Welcome [] · Web viewWelcome to the eighth annual conference for the New Zealand Disability...

NZDSN Annual Conference 2019

Wednesday 29 and Thursday 20 May

NZDSN Leadership ForumFriday 31 May 2019

Te Papa TongarewaCable Street, Wellington

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ContentsWelcome................................................................................................................5NZDSN Annual Conference 2019...........................................................................7

Day One Programme – Wednesday 29 May 2019...............................................7Day Two Programme – Thursday 30 May 2019..................................................8

Workstream Definitions.........................................................................................9WORKSTREAM ONE – Independent Advocacy Approaches.................................9WORKSTREAM TWO – Supported Decision-Making Models.................................9WORKSTREAM THREE – Achieving Better Employment Outcomes (Employment Symposium)........................................................................................................9WORKSTREAM FOUR – Person Directed Living and Community Options............9WORKSTREAM FIVE – Labour Market Engagement and Workforce Development........................................................................................................................... 9

NZDSN Leadership Forum....................................................................................10Leadership Programme - Friday 31 May 2019..................................................10

Sponsors..............................................................................................................11Gold Sponsor....................................................................................................11Silver Sponsor...................................................................................................11Bronze Sponsors...............................................................................................11Awards Sponsors..............................................................................................11Special Mention................................................................................................11

Exhibitors.............................................................................................................12NZDSN Annual Awards 2019................................................................................13

NZDSN Long Service within the Disabilities Sector - Sponsored by Pai Ake Toru......................................................................................................................... 13NZDSN Leadership Award - Sponsored by the DAA Group...............................13NZDSN Community Choice - Sponsored by Te Pou o te Whakaaro Nui............13NZDSN Most Innovative Technology or Research in 2017/19 - Sponsored by Webcare...........................................................................................................13NZDSN Excellence in Supported Employment Practice - Sponsored by Careerforce.......................................................................................................13NZDSN Best Exhibitor at Conference - Sponsored by Health Metrics...............13

Introducing Our Conference Team.......................................................................14Dr Garth Bennie................................................................................................14Manase Lua - Conference MC...........................................................................14The NZDSN Team.............................................................................................15

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Floor Plans...........................................................................................................16Amokura Gallery – Level 4, Te Papa.................................................................16Exhibitors Lounge – Oceania Room, Level 3, Te Papa......................................16Workshops and Employment Symposium – Te Huinga Centre, Level 3, Te Papa......................................................................................................................... 17

Keynotes and Plenaries.......................................................................................18Wednesday 29 May - Amokura Gallery, Level 4, Te Papa.................................18

Employment: Making It Work: Disable People, Families, Providers, Business and Government Working Together For Great Employment Outcomes........18Local Area Coordination: Transformation Of Supports, Services and Systems – Multiple Evaluations and Learning.................................................................19Housing: The Future of Housing is for Disabled People: A Good Life in the Community or Living on the Margins?...........................................................20

Thursday 30 May - Amokura Gallery, Level 4, Te Papa.....................................22I’ve Seen the Future (of Disability Services); Future Projections and Strategies for Succeeding.............................................................................22Change Leadership for Purpose and Productivity..........................................23SHOW US YOUR STARS..................................................................................24Gerri Pomeroy, DPA.......................................................................................24Progress on the Access for All Campaign......................................................25Supported Decision Making and Independent Advocacy: Safeguarding: A Toolkit”..........................................................................................................26System Transformation – Progress and Challenges.......................................27

Workstream 1......................................................................................................28Wednesday 29 May - Amokura Gallery, Level 4, Te Papa.................................28

Come and Join the Pirate’s Republic..............................................................28Connecting and Interacting on Facebook Safely...........................................28

Thursday 30 May - Amokura Gallery, Level 4, Te Papa.....................................29A Concept for Developing a Comprehensive and Easily Accessible Independent Advocacy Service.....................................................................29

Workstream 2......................................................................................................30Wednesday 29 May - Angus 1&2, Level 3, Te Papa..........................................30

Making Decisions Based on Hope and Possibility..........................................30Peer Treasure: Group Decisions That Unearthed Gold..................................31

Thursday 30 May - Angus 1&2, Level 3, Te Papa..............................................32The Right Fit..................................................................................................32

Employment System (Workstream 3)..................................................................33

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Wednesday 29 May - Rangimarie 1, Te Huinga Centre, Level 3, Te Papa.........33Employment First, Aligning Policy, Funding and Practice..............................33Self-employment for People with Disabilities................................................34A Radical New Approach to Employment......................................................34

Thursday 30 May - Rangimarie 1, Te Huinga Centre, Level 3, Te Papa............35Working It Out Together................................................................................35Professionalising Disability Employment Staff and Maintaining Fidelity to Practice – Are We There Yet?.........................................................................36

Workstream 4......................................................................................................37Wednesday 29 May - Rangimarie 2, Te Huinga Centre, Level 3, Te Papa.........37

Where to IDCCR Act Care Recipients Fit Within the “Bigger Picture”?...........37The Role of Families in Supporting Article 19................................................37

Thursday 30 May - Rangimarie 2, Te Huinga Centre, Level 3, Te Papa............38BILDing Expertise For Behaviour Change......................................................38

Workstream 5......................................................................................................39Wednesday 29 May - Rangimarie 3, Te Huinga Centre, Level 3, Te Papa.........39

Mahi Rawe means Great Work......................................................................39Success Breeds Success – Attracting and Retaining a Vibrant and Diverse Workforce......................................................................................................40

Thursday 30 May - Rangimarie 3, Te Huinga Centre, Level 3, Te Papa............40Value-Based Recruitment..............................................................................40

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Welcome

Welcome to the eighth annual conference for the New Zealand Disability Support Network. Over the next two days you will have the opportunity to hear from many providers, disabled people and family members about their experiences within the sector as well as those who support and work alongside disabled people.

With system transformation now unfolding it is timely to focus on those areas that may need some particular attention. These areas are not just within the disability system design itself, but those aspects of wider public policy development that are critical to successful transformation:

Within the disability system design these include:

Easy and timely access to independent advocacy Establishing supported decision making frameworks for informal and formal contexts Ensuring the integrity of the Kaituhono (Connector) role is sustained Sustainable funding models that get us beyond the uncertainties of political and

financial cycles

Within the wider public policy context:

A legislative and regulatory framework for accessibility Affordable and accessible housing A step change in employment participation rates Addressing income inequality Labour market engagement and workforce development that enables the recruitment

of a diverse, future focused and sustainable workforce

At this year’s conference a parallel Employment Symposium will run alongside the conference programme on day one. This recognises the critical importance of paid employment and its impact on increasing health, wellbeing and financial security outcomes for disabled people.

We extend our greetings to our keynote speakers Ceilee Coulson, Ralph Broad, Roland Naufal, Kate Rush, Lorna Sullivan, Gerri Pomeroy, Warren Forster, Nevil Pierse, Esther Woodbury, Victoria Lessing, Erika Butters and Sue Hobbs. We also extend a very warm welcome to the Minister for Disability Issues, the Hon. Carmel Sepuloni; the Associate Minister for Health, the Hon. Julie Anne Genter and Dr Shane Reti, the Opposition’s Associate Spokesperson for Health.

Conferences are not possible without the immense contribution made by those who present in our workstreams and we extend our sincere thanks to all this year’s workstream presenters, with a special thanks to Peter Smith who has travelled from Australia to present to us. Manase Lua from Te Pou o te Whakaaro Nui will be our MC this year and we are thrilled to have him on board! We would like to sincerely thank the following sponsors for making this event possible and for their continued support of NZDSN:

Conference Sponsors - Lotteries Commission Grants Board, Health Metrics, Careerforce, Ministry for Social Development and the Ministry of Health

Awards Sponsors – DAA Group, Pai Ake Toru, Webcare, Te Pou of te Whakaaro Nui, Careerforce and Health Metrics

Cocktail Function Sponsor – Health Metrics Anderson Design for their continuing generosity with the design and supply of our

awards trophies

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Our Exhibitor’s Lounge has never been so well subscribed and we literally have the largest contingent ever. We have a large number of new exhibitors this year and a group of budding entrepreneurs who are showcasing their products. We strongly encourage you to visit every one of them.

This year we continue with the success of our NZDSN Awards and take the opportunity to congratulate both the nominees and winners in each category.

Lastly, we would like to thank you, our presenters, delegates and exhibitors, for attending this year’s conference. We would also like to extend a special thanks to the NZDSN Management Team who work hard and continually strive for excellence year-round, our Board Members who serve us diligently and with passion and the Committee who have worked hard to bring you this year’s conference.

