support.

Itisquiteusualtoexperiencestress,worryandconcernsasaresultofabraintumourdiagnosisortreatment.Itmayleadyoutoexperienceoneormoreofthefollowing,anxiety,uncertaintyaboutthefuture,anger,adjustmentdifficulties,distress,familycommunicationproblems,changesinbodyimage,depression,decision-makingdifficulties,challengesbalancingillnessandtreatmentalongsidethedemandsoflife.

Somepeoplecanfindithelpfultodiscusstheirfeelings,needsandconcernsinaconfidentialspacewithateamexperiencedinhelpingpatientsandthoseclosetothem.Herewehavesomeoptionsforyou.

Psychologicalsupport



Problem Solving and Emotional Counselling

TheGaddumCentre

0161 834 6069 GaddumHouse,6GreatJacksonSt,ManchesterM15 4AX

[email protected]

www.gaddumcentre.co.uk/counselling-more-info/

Weknowthatyousometimesneedhelpdevelopingnewcopingstrategiesduringstressfulperiodsofyourbraintumourjourney.Counsellorsinvolvedwiththisservicecanprovideyouwithbothemotionalandpracticalsupportusinga‘problemsolving’approachwhichcombinesthebestadvocacypracticewiththebestofcounselling.

Emotional Support and Back to Work Scheme

BASIC(BrainandSpinalInjuryCharity)

0161 707 6441 554EcclesNewRoad,SalfordM5 5AP

[email protected]

www.basiccharity.org.uk

Thischaritycanofferyouvariousemotionalsupportservices,includingcounsellingifyouhavebeenaffectedbyabraintumour.Theycanalsooffervocationalassessments,supportandcounsellingifyourworkhasbeenaffectedbyyourdiagnosisandtreatment.

Wellbeing Counselling Service

MacmillanWellbeingCentre

0161 746 2080 MacmillanWellbeingCentre,IntheGroundsofTraffordGeneralHospital,MoorsideRoad,Davyhulme,ManchesterM41 5SN

[email protected]

www.macmillancentretrafford.org

Wesometimesfeelthatweneedtoprotectourlovedonesfromourinnermostworriesandconcernswhichmaypreventusfromtalkingfreely.Itcanbeeasiertotalkwithsomeoneoutsideourusualcircle,suchasacounsellorwhoistrainedtolistenandhelpusworkthroughourdistressanddifficulties.Thisserviceoffersconfidentialcounsellingtoadultsandcarerswhoareaffectedbycancerandotherlife-threateningillnesses.Sessionslastuptoonehourandareusuallyweekly.



Emotional Support for Life-limiting Illnesses

BeingThere 0845 123 23 29 2–4PrimroseAvenue,Urmston,ManchesterM41 0TY

[email protected]

www.beingthere.org.uk/get-support/

Thestaffandvolunteersherearefriendly,approachableandreadytolistentoyourconcernswhetheryouarelivingwithalife-limitingillnessyourselforareinacaringrole.ThecharityhasofficesinNorthandSouthManchester,SalfordandTrafford.

Bury Drop-in Cancer Support

BuryCancerCare 0161 764 6609 AbbeyfieldHouse,406BoltonRoad,BuryBL8 2DA

www.burycancersupportcentre.btck.co.uk

www.facebook.com/burycsc

Thisuniquedrop-inserviceisrunforthosetouchedbycancerincludingpatients,carersandrelatives.Tomakethissupportashassle-freeaspossibletherearenoreferralsnecessaryandyoudon’thavetomakeanappointment.Support,offeredbyqualifiedandexperiencedprofessionals,canbegivenforaslongasyouneeditandisflexibleintermsoflocation.Thestaffherecanofferyouinformation,guidanceandadvice.Thecentrehasacafeservinghomemadefoodanddrinks.

Individual and Group Counselling Sessions

LavenderRibbonCancerSupport

0845 2 088 066 10MarketStreet,Ashton-under-Lyne,LancashireOL6 6BX

[email protected]

www.lavenderribboncs.org/counselling

Weknowitisusualtoexperiencestress,worryandconcernsasaresultofyourcancerdiagnosisortreatment.Thisserviceoffersonetoone,partnerandgroupcounsellingsupportsessionsforpeopleaffectedbycancerinGreaterManchester.Thiscanhelpyoudiscussyourfeelings,needsandconcerns,inaconfidentialspacewithsomeoneoutsideofyournormalcircleoffriendsandfamily.



Oldham Confidential Counselling Sessions

OldhamCancerSupportCentre

0161 770 8751 TheEnaHughesCentre,ElllesmereStreet,FailsworthM35 9AD

[email protected]

www.oldhamcancersupportcentre.com/#!our-services/cx96

Thesecounsellingsessionsareofferedtohelpyouexploreanydifficultissueswhicharehavinganadverseeffectuponyourpsychological,emotionalorphysicalwell-being.Eachsessionisrunbyatrainedcounsellorandlastsforaround50minutes.Therearealsovolunteerdriversonhandtogetyoutoandfromthesessionifyouhavelimitedmobility.

Mindfulness Based Stress Reduction Programme

MindinSalford 0161 212 4880 MindinSalford,TheAngelCentre,1StPhilipsPlace,SalfordM3 6FA

[email protected]

www.mindinsalford.org.uk/mindfulness/

This8-weekcoursehasbeenrunningforoverfiveyearsandhasledtodramaticallyreducedstresslevels,bettersleepingpatterns,reducedanxietyandimprovedmoodinattendees.Thecourseteachessimpletechniquesandpracticestogiveyouagreaterabilitytocopewithemotionalupset.

18 Supportgroups Supportgroups 19

Support groups are a place for people to give and receive both emotional and practical support as well as to exchange information.Peoplewithabraintumour,aswellastheirfriendsandfamilies,findsupportgroupstobeavaluableresourcewherepeoplecansharemedicalinformation,getconfirmationthattheirfeelingsare“normal,”educateothers,orjustletoffsteam.Whensomeoneissearchingforasupportgroup,thesinglemostimportantthingtoremembermaybe:ifthegroupdoesn’tfeelrighttoyouordoesn’tmatchyourneeds,tryadifferentgroup.Therearemanyoptionsavailable.

