What is the information strategy for? - Welcome to … What is the information strategy for? Chapter...

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What is the information strategy for?

Chapter 1

Good information is an important part of making surepeople stay healthy and get thebest care. It supports people toknow about care and treatmentchoices and the quality of services.

This strategy is guided by theHealth and Social Care Act andcovers public health and careand support across England.

The power of information

The focus is on improving accessto information and ensuring thesupport needed to use and understand it.

It is about making sure that everyone benefits equally frominformation about care services.

The Information Strategy aims to make the following things happen:

Information about me and my care

Change the way health andcare professionals and organisations use the informationin our own care records, makingsure that our right to have accessto information about us is supported.

Make sure that anyone whoneeds it gets support to accessand understand informationabout their health and care, sothat they have an equal sayand can be active in their owncare.

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The Information System

Have clear ways to get information about health andcare services. This will include a website that will link to accessible health and care information you can trust.

Encourage health and care professionals to make sure thatthey listen to our feedback anduse information about us tomake the care we get better.

Information to improve health and careservices

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Information Links for joined up care

Make sure that information wegive to any health or care professional is recorded properlyand shared safely so that we donot have to keep telling peoplethe same thing again andagain.


Citizens and members of thecommunity (All of us)

What the Information Strategy means for me?

This strategy will make a difference to everyone involved in healthand social care including:

Patients or service users

Carers (Friends or family members looking after people)

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Health and Care professionals(Doctors, nurses, social-workers,care-workers ...)

Commissioners of health andcare services (Those who choose and buyservices from service providers)

Service providers(People and organisations whoprovide health and social careservices)

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Information and IT specialists(People who make sure that wecan access information on computers)

System Suppliers (People who provide the technology that allows information to be collected,stored and studied)

Information Intermediaries (These are organisations thattake information and data thatis available centrally and present it in different ways suchas interactive formats or apps)

Each of the following chapter sets out the key waysthat this strategy will affect these different people.

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Information about me and my care

Making it easier to look at andshare your health and carerecords will support you to takecontrol of your own care andwork with professionals to makesure that there is ‘no decisionabout me without me’.

However, we want to make sure that your confidential information is kept safe and youcan say who can look at it.

New technologies will help us allto get more involved with howhealth and care services are run.

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Chapter 2The power of information

Things that will happen:

Health and care professionalsand organisations will be askedto make sure they keep clearrecords about your health care.

We will be able to see our GPrecords online by 2015. In timewe will be able to see otherrecords about our care online.

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They will make sure that yourright to have access to yourrecords and information aboutyou is supported.

Commissioners and providers willbe expected to make sure thatanyone who needs it gets supportto access and understand information about their healthand care.

Information in our care recordswill be kept safe and confidential.

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This will ensure they have anequal say and can be active intheir own health care.

What this means for me:

By 2015 I will be able to see myGP records online. In time I willalso be able to see otherrecords about my care online.

I will get the support I need toaccess and understand information about my healthand care, so that I have anequal say and can be active inmy own health care.

It will be important that my information is only shared withthe people I choose and thosewho treat me medically andcare for me professionally.

As a patient or service user

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If I find using computers hard Ican ask my health and careproviders to give me informationin a way that I can understand.

Use the computer to:

• Book appointments and order repeat prescriptions online

• Keep in touch with my health and care professionals electronically

• Use IT and online services to find out how to keep myself well

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If I want I will be able to:


I will be able to access healthand care records about the person / people I care for onlineif I have their permission. This willhelp me to give better supportto the person/people I care for.

Using IT more to communicatewith patients and service userswill support me to provide betterservices and free up my time forthose who need face to facecare.

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As a carer

As a health and care professional


I must make sure that recordsare shared safely so that information can be used to improve a person’s care and make services better for everyone.

I will have a duty to allow mypatients or clients to access theironline records and support themto understand what they mean.

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My organisation will make a planand timetable for all of our patients and service users tohave online access to their care records and other services intime.

We will provide support to enable everyone to access and understand these services.

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As a service provider


Linking Information for joined up care

This is about recording and sharing information about ourhealth and care so that all thedifferent professionals who maylook after us can work togetherto give us better treatment andcare.

In time professionals will be ableto access bits of informationtaken from all of our records thatwill support them to find out thingslike who has access to services,what services need to improve,which treatments work and howservices can be improved to besafer and save money.

By 2015 improvements in theway that GPs and hospitalsrecord and share our recordsand test results will mean thatwe get treatment more quicklyand safely.

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Chapter 3



Information we give to anyhealth or care professional willbe recorded properly andshared safely so that we do nothave to keep telling people thesame thing again and again.

Our own unique NHS numberwill be used on all of our recordsso that they are kept together.

Professionals will be able to access any useful records aboutus online but it will be done in away that will keep our information safe and in oneplace.

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Services across England willhave to use IT systems that canwork together so that informationcan be shared wherever youare.

Health and care professionalsmust be willing to work togetheron this to make it work.


I will be able to get more usefulinformation about services andhow good they are. This will helpme to make better choices.

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As a citizen and member of the community


Wherever I go for my care services, from my GP, to a care home or A&E, professionals willbe able to get the informationthey need about me to makesure I get the best care.