Again, welcome to this year’s New Zealand Disability Support Network’s Annual Conference 2019. We hope it will inspire and motivate you.

Garth Bennie, NZDSN CEO Sharon Saxton, NZDSN Chair

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NZDSN Annual Conference 2019Day One Programme – Wednesday 29 May 2019

8.30 am Powhiri and Morning Tea in the Exhibitor’s Lounge10.00 am Welcome – MC 10.10 am Garth Bennie, CEO, NZDSN10.30 am Keynote – Cesilee Coulson, Executive Director, WISE Seattle

Employment: “Making it Work: Disabled people, families, providers, business and government working together for great employment outcomes”11.15 am Keynote – Ralph Broad, Inclusive Neighbourhoods and Local Area Coordination Network

Local Area Coordination: Transformation of supports, services and systems – multiple evaluations and learning12.00 pm Keynote – Minister for Disability Issues, Hon. Carmel Sepuloni12.30 pm Lunch in the Exhibitor’s Lounge1.15 pm Keynote – Nevil Pierse, University of Otago & Esther Woodbury (DPA Member)

Housing: “The Future of Housing for Disabled People: A good life in the Community or living on the margins?”2.00 pm Other Workstreams Commence

Workstream 1Independent Advocacy

ApproachesAmokura Gallery

Workstream 2Supported Decision Making

ModelsAngus 1 & 2

Workstream 3Employment Symposium

Rangimarie 1Karen Scott, MC

Workstream 4Person Directed Living and

Community OptionsRangimarie 2

Workstream 5Labour Market Engagement and Workforce Development

Rangimarie 31.15 pm Amokura Gallery Amokura Gallery

Employment First, Aligning policy, funding and practiceCesilee Coulson, WISE

Amokura Gallery Amokura Gallery

2.00 pm

Come and Join the Pirate’s RepublicMonica Munro & Claudia Ainscow, A Supported Life

Making Decisions Based on Hope and PossibilityHannah Barnes & Peter Kamphuis, Spectrum Care

Self-employment for people with disabilitiesJenny Douché, CCS Disability Action

Where do IDCCR Act Care Recipients fit within the “bigger picture”?Adrian Higgins, University of Otago

Mahi Rawe means Great WorkSusan Sherrard & Manese Lua, Te Pou o te Whakaaro Nui

2.45 pm

Connecting and Interacting on Facebook safelyDaniel Hong, A Supported Life

Peer Treasure: group decisions that unearth goldMatt Sang, Community Connections SLT

A radical new approach to employmentIngrid Jones, University of Waikato

The Role of Families in Supporting Article 19Carey-Ann Morrison and Jane BawdenImagine Better and Parent 2 Parent, for the Family Leadership Alliance

Success Breeds Success - attracting and retaining a vibrant and diverse workforceCarissa Pereira & Alice Kendall, A Supported Life

3.30 pm Afternoon Tea4.00 pm Victoria Lessing, Merge NZ

A New Zealand Sign Language Friendly New Zealand4.30 pm Warren Forster, Barrister, Forster & Associates; Law Foundation Research Fellow

Funding Disability Support that is Sustainable and does not Discriminate5.15 pm NZDSN Awards 5.45 pm Cocktails in the Exhibitor’s Lounge 7.30 pm Cocktail function ends followed by optional post-conference dinner at the Copthorne Hotel (8.00 pm)

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Day Two Programme – Thursday 30 May 2019

8.30 am MC Starts Day Two8.35 am Keynote: Gerri Pomeroy, DPA8.50 am Roland Naufal, Director of Disability Services Consulting, Australia

Keynote: I’ve seen the future (of disability services): future projections and strategies for succeeding9.30 am Morning Tea10.00am Workstream Sessions

Workstream 1Independent Advocacy

ApproachesAmokura Gallery

Workstream 2Supported Decision Making

ModelsAngus 1 & 2

Workstream 3Employment Symposium

Rangimarie 1Karen Scott, MC

Workstream 4Rangimarie 2

Workstream 5Labour Market Engagement and Workforce Development

Rangimarie 3

10.00 am

A Concept for Developing a Comprehensive and Easily Accessible Independent Advocacy ServiceJey Balasundaram, Creative Abilities & Associates Limited

The Right FitBerne Peters, CCS Disability Action

Working it out TogetherJonathan Mackie, CCS Disability Action

BILDing Expertise for Behaviour ChangePete Miller, SILC Ltd & Bronwyn Moth, Explore

Value-based RecruitmentJan Perkins and Marie Calderbank, Tautoko Support Services

10.45 am

Employer Panel Discussion

11.30 am

Amokura Gallery Amokura GalleryProfessionalising Disability Employment Staff and Maintaining Fidelity to Practice – Are we There Yet?Dr Peter Smith, Centre for Disability Employment Research and Practice (Australia)

Amokura Gallery Amokura Gallery

10.45 am Kate Rush, Director, Disability and Mental Health Services, Anglicare South AustraliaKeynote: “Change Leadership for Purpose and Productivity.”

11.30 am Show us your Stars!A series of short presentations demonstrating how disabled people and families are being “enabled to have good lives” everyday

12.00 pm Jane Wenman, Careerforce12.15 pm Access Alliance

Update: Progress on the Access for all campaign12.40 pm Lunch in the Exhibitor’s Lounge1.30 pm Erika Butters (The Personal Advocacy Trust) and Sue Hobbs (Safeguarding Adults from Abuse)

Supported Decision Making and Independent Advocacy: “Safeguarding: A toolkit.”2.15 pm Lorna Sullivan, Mana Whaikaha

Keynote: System Transformation – Progress and Challenges3.00 pm Closing Remarks – NZDSN Deputy Chair, Janine Stewart3.15 pm Conference Finishes

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Workstream Definitions

WORKSTREAM ONE – Independent Advocacy ApproachesLocation: Amokura Gallery, Level 4, Te Papa

For those who only have paid staff in their lives and people who have significant communication challenges it is essential that there is access to independent advocacy – individuals whose sole focus is the best interests of the person. Where will these individuals come from, what arrangements will employ them and how will they be funded and trained? And how will their independent advocacy role be legitimised and safeguarded? WORKSTREAM TWO – Supported Decision-Making ModelsLocation: Angus 1&2, Te Huinga Centre, Level 3, Te Papa

As an alternative to substitute decision making what are the models and approaches that can provide the basis for effective supported decision making – for everyday decisions as well as bigger life changing decisions? What is needed in the New Zealand context to locate the concept of supported decision making within a legal framework?

WORKSTREAM THREE – Achieving Better Employment Outcomes (Employment Symposium)Location: Rangimarie 1, Te Huinga Centre, Level 3, Te Papa

Overall employment participation rates of disabled people are not shifting despite decades of effort, particularly for those who experience the most significant barriers. Financial security and the opportunity to contribute is a critical aspect of one’s broader health and wellbeing. Paid employment plays a significant role in enabling a good life. What are the policy and practice changes needed to create a step change in employment rates, particularly for those who tend not to be taken seriously as potential employees? What are the initiatives and innovations that are contributing to the step change that is needed? WORKSTREAM FOUR – Person Directed Living and Community OptionsLocation: Rangimarie 2, Te Huinga Centre, Level 3, Te Papa

Personalised and more bespoke approaches to housing are increasingly being demanded by disabled people. Living the life one wants means having real choice about where and with whom you live (if you do want to live with another/others). Along with the opportunity to explore and build a life in a community that is authentically individualised and reflective of one’s family/whanau circumstances, cultural preferences and personal choice. So how do we proceed in the midst of a generational crisis in accessible and affordable housing? What innovations can we bring to bear on housing and living arrangements that can offer people the autonomy they are seeking and the support that is needed? What innovations can we bring to ownership, occupancy and acquiring equity to address the challenges of affordable and accessible housing for disabled people? WORKSTREAM FIVE – Labour Market Engagement and Workforce DevelopmentLocation: Rangimarie 3, Te Huinga Centre, Level 3, Te Papa

Our workforce is rapidly aging, is mostly female and lacks cultural diversity. Recruiting a workforce that is younger with more diversity in terms of gender and culture is not going to happen unless we have deliberate labour market engagement strategies. What might these strategies look like and what is already working? The employment participation rate of disabled people in the disability sector is no better than the wider labour market – what are we doing to change this? The qualifications available for support workers and those in, or aspiring to be in, leadership roles need to be more future focused, fit for purpose and with quality delivery that is consistent across providers. Who is doing what to make this happen? What are we doing to ensure that disabled people and family members are supported into leadership and governance roles?

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NZDSN Leadership ForumLeadership Programme - Friday 31 May 2019

9.15: Karakia and Introductions

9.30 -12.30: Strategies for succeeding in an individualised future. A series of short presentations and group discussions concluding with 10 key tips for surviving the future of New Zealand disability servicesRoland Naufal, Director, Disability Services Consulting, Australia.