Supportgroups


Bolton Cancer Support Group


07463773924 BoltonHospiceDayUnit,QueensParkStreet,ChorleyNewRoad,BoltonBL1 4QT

[email protected]


Thiswelcominggroupprovideyouwithaconfidentialenvironmenttoshareinformation,supportandexperienceswithpeoplewhoknowexactlywhatyou’regoingthrough.Hereyoucanmeetnewpeopleandmakenewfriendswithpeoplewho’vebeeninyourshoes.ThegroupmeetonthethirdWednesdayofeachmonthbetween7pmand9pm.

Living With & Beyond Cancer Support Group

MacmillanCancerSupport

0776 766 3099 PostGraduateCentre,NorthManchesterGeneralHospital,DelaunaysRoad,Crumpsall,ManchesterM8 5RN

[email protected]

www.manchestercommunitycentral.org/news/living-and-beyond-cancer-support-group

Thisestablishedgrouphasbeenrunningfortwoyearsandnewmembersarealwayswelcome.Itaimstoprovideasettingwhichpromotescareandsupportforthoseaffectedbycancer.Thereisalivelychateachtimeonadifferentthemewitheveryonesharingandlearningfromeachother.ThegroupmeetsonthesecondThursdayofeveryothermonth10amto12noon.

20 Supportgroups Supportgroups 21


The ‘Beanies’ Support Group

BeechwoodCancerCare


[email protected]


Thisisasupportgroupforanyonewhohashadacancerdiagnosisorwhohas‘been’apatientorcareronaBeechwoodprogramme.ThegroupmeetsonthefirstFridayofeverymonthbetween1pmand3pm.

Oldham Patients’ Support Group



[email protected]


ThisPatients’SupportGroupgivesyoutheopportunitytomeetotherpeopleinasimilarsituationandparticipateinmeaningfuldiscussion.ThesegroupsupportsessionsarefacilitatedbyachemotherapysisterfromChristie’sandbyoneofthecharitiesownCounsellors,butallactivitiesanddiscussiontopicsaredecidedbymembersofthegroup.ThegroupmeetsonthelastWednesdayofeachmonthbetween11amand2pm.

22 Supportforcarers Supportforcarers 23

Being a carer is not a job you apply for. We know. It’s also one of the hardest jobs you might have to do.Youcouldbefacinglookingaftersomeonewithbothacancerdiagnosisandtheprospectofasignificantlydebilitatingneurologicaldisease.Becauseofthisit’simportantthatyougetthehelpyouneedtoo.Thereisalotoutthereforyou.

Supportforcarers


Gateway Support Worker Drop-in

SalfordCarers’Centre

0161 834 6069 SalfordCarers’Centre,1StPhilipsPlace,ChapelStreet,SalfordM3 6FA

[email protected]

www.salfordcarerscentre.co.uk

Thesedrop-insessionsgiveyouachancetotalktotrainedsupportworkerswhocanofferyouadvice,signpostingandsupport.Thesessionsrunfrom10amuntil12noonusuallyeveryWednesday.Themeetingplacevaries;pastsessionshavetakenplaceatPendleton,Eccles,WalkdenandSwintonGateway.

Salford Young Carers and Young Adult Carers Services

SalfordCarersService


www.salfordyoungcarers.org/contact/

www.salfordyoungcarers.org/how-we-can-support-you/

Weknoweveryyoungcarerhasdifferentneedssothisservicecanprovideyouwithindividuallytailoredsupportpackageswhicharedevelopedwiththehelpofanamedsupportworker.Dependingonyoursituationthepackagemayinvolveindividualsupport,specialistsupport,educationand/orfamilysupport.



Bury Carers Drop-in

BuryCarers’Centre

0161 763 4867 BuryCarers’Centre,VictoriaBuildings,9SilverStreet,BuryBL9 0EU

[email protected]

www.carers.org/local-service/bury

Thesedrop-insessionsgiveyoutheopportunitytoregisterasacarerwithBuryCarersCentreandreceivesomeusefulinformationandadviceoncaring.Moreover,thisinformalandwelcomingenvironmentcanhelpyoumeetothercarersandmakenewfriends.Thereisusuallyfreetea,toastandmaybeevenabitofcakewaitingforyou!ThesessionsareheldeveryFridaymorningbetween10amand12pm.

Carers’ Group and Drop-in



[email protected]


Ifyouarecaringforafamilymemberorfriendthismeetinggroupgivesyouthechancetohaveabreakforafewhours.Thegroupaimstocombatcarerisolationandinsteadprovidecompanionshipandtherealisationthatyouarenotalone.ThecarergroupmeetsonthelastMondayofeachmonthbetween10amand2pmandlunchisprovided.Youcanalsodrop-intothecentreforacupofteaandachatwithoneoftheirvolunteerreceptionistswhowillhaveplentyofrelevantinformationavailable.



Stockport Carers Programme

BeechwoodCancerCare


[email protected]

www.beechwoodcancercare.org.uk/cancer-care-services/carers/

Thischarityworkstoidentifythespecificneedsofeachcareranddeveloptailor-madestrategiestomeetthoseneeds.Carersareinitiallyofferedaseriesof6onetoonesessionswiththeoptiontoexplorecomplementarytherapies.Carerscanalsoaccessamonthly“Dropin”onaTuesdayevening,thisisanopportunitytomeetothersinsimilarsituations,toprovidemutualsupportanddevelopnewfriendships.

Carer Support Group Meetings and Events

ManchesterCarersForum

0161 819 2226 ManchesterCarersForum,GaddumHouse,6GreatJacksonStreet,Manchester,LancashireM15 4AX

[email protected]

www.manchestercarersforum.org.uk/event-list/events-calendar/

IfyouareacarerlivinginManchester,youcanaccesstheseregularcarersupportforummeetings.Thesemeetingsgiveyoutheopportunitytodiscussanycaringrelatedissuesandlistentotheexperiencesofotherswhohavefacedsimilarday-to-daychallenges.Eachmeetingkicksoffwithacomplimentaryfingerbuffet.Theforummeetingtakesplacebetween12pmand2pmonthefirstMondayofeverymonth.Alsoavailablearemonthlycarersupportgroupsincentral,North,SouthandEastManchesterwithregularguestspeakers,pampertreatmentsandlunchprovided.