The results of important tests willbe available electronically sothat professionals can find outhow to make me better quickerand I will not have to worry for solong.

Information from my carerecords that will not give awaywho I am will be used to makecare services and treatmentsbetter so that everyone’s healthis improved and money is spentwisely.

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Good information for professionals will make the services they provide better. This will make it easier andquicker for me to explain whatcare and treatment the person I care for is getting.

I will make sure that I record theright information about any treatments and care I give assoon as possible after it is given. I will follow national standardsand link it to the personal NHSnumber.

By recording and sharing information better, I will know more about what my clientsneed and how well the care I am giving them is working.

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As a carer



I will share this information withother health and care professionals and the Healthand Social Care InformationCentre where it can be heldand linked securely. This will helpus all improve health and care.

I will have detailed informationabout my organisation and thepeople we support which willhelp us make our services better.

I will be able to check on thequality of care that services provide and make sure that weget value for money.

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As a commissioner


Information to improve health and care services

Being able to find useful up-to-date information helps usto make choices about ourhealth. It is also important thatwe can give feedback aboutwhat we think of the servicesand care we get so that theycan be improved.

By making it easier for everyoneto get this information from onewebsite we can all begin tomake healthier lifestyle choicesfor ourselves.

This chapter looks at informationabout what we think about thecare we get, how well hospitalswork, what health problems weget and what works best to treatthem.

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From March 2013 it will be easierto find the information we needabout our health care.• 999 will be the number to

call for emergencies• 111 will be the number to

call if you need medical help or advice straight awaybut it is not life threatening

• An ‘online portal’ will link us to information we can trust

Opportunities for other providersto support the Government’score information by producinginformation that is accessible tomore people.

More specialist informationabout telling us what care andtreatment works best will help usto compare services.

More feedback will be collectedso that services can be madebetter.

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A new national information portal will make it easier for meto find information about myhealth and care that I can trust.It will help me to:

Know more about any healthconditions I have.

Know more about what careservices or clinical teams offer sothat I can make choices aboutmy care. I will get support to dothis if I need it.

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I will be able to easily leavefeedback about what I thinkabout the care I have hadwhenever I use health and care services. I will know that itwill be used to make servicesbetter.

I will know that everyone willhave a chance to say what they think about their care and treatment, even if they are notable to use the information portal.

I will be able to use the ‘onlineportal’ to get the information Ineed to help the person I carefor without having to look in lotsof different places. I will be ableto find out about support I canget to help me financially andgive me a break.

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As a carer


I will be able to get informationonline that will help me to decide if I need medical helpand find out what I can do tolead a healthier life.

I will be able to find out aboutgroups and support networksthat I can join to improve myhealth and wellbeing.

I will be able to find out whichorganisations and professionalsare doing the best job.

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As a citizen and member of the community


My time will also be saved because I can quickly get mypatients’/ services users’ recordswhich will contain other useful information about care, treatment and tests they havehad elsewhere.

The public will be able to find outmore about the quality of theservices my organisation provides.I will also be able to find out whatpeople who have used our services thought about them andthis will help me to make thingsbetter.

My patients and service users willknow more about their ownhealth needs and which are thebest services for them.I will need to involve them in deciding which services theyneed, but the fact that theyknow more and are able to workwith me to stay well will save metime in the future.

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The information system

The Government will work tomake it possible for all the information systems that differentorganisations use to work bettertogether so that information canbe shared.

They will be trained and supported to make sure the system works and health andcare professionals will be encouraged to work with them.

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As well as investing in equipment,key health and care staff will be responsible for collecting andrecording all the information.

The Health and Social Care Information Centre will be an online place where all NHS, public health and social care information in England will bekept. Other organisations andthe public will be able to accessthis information to make healthand social care better.


The Information Centre will bewhere all collected feedbackand health and care information is kept and whereeverybody looks for information.

The Information Centre will provide a special secure servicethat allows health professionalsand scientists to get informationabout the health of the population. This will help them todevelop better treatments and medicines for the future.

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As a patient or service user, as a carer, as a citizen and a member of the community

I will know more about my ownhealth and the quality and typeof services that I can get.

Whilst my personal details arekept private, information aboutmy general health and careand what I think about it will beshared and compared with information about everyone else.

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This is to make sure that servicesare made better and that we allhave equal access to them.

As a health and care professional, as a service provider, as a commissioner of care services

I will have a much clearer picture of the health history of individuals.

I will be able to use this to contribute to improvements inhealth and care services and research that will improve thegeneral health of people in England.

I can use information from theInformation Centre to comparetreatments and services and findout what works best to improvecare.

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We hope that this informationhas been helpful.

If you have any questions pleaseask your health and social careprofessionals to explain more.

They may be able to direct youto other people or organisationswho can support you to get thebest access to health and socialcare.

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Call 999 if:you believe you or someoneelse is in a life threatening situation.

Call 111 if:

• You need medical help fast but it is not a 999 emergency

• You think you need to go toAccident and Emergency or need other NHS urgent care services

• You do not know who to call or you do not have a GP

• You need health information or someone to help you decide what to do

Who to call?

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Easy read edited and illustratedby CHANGE www.changepeople.co.uk

http://www.changepeople.co.uk

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