10.45: Morning tea

12.30: Lunch

1.15: Adri Isbister, Deputy Director General Disability Support, Ministry of Health

2.30: NZDSN Business update:

3.15: Finish

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Sponsors

Events like this are not possible without the continued support of our sponsors – we wish to express our sincere thanks for their continued support of NZDSN.

Gold Sponsor

Silver Sponsor

Bronze Sponsors

Awards Sponsors

Special Mention

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ExhibitorsOur exhibitors are a vital part of the NZDSN Conference and over the years, we have developed a core base of exceptional suppliers and providers who continually support NZDSN not only at the conference but throughout the year. We welcome our exhibitors and encourage all our delegates to spend time with our exhibitors, they provide a wonderful array of services and products and there should be something for everyone!

Stand Numb

erName

Stand Numbe

rName

9 Access Alliance/Inclusive NZ 19 IHC Library

14 Altura Learning 15 Interactionz

17 Art by Anne 10 Ministry of Social Development

7 ASID 20 Paua by Daniel

11 Aspirico 18 People First NZ

1 Careerforce 6 Perk+

25 CCS Disability Action 3 Recreate NZ - Our Harvest

5 CSC Buying Group 13 SPQ Limited

8 DAA Group 16 Te Pou

12 Deaf Aotearoa/i-Sign 4 The Independence Collective

22 Downlights 23 The Personal Advocacy Trust and MiRock Financial Services

21 Fishwood Design 2 Webcare

24 Health Metrics

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NZDSN Annual Awards 2019

This year we are holding the NZDSN Awards celebrating success in our sector. Winners will be announced at the end of Day One of the Conference. This event will be followed by our cocktail function which is being sponsored this year by Health Metrics.

Special thanks go to Ian Anderson and the Anderson Design Limited team for sponsoring the design and production of our trophies, especially created for the NZ Disability Support Network’s Annual Awards.

NZDSN Long Service within the Disabilities Sector - Sponsored by Pai Ake ToruThis award is to acknowledge and recognise an NZDSN member who has been involved with the disability sector for a period longer than 20 years. Within that time, they have shown a commitment to the sector and a discipline to continue striving for a quality and inclusive life for those people experiencing a disability.

NZDSN Leadership Award - Sponsored by the DAA GroupThis award is to acknowledge and recognise leadership within the disability sector by a person who may have shown initiative to change organisational culture, ways of operating, to be more responsive to the person-centred approach or accountability in an individual funding model. Demonstration of collaboration and partnership are also encouraged.

NZDSN Community Choice - Sponsored by Te Pou o te Whakaaro NuiThis award recognises those NZDSN members who have initiated, assisted or managed a project, programme or an event that has promoted the benefits of an inclusive community.

NZDSN Most Innovative Technology or Research in 2017/19 - Sponsored by WebcareThis award is for an individual or representative of a team that has either translated an idea or invention into a product of technology or a part of service that has created or contributed great value towards the disability sector by a service provider; or conducted and published research that has been recognised as contributing to the disability sector by a service provider.

NZDSN Excellence in Supported Employment Practice - Sponsored by CareerforceThis award is to acknowledge and recognise an NZDSN member who has been involved in excellent practice that clearly reflects the principles of supported employment in New Zealand. Nominations should aptly describe how a particular piece or pieces of excellent practice fitted in with the 6 principles and then explain why it is “excellent”.

NZDSN Best Exhibitor at Conference - Sponsored by Health MetricsThis award goes to that sponsor who has provided that certain je ne sais quoi to their exhibition space. Our key sponsors, Health Metrics will preclude themselves from this category and will be the decision makers as to who is the champion on the day!

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Introducing Our Conference TeamDr Garth Bennie

Dr Garth Bennie started in the position of Chief Executive of NZDSN in January 2015. He came back into the NGO sector after 15 years with the Ministry of Education, where he was a District Manager for Special Education.

Prior to this, he had extensive involvement in the disability sector both in New Zealand and, for a time, in Canada. Garth began his career in the sector as a support worker with IHC in both vocational and residential settings while he trained as a social worker and since that time has held a variety of roles coordinating, managing, researching and developing disability services and policy. During his career, Garth has earned his PhD which focused on disability studies, particularly the area of supported employment. Garth’s incoming statement when joining NZDSN was he was "looking forward to immersing myself in the sector again, meeting old acquaintances and making new connections with our members and other people and organisations in the wider disability sector.”

Judging by the inroads he’s made into the sector and with NZDSN since his arrival, he certainly is achieving the goals he set out.

Manase Lua - Conference MC

Manase is the National lead for Te Pou’s Disability Workforce Development programme dedicated to supporting workforce development for frontline disability support staff.

Their job is to support and facilitate access to leadership and training resources for the sector. A key aim is national consistency and regional responsiveness.

He studied at Auckland University and has a Bachelor of Arts and Master of Arts (Honours) in English. His academic focus was mainly in post-colonial New Zealand and Pacific literature. Manase also dabbled in creative writing and poetry under the esteemed presence and guidance of Albert Wendt and Witi Ihimaera.

Manase started his career at the Ministry of Pacific Island Affairs in 1996, where he worked for five years. He then left the public service to work for a couple of years as a consultant and then for a small Pacific disability provider. Manase then returned to the public service where he worked in the Disability Services Directorate of the Ministry of Health in 2003 before joining Le Va in March, 2008. After five amazing and fulfilling years at Le Va, Manase decided to take up a senior leadership role for Te Pou in April, 2013.

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The NZDSN Team

Libby CarsonConference Event

[email protected]

027 269 3939

Sue EastwoodOffice Manager

[email protected]

04 473 4678

Sara GeorgesonPolicy Analyst

[email protected] 473 4678

Mireille VreeburgExecutive

Facilitator - Auckland

[email protected]

021 0259 3418

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This conference would not be possible without the amazing contribution of our sponsors including:

mailto:[email protected]






Floor PlansAmokura Gallery – Level 4, Te Papa

Exhibitors Lounge – Oceania Room, Level 3, Te Papa

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Workshops and Employment Symposium – Te Huinga Centre, Level 3, Te Papa

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Keynotes and Plenaries

Wednesday 29 May - Amokura Gallery, Level 4, Te Papa

Wednesday 29 May10.30-11.15am Keynote Amokura Gallery, Level 4, Te

PapaEmployment: Making It Work: Disable People, Families, Providers, Business and

Government Working Together For Great Employment OutcomesWhat does it take to assist more individuals with significant disabilities to realize their employment goals and achieve economic independence? A new era, Employment 1st, is emerging as the organizing principle for employment for all. Employment professionals, people with disabilities, community members, families, governmental leaders and employers are organizing around a common need: quality employees and inclusive workplaces.

Working together and sharing our experiences has always proven a good practice for helping more people achieve their employment goals. During our time together, we will challenge the status quo and share strategies that further our efforts to realize employment for all. It is an exciting time to discover how our influence and focus can move employment forward and build new relationships with community employers to ‘Make it Work’.

Cesilee Coulson WISECesilee brings 26 years of experience in training and leadership development in non-profits, as well as working with state leadership, service providers, and people with disabilities and their families. She holds certifications as an Executive Coach from the Hudson Institute, Somatic Executive/Leadership Coach from the Strozzi Institute, a Bachelors’ in Education and Movement Science and a Masters’ in Social Psychology from the University of Oregon. Cesilee has provided Technical Assistance in several countries and states.

Her primary role is within the states of Washington and Oregon assisting to build the capacity of the employment service delivery systems. She is a national subject matter expert with the U.S. Office of Disability and Employment Policy (ODEP) at the Department of Labor.

Specialty areas of emphasis include leadership development, executive coaching, strategic planning, systems design and Employment First implementation. Due to her expertise, the U.S. Secretary of Labor, Tom Perez, appointed Cesilee as a member of the national Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities.

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Wednesday 29 May11.15am-12.00pm Keynote Amokura Gallery, Level 4, Te

PapaLocal Area Coordination: Transformation Of Supports, Services and Systems –

Multiple Evaluations and LearningSystem transformation and facilitating community: aligning practice and the evidence base to ensure role integrity and fidelity. Local Area Coordination is an integrated, evidence based approach to supporting people of all ages who may be facing complex life situations, including living with ageing needs, disabilities & mental health needs, along with their families, to build and pursue their personal vision for a good life and to stay strong, resilient, safe and connected as contributing citizens within their local communities.

