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www.ResourcesForIntegratedCare.com 1 Dr. Eileen Trigoboff and Dr. Daniel Trigoboff Pain in People With Developmental Disabilities

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Dr. Eileen Trigoboffand Dr. Daniel Trigoboff

Pain in People With Developmental Disabilities

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Pain Management

Module 3

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■ Strategies for Pain Management Behavioral Non-Pharmacologic Pharmacologic

■ Strategies for Pain Management with Co-Existing DD & Psychiatric Symptoms Behavioral Non-Pharmacologic Pharmacologic

■ Prevention of Chronic Pain Syndromes■ Documentation of Pain Management■ Communication

Outline - Module 3

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■ All recipients of health care, whether with a developmental disability or not, have the right to have their pain effectively treated.

■ Health care professionals must consistently address pain symptoms with ongoing assessment, informative documentation, and effective interventions.

Overall Themes of Pain Management

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■ Coping with pain is a skill. ■ Individuals may have some advantages in coping with

pain (high pain thresholds, positive attitudes, excellent focus and control) but the rest of us have to learn how to perform this skill.

Coping with Pain

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■ Learning is maximized when advantages are capitalized upon and there are work-arounds for the disadvantages.

■ People with DD can, and do, learn how to cope with pain.

Learning to Cope

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■ Pain is a complex process■ Interaction of

Sensation Physiology Cognition Emotions Behavior

■ All provide possible intervention points

Behavioral Pain Management

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General Principles of Intervening in Problem and Pain Behaviors:■Behavioral observations

Antecedents Consequences – what is the function? Self-injurious behavior

Behavioral Pain Management

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General Principles of Intervening in Problem and Pain Behaviors (cont’d):■Analysis

Involve observations of the behavior, interpretation of the behavior, and designing a plan based on those interpretations

■Design plan Reinforce positive behavior

■Design of a Plan B and Plan C may be necessary

Behavioral Pain Management

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Behavioral Analysis of Pain■How is pain expressed■When is pain experienced

Anticipatory (tensing before activity) During activity (motor, neurological, skeletal , organ

involvement) Following activity (residual) Chronically Associated with psychological events

Change, Fear, Startle, Anger, Sadness

Behavioral Pain Management

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Behavioral Analysis of Pain (cont’d)■With whom is pain experienced■Where is pain experienced

Behavioral Pain Management

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■ MESIP Environmental Interactional

Behavioral Analysis of Pain

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Behavior Plans■Develop the plan based on behavioral analysis■Plan must be workable for all involved (recipient, caregivers, health care providers)■Plan must be consistently implemented■Evaluation during and following a set time frame prior to moving on to a variation on the plan

Behavioral Pain Management

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■ Sample Behavior Plans■ Alteration of accidental positive reinforcement of pain

complaints■ Differential positive reinforcement of pain coping

behavior■ Alternate schedules for environmental factors and

conditioning■ Skills training

How does each individual learn best?

Behavioral Pain Management

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Pain management using behavioral interventions have the potential to be maximally effective while minimizing the complications inherent in introducing pharmacological compounds into the treatment regimen of someone with DD.

Non-pharmacological Strategies for Pain Management

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Before instituting a behavioral plan, do you need to address pain causes that are■Potential ■Logical■Actual ■Environmental

Non-pharmacological Strategies for Pain Management

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Frequent components of behavioral plans:■Comfort boxes■Sensory experiences■Distraction ■Biofeedback

Non-pharmacological Strategies for DD Pain Management

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Behavioral plan components (depending on the recipient’s tactile sensitivities and tolerance)■Ice■Heat■Acupuncture/acupressure■Massage

Non-pharmacological Strategies for DD Pain Management

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■ Ultrasound■ TENS electrical nerve stimulator■ Vibration■ Cushioning/splinting

Non-pharmacological Strategies for DD Pain Management

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■ Breathing exercises■ Visualization and guided imagery■ Art journaling

