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Page 1: DISCLOSURE, PRIVACY & ONLINE BRAND - Cancer and ......DISCLOSURE, PRIVACY & ONLINE BRAND This presentation is intended to provide general information on the topics presented. It is

DISCLOSURE, PRIVACY & ONLINE BRAND

This presentation is intended to provide general information on the topics presented. It is provided with the understanding that the author is not engaged in rendering any legal, medical, or professional services by its publication or distribution. Although this content

was reviewed by a professional, it should not be used as a substitute for professional services. © 2015 Cancer and Careers & Triage Cancer

Rachel Becker, LMSWSenior Manager of Programs, Cancer and Careers

Monica F. Bryant, Esq.Cancer Rights Attorney & COO, Triage Cancer

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CEU Requirements

1. You must register online for this session2. Dial-in to the audio portion of the webinar

Please note that participants who “listen-in” on another participant’s line will not be eligible for credit.

3. Complete the evaluation*4. Complete the post-test & earn a passing grade*

More information on accreditation for webinars: www.cancerandcareers.org/en/community/events/accreditation

If you plan on requesting continuing education credits, you MUST complete all of the following steps:

*An email with links to the evaluation and post test will be sent24 HOURS after the presentation.

Certificates will be emailed within 6 weeks.

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Cancer and Careers empowers and educates people with cancer to thrive in their work environment by

providing expert advice, interactive tools and educational events.

• CancerAndCareers.org• Publications in English and Spanish• Job Search Tools and Resume Review• Professional Development Micro-Grants• Accredited Programs for Healthcare

Professionals

• CancerAndCareers.org/espanol• Balancing Work & Cancer Webinars• Community Events• National and Regional Conferences• On-Site In-Service Trainings

CANCER AND CAREERS

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TRIAGE CANCERTriage Cancer provides information and resources on cancer

survivorship issues through:1. National Speakers Bureau of experts & survivors2. Educational events

a. Seminars, teleconferences, webinars, & conferencesb. Cancer survivorship event planning & support

3. Resources & materials at TriageCancer.orga. Educational blog at TriageCancer.org/blog

Triage Cancer partners with experts in the areas of medicine, mental health, nursing, social work, patient navigation, nutrition, oncofertility, law, employment, education, financial management, insurance, relationships, sexuality and intimacy, pain and

palliative care, advocacy, and other areas of cancer survivorship.

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DIAGNOSIS/WORK DILEMMA

Diagnosis and Work

Treatment  Choices

Emotional Choices

Practical Choices

Strategic Choices

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• How will treatment affect work and schedule?• What are job demands, physical and mental?• How flexible is the work environment?• Can accommodations be made?• What are the financial and health insurance concerns?• How is identity connected to work?• Have career priorities changed?

TO WORK OR NOT TO WORK

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Eligibility• Private employers with 15 or more employees

& State/Local Governments- Note: Federal employees covered by Rehabilitation

Act of 1973 (similar to ADA)- ADA does not apply to tribal employers

• Be a “qualified individual”• Have a disability under the ADA’s definition

AMERICANS WITH DISABILITIES ACT (ADA) – TITLE I

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Definitions• Disability:

- “A physical or mental impairment that substantially limits one or more major life activities”

• Major life activity• Eating, breathing, speaking, walking• ADA Amendments: concentrating, thinking,

sleeping, operation of major bodily functions- Predictable assessments: cell growth

AMERICANS WITH DISABILITIES ACT

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4 ways to use the ADA:• Currently • History • Regarded• Association

Applies to all phases of the employment process

Benefits:• Protection from Discrimination

– Employers can’t make employment-related decisions based on medical information

• Reasonable Accommodations

AMERICANS WITH DISABILITIES ACT

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• Similar to ADA• But, can be more protective in 3 ways

1. Broader definition of disability• Ex: CA, IA, IL, NY, WA, WI

2. Specifically list cancer as a potential disability• Ex: CA, ME, OH, VT

3. Cover employers with fewer than 15 employees

STATE FAIR EMPLOYMENT LAWS

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1 2 3 4 5 6 8 9 12

AKHIILMEMIMNMTNJNDSDVTVAWI

COWY

CT IAKSNMNYOHPARI

CAID

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AR (but 15 for RA’s)

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STATE FAIR EMPLOYMENT LAWSEMPLOYER SIZE

*If state is not listed, it requires 15 employees

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DISCLOSURE RIGHTS

Generally, not required, but may need to disclose information to use . . .• ADA’s discrimination protections

• Reasonable accommodations

• Medical leave

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Employers or prospective employers can ask:

Pre-offer• Can you perform essential functions of the job?• How will you perform essential functions of the job?