Carers’ Coffee Morning


01204 663059 BoltonHospice,QueensParkSt,BoltonBL1 4QT

[email protected]


Thisservice,runjointlywithBoltonHospiceandBoltonCarersSupport,offersamonthlyCarers’CoffeeMorningifyouarecaringforsomeonewithcancer.Itisanopportunityforyoutotalkwithpeoplewhounderstandwhatyou’regoingthroughandgetinformationandadvice.TheCarers’CoffeeMorningisheldonthefirstMondayofeachmonthbetween10amand12pmatBoltonHospice.

30 Supportforchildren Supportforchildren 31

We often get asked for guidance on having that difficult conversation with a child following a brain tumour diagnosis of a parent, sibling or friend. Therearemanyorganisationsavailablewhichareexperiencedinprovidingspecialisedcareforchildrenaffectedemotionallybycancer.Theseservicescanhelpparentsfeelbetterequippedandmoreconfidentaboutprovidingthesupporttheirchildneedswhilstgivingthechildachancetoexpresstheirthoughtsandfeelingsinasafeenvironment.

Supportforchildren


North Manchester Music Therapy for Children

ChaiCancerCare 0808 808 4567 HeathlandsVillage,HeathlandsDrive,Prestwich,Manchester,LancashireM25 9SB

Thischarity,specificallyaimedattheJewishcommunityinManchester,offersvarioustherapies,includingplay,musicandarttherapy,forchildrenandteenagersdirectlyaffectedbyacancerdiagnosisintheirfamily.Therapistsatthiscentrearespeciallytrainedandqualifiedtosupportchildrenfromtheageoftwo.

Children and Young People’s Counselling

RelateGreaterManchesterSouth

0300 003 2331 GreaterManchesterSouthRelateCentre,346ChesterRoad,Cornbrook,ManchesterM16 9EZ

[email protected]

www.relate.org.uk/greater-manchester-south/children-and-young-peoples-counselling

Thiscounsellingservicecanhelpyourchildthroughtoughpatchesbygivingthemachancetotalkaboutanythingthat’sontheirmindinaconfidential,comfortingenvironment.Havingsomeoneoutsideoftheirhomeorschoollifecanreallyhelpthemtoseetheirproblemsinanewlight.

32 Supportforchildren Supportforchildren 33


Manchester Child Play Therapist

ManchesterPlayTherapy

07812 089 760 Variouslocations [email protected]

www.manchesterplaytherapy.co.uk/play-therapy-benefits.html

Playtherapycanhelpyourchildunderstandmuddledfeelingsandupsettingeventsattheirownlevelandattheirownpacewithoutfeelinginterrogatedorthreatened.Playtherapiststypicallyworkwithchildrenaged3–13butcanalsoworkwithadolescentsandevenadultclients.Sessionsareusuallyattendedweeklyforaperiodoftimedecidedonbyyouandtheplaytherapist.

34 Supportlines Supportlines 35

Support lines are an invaluable service available to brain tumour patients and their carers. Theyareoftenavailablewhenaclinicianisn’t,andtheadvicecanbeobjective.Someofthehelplinesaredrivenbypatientandcarerexperience,meaningthepersonontheendofthephonemayknowexactlywhatyouaregoingthrough.Thephonesupportyoureceivemaynotconstitutemedicaladvice,butitwillcomplementitandhelpyoutoanswerquestionsyoumayhave.

Supportlines


brainstrust24/7 Helpline

brainstrust 01983 292405 brainstrust,4YveryCourt,CastleRoad,Cowes,IsleofWightPO31 7QG

[email protected]

www.brainstrust.org.uk

Withbrainstrust’s24/7, 365daysayearsupportline,patients,carersandfamiliescanpickupthephoneoremailandknowthattheywillhaveanimmediate,personalresponse.

Cancer Information Nurses

CancerResearchUK

0808 800 4040 www.cancerresearchuk.org Forquestionsaboutcancerorfurtherinformation,youcanspeaktoacancerinformationnurseonMondaytoFriday,between9amand5pm.

Cancer Support Line


0808 808 0000 www.macmillan.org.uk Ifyouhaveanyquestionsaboutcancer,needsupport,orifyoujustwantsomeonetotalkto,youcancallfreeMondaytoFriday,between9amand8pm.

Contact a Nurse Helpline

Brain&SpineFoundation

0808 808 1000 [email protected]

www.brainandspine.org.uk/helpline

Thisfreeandconfidentialhelplineallowsyoutocontactanursetodiscussyourbraintumourdiagnosisandanyqueriesyoumayhave.ItisopenMondaytoThursdaybetween9amand2pmand9amto1pmonFridays.

36 Financialsupport Financialsupport 37

Financialsupport


Macmillan Cancer Grants


0808 808 0000 Various [email protected]

www.macmillan.org.uk

Theseareoneoffpayments(around250pounds)foradults,youngpeopleorchildrenwithcancer.Toapply,askyourlocalhealthcareprofessionaltosupplyyouwithanapplicationform.Thegrantteamwillreviewtheapplicationandifapproved,paymentsaregenerallysentoutwithin3workingdays.

Pregnancy Grants for Cancer Patients

Mummy’sStar 17 TheCroft,Hadfield,DerbyshireSK13 1HN

[email protected]

www.mummysstar.org/grants/

Thischarityoffersgrantstosupportandprovidesomefinancialrelieftowomenandtheirfamilieswhohavebeenaffectedbycancerduringpregnancy.Eligiblegrantsinclude,butarenotlimitedto,recompensingforunpaidleave,contributingtothecostofcounsellingservices,payingfortravelcoststoappointments,payingforhomechildcareandpayingforahousecleaner.