Hence, rather than waiting for crises & responding with services & monetary solutions, Local Area Coordination serves to help individuals reduce isolation and loneliness, improve health and well-being; so that community capacity & resilience are fostered, resulting in a reduction in demand for, or dependency on, costly health & social services wherever possible.

In this conversation, Ralph will share the learning from England and Wales, what Local Area Coordination is, the conditions that nurture positive and sustainable outcomes alongside individuals, families and communities and the emerging independent evaluations and evidence.

Ralph BroadDirector Inclusive

Neighbourhoods and Founder of Local Area Coordination Network

Ralph is Director of Inclusive Neighbourhoods Ltd and was Founder of the Local Area Coordination Network CIC in England and Wales.

As Director of Inclusive Neighbourhoods Ltd, he led the development of Local Area Coordination in England and Wales and now also developing new conversations internationally, including in Australia and Singapore.He has more than 30 years experience in working in a wide range of statutory and voluntary sector organisations in England, Scotland and Western Australia.

This is underpinned by the belief that every person has the right to build and pursue their vision for a good life and that communities are stronger, more welcoming and more self sufficient where all people have the opportunity for to share strengths and expertise and contribute to local community life.

Ralph is a fellow at the Centre for Welfare Reform and was previously an Honorary Fellow at University of Edinburgh. He studied at the Tizard Centre, University of Kent at Canterbury, completing his MA in Management in Community Care in 2007.

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Wednesday 29 May12.00-12.30pm Keynote Amokura Gallery, Level 4, Te

PapaHon. Carmel Sepuloni Minister for Disability

IssuesMP for Kelston Carmel Sepuloni is of Samoan, Tongan and NZ European decent. She was born and raised in Waitara but has lived in Auckland since 1996.

Outside of politics Carmel has worked broadly across the health and education sectors, working as a Literacy Educator with youth in West Auckland, teaching in Samoa, managing equity programmes at the University of Auckland, managing the Pacific non-regulated Pacific health research project and acting as CEO of New Zealand’s only National Pacific health provider, Vaka Tautua.

Carmel has always been committed to improving social, health and educational outcomes for all New Zealanders but has especially focused during her career on low socio-economic groups, Māori, Pacific, disabled people and sole parents. During her political career Carmel has brought to the fore the slashing of the training incentive allowance, made public the impact of cuts to ACC funding for survivors of sexual violence, campaigned for better legislation around social workers and fought for the right to privacy for social service users.

As the Minister for Social Development and Disability issues Carmel is looking forward to building a fairer welfare system that treats New Zealanders with the respect, upholds their dignity and supports them and their families to realise their potential.

Carmel is the mother of two boys.

Wednesday 29 May4.00-4.30pm Keynote Amokura Gallery, Level 4,

Te Papa

Victoria Lessing Merge NZBorn Deaf, Victoria Lessing is a strong social advocate for the Deaf community in New Zealand and for Deaf rights. Victoria is a qualified New Zealand Sign Language (NZSL) tutor and has been teaching NZSL for almost 20 years.

Victoria has been involved in the development of the NZSL Online Dictionary and the NZSL Teaching curriculum. Victoria is fluent in five languages, currently studies a double major BA in Education and Business, is raising a young family and is Co-Director of Merge NZ, a Social Enterprise aiming to normalise NZSL in this country.


Te Papa

Housing: The Future of Housing is for Disabled People: A Good Life in the Community or Living on the Margins?

Esther Woodbury & Nevil Pierse DPA Member & University of Otago

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Te PapaWarren Forster Barrister & Researcher

We welcome back Warren to update us on his important research into approaches to disability funding that do not discriminate on the basis of disability and that can survive the vagaries of political and financial cycles.

Warren has drawn on the UNCRPD as a framework to inform a legal basis for proposed changes and new approaches to funding that address a shrinking tax base due to changing demographics. His work to date is gaining increasing attention along with a campaign to start a national conversation on these important issues.

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Thursday 30 May - Amokura Gallery, Level 4, Te Papa

Thursday 30 May8.45-9.30am Keynote Amokura Gallery, Level 4,

Te PapaI’ve Seen the Future (of Disability Services); Future Projections and Strategies

for SucceedingThis statement has two famous, but different endings. Applied to the disability sector in NZ, which would you choose?

and it works. Lincoln Steffans 1936

brother: it is murder.Leonard Cohen 1992

So while I remain a true believer in the NDIS, it is going to take a while to reach its potential. We have now done so much consulting in the NDIS that I reckon I’ve seen the future, and I do see a bit of murder and mayhem…

Some NDIS Reflections to Date

1. Skilled staff proving more and more difficult to find and retain2. Individualisation of services is causing very significant challenges3. IT systems and data management are critical to success4. Lots more assistance needed to navigate the market and its getting more

chaotic5. Stakeholder engagement has become vital, but most organisations don’t

get it6. The rules of engagement are constantly changing7. New business models are emerging, but mostly low value stuff8. Market failure in CALD, ATSI, Rural & Remote, Mental Health

Roland Naufal Disability Services Consulting (Australia)

Roland’s three decades of disability experience and insistence on doing things better have earned him a reputation as an independent and outspoken. He is known for finding hidden business opportunities and providing insights into the things that matter in disability. Roland worked extensively on disability deinstitutionalisation in the early 90's and has lectured on the politics and history of disability.

From 2012-2014, he consulted on NDIS design for the National Disability & Carer Alliance and was the winner of the 2002 Harvard Club Disability Fellowship. Roland has held leadership roles in some of Australia’s best known disability organisations and is now one of Australia’s most knowledgeable NDIS consultants and trainers.

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Thursday 30 May10.45-11.30am Keynote Amokura Gallery, Level 4, Te

PapaChange Leadership for Purpose and Productivity

Leadership is a critical resource for the success of any organisation. The need for leaders who know how to foster a highly engaged workforce and deliver on financial and practice results is a critical. Kate’s presentation will provide practical tips, tools and take-aways on the functions of leadership that drive strategic outcomes and achieve operational targets through times of significant change.

Kate’s insights on leadership have been drawn from the experiences of steering change in the more commercialised, consumer driven market of the Australian National Disability Insurance Service, where the introduction of market forces and hundreds of new for-profit providers have placed agencies at risk of losing their sense of mission for the bottom line. Kate’s honest and enlightening discussion will be relevant to any current or emerging leader in community services who understands the need to balance a focus on long term sustainability and value creation with mindfulness and in-the-moment decision making.

Kate’s leadership approach will be evidenced with authentic reflections on growth statistics achieved and measurable improvements made in workplace culture, as well as frank learnings from perceived leadership failure. A humorous, inspiring and practical presentation from an award winning public speaker.

Kate Rush AnglicareSAKate Rush is a dynamic and awarded public speaker who is able to energise teams and inspire performance against strategic outcomes. Kate’s passion for inclusive communities and her leadership capacity has shaped her professional career and community engagements.

Kate currently Heads the Disability and Mental Health services at AnglicareSA, leading over 300 staff through the significant social and economic reform of the National Disability Insurance Scheme (NDIS). Kate is the co-founder of the community driven social enterprise, ‘A Sign of Respect’, promoting respect in our neighbourhoods for First Nations people.

Kate has a Bachelor of Social Science, a Graduate Diploma in Communications, is a Fellow of the Governors Leadership Foundation and a Graduate Member of the Australian Institute of Company Directors. She has worked across government and non-government sectors in service delivery and design, community development, public policy and project and staff management. Some of Kate’s prominent achievements have included being a member of the State Women’s Cricket Committee; the 2017 scholarship winner for the Executive Alumni of Behind Closed Doors, member of the Premiers Action Team on Communications; nomination for the Channel 10 SA Community Services Award, Metropolitan Speaker Award and the 2012 Program Ambassador Award for the Brand SA Speakers in Schools program.

Kate has been a guest blogger for the Leaders Institute of South Australia and authored articles in the Proteus Leadership Magazine. She enjoys running and has completed several half-marathon fun runs.

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Thursday 30 May11.30am

Amokura Gallery, Level 4, Te Papa

SHOW US YOUR STARSHear from some of our budding entrepreneur who, with the support of family, friends and providers, have engaged in their own start-up businesses using all the skills they have developed and their natural talent.

You will be blown away by the energy, their enthusiasm and their expertise.

All our STARS will be exhibiting in the Exhibitor’s Lounge and we strongly encourage you to visit and support them.

Each STAR will present for 3-4 minutes about their journeys

Thursday 30 May12.00-12.15pm


Gerri Pomeroy, DPAEach disabled person has a unique life story to tell. These stories frequently include accounts of discrimination, institutional ableism, being ‘othered’ by both people and systems. Underpinning all of this we are left feeling that our lives aren’t valued in the same way as those of non-disabled people.