Post-offer• Disability-related inquiries or medical exams, regardless

of whether related to job, but only if same for all employees entering same job category

Employed• Any disability-related inquiry or medical exam, ONLY if

job-related and consistent with business necessity

DISCLOSURE RIGHTS

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• Employers ARE entitled to medical certification for RA’s & FMLA• But diagnosis may not be required• Patients should talk to their healthcare team

• Be careful of employer forms and FMLA requirement of healthcare provider's type of practice/specialization

• FMLA health care professional =• MDs, DOs, podiatrists, dentists, clinical psychologists, optometrists,

chiropractors, nurse practitioners, nurse-midwives, clinical social workers, Christian Science practitioners, or any HCP recognized by the employer or the employer's group health plan's benefits manager

• Employers CANNOT:• Ask for copies of medical records• Contact the health care provider for additional info

• FMLA: Only to “authenticate” and “clarify”• ADA: Maybe not w/o employee’s permission

MEDICAL CERTIFICATION

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RESEARCH: SOCIAL MEDIA & HEALTH

• 30% of consumers use social media as a natural habitat for health discussions

• 80% of 18–24 year olds likely to share health information through social media

• 90% of 18–24 year olds would engage in health activities or trust information found via social media

• 45% of 45–64 year olds would be likely to share via social media, while 56% would be likely to engage in health activities

PWC Health Research Institute Survey – April 2012

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CASE STUDY: ANN

• Ann is 38 years old. When she was 27, she was diagnosed with cancer. She participated in a local Relay for Life and was interviewed by the local newspaper about her survivor experience.

• She is now in the midst of changing jobs and she Googled herself to see what was out there. The local newspaper is now online and it comes up when she searches for her name.

• She is worried about a potential employer finding out about her cancer history because of this article.

• What options does Ann have?

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EMPLOYERS GOOGLE

43% of employers use social networking sites to research job 

candidates – Career Builder 6/26/14

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EMPLOYERS GOOGLE

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ONLINE PRIVACY

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• MyLifeline or CaringBridge– Opt into highest level of privacy– Consider who you want to be part of this

community– Think before you share posts from these sites to

other social media

• In general, review privacy policies for any website you are sharing personal info on

ONLINE PRIVACY

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• Google yourself• Use popular social media websites to increase your online

presence– LinkedIn– Twitter– Instagram– Pinterest

• Think strategically about what you post– Would I want a boss--current or future--or coworkers to know this?– Would I want this on the front page of a newspaper (or the home page of

my favorite news site)?– Would I want my grandmother or mother to see this?

• Set up a professional webpage or blog• Delete old posts that no longer represent your interests

– Though they may still exist somewhere in the online space, they become harder to find

BUILDING A PROFESSIONAL ONLINE BRAND

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• Daniela is 38 and was diagnosed with cancer earlier this week. She has worked at a large department store for 3 years. She is using sick time to take time off work for her surgery next week and to recover. She is waiting to hear if she will also need chemotherapy.

• She is concerned about sharing her diagnosis at work. Her supervisor is not very supportive and a co-worker was let go shortly after her husband had a heart attack. She is worried that she might be treated differently or even fired if they find out she has cancer.

• While Daniela is a private person, her mother is addicted to Facebook. Daniela shared her diagnosis with her mother, and soon after her mother posted on Facebook that Daniela has been diagnosed with cancer. Within a few hours, Daniela started receiving phone calls and had to explain her diagnosis to each caller, which left Daniela feeling exhausted.

• What should Daniela be thinking about?

CASE STUDY: DANIELA

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• Disclosure decisions– Then communicate those decisions– What are other people saying about you?

