New Hampshire Network Building for Collaboration

Sharon Kaiser, RN BSProject Coordinator

NH Lifespan Respite Grant (2009-2012)

Many Faces of RespiteNovember 2-3, 2011Glendale, Arizona

Baggage Claim

Learning Objectives

• Identify three ways to locate Coalition Members and engage Stakeholders

• Define relationships that provide sustainability for Lifespan Respite Program

• Understand the need for competency-based provider program

Snapshot of NH• Population 1,324,595• 93.1% White• 25% of population is 55 year

or older• 23% are caregiver between 55-

64 yrs & 18% are over 65 yrs• 24% of population is 0-17• 16.6% Children with Special

Health Needs compared (13.9% nationally)

• > 2/3 of families of NH CSHCN report provide health care for child at home

Stakeholders/Coalition Member

Establish the needFind those with a vested interestDeliver your message (data speaks)Get buy-inWho knows whoAny champions – the best approach

Relationships

• Setting the tone for a positive relationshipProvide trust & feels comfortable Leads to shared questionsShared hopes/worriesOver time – strengthens responsive, nurturing relationships with each other

Parallel Process

• What happens in one relationship has an effect on what happens in another

Stress

• Stress in the respite provider and caregiver relationship can add stress to a caregiver- and the person that is being cared for.

Zero to Three 2006

Good News

“The only person we can change is ourselves”

“Any change that we make – in how we respond to someone, our tone of

voice, the words we use, and our body language – encourages the other

person to change as well.”

Self Awareness• Self-awareness gives us important knowledge

about how our own reactions influence our relationship with others.

• Careful observations gives us important information about the unique strengths and needs of others.

• Flexible response helps us use this information about ourselves and others to identify next steps.

Giving and Receiving Information

Our attitudes, beliefs, and valuesInfluences our relationships in important ways

Based on personal histories and experiences, interpretation of messages maybe different than you intended and vise versa.

Lets talk if responses are a puzzle.

Assessing Needs and Resources for CSHCN in NH 2004

Provider Training

• Limited number of respite providers are available and the need is great.

• Respite providers who know and understand specific expectations before they begin will be more likely to commit to staying

• “Experience has shown that even limited training for providers can greatly improve the quality of care for an individual with special needs”

Sharon Kaiser, RN, BSNH Lifespan Respite Project Coordinator

Early Childhood Systems Program SpecialistSpecial Medical Services, Title V, CSHCN

Thayer Building129 Pleasant St

Concord NH 03301skaiser@dhhs.state.nh.us

603-271-4498