As a community of people how do we ensure that our voices are heard by all the organisations vying for space in MidCentral? If government decides the prototype will be rolled out around the country, how do we, as disabled people ensure that our voices are heard?

Gerri has a lived experience of disability and has used a wheelchair since 2006.

She worked as a medical laboratory scientist for 30 years, part-time for the last 10 years of this time and latterly also worked part-time as an access co-ordinator at CCS Disability Action.

She is currently National President of Disabled Person’s Assembly and has been a member of DPA since 2000.Gerri is a member of the Waikato and National Enabling Good Lives Leadership Groups and contributes to a variety of groups as a consequence of these involvements.

She is also currently a co-chair of the Waikato DHB Consumer Council.

She is committed to ensuring disabled people’s experiences and perspectives are valued and included in strategic planning processes and system development.

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Progress on the Access for All CampaignLate last year the New Zealand Minister for Disability Issues announced that Cabinet had approved a work programme to thoroughly explore how we can achieve full accessibility for disabled people and all New Zealanders. This could include creating voluntary standards, incentivising uptake, or implementing accessibility legislation. The Access Alliance – a group of 12 active disability organisations – has worked tirelessly to reach this milestone, primarily through the vehicle of the Access Matters campaign. Using evidence and people power, campaigners have demonstrated strong demand for accessibility legislation in New Zealand. Subsequently in 2019, the Access Alliance has progressed the Access Matters campaign to prove to decision-makers the broad base of support for accessibility legislation.

The Access Alliance has been working closely with the Ministry of Social Development (MSD) on the Accessibility Work Programme to accelerate accessibility in Aotearoa New Zealand. Extensive consultation and research has been conducted and fed back into the Minister’s June 2019 progress report to Cabinet. Central to this programme is investigating insights and evidence from other jurisdictions, examining different policy options, and envisaging Aotearoa New Zealand as the most accessible country in the world! Join Dianne, Etta and Mary as they discuss the Access Alliance journey to date, and elaborate on their expectations for the future.

Mary Fisher Access AllianceEvery New Zealander should be able to fully participate in society, have the opportunity to learn, to get a job, and to take part in community and social life. Without government action to ensure all businesses, buildings, and services are accessible, one in four of us continue to be excluded from accessing or fully participating in parts of life that other Kiwis take for granted. It doesn’t need to be this way. This government could introduce accessibility legislation to implement minimum standards and put accessibility at the heart of an inclusive Aotearoa. Accessibility law will open the door so that EVERYONE, disabled and non-disabled, benefits from the contributions of us all.When we talk about access and accessibility, we are referring to our ability to engage with, use, participate in, and belong to, the world around us. The Access Alliance proposes that the New Zealand Government introduce legislation (The Accessibility for New Zealanders Act), to ensure people with disabilities can fully participate in their communities and ensure the New Zealand economy and society can benefit from disabled people’s contributions

Our current human rights legislation does not give organisations or businesses clear and specific expectations and guidance on what they must do to become fully accessible as employers and service providers. There are no standards, no specific requirements that an organisation needs to meet and no penalties for non-observance. Existing laws on “discrimination,” “equality before law,” and “reasonable accommodation” do not provide sufficient guidance to public and private sector organisations on how to design a website, provide employment, or deliver goods and services which enable people with disabilities and society to fully benefit. The legislation will establish minimum, industry-specific national standards for accessibility for New Zealanders with disabilities. These minimum standards will apply to all areas of New Zealand life and the economy. It will set compliance standards and administrative requirements to enable national standards, and associated penalties for non-compliance, to be developed, implemented and enforced

Lobbying for it, drafting it, and implementing it will require perseverance and leadership from disability advocates and organisations, policy-makers, business and local government. We have to invest in this leadership now if we are to realise every New Zealander’s full potential.

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Originally from Upper Hutt and now living in Wellington, Mary gravitated toward water sports from a young age, taking up competitive swimming at just nine years old. After a decade of intensive training and racing, Mary Fisher qualified to represent New Zealand at the highest levels, winning four medals - including gold - at the London 2012 Paralympics, followed by another gold in Rio 2016.

Having recently retired from competitive swimming, Mary is now helping to address hegemonic systems in Aotearoa that perpetuate the kinds of accessibility hurdles she experienced as a child with low vision, and subsequently as a blind adult. Despite years of demanding training schedules, and extensive international touring with the New Zealand swim team, Mary has remained highly engaged with local disability issues. She has a deep understanding of barriers to accessibility and the lived experience of the one-in-four New Zealanders with disabilities. Mary looks forward to both legislative and attitudinal change in Aotearoa, with the hope that all Kiwis will be empowered to live full and dignified lives.



Supported Decision Making and Independent Advocacy: Safeguarding: A Toolkit”The tide of system transformation with its many working groups and “co-designers” has consistently identified and documented the need for safeguarding practices to become embedded within the system and its various providers. This address will investigate the realisation and extent to which this rhetoric has been adopted by officials and executed within the prototype and other regional contexts.

We will also discuss a fundamental toolkit set for safeguarding, including Supported Decision Making, Independent Advocacy, and co-ordination of Interagency safeguarding responses; and how access to these tools is influenced by current legislature and policy. International governments have already begun to assume the mandate to protect and safeguard adults with an increased risk of abuse or neglect, as seen in the UK’s Care Act of 2014. In stark contrast, vulnerable adults with care and support needs, aged between the ages of 18 and 64 in New Zealand, sit in the ‘gap’ that is more akin to a cavernous gulf between safeguarding agencies; there is no government funded lead agency charged with the responsibility of protection and prevention of harm to this invisible demographic.

Erika Butters & Sue Hobbs

The Personal Advocacy Trust

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Thursday 30 May2.15-3.00pm Keynote Amokura Gallery, Level 4, Te

PapaSystem Transformation – Progress and Challenges

Endeavouring to make substantive change to multiple systems that have become deeply embedded into the psyche of people and of society does not come easily or quickly. To Quote Woodrow Wilson “If you want o make enemies, try to change something.” However what gives us great hope in these attempts to transform is that by doing so and by shifting the authority within our systems for the first time, to the people who use them, we have set ourselves the objective of enabling disabled people to aspire to, and achieve the good things in life. This in itself implies a struggle, but it is a struggle that we have all signed up for, indeed have been agitating for over many years.

Neither is such a change going to materialise because we wish it too. It will require all of us to look deeply and objectively into our service models, our business models and become prepared to challenge ourselves to the core. However, change of this nature will take time, so we all have the opportunity to embrace this change and move forward progressively. What will keep us buoyant is the progress that we see in the lives of disabled people and families along with the opportunities that providers have long asked for.

This presentation will talk to what has been achieved over the past 6 months, what continues to challenge us and how we might work together to bring about long awaited changes that can be sustained over time. In the words of Richard Wilkins – “miracles start to happen when you give as much energy to your dreams as to your fears.

Lorna Sullivan Mana WhaikahaLorna Sullivan is the Director of Mana Whaikaha the Manawanui Prototype for the development of Enabling Good Lives. She has recently returned from Australia where she was working as director of disability services to support the UnitingCare Community (UCC) to design its service models and approaches in preparation for the NDIS. She has a long history of working for change in the disability sector, mainly in New Zealand, and is dedicated to changing the power dynamics between service systems, people with disabilities and their families.

Lorna is committed to working directly with people, families and communities to develop approaches that support the lives of people with disabilities and reduce life-long dependency on funded systems. She played an instrumental role in developing the Individualised Funding scheme and was active in implementing change within service systems. Before joining UCC, Lorna worked as executive director for the Disability Services ACT with a specific focus on readiness for the National Disability Insurance Scheme and the transition of Australian Government services to its NGO sector. Prior to this, her roles in New Zealand included chief executive of independent NGO ImagineBetter, NZCCS national services development manager, and is this the coordinator of the International Initiative for Disability Leadership.

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Workstream 1

Wednesday 29 May - Amokura Gallery, Level 4, Te Papa

Wednesday 29 May2.00-2.45pm Workstream 1 Amokura Gallery, Level 4,

Te PapaCome and Join the Pirate’s Republic

What is in the best interest of the person we support? This is a deceptively complicated question. What we think is best for them may not match what they think is best for them. How do we make sure that we are advocating their choices instead of leading them?

For one of the persons we support, 'The Pirate's Republic' embodies his aspirations of independent advocacy. This presentation discusses a case study about supporting an individual with complex intellectual disability and mental health challenges. This includes examples of how to maintain advocacy while balancing external environmental pressures; as well as working alongside families and multi-disciplinary team.

Claudia Anscow & Monica Munro A Supported Life

Claudia Ainscow is a support worker at A Supported Life. She is a key staff person at one of their residential houses, supporting individuals with complex needs. She brings valuable perspectives on how to emphasise advocacy in her role.