Non-pharmacological Strategies for DD Pain Management

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PharmacologicInterventions for DD Pain

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Non-opioids are preferred if medically feasible■Antidepressants

Because depressive reactions amplify pain sensations, antidepressants can be effective in tamping down those reactions

Pharmacologic Strategies

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Non-opioids (cont’d)■Anticonvulsant

Selected anticonvulsants may decrease neurologic hypersensitivity that some pain messages are composed of

Pharmacologic Strategies

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Non-opioids (cont’d)■Anti-anxiety medications are in 2 main classes

Benzodiazepines Non-benzodiazepines

Pharmacological Strategies for Pain Management

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Non-opioids (cont’d)■Muscle relaxants ■OTC – ASA, ibuprofen, acetaminophen, etc.

Pharmacological Strategies for Pain Management

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■ Opioids – not to be dismissed for this population despite disadvantages Scheduled administration Consider patient-controlled analgesia (PCA, coupled with

monitoring to determine effectiveness)

Pharmacological Strategies for Pain Management

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■ Opioids – difficulties for this population include: Substance dependence Constipation Respiratory depression Potential for overdose Tolerance requiring higher doses

Pharmacological Strategies for Pain Management

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■ Acute, procedural, and post-operative pain types can be easier to treat as they have an obvious source and require short-term management.

■ Shorter term treatment usually minimizes consequences of pharmacologic treatment.

Pain Sources Needing This Type ofPain Management

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■ Chronic pain is less predictable and its source more difficult to localize.

■ The long term nature of the pharmacological interventions along with the unlikely full resolution of pain includes many consequences of pharmacological treatment.

Pain Sources Needing This Type ofPain Management

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for Co-Existing DD & Psychiatric Symptoms

Pain Management

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The same cascade of interventions as for pain without psychiatric symptoms:■Behavioral■Non-Pharmacologic■Pharmacologic

Strategies for Pain Management withCo-Existing DD & Psychiatric Symptoms

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■ Observation of behavior in light of established psychiatric diagnosis and history of symptom presentation, interpretation of the behavior, and designing a plan based on those interpretations.

■ As pain is stressful and stress engendered psychiatric symptoms exacerbation, more frequent revisions of plan are necessary

■ Design of a Plan B and Plan C may be necessary

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Behavioral Analysis of Pain■How is pain expressed

Does this expression vary with psychiatric symptom variations

Is there delusional, hallucinatory, mood, or anxiety state contributions to pain expression

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Behavioral Analysis of Pain■When is pain experienced

Before activity (anticipatory) During activity (motor, neurological, skeletal , organ

involvement) Following activity (residual) Chronically Associated with psychiatric symptoms or medication

administration Paranoia, anxiety, depression, mania

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Behavioral Analysis of Pain (cont’d)■With whom is pain experienced

With certain staff members With certain family or visitors With certain types of people

■Where is pain experienced In certain locations During certain activities

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Behavioral Analysis of Pain (cont’d)■Associated with psychiatric symptoms

Anxiety symptoms Depression symptoms Agitation Psychosis

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Behavior Plans■Develop the plan based on behavioral analysis, and the current presence and severity of psychiatric symptoms■Plan must be workable for all involved (recipient, caregivers, health care providers) and have as the goal not only pain management, but maintenance/stabilization of psychiatric symptoms

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Behavior Plans■Plan must be consistently implemented by all staff■Evaluation is more frequent to assure pain management plus psychiatric stabilization

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Sample Behavior Plans

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Sample Behavior Plan for Pain & Psychosis■Differential positive reinforcement of pain coping behavior■Reality orientation■Assist recipient with daily structure and schedule

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Sample Behavior Plan for Pain & Depression■Avoid accidental positive reinforcement of pain complaints■Activity and interaction■Empathic support

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Sample Behavior Plan for Pain & Anxiety■Relaxation procedures■Distraction■Exercise as medically feasible

Behavioral Pain Management for Co-Existing DD & Psychiatric Symptoms

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Before instituting a behavioral plan, examine environmental contributions or causes of both pain and

psychiatric symptoms

Non-pharmacological Strategies for Pain Management for Co-Existing DD & Psychiatric Symptoms

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The same basic components are included in behavioral plans for pain management

for co-existing DD with or without psychiatric symptoms.