• Long-term impact• Relationships & dating• “Friending” your health care professionals

ONLINE DISCLOSURE

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• Volunteer gigs & jobs in the cancer community (and what they might say about you)

• Background & credit checks• Employer access to voicemail, email, etc.• Google searching at work• Social media password laws

OTHER DIGITAL DIRT

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*National Conference of State Legislatures, Current as of 4/28/15

• In 2012, state began to prevent employers from requesting passwords to personal Internet accounts to get or keep a job

• In 2013, 11 states passed laws: Arkansas, Colorado, Illinois, Nevada, New Jersey, New Mexico, Oregon, Utah, Vermont, Washington

• In 2014, 7 states passed laws: LA, ME, NH, OK, RI, TN, WI

• In 2015, 22 states introduced legislation. Passed by MT & VA

• Some states have also tried to protect students in public colleges and universities from having to grant access to social networking accounts

STATE LAWS: SOCIAL MEDIA

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UPCOMING EVENTS• Balancing Work & Cancer Webinar Series

– Job Search, Wednesday, December 9, 1pm ET/10am PTwww.cancerandcareers.org/en/community/events/webinars

• Educational Series for Healthcare Professionals– Returning to Work, Thursday, October 22, 12pm ET/ 9am PT– Health Insurance Options, Thursday, November 12, 12pm ET/9am PTwww.cancerandcareers.org/en/community/events/healthcare-professionals

• West Coast Conference on Work & Cancer – Friday, Nov 13, Los Angeles, CA, 8:30am – 4:30pm PT

www.cancerandcareers.org/en/community/events/westcoast-conference

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PROGRAMS & RESOURCESCancer and Careers:

• Free Publications (www.cancerandcareers.org/publication_orders/new) • Newsfeed (www.cancerandcareers.org/newsfeed)• Resume Review (www.cancerandcareers.org/resume_reviews/new)• Professional Development Micro-Grants (re-opens Fall 2015)

(http://www.cancerandcareers.org/en/micro-grants)

Triage Cancer:• Educational Blog (www.TriageCancer.org/Blog) • Events (www.TriageCancer.org/Events-Calendar) • Resources

• Quick Guides• State Resource Contact Information

(www.TriageCancer.org/Resources/StateResources) • Health Care Option Finder Tool: (www.TriageCancer.org/Health-Care-

Options)

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Employment Rights & Options:• Equal Employment Opportunity Commission www.EEOC.gov• Job Accommodation Network www.AskJan.org• U.S. Department of Labor (COBRA) www.DOL.gov/EBSA• U.S. Department of Labor (FMLA) www.DOL.gov/WHD• FlexJobs www.flexjobs.com• Workplace Transitions www.workplacetransitions.org

Disability Insurance Rights & Options:• Social Security Administration www.SSA.gov• National Organization of Social Security Claimants’ Representatives

(NOSSCR) www.nosscr.orgLegal Assistance:

• National Cancer Legal Services Network www.NCLSN.org• LawHelp www.lawhelp.org• Lawyer Referral Service

http://apps.americanbar.org/legalservices/lris/directory

RESOURCES

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www.CancerandCareers.org

Kelsey [email protected]

Twitter@CancerAndCareer

Facebookwww.Facebook.com/CancerandCareers

Newslettercancerandcareers.org/en/community/newsletter

www.TriageCancer.org

Monica Bryant, [email protected]

Twitter@TriageCancer

Facebookwww.Facebook.com/TriageCancer

Blogwww.TriageCancer.org/blog

CONTACT INFORMATION

© Cancer and Careers

and Triage Cancer 2015

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CEU Requirements

1. You must register online for this session2. Dial-in to the audio portion of the webinar

Please note that participants who “listen-in” on another participant’s line will not be eligible for credit.

3. Complete the evaluation*4. Complete the post-test & earn a passing grade*

More information on accreditation for webinars: www.cancerandcareers.org/en/community/events/accreditation

If you plan on requesting continuing education credits, you MUST complete all of the following steps:

*An email with links to the evaluation and post test will be sent24 HOURS after the presentation.

Certificates will be emailed within 6 weeks.