Monica Munro (MSc. Psychology, Registered Psychologist) is a support coordinator at A Supported Life. She supports 14 adults with intellectual disabilities and 8 eight staff. She is passionate about community inclusion, supporting people's complex needs, and working with families. Her background is applied behaviour analysis, which is a branch of psychology that uses basic behaviour principles to promote quality of life. Monica is also a Youthline volunteer.

Wednesday 29 May 20192.45-3.30pm Workstream 1 Amokura Gallery, Level 4,

Te PapaConnecting and Interacting on Facebook Safely

For people living in supported environments, social media provides important social inclusion to family and friends who they don’t see regularly and minimises isolation. It also allows for leisure time, and access to information that can help people make informed choices. Because of this, it would be beneficial for service providers to encourage and facilitate access to Facebook, but the biggest challenge is how they can ensure the safety of the people they are supporting, both online and in the real world.

Existing studies suggest that because of the risk, many people with intellectual disabilities are not given access to social media, in case they use it inappropriately or put themselves in danger. I am developing a programme based on Applied Behaviour Analysis (ABA) principles to teach individuals with an intellectual disability to use Facebook safely and appropriately, and I would like to share my progress so far.

Daniel Hong A Supported LifeDaniel is a residential services coordinator at A Supported Life and supports 12 people who have an intellectual disability and 12 support staff. He is also a part-time Masters student at the University of Auckland School of Psychology focusing on Applied Behaviour Analysis.

Daniel is passionate about providing supports to my team and the people they support to encourage self-advocacy and to ensure high quality of life for everyone we care about.

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Thursday 30 May - Amokura Gallery, Level 4, Te Papa

Thursday 30 May10.00-10.45am Workstream 1 Amokura Gallery, Level 4, Te

PapaA Concept for Developing a Comprehensive and Easily Accessible Independent

Advocacy ServiceCurrently there are many advocacy services and standalone advocacy organisations, however, there is variation in their affiliation, people they support, funding source, training methods, and advocacy approaches. Independence of the advocacy organisation and a strong, systemic and unified Advocacy framework is key to representing the disabled persons’ best interest.

As the whole of the Disability Support System is set to change nationally this may be an ideal time to look at developing a comprehensive and structured advocacy service which is also easily accessible to the vulnerable disabled people. New Zealand has a unique, nationwide, publicly funded health and disability advocacy service. Is it feasible for us to develop similar advocacy service which could offer holistic advocacy covering the whole of the life approach and advocate in all life domains of the disabled person- i.e.., education, welfare benefits, housing etc.?

Jey Balasundaram Creative Abilities & Associates Limited

Jey in his previous role has provided independent advocacy while working for the Nationwide Health and Disability Advocacy service, which is delivered under the Health and Disability Commissioner Act.

In this role, he had a special interest in advocating for high and complex needs disability consumers as he has worked in the disability sector before becoming an Advocate. Jey has completed the Advocacy Service’s NZQA approved qualification. In the Advocacy office, he was also a National Trainer contributing towards both training development and in training new advocates from Kaitaia to Invercargill.

In his current role as a Disability Services Manager, he is passionate about delivering person-directed services and in advocating for our high & complex disabled persons’ voices be heard before the national rollout of the System Transformation.

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Workstream 2

Wednesday 29 May - Angus 1&2, Level 3, Te Papa

Wednesday 29 May2.00-2.45pm Workstream 2 Angus 1&2, Te Huinga

Centre, Level 3, Te PapaMaking Decisions Based on Hope and Possibility

Don’t ever make decisions based on fear. Make decisions based on hope and possibility. - Michelle Obama. Best practice principals of person-centred practice, self-determination and individual choice and control have long been embedded in disability sector frameworks and policies. The reality however is only a small percentage of people accessing formal supports can say that these principals are being used effectively with them (Campanella, 2015). It is an ongoing challenge for disability providers to figure out how we do this practically in our day-to-day working.

Informed decision making is an area that requires attention as we navigate our way through Systems Transformation. How do we ensure people understand what is truly possible, while also knowing what the trade-offs of the decision are? How do we encourage staff to sit comfortably with a level of risk in order to allow people to learn and flourish from their decisions? Join us as we describe the journey we are on as an organisation to upskill people, families/whānau and staff in supported decision-making. We will share the programme of training and practical tools that we have found useful in developing skill in this area.

Hannah Barnes & Peter Kamphuis Spectrum Care

Hannah Barnes is a Speech-Language Therapist at Spectrum Care Trust. In her current role, she works to support the communication needs of people with disabilities with a range of communication skills. This involves working directly with people and their families/whānau, as well as providing training and coaching for support staff. Hannah has previous experience working with people with disabilities in a number of settings and roles, including special school, and home settings.

Peter Kamphuis is a member of Spectrum Care’s Advisory Team. He has the role of a Surveyor to capture baseline data using the My Life Survey tool, which is designed to enhance the lives of people who use Spectrum Care services. As a self-advocate, Peter has first-hand experience of being supported to make his own decisions.

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Wednesday 29 May2.45-3.30pm Workstream 2 Angus 1&2, Te Huinga

Centre, Level 3, Te Papa

Peer Treasure: Group Decisions That Unearthed GoldNeighbourhood Connections facilitate peer support network groups which are a diverse, and innovative way of supporting New Zealanders with a disability to live in, connect with, and develop as citizens of their community Each group is “owned” by its members- They decide on its vision, the rules, and how it is run. Making decisions as a group can be a complex matter. Each group comes up with their own ideas on how they make decisions.

The power of regular group meetings means that both everyday decisions, and larger projects involve; ideas, input, and involvement from real friends - who utilised their diverse skills to keep momentum going so that real progress post the decision is maintained Research undertaken by the Donald Beasley Institute in 2015 found that "Members also had a clear sense that, in contrast to many other service models, it was their responsibility to make the decisions that determined what the group did.

This sense, having control over the network activity is likely to have contributed to the feeling of belonging" One of the successes has been how members have been able to apply these decision-making skills in their life outside of being in the network group

Matt Sang & Shannon Norton

Community Connections SLT

Shannan Norton is an artist and an aspiring musician. She would like to be famous. Shannan is a member (and the administrator) of the Dream Catcher Team – a Neighbourhood Connections network group based in Lower Hutt. Along with the other five members of the group Shannan comes up with ideas and makes decisions about the groups direction and what they want to do. This has included: baking healthy treats, going busking, organising a party for 60 of their friends, interviewing politicians, organizing art exhibitions, visiting cafes, writing restaurant reviews, writing a cook book... and much much more.

Matt Sang has worked at Community Connections since 2011. Matt’s current role is to help to develop a model of peer facilitated support groups called Neighbourhood Connections- Te Hapori Herenga Tangata. Five groups are currently operating across the country. He enjoys seeing the members develop skills that they then use in other aspects of their lives. One of Matt’s highlights so far has been supporting a group of people to set up a “Singles and Mingles” group. He is also involved in promoting the organisations values and culture internally though professional development; and health and wellbeing practices

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Thursday 30 May - Angus 1&2, Level 3, Te Papa

Thurdsay 30 May10.00-10.45am Workstream 2 Angus 1&2, Te Huinga

Centre, Level 3, Te PapaThe Right Fit

As providers transition into a space where individuals create their own packages and are supported to remain or gain control and choice in their own lives... how do providers ensure this is done with integrity and respect

A focus on individuals who have larger packages because the family or individual are in or moving out of crises – providers are given the opportunity to discuss the healthy relationship between the individual/family and their team ensuring they are in a position and have the resources and support to make informed and conscious choices.

This workshop discusses relationships, communication strategies, independence and the role of a provider in a person’s life as they ride the roller coaster that is life.

Berne Peters CCS Disability ActionBorn and raised in Tamaki Makarau (Auckland) Berne has lived in both Auckland and Wellington before settling back in Auckland to raise her two sons aged 16 and 2.

Berne's background is in education before moving into the disability sector 10 years ago, firstly supporting babies and their whanau through early intervention before moving into support more intensive spaces with young people and their families up to the age of 21.

Berne believes that her strengths lay in building authentic relationships, developing good communication strategies and her strong commitment to those who have the privilege to walk alongside become more capable and resilient in their own world.

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Employment System (Workstream 3)

Wednesday 29 May - Rangimarie 1, Te Huinga Centre, Level 3, Te Papa

Wednesday 29 May1.15-2.00pm Employment Symposium Rangimarie 1, Te Huinga

Centre, Level 3, Te PapaEmployment First, Aligning Policy, Funding and Practice

In this workshop we will explore the key ingredients of a high performing employment system. The State of Washington has been developing and delivering individualized employment services for over 30 years. Over the course of many decades there are a variety of implementation strategies ranging from policy to practice that have proven to be efficient and effective when seeking quality employment outcomes.