The difference for those with psychiatric symptoms is the relevance and safety for each

modality.

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■ Comfort boxes■ Sensory experiences■ Distraction ■ Biofeedback■ Ice■ Heat■ Acupuncture /Acupressure■ Message

Non-pharmacological Strategies for Pain Management for Co-Existing DD & Psychiatric Symptoms

■ Ultrasound■ TENS electrical nerve

stimulator■ Vibration■ Cushioning / splinting■ Visualization & guided

imagery■ Art Journaling■ Breathing exercises

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for Pain & Co-Existing DD & Psychiatric Symptoms

Pharmacologic Interventions

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Because of the sensitivities of people who have DD & psychiatric symptoms, non-opioids are generally used■Antidepressants

Because depressive reactions amplify pain sensations, antidepressants can be effective in treating depression while addressing pain symptoms

Pharmacologic Strategies

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Non-opioids (cont’d)■Anticonvulsant

Selected anticonvulsants that are also mood stabilizers may decrease neurologic hypersensitivity that some pain messages are composed of, while helping recipients maintain a normalized mood state

Pharmacologic Strategies

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Non-opioids (cont’d)■Anti-anxiety medication are classified into 2 groups

Benzodiazepines Non-benzodiazepines

Pharmacological Strategies for Pain Management

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Many people with DD and psychiatric symptoms may already be on an anti-anxiety medication.

The medication or the dosage or dosage time may be changed to also address pain symptoms.

Pharmacological Strategies for Pain Management

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Non-opioids (cont’d)These options for DD pain management are not different when a recipient also experiences psychiatric symptoms

■Muscle relaxants ■OTC – ASA, ibuprofen, acetaminophen, etc.

Pharmacological Strategies for Pain Management

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■ Opioids – not to be dismissed for the DD and co-occurring psychiatric disorder population for pain management, although the risk of dependence is elevated and PCA is not recommended Scheduled administration remains a priority in lieu of prn

Pharmacological Strategies for Pain Management

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■ Opioids – difficulties for this population include: Substance dependence Constipation Respiratory depression Potential for overdose Tolerance requiring higher doses

Pharmacological Strategies for Pain Management

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While not completely avoidable, chronic pain syndromes can be minimized by following these practices:■Scheduled pain medication as opposed to prn administration■Early and often training on coping with pain■Maintain a positive attitude■Positively reinforce all competent coping

Prevention of Chronic Pain Syndromes

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■ Effectiveness of Pain Interventions Via Re-assessment of Pain

■ Observations■ Interpretations■ Examples of Effective and Ineffective Documentation

Documentation of Pain Management

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Adapting Your Communications to Fit the Consumer ■Staff resilience and flexibility ■Conflict of value system

Communication

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Role Play■Staff members who practice transmitting pain communications (using the same disadvantages as the recipient) become more sensitized to the challenges facing the recipient, and generate more effective problem solving.

Communication

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Case Discussions■Take advantage of your expertise by discussing pain cases with each other■This provides an array of options to select from■Clarifies uncertain treatment foci■Energizes and sustains treatment teams

Communication

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Involving others■ Pain is complex and bringing in others to discuss treatment is useful■Take advantage of ethics committees and community involvement■Listen to the voice of relevant published peers

Communication

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■ Ongoing pain assessment and management ■ Improved quality of life

The ultimate goals:

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At the conclusion of the webinar, please fill out the survey that will pop up in your internet browser.

If you don’t see the survey, please follow the link in the follow up email that you will receive tomorrow.

Evaluation Survey

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Lisa [email protected]

(518) 449-2976

Questions / Comments?