Having a brain tumour will, at some point, impact on you financially as well as physically and emotionally. Lookthistigerintheeye.Themorepreparedyouare,themoreyouwillbereadyifyouneedadditionalsupport.Muchbettertobeproactive,thanreactive.Thegoodnewsisthatthereisawealth(pardonthepun)ofhelpoutthere.



Bury Brain Tumour Financial Support

TheJoshuaWilsonBrainTumourCharity

0161 883 2213 TheJoshuaWilsonBrainTumourCharity,WarthBusinessCentre,Suite410,WarthRoad,BuryBL9 9TB

[email protected]

www.joshwilson.org.uk/how-can-josh-help/

Thisserviceaimstoprovidespecificfinancialsupporttofamiliesofchildrenwhohaveorhavehadabraintumour,withspecialfocusonthosewhoalsohavepost-surgerydisabilities.Thisfinancialsupportcanincludehelpwiththepurchaseofspecialistequipment,withhomeadaptations,withpost-treatmentholidays,toassistincasesoffinancialhardshipwhereparentshavelostincomeduetobeingunabletoworkwhilecaringfortheirsickchild,andmanyotherinstances.Applicationsforassistanceareconsideredonacasebycasebasisbythecharity’strusteepanel.

Manchester District Nursing Institution Fund

TheGaddumCentre


[email protected]

www.gaddumcentre.co.uk/trust-funds-more-info/

Thesegrantsmaybegivenforreliefforpeopleonlowincome,personswhoaresick,convalescentordisabledbyprovidingorpayingforitemsorserviceswhichwillalleviatesufferingorassistwithrecovery.However,nograntmaybemadedirectlytorelieverates,taxesorotherpublicfunds.



Manchester Relief in Need Fund

TheGaddumCentre


[email protected]


ThistrustfundgrantisavailabletopeoplewholiveinthecitiesofManchester,SalfordandTraffordandrequirefinancialrelief.TheTrusteesmeetduringthelastweekofeverymonth,andapplicationsmustbereceivedbythe15thofeverymonth.Thereisalsoaparalleltrustfundyoucanapplyforwhichfocusesspecificallyonchildreninneedoffinancialassistance.

The Dr Garrett Memorial Trust Fund

TheGaddumCentre


[email protected]


Thegrantprovidesholidaysforchildrenandtheircarerswhohavenothadafundedholidayduringthepastthreeyears.YoumustberesidentintheCityofManchesterandinneedofaholidaybecauseof“sickness,disabilityorpoverty”toreceivethefunds.ThegrantscanalsobemadetofundgroupholidaysandapplicationsmustbereceivedbytheendofAprileachyear.

The Lord Mayor of Manchester Charity Appeal Trust Fund

TheGaddumCentre


[email protected]


Thefundprovidesone-weeklowcostholidaysinGreatBritainforfamilieswhohavenothadafundedholidaytogetherduringthepastthreeyears,whoareonalowincomeandareresidentsintheCityofManchester.ApplicationsmustbesubmittedbyaprofessionalpersononbehalfofthefamilyandmustbereceivedbytheendofAprileachyear.

42 Complementarytherapies Complementarytherapies 43

There are many reasons why people choose to use complementary therapies.Somepeoplefindtheyhelpthemcopewiththestressescausedbycanceranditstreatments.Manytherapiesarerelaxing,andmayliftyourspiritswhenyouaren’tfeelingyourbest.Complementarytherapiesmayhelpyou:l feelbetterandimproveyourqualityoflifel feellessstressed,tenseandanxiousl sleepbetterl withsomeofyourcancersymptomsl withsomeofthesideeffectsofyourcancertreatmentl feelmoreincontrol

Readontofindoutwhatisavailableneartoyou,andplease,remembertoseektheadviceofyourdoctorbeforestartinganynewtherapy.

Complementarytherapies


Oldham Complementary Therapy Service



[email protected]


ThischarityoffersavarietyoftherapiesincludingIndianheadmassage,reflexology,hotandcoldstonetherapy,Thaifootmassage,reiki,holisticfacialsandaromatherapy.Eachsessionlastsroughly45minutesandyourfirstsixarefree.Ifyouhavelimitedmobilitytherearevolunteerdriversavailablewhowillcollectyouatapre-arrangedtimefromyourhome,andthenreturnyouafteryourtreatmentforfree.

44 Complementarytherapies Complementarytherapies 45


Tameside Complementary Therapies

WillowWood 0161 330 1100 WillowWoodHospice,WillowWoodClose,MellorRoad,Ashton-under-LyneOL6 6SL

[email protected]

www.willowwood.info/patients-and-families/complementary-therapy

Thischarityhasdevelopedacourseoftherapiesfordayhospice,inpatients,andoutpatientstorelievestress,andhelpyouachieveasenseofwell-being.Thetherapiesonofferincludearomatherapy,massage,reflexology,reiki,andhairtreatments.

Therapies for Brain and Spinal Injuries

BASIC(BrainandSpinalInjuryCharity)

0161 241 5334 554EcclesNewRoad,SalfordM5 5AP

[email protected]

www.basiccharity.org.uk/complementary-therapies

Thischaritycanofferarangeofcomplementarytherapiestoclientsandcarersincludingaromatherapymassage,acupuncture,reflexologyandmassage.

Wigan Therapy Sessions

Wigan&LeighHospice

01942 525566 Wigan&LeighHospice,KildareStreet,Hindley,WiganWN2 3HZ

[email protected]

www.wlh.org.uk/our-care/therapy-services

Thishospiceoffersvarioustherapysessionstofamilymembersaswellaspatients,includingaromatherapy,reflexology,reikiandhopiearcandles.Thesessionstypicallylastanhourandupto12sessionsareavailableforpatientsandupto6sessionsforfamilymembers.Patientsandvisitorscanalsoenjoythepeacefulreflectionroomwheresomemaywishtopray,meditateorlistenquietlytomusic.

