What Do We Do?

Cancer Genetics Service for Wales

An All Wales Service

July ‘98 - June ‘99 inclusive July ‘99 - June ‘00 inclusive July ‘01 - June ‘02 inclusiveJuly ‘00 - June ‘01 inclusiveJuly ‘98 - June ‘99 inclusive July ‘99 - June ‘00 inclusive July ‘01 - June ‘02 inclusiveJuly ‘00 - June ‘01 inclusive

THE SCOPE OF THE SERVICE

Genetics Centre

Locally-based nurse specialists & Clinics

Key

Clinics only

Cancer Centre

The All-Wales Cancer Genetics Service

There are geographical difficulties in delivering an

All-Wales service

Referral Guidelines

Referral Guidelines

GP

Surgeon

Oncologist

Gynaecologist

Other

Genetic Specialist

High

Moderate

Average

Specialist surgical clinic

Genetics

Clinic

screening mammography

Back to Primary care

N Wales

SW Wales

SE Wales

Exam

EvaluationService Pathways

What do we offer?

Information

Risk assessment

Genetic counselling

Education

Genetic testing

Filtering to other

services

Laboratory

Laboratory staff Hunting for

genes that cause cancer

Testing family members to see if they carry the genetic mutation

Research

Evaluating decision aids for familial breast cancer Developing a distraction-based coping intervention for

women undergoing cancer genetic risk assessment Attitudes of men with breast cancer Information and support needs of those at high risk Comparison of brief versus extended genetic counselling

protocols prior to predictive genetic testing for HNPCC The role of rurality in referrals to genetics services Geographical analysis of referrals to CGSW Psychological implications of ovarian cancer screening

What do patients want?

Ongoing contact (not necessarily a clinic appointment)

Newsletter Website

Hence – the Patient Panel