DC Supporting Families of People with I/DD Throughout the
Lifespan Community of Practice December 17, 2014 1
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Our Core Team Members 2
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Person Centered Thinking Drives Systems Change What is
Important to What People Like and Admire about Supports Needs To
Stay Happy, Healthy & Safe For a good match: characteristi cs
needed to be present or absent Insert Photo Here 3
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Levels of Change 4
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What do people like and admire about me? Takes good care of his
mom Taking good care of his home for 16 years Advocate for EVERYONE
Outspoken and stands up for what is right Not afraid to call 311
and report something in the community that is not how it should be
Great bowler Not afraid to be who he is He makes me feel more
comfortable in my own skin. Thomass staff What is important to me?
Having control over my life and the way I want to live Being
involved in my community Taking care of my mom Being an advocate
for people who need help Staying informed about current events like
political issues and issues that affect people with disabilities To
be treated with respect Nice smelling bath products (coconut,
cucumber melon, etc.) Going to movies and theater shows Being
around people I like Characteristics of people who best support me:
People who are nice, respectful, dont make judgments and dont think
of me as charity work Someone who can make healthy food taste good,
Ive got taste buds for a reason! Someone willing to be on the go
People who dont need me to agree with everything they say and who
is not going to boss me around. People who are okay with not being
in control, because I am in control Supports I need to be the best
I can be: When my health and mobility issues flares up I need help
cleaning myself, cooking, walking and maybe getting to the hospital
Reading my mail Navigating to all my meetings Preparing for
meetings, I prefer pre- meetings right before the meeting I need to
know what people want me to talk about and what current events are
going on so I stay informed Finding affordable social activities
like theater and movies Thomass Profile 5
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What is Important to TRINITY I love music. I like to play the
drums, piano, and tambourine. Sing songs with me and clap/dance to
the rhythm of the beat. I am relaxed when I can feel my soft
clothes and cross my legs. When I am tired, remove my shoes and
braces so I can rub my feet. I like to play on the swings and slide
at the park. My favorite food-grits and eggs; twizzlers What is
Important to TRINITY I love music. I like to play the drums, piano,
and tambourine. Sing songs with me and clap/dance to the rhythm of
the beat. I am relaxed when I can feel my soft clothes and cross my
legs. When I am tired, remove my shoes and braces so I can rub my
feet. I like to play on the swings and slide at the park. My
favorite food-grits and eggs; twizzlers What People Like and Admire
about TRINITY Beautiful Smile and Spirit Incredibly Loving and
Loveable Giver of great squeeze hugs Acts like little lady Rhythmic
Ability Social Butterfly Comedian-Enjoys laughing Dancing Machine
What People Like and Admire about TRINITY Beautiful Smile and
Spirit Incredibly Loving and Loveable Giver of great squeeze hugs
Acts like little lady Rhythmic Ability Social Butterfly
Comedian-Enjoys laughing Dancing Machine Supports TRINITY Needs To
Stay Happy, Healthy & Safe Obtain eye contact with me before
giving instructionstry singing my name I can hear you best on my
left side. Give me time to process your instructions. Use one word
instructions, Trinity.Come, Sit, Walk, Hands Down Watch my facial
expressions and gestures to understand what I am communicating.
Allow me to visibly examine new things before accepting. I can feed
myself and I get feeds through a gastronomy tube. Make sure my food
is cut up into small pieces (no tough meat). I need assistance
balancing my cup when I am drinking. Although I drink with a straw,
help me control my cup so I do not choke. Help me walk up and down
stairs. Use my wheelchair when I am tired and/or we take long
walks. Keep your eyes on me because I am a determined explorer.
Supports TRINITY Needs To Stay Happy, Healthy & Safe Obtain eye
contact with me before giving instructionstry singing my name I can
hear you best on my left side. Give me time to process your
instructions. Use one word instructions, Trinity.Come, Sit, Walk,
Hands Down Watch my facial expressions and gestures to understand
what I am communicating. Allow me to visibly examine new things
before accepting. I can feed myself and I get feeds through a
gastronomy tube. Make sure my food is cut up into small pieces (no
tough meat). I need assistance balancing my cup when I am drinking.
Although I drink with a straw, help me control my cup so I do not
choke. Help me walk up and down stairs. Use my wheelchair when I am
tired and/or we take long walks. Keep your eyes on me because I am
a determined explorer. Supports, Etc. If you see me flap my arms,
eyes roll back in head and my body straightens (seizure), lay me on
my left side and call 911. I need to get 8-10 hours of rest at
night. If not, I may need cat nap in the day. After I eat, I need
to sit up for at least 15 minutes. Supports, Etc. If you see me
flap my arms, eyes roll back in head and my body straightens
(seizure), lay me on my left side and call 911. I need to get 8-10
hours of rest at night. If not, I may need cat nap in the day.
After I eat, I need to sit up for at least 15 minutes. I LOVE MY
FAMILY!!!! Mommy-Rhonda Daddy-Robert Brothers-Tristan and Tyler
Sissy-Tiffani I LOVE MY FAMILY!!!! Mommy-Rhonda Daddy-Robert
Brothers-Tristan and Tyler Sissy-Tiffani TRINITY GABRIELLE 6
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Level 3 Changes Needed to Support Families of People with I/DD
in D.C. Family-to-family peer support Coordinated services across
the lifespan Supports for self-determination High quality, person
and family centered supports for people with I/DD Comprehensive
supports for people with DD 8
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Work in Progress on Level 3 Changes to Support People with I/DD
& Families Individual and Family Support waiver No Wrong Door
planning grant Draft Citizens with Intellectual Disabilities Civil
Rights Restoration Act Supported Decision-Making Family Support
Council And more to do.... Coordinating agency for children with
disabilities Services for adults with developmental disabilities
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Agenda for Today Working/ Not Working National Perspective,
Mary Lee Faye, NASDDDS Local Perspective, Laura Nuss, DDS Updates
Advocacy DC Parent to Parent PCT Membership Expansion Meet AJE
Thankful and hopeful 10