Tameside Supportive Treatments for Cancer



[email protected]

www.lavenderribboncs.org/supportive-treatments

Thischarityprovidessupportivetreatmentswhichaimtoalleviatesymptomsassociatedwithadiagnosisofcancerandtheside-effectsoftreatment,throughtheuseofavarietyoftechniques,including;reiki,reflexology,massageandaromatherapy.

46 Holidaysandshortbreaks Holidaysandshortbreaks 47

Going on holiday is a good way to relax and get away from things. Manypeopleliketoplanaholidayfortheendoftheirtreatment.Otherswanttogobeforeorevenduringtreatment.Whetheryou’retravellingforworkorplay,talktoyourdoctorsandnursestohelpyouplan.Theymaybeabletosuggestagoodtimetogo,aswellashelptodecidewhatisrealisticforyou.Herearesomepeoplethatcouldmakeorganisingyournextholidaythatbiteasier.

Holidaysandshortbreaks


Family Holiday Home Breaks

React 020 8940 2575 CalaGranHolidayPark,FleetwoodRd,FleetwoodFY7 8JY

[email protected]

www.reactcharity.org/holidays.php

Thischaritycanofferyouandyourfamilyaweek-longholidayinoneoftheirthree-bedroomholidayhomesaroundtheUK.Thehomesarelocatedinfamily-friendlyparksandcanaccommodatesixpeopleincomfort.Thehomesareself-cateringandsitefeesareincluded.ThenearestholidayhomeislocatedinCalaGran,Blackpoolwhichisjust2milesfromtheseasidewithplentyofindoorandoutdooractivitiesincludingchildren’ssplashzone,softplayarea,farmandawiderangeofshops,barsandrestaurants.Unfortunately,themobilehomesarenotwheelchairadaptedhowevertheymaybeabletocontributetowardsanequivalentholidayifyousendthemrelevantinformationandprices.

48 Welfareandlegaladvice Welfareandlegaladvice 49

You may be entitled to a range of benefits which can make things easier for you.Butnavigatingthewelfaresystemcanbeahugechallenge,andsometimesyouneedsomeonewhocanguideyouthroughthemazeofhelpthatisavailable.Theseservicesmayalsobeabletoadviseonthingslikegettingabluebadge,yourrightsatworkandotherlegalissuessuchaswillsandpowerofattorney.

Welfareandlegaladvice


Stockport Legal Panel

BeechwoodCancerCare

0161 476 0384 BeechwoodCancerCareCentre,ChelfordGrove,Stockport,CheshireSK3 8LS

[email protected]

www.beechwoodcancercare.org.uk/cancer-care-services/legal-panel/

Weknowthatdealingwithlegalissuescancreatefurtherstressandanxietyatatimethatisalreadyemotionallyexhausting.Thischarityhasjoinedwithanumberoflawyerfirmstoofferhighqualitylegalservicesappropriateforyouandyourfamily.TheLegalPanelhasexpertiseinemploymentlaw,clinicalnegligence,occupationalandindustrialcancer,residentialconveyancing,wills,trusts,probateadviceandpowerofattorney.

Manchester Benefits Advice and Information Hub

CitizensAdviceManchester

03444 111 222 CustomerServiceCentre(GroundFloorExtension),TownHall,AlbertSquare,ManchesterM60 2LA

www.citizensadvicemanchester.org.uk ThisInformationHub,basedatManchesterTownHallCustomerServiceCentre,canofferyouabriefassessment,bookyouanappointmentifneededandhelpyouaccessonlineadviceandinformationorsubmitelectronicforms.ThereisalsoaFreePhoneserviceintheCustomerServiceCentretocalltheCABadviceline.



Cheetham and Crumpsall Benefits Advice

CheethamHillAdviceCentre

0161 740 8999 1MorrowfieldAvenue,CheethamHill,ManchesterM8 1AR

www.cheethamadvice.org.uk Thischarityprovidesconfidentialhelp,advice,informationandsupporttolocalresidentsofCheethamandCrumpsall.Theycanofferadviceonwelfarebenefits,healthservices,debtandmore.

Rochdale Free Legal Advice

RochdaleLawCentre

01706 657766 15 DrakeStreet,RochdaleOL16 1RE

[email protected]

www.rochdalelawcentre.org.uk

Thischarityprovidesfree,independent,highqualityspecialistlegaladviceandrepresentationtoindividualsinGreaterManchesterandsomesurroundingareas.Theyspecialiseinhousingandemploymentmatters.Thereceptionandgeneralofficetelephonelineareopenfrom9amto1pmonMondaysandTuesdaysand9amto2pmWednesdaytoFriday.

Financial and Benefits Advice



[email protected]

www.lavenderribboncs.org/financial-support

Werealiseacancerdiagnosismayimpactonyourabilitytoworkandthatadoptingchangestodietandlifestyle,purchasingnutritionalsupplements,buyingwaterfilters,andotherequipmentthatyoumaybeadvisedtousecanbeincrediblyexpensive.Thischarityprovidesindependent,impartial,confidentialandfreeadviceonbenefits,taxcreditentitlementsandmore.



Welfare Rights and Debt Advice

MindinSalford 0161 212 4880 MindinSalford,TheAngelCentre,1StPhilipsPlace,SalfordM3 6FA

[email protected]

www.mindinsalford.org.uk/welfare-rights-and-debt-advice/

ThischarityprovideswelfarerightsanddebtadviceforpeopleinSalfordreceivingtreatmentforamentalhealthcondition,whetherfromtheirGP,Psychiatrist,CPNorotherspecialist.Theadviceisfree,independentandimpartialandwillhelpyoutackleanyfinancialdifficultyyoumaybehaving.TheycanalsohelpyounegotiatetheminefieldofbenefitsfromUniversalCredit,PIP,ESA,JSAandmanyothers,togetthewelfaresupportyouareentitledto.

54 Transportservices Transportservices 55

Getting around if you have a brain tumour can be hard. But it’s something you need to do.Whetherit’sfortreatmentathospital,ortocarryonlivingyourlifetothefullyouwillneedtotravel.Butmanyaffectedbyabraintumourareunabletodrive,andtaxisandpublictransportcanbeexpensiveandconfusing.Don’tworry–youarenotalonehere,andthere’squitealotouttheretogetyouonyourway.

