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1st EuRRECa Project Group Meeting
Monday 11th March, 11:00-17:00 CETDanubius Hotel Helia, Budapest
Programme09:00 Business Meetings
09:00 - 10:00 Project Governing Board Business Meeting (Mercure conference room)
09:00 - 10:00 Independent Advisory Board Meeting (Mars Meeting Room)
10:30 - 11:00 Coffee & Registration For Project Group Meeting (Foyer, Gallery)
11:00 Start Of EuRRECa Project Group Meeting (Mercure conference room)
11:00 - 11:15 Introduction to EuRRECa and its coordination (WP01) - FA
11:20 - 11:30 Dissemination & Access (WP02) - OH
11:30 - 11:40 Quality Assurance & Evaluation (WP03) – YK
11:40 - 11:50 Core Outcomes (WP04) - OD
11:50 - 12:00 Patients, Parents & Ethics (WP05) - MC
12:00 - 12:30 Discussion
12:30 - 13:30 Lunch (Episode Restaurant)
13:30 – 13:50 e-Reporting of Rare Endocrine Conditions (WP06) – FA, JB, JBe, SA
13:50 - 14:15 Discussion
14:15 - 14:30 Core Endocrine Registry (WP06) – FA, TM
14:30 - 14:45 Discussion
14:45 – 15:30 Expert Working Group Updates – ALL EWG leads (or deputies)
15:30 – 16:30 Coffee and small group interaction (“C” lobby Gallery)
16:30 - 17:00 Summing up - FA
17:00 Close of EuRRECa Project Group Meeting
17:00 - 17:30 Independent Advisory Board Meeting