Attendees will receive information on funding methodologies, policy features and best practices that contribute to the employment outcomes that WA State has been able to deliver and maintain on behalf of people with intellectual and developmental disabilities.

Cesilee Coulson WISECesilee brings 26 years of experience in training and leadership development in non-profits, as well as working with state leadership, service providers, and people with disabilities and their families. She holds certifications as an Executive Coach from the Hudson Institute, Somatic Executive/Leadership Coach from the Strozzi Institute, a Bachelors’ in Education and Movement Science and a Masters’ in Social Psychology from the University of Oregon. Cesilee has provided Technical Assistance in several countries and states.

Her primary role is within the states of Washington and Oregon assisting to build the capacity of the employment service delivery systems. She is a national subject matter expert with the U.S. Office of Disability and Employment Policy (ODEP) at the Department of Labor.

Specialty areas of emphasis include leadership development, executive coaching, strategic planning, systems design and Employment First implementation. Due to her expertise, the U.S. Secretary of Labor, Tom Perez, appointed Cesilee as a member of the national Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities.

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Centre, Level 3, Te Papa

Self-employment for People with DisabilitiesNearly a quarter of working disabled people in New Zealand are self-employed, compared to just 17% of non-disabled working people. Self-employment is a popular choice for disabled people because it can alleviate barriers that may make obtaining traditional paid roles difficult, while enabling greater fulfilment and inclusiveness. New Zealand also has a plethora of services available for start-up businesses. However, consideration is needed of the best way to support disabled people to pursue self-employment.

A literature review and in-depth interviews were conducted with eleven disabled people who were interested in, or who had embarked on self-employment. Participants shared personal experiences, including the motivations for, and impact of, self-employment. Support networks were discussed in detail, especially the personal and business support needed to enable not only financial success, but greater community participation and personal fulfilment. This study confirmed the value of supporting a sector of the disabled community to embark on self-employment. This could be in the form of a combined person- and business-support service for start-up businesses, via a partnership between existing providers in the disability and business-support sectors. This combination of services would be critical in helping ensure success of both the disabled persons, and the venture’s, wellbeing.

Jenny Douché CCS Disability Action

Dr Jenny Douché is the National Manager, Business Innovation, at CCS Disability Action. Before progressing to the disability sector in 2018 she was a researcher of strategy development in business incubator firms, and the founder and lecturer on an innovation and commercialisation-related Masters programme at Victoria University of Wellington.

Prior to this, Jenny managed a series of start-up development programmes run by the Greater Wellington Regional Councils, and created a successful international book-publishing social enterprise that benefited animal welfare organisations. Approximately 20 books were published, including best-sellers and two business titles.


Centre, Level 3, Te PapaA Radical New Approach to Employment

In this presentation, I explore how the issue of employment needs a radical new approach. Building upon my recently completed PhD, I argue that the current approach to employment fails to tackle underlying systemic barriers founded in ableism; that is, the assumption that everyone is meant to be “normal”.

Most of the employment available today is designed assuming applicants will have a “normal” level of ability, and great energy is expended helping learning disabled people to have the requisite skills / behaviours required of “normal” employees. In short, the reason many learning disabled people do not have paid employment is because we are taking a person-by-person approach to the issue, rather than a system-wide approach focused on

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creating employment for learning disabled people en masse.Ingrid Jones University of

WaikatoIngrid Jones recently completed her PhD titled “Reimagining Disability” through the University of Waikato. She has more than 15 years’ experience in the disability support sector, and is passionately committed to disability rights and challenging inequity. She was driven to complete her PhD by a desire to find innovative ways to change what it means to provide disability support, so that disabled people have the opportunity to thrive in Aotearoa New Zealand.

Thursday 30 May - Rangimarie 1, Te Huinga Centre, Level 3, Te Papa

Thursday 30 May10.00-10.45am Employment Symposium

Rangimarie 1, Te Huinga Centre, Level 3,

Te PapaWorking It Out Together

In 2016, CCS Disability Action commissioned a research project with The Donald Beasley Institute entitled “Getting the Life I Want”. What we have been reminded of through this research is that inclusion in, and access to employment are primary goals for disabled people throughout New Zealand. During 2018 we implemented the recommendations from this research to move towards greater responsiveness to disabled people and communities.

One of these steps was to work alongside Emily Harris from WISE (Washington Initiative for Supported Employment) and for her to co-facilitate a two-day national conference for staff who are working in vocational and supported employment fields. The strong theme that came across with Emily’s presentation at the conference was; That anyone is able to gain paid employment – how we assist to make this happen is our job to get right and this means increasing awareness of our bias to ensure our impact on future employment is a positive one. Through our presentation we look at the progress we have made post-research and share our learnings and the journeys to paid employment of people we have supported.

Jonathan Mackie CCS Disability Action

Jonathan has worked across the New Zealand Disability sector over the last 20 years. Starting at the grass roots level as a support worker in Whangarei then onto become a DIAS coordinator with the local NASC, then transitioned into the Supported Employment sector with Workbridge in the Wellington region.

For the last 13 years Jonathan has been with CCS Disability Action and since 2009 - 2018 working as a service manager/team leader with various teams based in Christchurch and the West Coast of the South Island. Recently Jonathan has been working for CCS Disability Action National Office as a Project Coordinator.

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Thursday 30 May11.30am-12.15pm Employment Symposium Rangimarie 1, Te Huinga

Centre, Level 3, Te PapaProfessionalising Disability Employment Staff and Maintaining Fidelity to

Practice – Are We There Yet?Are disability employment staff seen as professionals or simply another type of support workers’ at the lower end of the professions. Funding bodies globally are calling for the application of evidence-based practices, highlighting a need for a professional employment consultant. Professionalism of disability employment staff is a desirable outcome, however until recently recognition of disability employment staff as a profession has been slow to occur.

In the USA under the guidance of the Association of Professionals Supporting Employment 1st (APSE), the development of the Certified Employment Support Professional (CESP) appellation is seen as pathway to ensuring professional practice is undertaken within the sector, particularly in relation to the application of Customised Employment and Discovery. Outside of the USA, standards for educating employment staff in this area is largely ad hoc or limited to generic employment training, something significantly below the standards set by APSE.

In Australia, the Centre for Disability Employment Research and Practice (CDERP) have been delivering training that meets APSE standards, in part due to a technical alliance with Griffin-Hammis Associates. Recently CDERP and its research partner, the University of Melbourne (UoM) have developed CDERP’s Customised Employment training program into a 12 module non-award course to support the ongoing professionalization of employment staff. Training staff is only one aspect; it doesn’t guarantee fidelity to practice, particularly as applied to the Discovery process. In the USA, the development of a Discovery Fidelity Scale is one measure that can provide a level of assurance that employment professionals are undertaking Discovery consistent with the emerging evidence base. To address this need is Australia, CDERP and the UoM established a research program to contextualise the scale to the local setting.

This presentation will examine these issues and explore the need for measures that ensure evidence-based practices are adhered to and the relevance to funding bodies and consumers. Measures that differentiate adherents as professional employment support staff and providers.

Peter SmithCentre for Disability

Employment Research and

PracticeDr Peter Smith (PhD (Med) MHlthSc, BAppSocSc CESP) is the Director and Founder of the Centre for Disability Employment Research and Practice.Peter has an extensive work background with people with disabilities and others with significant barriers to inclusion in society, as both a therapist and systems advocate at both government and judicial levels. He has worked as a disability support worker, counsellor in disability employment services and peak bodies.

Peter has contributed to a number of government inquiries into disability and employment. His current research focuses on social entreprise models, transition to work models, micro-entreprise and systems models.

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Workstream 4

Wednesday 29 May - Rangimarie 2, Te Huinga Centre, Level 3, Te Papa

Wednesday 29 May2.00-2.45pm Workstream 4


Te PapaWhere to IDCCR Act Care Recipients Fit Within the “Bigger Picture”?

A central principle of Enabling Good Lives is catering for diversity to ensure equitable outcomes are achieved for all disabled persons. Care Recipients under the Intellectual Disability (Compulsory Care and Rehabilitation) Act 2003 represent a unique group in that they are subject to extended periods of coercive care for the purpose of rehabilitation from criminal offending.

The majority of care recipients receive their compulsory care and rehabilitation within community settings from contracted intellectual disability providers. Day-to-day support of Care Recipients is provided by direct support staff which has implications for workforce training.