Transportservices


National Concessionary Travel Pass

TransportforGreaterManchester

0161 244 1050 TravelConcessions,CustomerServices,POBox429,ManchesterM60 1HX

[email protected]

www.tfgm.com/journey_planning/Tickets/Pages/tickets_low_fares_disabled.aspx

IfyouarearesidentofGreaterManchesterandhaveadisabilitywhichmakestravelmoredifficultyoucanapplyforaNationalConcessionaryTravelPass(NCTP)issuedbyTransportforGreaterManchester.Ifyouqualify,youcantravelforfreeonlocalbusesanywhereinEnglandbetween9.30amand11pmMondaytoFriday,andalldayatweekendsandonpublicholidays.SomedisabledpeoplewillqualifyforaConcessionPluspasswhichalsoallowsyoutotravelforfreeonbusesatalltimesinGreaterManchester.

Free Ambulance Transport for Hospital Appointments

TheChristie 0161 446 8114 or0161 446 8143

TheChristieNHSFoundationTrust,WilmslowRoad,ManchesterM20 4BX

www.christie.nhs.uk/about-the-christie/visiting-the-christie/ambulance-transport.aspx

IfyouareapatientattendingtheChristieandyourmedicalconditionmeansyoucannotgettoyourappointmentinanyotherwayyoumayaccessthePatientTransportServices(PTS).Ifyouqualify,thisservicecanpre-bookambulancetransporttothehospitalforanyfutureappointmentsyoumayhave.

56 Respiteandendoflifecare Respiteandendoflifecare 57

When you’re caring for someone full-time or for long periods, you need to have breaks otherwise you may start to feel stressed, resentful or even unwell.Andbelieveitornot,thepersonyouarelookingaftermaywantabreakfromyou!Herearesomeorganisationsthatcouldhelpyouunderstandrespitecare,andtheycanalsohelpyouwithplanningforcaretowardstheendoflife,shouldyouneedtodothis.

Respiteandendoflifecare


Specialist Palliative and End of Life Care

WillowWood 0161 330 1100 WillowWoodHospice,WillowWoodClose,Ashton-under-LyneOL6 6SL

[email protected]

www.willowwood.info/patients-and-families/inpatient-care

Thischarityprovidesspecialistpalliativecaretopeopleintheircarewhohavecomplexsymptomsorareattheendoflife.Theyhaveaholisticapproachtoassessmentstakingintoaccountmedical,psychologicalandsocialneeds.Thecaregivenisgenerallyshorttermwithafocusongettingyoubackhomesoyoucanenjoyandgetthemostoutoflife.

Tameside and Glossop Day Hospice Service


[email protected]

www.willowwood.info/patients-and-families/day-hospice

Weknowthatbeinginafull-timeinpatientenvironmentisnotforeveryone.Withthisservice,youcanreceivespecialistpalliativecareonceaweek.Theserviceincludesassessmentsbyhealthcareprofessionals,symptomcontrolmethods,complementarytherapy,emotionalandpsychologicalsupport,planningforfuturecareanddiversionaltherapiesincludingarts,crafts,gamesandquizzes.

58 Respiteandendoflifecare Respiteandendoflifecare 59


Inpatient, Day and Home Hospice Service

BuryHospice 0161 725 9800 BuryHospice,RochdaleOldRoad,BuryBL9 7RG

www.buryhospice.org.uk Thischarityofferscomprehensiverespitesupportthroughtheirinpatientanddayhospiceservices.Theinpatientcarepromotesahomefromhomeenvironmentwhereyouwillbegivenyourownroomoverlookingthegarden,withyourownTV,telephoneandWi-Fiaccess.Iffull-timehospicecareisnotappropriate,youmaywishtoattendthedayhospiceserviceinsteadasachancetosocialise,unwindandparticipateinarangeofactivitiesandtherapiessuchasquizzes,artsandcrafts,gamesandperformances.Thesupportservicescanalsobeofferedathomeifyouprefer.

Specialist End-of-life Care

Wigan&LeighHospice


[email protected]

www.wlh.org.uk/our-care/patient-care

Theinpatientserviceofferedbythishospicecanaccommodatepatientswhoneedspecialistsymptomcontrol,transitionalcarefromthehospitaltohome,urgentrespitecareandendoflifesupport.

60 Bereavementsupport Bereavementsupport 61

Bereavementsupport


Children and Family Bereavement Service

TheGaddumCentre

0161 834 6069 GaddumCentre,6GreatJacksonStreet,ManchesterM15 4AX

[email protected]

www.gaddumcentre.co.uk/bereavement-more-info/

Theservicehas15yearsofexperienceworkingwithyoungpeopleinManchesterandSalfordfollowingbereavement.Thisservicepreferstoallowaperiodtimefollowingadeathbeforeofferingsupporttomakesurethishelpdoesnotinterruptthenormalgrievingprocess.

Adult Bereavement Service

TheGaddumCentre

0161 834 6069 GaddumCentre,6GreatJacksonStreet,ManchesterM15 4AX

[email protected]

www.gaddumcentre.co.uk/bereavement-more-info/bereavement-service-for-adults/

Thesupportofferedbythiscounsellingservicebeginswithaninitialappointmentwithanexperiencedtherapist.Allfuturesessions,alsoledbyexperiencedprofessionals,aretailor-madetohelpalleviateisolation,improvecopingstrategiesandultimatelyhelpyoumoveforwardwithyourlife.

Unfortunately not everyone survives having a brain tumour.Whenapersonyoulookafterdies,youmaybenotonlylosingalovedone,butasacareryoumaybelosingyoursenseofpurposewhenyourcaringroleends.Itmaynotfeellikeit,buttherearemanypeoplewhoyoucanturntoforhelpandsupport,includinghealthandsocialservicesprofessionalswhoarebecomingmoreawareofthisimpact.

Bereavementcareandsupportisavailabletocarers,familyandclosefriendsfromavarietyoforganisations.Familymembersandfriendscanalsoprovideemotionalsupport.



Counselling and Bereavement Centre

ReubensRetreat

01457 680023 Reuben’sRetreat,Suite1,StMichaelsCourt,StMichaelsSquare,StamfordStreetCentral,Ashton-under-LyneOL6 6XN

[email protected]

www.reubensretreat.org

ThiscounsellingandbereavementserviceissetinamagnificentbuildinginthePeakDistrict.Heretheyfocusonprovidingcomfortandcounsellingforsiblingsandparentswhohavelosttheirchildtoabraintumour.TheyalsohaveacounsellingsuiteinAshton-under-Lyne.

Stockport Bereavement Group

BeechwoodCancerCare


[email protected]


Thisisarelaxed,flexibleandaccessiblegroupforthosewhohavelostlovedones.Theirsupportaimstobeunderstandingandempathictoyourcircumstances.Meetingsareheldon1stTuesdayofthemonthbetween5pmand7pmandthe3rdWednesdayofthemonthbetween2.30pmand4.30pm.

Bereavement Support Group and Counselling


[email protected]

www.willowwood.info/patients-and-families/bereavement-counselling

Thischarityoffersafreeandconfidentialcounsellingserviceforpatients’relativesandcarers,aswellaschildrenandyoungpeopleaged7 to 17,whohaveexperiencedthedeathofalovedone.Theyhopetoprovideprivate,confidentialandsupportivespacetoexploreandmakesenseofyourexperienceswithoutjudgement.TheyalsohostamonthlyBereavementSupportGroup,onthefirstWednesdayofthemonthbetween6.30and8pm.



Bereavement Counselling and Remembrance Evenings

Wigan&LeighHospice


[email protected]

www.wlh.org.uk/our-care/bereavement-care

Thishospiceprovidescareforyourwholebereavementjourneynotjustimmediatelyafteryourloss.Supportbeginsbeforethepersondies,supportingfamily,friendsandcarersofthepatient;preparingthemforthelossofalovedone.Followingthelossofsomeoneinthehospice’scare,trainedcounsellorsandvolunteershelppeoplecometotermswiththeirgriefandtorebuildthemselvesemotionally.Theyalsohostquarterlyremembranceeveningstoprovideaforumforthosewhohaverecentlylostalovedoneinthehospice’scaretocometogetherandrememberthem.

66 Whatcanbrainstrustdotohelp? Whatcanbrainstrustdotohelp? 67

Whatcanbrainstrustdotohelp?

HelpavailableAttimesitmayfeellikeit,butyouarenotalone.Everyoneinthebrainstrustcommunityhasexperienceofwhatitisliketobediagnosedandtolivewithabraintumour.Wecanhelpyoutofeellessisolated–weunderstand.Belowareexamplesofthehelpavailabletoyoufrombrainstrust.Don’thesitatetogetintouchandtalktopeoplewhohavebeenwhereyouarenow.We’llhelpyougetbackontopofthings.

Whatcanbrainstrustdotohelp?Formoreinformationaboutanyoftheseresources,visitwww.brainstrust.org.uk,[email protected] 292 405.

Resourcestokeepyouinformedl InformationStandardcertifiedinformation onourwebsitewww.brainstrust.org.uk.Clear,accurate,balanced,

evidence-basedandup-to-dateinformation,certifiedbytheInformationStandard.

l 24/7helpline Weknowthatyoudon’tjustneedtotalktosomeone9-5.

We’vebeenthere.Weknowthefearsandtheneedtotalktosomeonewhounderstandsatallhours.That’swhyyoucancallusanytime.Open24hoursaday,7daysaweek,thebrainstrusthelplineoffersbraintumourpatientsandcarerssupport,informationandpragmaticadviceoverthephoneandbyemail.Call01983 [email protected]

l Helpyoutounderstandtheimplicationsofthediagnosis Abraintumourdiagnosiscanbeveryscary,anditisdifficultto

identifywhatyouneedandwanttoknow.Wecanchatthroughtheimpactwithyou,tohelpputyoubackincontrol.

l Interpretationofmedicalrecords Medicaljargonandterminologymaybeusedintherecords.

Ifyouchoosetolookatyourrecords(andyouareentitledto)youmayneedhelpunderstandingthem,sointerpretationcanbeprovided.Contactbrainstrustonhello@brainstrust.org.ukorcall01983 292405.

l Helpyouseekasecondopinion Wearemindfulthateveryonereactstoaseriousdiagnosisin

differentways.Itisyourrighttoseekfurtheropinions,andthiswillempowersomepeople.Somepeoplewouldprefernottoexercisethisright.Somepeopleprefertoknowaslittleaspossibleabouttheirdiagnosis;somepeopleliketorelinquishcontroloftheirsituationtoothers.Alloftheseareperfectlynormalandacceptablewaysofcoping.Andseekingsecond,eventhirdopinionscancauseconfusionandstress.Buttheycaninform,andhelpwithdecision-making.Theycanalsobereassuring.Wecanonlytalkfromourexperience.


Webelievethatyouneedtobeinformedtomakedecisions.Andthatmightmeangatheringinformationandthendecidingnottomakeadecision.That’sadecisiontoo!Formoreinformationonsecondopinions,visit‘Justbeentold?’onwww.brainstrust.org.uk/advice-symptoms.php

l Clearsignposting brainstrustcanpointyoutowardsvaluableresourcestohelpnavigate

yourjourney.

l www.braintumourhub.org.uk Createdforbraintumourpatientsandcarers,thebraintumourhub

isanauthoritative,easytonavigatedatabaseofbraintumoursupportresourcesandUKbasedbraintumourclinicaltrials.Itisintuitive,easytouse,developedwithclinicians,patientsandcarers,andconstantlyevolvingwithregularupdates.

Resourcestohelpyoufeelmoreincontroll Coaching Atbrainstrustwelisten,listensomemoreandthenaskquestions.