Adrian Higgins University of OtagoAdrian Higgins is a Doctoral candidate with the University of Otago researching rehabilitation under the ID(CCR) Act 200



Te PapaThe Role of Families in Supporting Article 19

Article 19 recognizes the ‘equal right of all persons with disabilities to live in the community with choices equal to others.’ In this paper we consider the role of families in supporting disabled people to realise their human right to full inclusion and participation in the community. Research shows that, for some disabled people, a close relationship with family (either living in the family home or being supported by family outside the family home) can lead to greater social connectedness, community relationships and feelings of belonging.

Similarly, it has been shown that families and paid support staff working together to enhance community participation often leads to broader social networks and involvement in a wider array of community spaces. Yet, the role of family in facilitating relationships and challenging social exclusion is often missing in disability-related policy debates, research and service provision.

We will ask questions about how disability support services can work with and alongside families. We do this with the intention of promoting organisational learning and informing service practice in ways that support disabled people and their families to deepen community and social relations.

Jane Bawden & Carey-Ann Morrison

Parent 2 Parent & Imagine Better

Jane Bawden has over 20 years’ experience in the disability sector. During that time, she has held numerous governance roles, including for Spectrum Care and SAMS. She has recently been appointed CEO of Parent to Parent, and is a lawyer and Chartered Member of the Institute of Directors. Jane is a parent to 20 year old twins, one of whom has a rare chromosomal condition and autism spectrum disorder.

Carey-Ann is a Research Advisor for ImagineBetter and an Honorary Associate

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in the Geography Program at the University of Waikato. She is a parent to a young son who has Down syndrome. Carey-Ann holds a PhD in human geography and works at the intersection of research and activism to challenge the marginalisation and discrimination of disabled people from a range of everyday spaces. She believes that research should be community-driven and works with disabled people and families to produce new knowledge for creating diverse and inclusive communities.


Thursday 30 May10.00-10.45am Workstream 4

Rangimarie 2, Te Huinga Centre,

Level 3, Te PapaBILDing Expertise For Behaviour Change

The BILD Coaches programme is an intensive training of three days followed by a fourth day six months later during which the results of the workplace assessment are presented. The BILD programme focuses on the advancement of Positive Behaviour Support practice of the individual, the support team and the organisation.

This presentation will tell the story of a coach’s programme facilitated by Explore Specialist Bronwyn Moth for SILC in the Bay of Plenty. The presentation will include the results of the programme reflected in changes in behaviour and quality of life for the people SILC support. SILC Ltd supports people with disabilities, including intellectual disability and autism in the Bay of Plenty region and is focused on providing personalised and collaborative support.

Pete Miller & Bronwyn Moth

SILC Limited & Explore

Pete Miller has worked as a Social Worker and Social Services Manager for 23 years, working at SILC as a Service Manager for 9 years. Prior to this Pete worked in Child Protection, Health, Mental Health and Addictions and child and family Support services.

Bronwyn Moth has been a clinical psychologist for 15 years and has been a senior behaviour specialist at Explore for five years. Bronwyn also has a private practice and has previously worked for the Department of Corrections and the New Zealand Defence Force.

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Workstream 5 Wednesday 29 May - Rangimarie 3, Te Huinga Centre, Level 3, Te Papa

Wednesday 29 May2.00-2.45pm Workstream 5 Rangimarie 3, Te Huinga

Centre, Level 3, Te PapaMahi Rawe means Great Work

Working with disabled people is great work and we need a younger, skilled and culturally diverse workforce. Te Pou has developed the mahirawe.com platform as an initiative to meet this need. We are targeting young, Maori, Pacifica and Asian people to sign in as job seekers.

This presentation will outline the recruitment tool, the benefits for employers and job seekers, and how easy it is to use. The e-learning module on the mahirawe.com platform is based on the Let’s get real: Disability framework. The purpose of the framework is to describe the essential attitudes, values, knowledge and skills needed to deliver quality services to disabled people and our families and whanau. The values that underpin the framework align with a human rights approach, a social model of disability, Enabling Good Lives, and the New Zealand Disability Strategy.

This presentation will also reintroduce the framework and how it can be useful in organisations. We will discuss the connection between the Te Pou grants and the framework, providing information that will assist with applications. Applications that demonstrate using the framework will be considered highly in the competitive funding rounds.

Manase Lua & Susan Sherrard

Te Pou o te Whakaaro Nui

Manase is the National lead for Te Pou’s Disability Workforce Development programme dedicated to supporting workforce development for frontline disability support staff.

Their job is to support and facilitate access to leadership and training resources for the sector. A key aim is national consistency and regional responsiveness.

He studied at Auckland University and have a Bachelor of Arts and Master of Arts (Honours) in English. His academic focus was mainly in post-colonial New Zealand and Pacific literature. Manase also dabbled in creative writing and poetry under the esteemed presence and guidance of Albert Wendt and Witi Ihimaera.

Manase started his career at the Ministry of Pacific Island Affairs in 1996, where he worked for five years. He then left the public service to work for a couple of years as a consultant and then for a small Pacific disability provider. Manase then returned to the public service where he worked in the Disability Services Directorate of the Ministry of Health in 2003 before joining Le Va in March, 2008. After five amazing and fulfilling years at Le Va, Manase decided to take up a senior leadership role for Te Pou in April, 2013.

Susan Sherrard is the project lead for Te Pou's Mahi Rawe project. She identifies as a disabled woman and has worked in the disability sector for 30 years. Susan has worked for service providers, in tertiary education and for Disabled Person Organisations. Susan joined Te Pou in 2018 and is passionate about ensuring disabled people receive quality support from the disability workforce. We need to have choice about who we work with. The current disability workforce needs more young people from diverse ethnic backgrounds. Mahi Rawe is aiming to achieve this goal!

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Te PapaSuccess Breeds Success – Attracting and Retaining a Vibrant and Diverse

WorkforceA Supported Life have a vibrant and diverse workforce. We employ many people who:

• have lived experience of disability• have professional qualifications• are from diverse backgrounds and age groups• this has not happened by accident but as the result of deliberate

labor market engagement strategies

In this interactive workshop we will discuss:

• the tipping point / success breeds success (and the opposite)• the skill sets and temperaments of the people we want to attract to

work in our organisations• where we might find such people and how to draw them in (targeted

advertising + building sector alliances)• recruitment through staff networks – creating articulate ambassadors• the importance of orientation and who delivers it.

Alice Kendall & Carissa Pereira A Supported Life

Alice Kendall has worked in the disability sector for 7 years spending 2017 working in Vancouver Canada. She is passionate about educating the community in regard to the strengths of people who have a disability and the contribution they can make. Alice is also passionate about the recruitment of awesome people to work alongside awesome people.

Carissa Pereira (BA Hos Psych, PGdip Couns) has 18 years experience in the disability sector and is passionate about creating great teams to work alongside people who have an intellectual disability.


Thursday 30 May10.00-10.45am Workstream 5 Rangimarie 3, Te Huinga

Centre, Level 3, Te PapaValue-Based Recruitment

In the UK Wellbeing Teams an initiative created by Helen Sanderson, use Values-Based Recruitment to find great colleagues and this approach has won accolades from Skills for Care, The Guardian and the LaingBuisson UK Healthcare awards. Tautoko Support Services is the umbrella organisation for Helen Sanderson Associates NZ and we are using Value-Based Recruitment for our Options service.

Who are the people you would like to employ? How do you appeal to different generations? How do you let them know about the opportunities? How do you find the right people to match people’s needs and having found them keep them? Recruitment is more than filling a vacancy. We don’t have an HR department, but we do have a broad range of people with a vested interest in getting the right people on board our teams.

We will outline how we recruit workers that share our values and are engaged with our purpose. Disabled people who receive support from us, work with us throughout this process and select people who best fit with their interests and

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aspirations. The presentation will include feedback from people who have been selected through a values-based recruitment process.

Marie Calderbank & Jan Perkins

Helen Sanderson Associates (NZ)

Marie Calderbank and Jan Perkins are NZ Helen Sanderson Associates and are supporting Tautoko/Options through a process of transformational change to become a self-managing organisation.

Marie has a love of being outdoors, her top values are; valuing every human being equally; actively listening and sensing another’s thoughts and feelings. Marie trained as a Registered Nurse for people with disabilities, and has a Diploma in Health studies.

Jan’s values are to appreciate the equal value of all people; to hold herself and others accountable and be authentic in all situations.

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We would like to sincerely thank you all for coming to the NZDSN Annual Conference 2019

From the team at NZDSN

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Welcome [] · Web viewWelcome to the eighth annual conference for the New Zealand Disability...

Documents

Transcript of Welcome [] · Web viewWelcome to the eighth annual conference for the New Zealand Disability...