Wefocusonachievingspecificimmediategoals,whichrelatetospecificareas.Forexample,weighinguptheprosandconsofhavingaparticulartreatment,orovercomingaproblemwithcaring.Wealsoknowthatthroughcoaching,clientscanexperienceasenseofhealing,astheymakecourageousdecisionsabouttheirlivesandwork.Coachingfocusesonthefutureandthedevelopmentofaworkablesolution.It’saboutdevelopingstrategiesandclaritytoachieveabetterqualityoflife.

l Counselling Whenthereistoomuchdistressandapsychologicalintervention

isneeded,counsellingcanbeuseful.Itissuitableforsomeonewhoisstrugglingtocopeorfeelingveryanxiousanddepressedandthereforefindingithardtofocusonspecificimmediategoals.Counsellinghasabroaderfocusandgreaterdepththancoachingandsoisusuallyaslower-pacedintervention.Itisconcernedwiththeindividualandtheirrelationshiptoself,aswellaswiththeirfamilyandcommunities.Itislesssolutionfocusedthancoaching(sometimesthereisnosolutiontotheproblem)andinsteadaimstohelptheindividualmakesenseofthesituationinwhichtheyfindthemselvesinordertomakebetterdecisionsaboutwhattheywantandneedforthefuture.Insomesituationsformalcounsellingmaynotbeappropriateandinsteadasupportivelisteningrelationshipmightbemoreuseful.

l Hypnotherapy Thereisplentyofevidencethathypnotherapyhelpspeoplewith

cancerandthosewhocareforthem.Hypnotherapycanbeusedasacomplementarytherapyalongsideconventionalmedicaltreatmentsandforanumberofdifferentpurposes.Hypnotherapycanhelpbraintumourpatientsandcarersto:manageanxiety,reducestress,createadifferentexperienceofpain,buildconfidenceandoptimism,prepare


l SnaggleToothSplat www.brainstrust.org.uk/advice-resources.php#7

Writtenforbrainstrusttohelpparentcarersorpatientsbroachabraintumourdiagnosiswiththeirchildren.ItisabeautifullyillustratedbookandhasfeaturedintheBMAnewsletterandOncologynews.Theforwardhasbeenwrittenbythelovelyactressandbrainstrustsupporter,JulieWalters.Ifyouareaparentwhohasbeendiagnosedwithabraintumour,orarelookingafterapoorlylittlepatient,thenyoucanhaveacopyofthisbook,forfree.

l Who’sWHOinYOURclinicalteam www.brainstrust.org.uk/advice-resources.php#6

Manypatientsfindthattheyarelefttomanagetheircarepathwayforthemselves.brainstrusthasdevelopedthishandyresourcetohelpyounavigateyourjourney.Itoutlinesallthehealthcareprofessionalswhomaybeinvolvedinyourjourneyandtellsyouwhatitistheydo.

Written by Karen BoswellIllustrations by Jason Mortimer

forsurgeryandpromotepost-operativehealing,reducesideeffectsoftreatments,e.g.nauseaandfatigue,optimiseahealthylifestyletobuildresilience.

Practicalresourcesyoucanpickupl Brainbox www.brainstrust.org.uk/advice-resources.php#2

Thebrainstrustbrainbox–the‘musthave’supporttoolkitforpeoplewithabraintumourdiagnosisandtheircarers.Weappreciatehowdifficultthingscanbeonceyouarediagnosedwithabraintumour;the‘4.00ammoments’,thetravellingtoandfromappointments,thestreamofquestionsthatpopintoyourhead,tryingtorememberthejobsofallthepeoplethatyou’llmeetonyourjourney,andknowingwhototurntoandwhen.Ajugglingactthatyoudon’tneedwhenyoujustwanttofocusyourenergyonfeelingbetter.Sotoassistbraintumourpatients,weprovidethisuniqueinvaluableaid.

l LittleWhiteBook www.brainstrust.org.uk/advice-resources.php#5

Acomprehensive,easytonavigatecompendiumofUKbraintumoursupportresources.

A compendium of brain tumour support resourcesEdition 1: September 2011

the little

bookwhite Who’s WHO in YOUR clinical team

Version 2.1: December 2013

HYLYW-2.1 version.indd 1

10/02/2014 15:43

A selecti

on

of inform

ation

which ca

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72 Whatcanbrainstrustdotohelp?

Resourcestohelpyoufeellesslonelyl Meetup www.meetup.com/brainstrust

AtabrainstrustMeetup,membersofthebraintumourcommunitygettogethertohavefun.Nomatterwhereyouareonyourjourneyorwhatroleyouhave(suchascarer,patient,healthcareprofessional)youcanshare

experiences,andseekinformationfrompeoplewhoknowwhatyou’regoingthrough.Butonlyifyouwantto.Feelfreetojustcomealongandenjoy.PastMeetupshaveinvolvedpizzaandwine,pubgrub,andcreamteas.

l facebookbrainstrustbraintumoursupportgroup www.facebook.com/groups/braintumoursupportbrainstrust/

Ifyouareonfacebook,youcanjointhisclosedsupportgroupwherealotofveryfriendlypatientsandcarershangout.Itisareallywarmandwelcominggroupwhowillcomfortyou,answerquestions,makeyousmile,andimportantlyareinthesameboatasyou.

l facebookUKbraintumourcarersgroup www.facebook.com/groups/ukbraintumourcarers/

ThisisagrouppageforcarersofpeoplewithbraintumoursintheUK.Itcanbeveryhardandlonelybeingacarer,sothisgroupisforanycarerstoaskothersquestionsaboutcare,offeradvice,haveageneralchat,agoodlaughorrant/soundoffwhenyouneedtowithoutoffendingorupsettingthosetheylookafter.

There are over 55,500 people living with a brain tumour in the UK.brainstrust is the charity and the community that’s here to help thesepeople and those who look after them, whoever they are and no matter where they are on their journey.

We know we don’t have all the answers, but chances are we know someone who does. Get in touch today, for 24/7 help on 01983 292 405or email [email protected]

www.brainstrust.org.uk

The little white book – Greater Manchester, edition 1, published by brainstrust October 2016,due for review October 2017.

© brainstrust 2016.Registered charitable trust, brainstrust is a registered charityin England and Wales (1114634), and Scotland (SC044642)

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